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Re: NCC-Traveling

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nne,

I have heard that many in your situation, if they can manage to get

themselves into a commercial plane, use first class seating because it will

recline almost to prone. However, if I were in your place and could not sit

up in a normal airline seat or get in an out of the plane without

significant assistance, I would try to get an " Angel Flight " using a

business jet or go in a Motor Home.

Planes are the worst for inducing vertigo. In certain situations, it can

even get pilots. (JFK, Jr.?), but in a jet, the whole thing will be over in

two hours, all the fears and discomforts included. If you need medical

assistance in route, Air ambulance services have jet planes just for such

patients.

In a Motor Home you will have most of the comforts of home, the least amount

of motion while traveling, door to door service and the quickest land based

time door to door to and from Chicago, but you will have to put up with the

discomfort of travel and movement for the 22 hours of driving that it will

take to get there.

Don't worry about safety in commercial or business jets. Per mile flown,

their record is much better that normal freeway driving and you would be at

less risk of serious injury or death than going to Chicago in a Motor Home.

There are also airsick meds that work by making the fluid in the inner ear

less viscous. One OTC med is called " Bonnie " . It may stabilize the inner

ear enough to prevent or reduce the vertigo. Perhaps you PCP may have a

prescription med that might be better.

NCC-Traveling

>Hi All,

>

>Well with or without insurance approval I have decided to go to

>Chicago for evaluation and possible surgery. I know this question has

>been asked about a million times so i apologize in advance to all the

>old members...........

>

>I need to somehow physically get this bedridden, wheelchair bound,

>extremely dizzy, orthostatically intolerant, dysautonomic body TO

>Chicago from Houston!!!!!!!!! I'm a " white knuckle " flyer partly

>because it brings about all my dysautonomia symptoms (racing heart,

>chest pain, anxiety,pre-syncope, low BP etc.) so I hesitate to fly. I

>have booked myself on the train which has a special " disabled " car,

>private bath and meals delivered. It is an 18 hour train ride plus a

>5 hour ride to the train station. I was pretty sure this was the way

>to go but have since heard form a couple of people that the train

>motion will really exacerbate my dizziness and vertigo! Yikes what

>way is best???????? BEAM ME UP SCOTTY!!!!!!!!

>

>Any advice is greatly appreciated-as usual!

>Take care, nne

>

>Brainstem compression, " tight " foramen magnum, probable cervical

>stenosis,dysautonomia/POTS, peripheral neuropathy, MVPS etc. etc etc.

>Surgery scheduled with Dr. Heffez 4/26/00

>

>

>

>_________

>NOTE: NCC refers to posts with No Chiari Content

>Unsubscribe Yourself: chiari-unsubscribeegroups

>Technical Help: chiari-owneregroups

>WACMA Home: www.pressenter.com/~wacma

>WACMA List: www.eGroups.com/group/chiari

>

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> Planes are the worst for inducing vertigo.

With Chiari induced vertigo (an not inner ear) I did not have any problems

with flying. It was easier on me that riding in a car actually. I did take

my anti-vert (meclizine) and made sure that I did not have a stuffed up

head, as that can be real bad with pressure changes. Severe vertigo was my

most bothersome symtpom too.

On the inner ear listserv I am on, most do not have problems with flying

either.

Just my 2 cents.

Suzanne

schisum@...

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> Planes are the worst for inducing vertigo.

With Chiari induced vertigo (an not inner ear) I did not have any problems

with flying. It was easier on me that riding in a car actually. I did take

my anti-vert (meclizine) and made sure that I did not have a stuffed up

head, as that can be real bad with pressure changes. Severe vertigo was my

most bothersome symtpom too.

On the inner ear listserv I am on, most do not have problems with flying

either.

Just my 2 cents.

Suzanne

schisum@...

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Guest guest

> Planes are the worst for inducing vertigo.

With Chiari induced vertigo (an not inner ear) I did not have any problems

with flying. It was easier on me that riding in a car actually. I did take

my anti-vert (meclizine) and made sure that I did not have a stuffed up

head, as that can be real bad with pressure changes. Severe vertigo was my

most bothersome symtpom too.

On the inner ear listserv I am on, most do not have problems with flying

either.

Just my 2 cents.

Suzanne

schisum@...

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