Guest guest Posted May 19, 1999 Report Share Posted May 19, 1999 In a message dated 99-05-19 11:25:28 EDT, you write: << He tells the Dr. he can see him double, ha ha ha! (I mean laughed like it was a fun trick) The eye Dr. told me he does it on purpose to get attn. What a bunch of crap-where in the hell do these people come off with this stuff? >> dear : I took Amy (20 yr.) and ph (15 1/2 yr) to the eye doctor for a check up. Amy sees double when she gets tired (yeah right- that is 80% of her life) and just wakes. The doc put prisums in her new RX. He also put progressive lense in them for photo-sensativity. Amy has one eye that is slightly crossed. Dr. can be a real pain- but I think it might be because most of them are extreamly overworked. They don't mean to be rude. I am not excuseing their behavior, just trying to comprehend. Lynnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 1999 Report Share Posted May 20, 1999 I know Lynnie. I just felt angry. I hate the old idea that everyones problems are just to get attn. Just got a Carnitor prescrip. for myself from our Dr. so will see how that helps. Husband is wanting to ignore the mammogram worry. Feeling angry at his attitude but I understand that too, he is afraid. S. Re: Docs/vision issues >From: GOLYNIE@... > >In a message dated 99-05-19 11:25:28 EDT, you write: > ><< He tells the Dr. he can see him double, ha ha ha! (I mean laughed >like it was a fun trick) The eye Dr. told me he does it on purpose to get >attn. What a bunch of crap-where in the hell do these people come off with >this stuff? >> > > >dear : > >I took Amy (20 yr.) and ph (15 1/2 yr) to the eye doctor for a check up. >Amy sees double when she gets tired (yeah right- that is 80% of her life) and >just wakes. >The doc put prisums in her new RX. He also put progressive lense in them for >photo-sensativity. Amy has one eye that is slightly crossed. Dr. can be a >real pain- but I think it might be because most of them are extreamly >overworked. They don't mean to be rude. I am not excuseing their behavior, >just trying to comprehend. > >Lynnie > >------------------------------------------------------------------------ >How many communities do you think join ONElist each day? >http://www.onelist.com >More than 1,000! Create yours now! >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 1999 Report Share Posted May 20, 1999 In a message dated 99-05-20 00:27:55 EDT, you write: << I know Lynnie. I just felt angry. I hate the old idea that everyones problems are just to get attn. Just got a Carnitor prescrip. for myself from our Dr. so will see how that helps. Husband is wanting to ignore the mammogram worry. Feeling angry at his attitude but I understand that too, he is afraid. S. >> Dear : Give the Carnitor a good LOOOOOOOOOON try. It took Amy about four months to see improvement. As for your husband and the Mam... I thing the emotional stuff is hard for them, don't you, and for our mito-husbands, well, they just have so much already. Lynnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 1999 Report Share Posted May 21, 1999 In a message dated 99-05-21 02:01:41 EDT, you write: << What are the prisms for and what are progressive lenses? I notice his eyes wandering more and more, but think he will need another eye Dr. to check it out as this one won't take that seriously. S. >> Dear : I had never heard of prisums, but evedently they are to correct double vision. One of Amy's eyes turns in slightly and, as I understand it, when she gets tired the eyes turn outward and one sees double. The prisums will correct that. Progressive is a fancy turm for glasses that darken is the light. Amy is so photosensitive that she will have a seizure if we go to the mall and she is not wearing her dark glasses, so the doc thought it a good idea to build it right into them so that if we forget the sunglasses, as we often do, Amy won't have a seizure. Lynnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 1999 Report Share Posted May 21, 1999 What are the prisms for and what are progressive lenses? I notice his eyes wandering more and more, but think he will need another eye Dr. to check it out as this one won't take that seriously. S. Re: Docs/vision issues >From: GOLYNIE@... > >In a message dated 99-05-19 11:25:28 EDT, you write: > ><< He tells the Dr. he can see him double, ha ha ha! (I mean laughed >like it was a fun trick) The eye Dr. told me he does it on purpose to get >attn. What a bunch of crap-where in the hell do these people come off with >this stuff? >> > > >dear : > >I took Amy (20 yr.) and ph (15 1/2 yr) to the eye doctor for a check up. >Amy sees double when she gets tired (yeah right- that is 80% of her life) and >just wakes. >The doc put prisums in her new RX. He also put progressive lense in them for >photo-sensativity. Amy has one eye that is slightly crossed. Dr. can be a >real pain- but I think it might be because most of them are extreamly >overworked. They don't mean to be rude. I am not excuseing their behavior, >just trying to comprehend. > >Lynnie > >------------------------------------------------------------------------ >How many communities do you think join ONElist each day? >http://www.onelist.com >More than 1,000! Create yours now! >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 1999 Report Share Posted May 21, 1999 In a message dated 99-05-21 15:51:59 EDT, you write: << Thanks Lynnie for replying. That's strange on the photosensitivity thing. 