Guest guest Posted April 28, 1999 Report Share Posted April 28, 1999 HI , Bart is affected more than ADHD. He has autism. Age 9. Not formally diagnosed with mito. Kathy ---------- To: mito support group <mitoonelist> Subject: survey Date: Monday, April 27, 1998 1:00 PM I was wondering if all families with any AD(H)D in any family member had the same mito suspected or confirmed disorder(s). I was thinking we could take a survey on here and find out. If those with AD(H)D in their families would respond I would appreciate it. Also, many mito disorders affect the brain, but different mito disorders seem to affect the brain in different ways. I was wondering (going on the premise that AD(H)D IS a mito disorder) exactly how it is affecting those patients brains. I understand that there is a variance in which cells and how many get affected and to what degree, but obviously it seems to me that there still seem to be at least loose categories of brain involvement. And also some problems are structural as in areas of the brain actually being destroyed (Leigh's and Alzheimer's), while others are chemical (problems with hormones, blood sugar and oxygen levels). It seems to me that we know that the low levels of chemicals eventually destroy brain cells? It has been proven that AD(H)D patients have low levels of glucose and oxygen to the brain (at the least-certain areas) and it is known that families with AD(H)D in them generally also have Alzheimer's patients. The mito specialists are surmizing that the Alzheimer's patients are those who have undiagnosed/untreated milder forms of some mito disorder. They also think AD(H)D is a milder form of some mito disorder. If families with AD(H)D could have a diagnosis of exactly what the defect is causing their problem then maybe thru treatment they could prevent the brain deterioration/cell destruction that leads to some of them being diagnosed with Alzheimer's in late life. Are AD(H)D patients brains not able to get proper glucose and oxygen because of a problem with the brain cells themselves or just not getting them because of problems elsewhere in the body? I remember when I did get the glucose and oxygen my brain was able to function fine some years ago, but I wonder how much actual structural damage has or is happening now as more and more time goes by with improper amts so that I may end up like other family members with Alzheimer's. Scarey thought. If we could determine WHICH mito disorder these patients have they could be treated more rationally. I just think if we did the survey on here and happened to come up with a majority of AD(H)D families with the same or very similar disorder(s) we might get a clue. Hopeful shot in the dark but worth a try to me. S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 1999 Report Share Posted April 28, 1999 HI , Bart is affected more than ADHD. He has autism. Age 9. Not formally diagnosed with mito. Kathy ---------- To: mito support group <mitoonelist> Subject: survey Date: Monday, April 27, 1998 1:00 PM I was wondering if all families with any AD(H)D in any family member had the same mito suspected or confirmed disorder(s). I was thinking we could take a survey on here and find out. If those with AD(H)D in their families would respond I would appreciate it. Also, many mito disorders affect the brain, but different mito disorders seem to affect the brain in different ways. I was wondering (going on the premise that AD(H)D IS a mito disorder) exactly how it is affecting those patients brains. I understand that there is a variance in which cells and how many get affected and to what degree, but obviously it seems to me that there still seem to be at least loose categories of brain involvement. And also some problems are structural as in areas of the brain actually being destroyed (Leigh's and Alzheimer's), while others are chemical (problems with hormones, blood sugar and oxygen levels). It seems to me that we know that the low levels of chemicals eventually destroy brain cells? It has been proven that AD(H)D patients have low levels of glucose and oxygen to the brain (at the least-certain areas) and it is known that families with AD(H)D in them generally also have Alzheimer's patients. The mito specialists are surmizing that the Alzheimer's patients are those who have undiagnosed/untreated milder forms of some mito disorder. They also think AD(H)D is a milder form of some mito disorder. If families with AD(H)D could have a diagnosis of exactly what the defect is causing their problem then maybe thru treatment they could prevent the brain deterioration/cell destruction that leads to some of them being diagnosed with Alzheimer's in late life. Are AD(H)D patients brains not able to get proper glucose and oxygen because of a problem with the brain cells themselves or just not getting them because of problems elsewhere in the body? I remember when I did get the glucose and oxygen my brain was able to function fine some years ago, but I wonder how much actual structural