's mom always says it bothers her so much the sun actually hurts her eyes but I crave the sunlight. I wonder if has a problem with it from Connie, how would one know with a 4 yr old. He has never complained it is too bright that I remember. I will chk on the prism question and eye wandering issue. >> Dear : You know, some medical collages, like Cal Bearkeley, that train students in Optholmology have free vision projects. They like working with children (who doesn't) and may be able to help you with s vision issues. When our 20 year old son, Shea (pronounced like the Shea Statum) was in Kindergarden he was seen at Cal State Bearkeley for free! Docs have was to tell if even babies can see and just how much they see. I don't think 4 is too young to check into this. At the very least you might buy him a pare of sunglasses to use outside. That is what we have used for Amy in the past and it worked ok. Lynnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 1999 Report Share Posted May 21, 1999 Thanks Lynnie for replying. That's strange on the photosensitivity thing. 's mom always says it bothers her so much the sun actually hurts her eyes but I crave the sunlight. I wonder if has a problem with it from Connie, how would one know with a 4 yr old. He has never complained it is too bright that I remember. I will chk on the prism question and eye wandering issue. Re: Docs/vision issues >From: GOLYNIE@... > >In a message dated 99-05-21 02:01:41 EDT, you write: > ><< What are the prisms for and what are progressive lenses? I notice his eyes > wandering more and more, but think he will need another eye Dr. to check it > out as this one won't take that seriously. S. >> > >Dear : > >I had never heard of prisums, but evedently they are to correct double >vision. One of Amy's eyes turns in slightly and, as I understand it, when >she gets tired the eyes turn outward and one sees double. The prisums will >correct that. Progressive is a fancy turm for glasses that darken is the >light. Amy is so photosensitive that she will have a seizure if we go to the >mall and she is not wearing her dark glasses, so the doc thought it a good >idea to build it right into them so that if we forget the sunglasses, as we >often do, Amy won't have a seizure. > >Lynnie > >------------------------------------------------------------------------ >ONElist: where the world talks! >http://www.onelist.com >Join a new list today. >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 1999 Report Share Posted May 21, 1999 Hi , My daughter is light sensitive. Believe me, you would know if your grandson was light sensitive. Jill is totally blinded by outdoor light if she is not wearing her special glasses. Before she got the glasses she would not walk without help because she couldn't see anything and she was two at the time. Re: Docs/vision issues > > >>From: GOLYNIE@... >> >>In a message dated 99-05-21 02:01:41 EDT, you write: >> >><< What are the prisms for and what are progressive lenses? I notice his >eyes >> wandering more and more, but think he will need another eye Dr. to check >it >> out as this one won't take that seriously. S. >> >> >>Dear : >> >>I had never heard of prisums, but evedently they are to correct double >>vision. One of Amy's eyes turns in slightly and, as I understand it, when >>she gets tired the eyes turn outward and one sees double. The prisums will >>correct that. Progressive is a fancy turm for glasses that darken is the >>light. Amy is so photosensitive that she will have a seizure if we go to >the >>mall and she is not wearing her dark glasses, so the doc thought it a good >>idea to build it right into them so that if we forget the sunglasses, as we >>often do, Amy won't have a seizure. >> >>Lynnie >> >>------------------------------------------------------------------------ >>ONElist: where the world talks! >>http://www.onelist.com >>Join a new list today. >>------------------------------------------------------------------------ >>Brought to you by www.imdn.org - an on-line support group for those >affected by mitochondrial disease. >> > > >------------------------------------------------------------------------ >Having difficulty getting " in synch " with list members? >http://www.onelist.com >Try ONElist's Shared Calendar to organize events, meetings and more! >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 1999 Report Share Posted May 21, 1999 Thanks , I won't worry over that one then! S. Re: Docs/vision issues >> >> >>>From: GOLYNIE@... >>> >>>In a message dated 99-05-21 02:01:41 EDT, you write: >>> >>><< What are the prisms for and what are progressive lenses? I notice his >>eyes >>> wandering more and more, but think he will need another eye Dr. to check >>it >>> out as this one won't take that seriously. S. >> >>> >>>Dear : >>> >>>I had never heard of prisums, but evedently they are to correct double >>>vision. One of Amy's eyes turns in slightly and, as I understand it, when >>>she gets tired the eyes turn outward and one sees double. The prisums >will >>>correct that. Progressive is a fancy turm for glasses that darken is the >>>light. Amy is so photosensitive that she will have a seizure if we go to >>the >>>mall and she is not wearing her dark glasses, so the doc thought it a good >>>idea to build it right into them so that if we forget the sunglasses, as >we >>>often do, Amy won't have a seizure. >>> >>>Lynnie >>> >>>------------------------------------------------------------------------ >>>ONElist: where the world talks! >>>http://www.onelist.com >>>Join a new list today. >>>------------------------------------------------------------------------ >>>Brought to you by www.imdn.org - an on-line support group for those >>affected by mitochondrial disease. >>> >> >> >>------------------------------------------------------------------------ >>Having difficulty getting " in synch " with list members? >>http://www.onelist.com >>Try ONElist's Shared Calendar to organize events, meetings and more! >>------------------------------------------------------------------------ >>Brought to you by www.imdn.org - an on-line support group for those >affected by mitochondrial disease. >> > > >------------------------------------------------------------------------ >Looking to expand your world? >http://www.onelist.com >ONElist has nearly 150,000 e-mail communities from which to chose! >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 1999 Report Share Posted May 21, 1999 ...... One of the first symptoms I noticed was the photosensitivity. It remains a major issue to this day, but I wear photogray lenses. They automatically adjust to the amount of light present. Sometimes when I first come in from outdoors, if I take them off and look at them, they are very dark, but everything still seems " normal " to me. I have been asked how I can see anything (indoors), when I am not even aware that they have darkened. I do, however, love and crave the sun. I like the warmth and the feeling of the sun, tho I am not a " sun sitter. " Merril Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 1999 Report Share Posted May 22, 1999 Just a note about progressive lenses. Our doc suggested that the progressive type lenses don't afford enough protection for a truely light sensitive person, because they tend not to be as dark as they should be. It was recommended to us that we use very dark lenses to protect the eyes and unfortunately get a seperate pair. Also, I was told that the changing lenses can cause problems for some folks that are really sensitive. So be sure to check that out before ordering those kind of lenses, as they are quite expensive. Also, there is no doubt about light sensitivity, because Caitlin will actually close her eyes or cover her head in the car, to protect her eyes. Occasionally she will be outside and her eyes are exposed to the sun and within a very short period of time the whites of her eyes, become very red, as if they are burned or irritated. Jeannine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 1999 Report Share Posted May 22, 1999 Lynnie, I will just ask him if the sun bothers his eyes. I don't see any evidence of it. I may chk out the college tho for the wandering eye thing. Good idea. S. Re: Docs/vision issues >From: GOLYNIE@... > >In a message dated 99-05-21 15:51:59 EDT, you write: > ><< Thanks Lynnie for replying. That's strange on the photosensitivity thing. > 's mom always says it bothers her so much the sun actually hurts her > eyes but I crave the sunlight. I wonder if has a problem with it from > Connie, how would one know with a 4 yr old. He has never complained it is > too bright that I remember. > I will chk on the prism question and eye wandering issue. >> > >Dear : > >You know, some medical collages, like Cal Bearkeley, that train students in >Optholmology have free vision projects. They like working with children (who >doesn't) and may be able to help you with s vision issues. When our 20 >year old son, Shea (pronounced like the Shea Statum) was in Kindergarden he >was seen at Cal State Bearkeley for free! Docs have was to tell if even >babies can see and just how much they see. I don't think 4 is too young to >check into this. At the very least you might buy him a pare of sunglasses to >use outside. That is what we have used for Amy in the past and it worked ok. > >Lynnie > >------------------------------------------------------------------------ >What do lizards and rock music have in common? >http://www.onelist.com >They both have communities at ONElist. Find yours today! >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 1999 