damage has or is happening now as more and more time goes by with improper amts so that I may end up like other family members with Alzheimer's. Scarey thought. If we could determine WHICH mito disorder these patients have they could be treated more rationally. I just think if we did the survey on here and happened to come up with a majority of AD(H)D families with the same or very similar disorder(s) we might get a clue. Hopeful shot in the dark but worth a try to me. S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 1999 Report Share Posted April 28, 1999 Dear ; Amy has no ADHD symptoms at all. Her symptoms are more Parkinson's & Alstimer's-like. She also has dementia at 22 years of age- her MRI shows brain atrophy. Lynnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 1999 Report Share Posted April 28, 1999 Dear ; Amy has no ADHD symptoms at all. Her symptoms are more Parkinson's & Alstimer's-like. She also has dementia at 22 years of age- her MRI shows brain atrophy. Lynnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 1999 Report Share Posted April 28, 1999 Dear ; Amy has no ADHD symptoms at all. Her symptoms are more Parkinson's & Alstimer's-like. She also has dementia at 22 years of age- her MRI shows brain atrophy. Lynnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 1999 Report Share Posted April 29, 1999 : I am on two e-mail list, mito (this one) & micro (marce@...) for microcephaly. I often wonder if learning disabilities, mito & micro are all related. When I read the posts on the micro list (over 400 families are on it), there are many, many, many families that have older children with learning disabilities and younger children who are more involved. I have cut and pasted an example: ... " Deborah mom of 4, Vicktor 7 (severe ADHD with multiple LDs), 5, Cassandra 3, Zachary 18 months (micro, ACM, developmental delays, and mild CP). " I am not kidding there are a lot of families like this. Some folks on the micro list have been tested for mito, some haven't. But we all know how hard mito is to diagnose. I wonder what the next generation for these families will produce. My daughter is still undiagnosed with mito (has micro, plus more). But where does genetics fit in with my immediate family? I am one of seven children. As I read the mito posts I wonder if my dad doesn't have a mito disorder. (He is an only child and his mom was 28 when she had him, after several miscarriages). He has sleep apnea and is on a mask type machine and his muscle freak out at night - according to my mom. My mom had polio as a child and has recovered but has lupus as did her mother. My older five siblings (born between 1960 & 1965) seem to have no health problems. I was born in 1968 and currently have no health problems, but did have a few learning problems in grade school which I worked through. My younger brother (born in 1970) had a horrible time in school and still does. Looking back he was probably have anxiety attacks due to ADD. Okay, where am I going with this.....I think all women have the possibility to have children with genetic disorders. As they get older their chances increase. I think nutrition (not just what they eat but how the body uses it) and age play a big role too. I think there is corrective dna that helps put things right but as we age and reproduce this dna doesn't funtion properly. So as women age and bear children the younger children will have genes not as highly functional as the older children. This goes for the reproductive dna is those children as well. So since more women are having children later in life, I think we will see more and more AD(H)D and other problems as generation reproduce. Just my thoughts. Thanks for listening. Amy (mom to to younger). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2004 Report Share Posted January 29, 2004 Hi, Bev, excellent survey! My Army doctors refused to let me see an endocrinologist (would not give me a referral) nor would they let me try a trial dose of thyroid medicine at all because my test results were " borderline " and my symptoms " didn't matter. " Gentle > Hi EveryOne, > > Sometimes when I read the posts on the Thyroid lists I belong to, I am glad > I am not going to a doctor. It seems that most of them go by the TSH, and > want it " normal " , and that leaves hypothyroid patients feeling lousy still > suffering from many hypo symptoms. > > How many people here feel that they can get all the thyroid hormone they > need (the dose that takes away their symptoms of hypothyroidism) from their > doctor no matter what the TSH says? > > How many people can get Cortef, or similar, from their doctor to support > their Adrenals while taking thyroid hormone if needed? > > Thanks to those who choose to reply:-)) > > Peace, Love and Harmony, > Bev > Thyroid-Adrenal Connection: Information and Resources > http://www.bestweb.net/~om/thyroid Quote Link to comment Share on other sites More sharing options...
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