Report Share Posted May 22, 1999 Hi, Prism is also to correct nystagmus , does your child have? If yes, it can really be good for it. Denyse ----- Message d'origine ----- De : À : <Mitoonelist> Envoyé : 21 mai, 1999 03:53 Objet : Re: Docs/vision issues > From: GOLYNIE@... > > In a message dated 99-05-21 02:01:41 EDT, you write: > > << What are the prisms for and what are progressive lenses? I notice his eyes > wandering more and more, but think he will need another eye Dr. to check it > out as this one won't take that seriously. S. >> > > Dear : > > I had never heard of prisums, but evedently they are to correct double > vision. One of Amy's eyes turns in slightly and, as I understand it, when > she gets tired the eyes turn outward and one sees double. The prisums will > correct that. Progressive is a fancy turm for glasses that darken is the > light. Amy is so photosensitive that she will have a seizure if we go to the > mall and she is not wearing her dark glasses, so the doc thought it a good > idea to build it right into them so that if we forget the sunglasses, as we > often do, Amy won't have a seizure. > > Lynnie > > ------------------------------------------------------------------------ > ONElist: where the world talks! > http://www.onelist.com > Join a new list today. > ------------------------------------------------------------------------ > Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 1999 Report Share Posted May 22, 1999 What is the technical term for the eyes wandering? S. Re: Docs/vision issues Hi, Prism is also to correct nystagmus , does your child have? If yes, it can really be good for it. Denyse ----- Message d'origine ----- De : À : <Mitoonelist> Envoyé : 21 mai, 1999 03:53 Objet : Re: Docs/vision issues > From: GOLYNIE@... > > In a message dated 99-05-21 02:01:41 EDT, you write: > > << What are the prisms for and what are progressive lenses? I notice his eyes > wandering more and more, but think he will need another eye Dr. to check it > out as this one won't take that seriously. S. >> > > Dear : > > I had never heard of prisums, but evedently they are to correct double > vision. One of Amy's eyes turns in slightly and, as I understand it, when > she gets tired the eyes turn outward and one sees double. The prisums will > correct that. Progressive is a fancy turm for glasses that darken is the > light. Amy is so photosensitive that she will have a seizure if we go to the > mall and she is not wearing her dark glasses, so the doc thought it a good > idea to build it right into them so that if we forget the sunglasses, as we > often do, Amy won't have a seizure. > > Lynnie > > ------------------------------------------------------------------------ > ONElist: where the world talks! > http://www.onelist.com > Join a new list today. > ------------------------------------------------------------------------ > Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. ------------------------------------------------------------------------ How many communities do you think join ONElist each day? http://www.onelist.com More than 1,000! Create yours now! ------------------------------------------------------------------------ Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 1999 Report Share Posted May 22, 1999 This is " NYSTAGMUS " , My son has a mitochondrial diseases not named for now and he was born with a low vision. The nystagmus is an involontary movement of the eyes and it is a sign of low vision. Denyse ----- Message d'origine ----- De : À : <Mitoonelist> Envoyé : 22 mai, 1999 00:04 Objet : Re: Docs/vision issues > > > What is the technical term for the eyes wandering? S. > > Re: Docs/vision issues > > > > > Hi, > Prism is also to correct nystagmus , does your child have? If yes, it can > really be good for it. > Denyse > ----- Message d'origine ----- > De : > À : <Mitoonelist> > Envoyé : 21 mai, 1999 03:53 > Objet : Re: Docs/vision issues > > > > From: GOLYNIE@... > > > > In a message dated 99-05-21 02:01:41 EDT, you write: > > > > << What are the prisms for and what are progressive lenses? I notice his > eyes > > wandering more and more, but think he will need another eye Dr. to check > it > > out as this one won't take that seriously. S. >> > > > > Dear : > > > > I had never heard of prisums, but evedently they are to correct double > > vision. One of Amy's eyes turns in slightly and, as I understand it, when > > she gets tired the eyes turn outward and one sees double. The prisums > will > > correct that. Progressive is a fancy turm for glasses that darken is the > > light. Amy is so photosensitive that she will have a seizure if we go to > the > > mall and she is not wearing her dark glasses, so the doc thought it a good > > idea to build it right into them so that if we forget the sunglasses, as > we > > often do, Amy won't have a seizure. > > > > Lynnie > > > > ------------------------------------------------------------------------ > > ONElist: where the world talks! > > http://www.onelist.com > > Join a new list today. > > ------------------------------------------------------------------------ > > Brought to you by www.imdn.org - an on-line support group for those > affected by mitochondrial disease. > > > ------------------------------------------------------------------------ > How many communities do you think join ONElist each day? > http://www.onelist.com > More than 1,000! Create yours now! > ------------------------------------------------------------------------ > Brought to you by www.imdn.org - an on-line support group for those affected > by mitochondrial disease. > > > > ------------------------------------------------------------------------ > What do lizards and rock music have in common? > http://www.onelist.com > They both have communities at ONElist. Find yours today! > ------------------------------------------------------------------------ > Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 1999 Report Share Posted May 23, 1999 Denyse, What I see doing is he will be watching something and you see one eye move slowly towards his nose while the other stays focused ahead. Or both eyes will move toward the nose slowly. I'm not sure what's happening. I know when something helps my eye muscles I feel the eyes pull back and towards my nose and everything I see seems very crystal clear-not fuzzy like an out of focus camera focusing in. I don't know if this is anything to do with nystagmus or that is more rapid eye movements while this is just weak and wandering eyes. S. Re: Docs/vision issues > > > > > Hi, > Prism is also to correct nystagmus , does your child have? If yes, it can > really be good for it. > Denyse > ----- Message d'origine ----- > De : > À : <Mitoonelist> > Envoyé : 21 mai, 1999 03:53 > Objet : Re: Docs/vision issues > > > > From: GOLYNIE@... > > > > In a message dated 99-05-21 02:01:41 EDT, you write: > > > > << What are the prisms for and what are progressive lenses? I notice his > eyes > > wandering more and more, but think he will need another eye Dr. to check > it > > out as this one won't take that seriously. S. >> > > > > Dear : > > > > I had never heard of prisums, but evedently they are to correct double > > vision. One of Amy's eyes turns in slightly and, as I understand it, when > > she gets tired the eyes turn outward and one sees double. The prisums > will > > correct that. Progressive is a fancy turm for glasses that darken is the > > light. Amy is so photosensitive that she will have a seizure if we go to > the > > mall and she is not wearing her dark glasses, so the doc thought it a good > > idea to build it right into them so that if we forget the sunglasses, as > we > > often do, Amy won't have a seizure. > > > > Lynnie > > > > ------------------------------------------------------------------------ > > ONElist: where the world talks! > > http://www.onelist.com > > Join a new list today. > > ------------------------------------------------------------------------ > > Brought to you by www.imdn.org - an on-line support group for those > affected by mitochondrial disease. > > > ------------------------------------------------------------------------ > How many communities do you think join ONElist each day? > http://www.onelist.com > More than 1,000! Create yours now! > ------------------------------------------------------------------------ > Brought to you by www.imdn.org - an on-line support group for those affected > by mitochondrial disease. > > > > ------------------------------------------------------------------------ > What do lizards and rock music have in common? > http://www.onelist.com > They both have communities at ONElist. Find yours today! > ------------------------------------------------------------------------ > Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. ------------------------------------------------------------------------ How many communities do you think join ONElist each day? http://www.onelist.com More than 1,000! Create yours now! ------------------------------------------------------------------------ Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 1999 Report Share Posted May 23, 1999 Denyse, What I see doing is he will be watching something and you see one eye move slowly towards his nose while the other stays focused ahead. Or both eyes will move toward the nose slowly. I'm not sure what's happening. I know when something helps my eye muscles I feel the eyes pull back and towards my nose and everything I see seems very crystal clear-not fuzzy like an out of focus camera focusing in. I don't know if this is anything to do with nystagmus or that is more rapid eye movements while this is just weak and wandering eyes. S. Re: Docs/vision issues > > > > > Hi, > Prism is also to correct nystagmus , does your child have? If yes, it can > really be good for it. > Denyse > ----- Message d'origine ----- > De : > À : <Mitoonelist> > Envoyé : 21 mai, 1999 03:53 > Objet : Re: Docs/vision issues > > > > From: GOLYNIE@... > > > > In a message dated 99-05-21 02:01:41 EDT, you write: > > > > << What are the prisms for and what are progressive lenses? I notice his > eyes > > wandering more and more, but think he will need another eye Dr. to check > it > > out as this one won't take that seriously. S. >> > > > > Dear : > > > > I had never heard of prisums, but evedently they are to correct double > > vision. One of Amy's eyes turns in slightly and, as I understand it, when > > she gets tired the eyes turn outward and one sees double. The prisums > will > > correct that. Progressive is a fancy turm for glasses that darken is the > > light. Amy is so photosensitive that she will have a seizure if we go to > the > > mall and she is not wearing her dark glasses, so the doc thought it a good > > idea to build it right into them so that if we forget the sunglasses, as > we > > often do, Amy won't have a seizure. > > > > Lynnie > > > > ------------------------------------------------------------------------ > > ONElist: where the world talks! > > http://www.onelist.com > > Join a new list today. > > ------------------------------------------------------------------------ > > Brought to you by www.imdn.org - an on-line support group for those > affected by mitochondrial disease. > > > ------------------------------------------------------------------------ > How many communities do you think join ONElist each day? > http://www.onelist.com > More than 1,000! Create yours now! > ------------------------------------------------------------------------ > Brought to you by www.imdn.org - an on-line support group for those affected > by mitochondrial disease. > > > > ------------------------------------------------------------------------ > What do lizards and rock music have in common? > http://www.onelist.com > They both have communities at ONElist. Find yours today! > ------------------------------------------------------------------------ > Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. ------------------------------------------------------------------------ How many communities do you think join ONElist each day? http://www.onelist.com More than 1,000! Create yours now! ------------------------------------------------------------------------ Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 1999 Report Share Posted May 23, 1999 , Your description sounds like strabismus to me. This is a correctable condition and needs to be seen by an eye care specialist. Alice Re: Docs/vision issues >> >> >> >> >> Hi, >> Prism is also to correct nystagmus , does your child have? If yes, it can >> really be good for it. >> Denyse >> ----- Message d'origine ----- >> De : >> À : <Mitoonelist> >> Envoyé : 21 mai, 1999 03:53 >> Objet : Re: Docs/vision issues >> >> >> > From: GOLYNIE@... >> > >> > In a message dated 99-05-21 02:01:41 EDT, you write: >> > >> > << What are the prisms for and what are progressive lenses? I notice his >> eyes >> > wandering more and more, but think he will need another eye Dr. to >check >> it >> > out as this one won't take that seriously. S. >> >> > >> > Dear : >> > >> > I had never heard of prisums, but evedently they are to correct double >> > vision. One of Amy's eyes turns in slightly and, as I understand it, >when >> > she gets tired the eyes turn outward and one sees double. The prisums >> will >> > correct that. Progressive is a fancy turm for glasses that darken is >the >> > light. Amy is so photosensitive that she will have a seizure if we go >to >> the >> > mall and she is not wearing her dark glasses, so the doc thought it a >good >> > idea to build it right into them so that if we forget the sunglasses, as >> we >> > often do, Amy won't have a seizure. >> > >> > Lynnie >> > >> > ------------------------------------------------------------------------ >> > ONElist: where the world talks! >> > http://www.onelist.com >> > Join a new list today. >> > ------------------------------------------------------------------------ >> > Brought to you by www.imdn.org - an on-line support group for those >> affected by mitochondrial disease. >> >> >> ------------------------------------------------------------------------ >> How many communities do you think join ONElist each day? >> http://www.onelist.com >> More than 1,000! Create yours now! >> ------------------------------------------------------------------------ >> Brought to you by www.imdn.org - an on-line support group for those >affected >> by mitochondrial disease. >> >> >> >> ------------------------------------------------------------------------ >> What do lizards and rock music have in common? >> http://www.onelist.com >> They both have communities at ONElist. Find yours today! >> ------------------------------------------------------------------------ >> Brought to you by www.imdn.org - an on-line support group for those >affected by mitochondrial disease. > > >------------------------------------------------------------------------ >How many communities do you think join ONElist each day? >http://www.onelist.com >More than 1,000! Create yours now! >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected >by mitochondrial disease. > > > >------------------------------------------------------------------------ >ONElist: the best source for group communications. >http://www.onelist.com >Join a new list today! >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 1999 Report Share Posted May 23, 1999 Alice, you are correct and I will get him in to another eye Dr. about that as soon as I can. I knew that from before with some of the other's of us but couldn't remember the name and when the the term nystagmus came up I got confused with the terms. My oldest son esp. had the same problem. They tried eye exercises and some therapy but it seemed a waste. I was young and ignorant and too overwhelmed then. What a wonderful thing to have this computer and this list with all these bright and loving people. Love, Re: Docs/vision issues >>> >>> >>> >>> >>> Hi, >>> Prism is also to correct nystagmus , does your child have? If yes, it can >>> really be good for it. >>> Denyse >>> ----- Message d'origine ----- >>> De : >>> À : <Mitoonelist> >>> Envoyé : 21 mai, 1999 03:53 >>> Objet : Re: Docs/vision issues >>> >>> >>> > From: GOLYNIE@... >>> > >>> > In a message dated 99-05-21 02:01:41 EDT, you write: >>> > >>> > << What are the prisms for and what are progressive lenses? I notice >his >>> eyes >>> > wandering more and more, but think he will need another eye Dr. to >>check >>> it >>> > out as this one won't take that seriously. S. >> >>> > >>> > Dear : >>> > >>> > I had never heard of prisums, but evedently they are to correct double >>> > vision. One of Amy's eyes turns in slightly and, as I understand it, >>when >>> > she gets tired the eyes turn outward and one sees double. The prisums >>> will >>> > correct that. Progressive is a fancy turm for glasses that darken is >>the >>> > light. Amy is so photosensitive that she will have a seizure if we go >>to >>> the >>> > mall and she is not wearing her dark glasses, so the doc thought it a >>good >>> > idea to build it right into them so that if we forget the sunglasses, >as >>> we >>> > often do, Amy won't have a seizure. >>> > >>> > Lynnie >>> > >>> >> ------------------------------------------------------------------------ >>> > ONElist: where the world talks! >>> > http://www.onelist.com >>> > Join a new list today. >>> >> ------------------------------------------------------------------------ >>> > Brought to you by www.imdn.org - an on-line support group for those >>> affected by mitochondrial disease. >>> >>> >>> ------------------------------------------------------------------------ >>> How many communities do you think join ONElist each day? >>> http://www.onelist.com >>> More than 1,000! Create yours now! >>> ------------------------------------------------------------------------ >>> Brought to you by www.imdn.org - an on-line support group for those >>affected >>> by mitochondrial disease. >>> >>> >>> >>> ------------------------------------------------------------------------ >>> What do lizards and rock music have in common? >>> http://www.onelist.com >>> They both have communities at ONElist. Find yours today! >>> ------------------------------------------------------------------------ >>> Brought to you by www.imdn.org - an on-line support group for those >>affected by mitochondrial disease. >> >> >>------------------------------------------------------------------------ >>How many communities do you think join ONElist each day? >>http://www.onelist.com >>More than 1,000! Create yours now! >>------------------------------------------------------------------------ >>Brought to you by www.imdn.org - an on-line support group for those >affected >>by mitochondrial disease. >> >> >> >>------------------------------------------------------------------------ >>ONElist: the best source for group communications. >>http://www.onelist.com >>Join a new list today! >>------------------------------------------------------------------------ >>Brought to you by www.imdn.org - an on-line support group for those >affected by mitochondrial disease. >> > > >------------------------------------------------------------------------ >ONElist: bringing the world together. >http://www.onelist.com >Join a new list today! >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 1999 Report Share Posted May 24, 1999 In a message dated 99-05-21 23:09:33 EDT, you write: << Hi, Prism is also to correct nystagmus , does your child have? If yes, it can really be good for it. Denyse >> Dear Denyse: Yes, absolutely she does have nystagmus. Good point! Lynnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 1999 Report Share Posted May 24, 1999 In a message dated 99-05-21 23:09:33 EDT, you write: << Hi, Prism is also to correct nystagmus , does your child have? If yes, it can really be good for it. Denyse >> Dear Denyse: Yes, absolutely she does have nystagmus. Good point! Lynnie Quote Link to comment Share on other sites More sharing options...
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