Guest guest Posted February 20, 2001 Report Share Posted February 20, 2001 one day at a time, with humor and maybe a change of diet toward more healthy fabulous foods. empowerment. research and support. talking about it. supporting funding. remember, everything is possible. you can be in a relationship, have kids, and maybe move into a roommate situation if you don't want to live alone. I remember at a block party one time, this neighbor was holding a tiny baby. He told me he adopted the infant. I remember him saying, " you know gigi, after a week you forget this baby was ever adopted. " Love is love wherever and however it comes or is created. I myself have had relationships with men I didn't want to be in and kids I didn't want to know anymore. In fact, I am feeling that way about my adolescent sons right now. I think all adolescent boys should be sent to the Outback and put to ground, be feral. Then in 3-4 years, when they've regained their senses, you could pick 'em up. Lol. I'm just saying, take heart, possibilities are everywhere, as are gifts and magic. gg juliemm@... wrote: > Hi All! > > I am new to the group but not to Fibroids. I am 31 years old and had > never heard of Fibriods until January of 2000. In February of 2000, I > had a Myomectomy. I had two Fibroids one the size of a golf ball and > one very large one (10 cm). I can't remember the last time I felt > normal. > > I went for a check up and I have yet another fibriod as well as a > cyst in my right ovary. I try to think postive but sometimes I lose > it. I have no children, I am not in a realationship and I live alone. > I have some support, which helps. > > I have to go for another ultrasound in two weeks if the cyst isn't > gone then my doctor is going to remove it. I fell like this will > never end. > > How does very one cope? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2001 Report Share Posted February 20, 2001 one day at a time, with humor and maybe a change of diet toward more healthy fabulous foods. empowerment. research and support. talking about it. supporting funding. remember, everything is possible. you can be in a relationship, have kids, and maybe move into a roommate situation if you don't want to live alone. I remember at a block party one time, this neighbor was holding a tiny baby. He told me he adopted the infant. I remember him saying, " you know gigi, after a week you forget this baby was ever adopted. " Love is love wherever and however it comes or is created. I myself have had relationships with men I didn't want to be in and kids I didn't want to know anymore. In fact, I am feeling that way about my adolescent sons right now. I think all adolescent boys should be sent to the Outback and put to ground, be feral. Then in 3-4 years, when they've regained their senses, you could pick 'em up. Lol. I'm just saying, take heart, possibilities are everywhere, as are gifts and magic. gg juliemm@... wrote: > Hi All! > > I am new to the group but not to Fibroids. I am 31 years old and had > never heard of Fibriods until January of 2000. In February of 2000, I > had a Myomectomy. I had two Fibroids one the size of a golf ball and > one very large one (10 cm). I can't remember the last time I felt > normal. > > I went for a check up and I have yet another fibriod as well as a > cyst in my right ovary. I try to think postive but sometimes I lose > it. I have no children, I am not in a realationship and I live alone. > I have some support, which helps. > > I have to go for another ultrasound in two weeks if the cyst isn't > gone then my doctor is going to remove it. I fell like this will > never end. > > How does very one cope? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2001 Report Share Posted February 20, 2001 one day at a time, with humor and maybe a change of diet toward more healthy fabulous foods. empowerment. research and support. talking about it. supporting funding. remember, everything is possible. you can be in a relationship, have kids, and maybe move into a roommate situation if you don't want to live alone. I remember at a block party one time, this neighbor was holding a tiny baby. He told me he adopted the infant. I remember him saying, " you know gigi, after a week you forget this baby was ever adopted. " Love is love wherever and however it comes or is created. I myself have had relationships with men I didn't want to be in and kids I didn't want to know anymore. In fact, I am feeling that way about my adolescent sons right now. I think all adolescent boys should be sent to the Outback and put to ground, be feral. Then in 3-4 years, when they've regained their senses, you could pick 'em up. Lol. I'm just saying, take heart, possibilities are everywhere, as are gifts and magic. gg juliemm@... wrote: > Hi All! > > I am new to the group but not to Fibroids. I am 31 years old and had > never heard of Fibriods until January of 2000. In February of 2000, I > had a Myomectomy. I had two Fibroids one the size of a golf ball and > one very large one (10 cm). I can't remember the last time I felt > normal. > > I went for a check up and I have yet another fibriod as well as a > cyst in my right ovary. I try to think postive but sometimes I lose > it. I have no children, I am not in a realationship and I live alone. > I have some support, which helps. > > I have to go for another ultrasound in two weeks if the cyst isn't > gone then my doctor is going to remove it. I fell like this will > never end. > > How does very one cope? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2001 Report Share Posted April 9, 2001 Have you seen the fertility specialist? Is that who you are scheduled with to have the Laprascopy with? I did not have a D & C with my fibroids. You may ask some others in the group that have had D & C's if this is acceptable procedure. Ask a fertility specialist( Reproductive Endocrinologist) about future children, How soon? Before any procedure is done? After procedure is done? I you do not like the answers get another opinion it may be well worth your efforts! I have had a myomectomy in the past and am now recovering from UAE. I was able to have my son after the myomectomy with no complications. Also I had a fibroid in my uterus the same time I was carring my son. I do not know if your planning on children in the future but you seem young to even suggest a Hysterectomy. If children are in your future you may have to decide this sooner than you anticipated due to the fibroids. I hope this is helpfull and you get the best care you can Sincerely patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 , I think you should get a second opinion before you undergo any of these procedures. Always remember that fibroids do not require hysterectomy. The fact that your relatives had hysterectomies doesn't mean they should have. Read Dr. Stanley West's book The Hysterectomy Hoax. It is very helpful. Where do you live? Do you need a referral to find another doctor? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 , I think you should get a second opinion before you undergo any of these procedures. Always remember that fibroids do not require hysterectomy. The fact that your relatives had hysterectomies doesn't mean they should have. Read Dr. Stanley West's book The Hysterectomy Hoax. It is very helpful. Where do you live? Do you need a referral to find another doctor? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 Hi . Let me start by saying, welcome. I hope you find this group helpful... I know I have. I'm pretty much in the same boat you are, though a few steps ahead. I'm 26 now and was diagnosed when I was 23. Amazing that we got these so young, huh? All the literature says that it's common in women ages 35 and over. Joke's on us, I guess. As a result of my fibroids I went the UAE route and have been extremely happy with the results. That's not to say that I'm functioning normally (whatever that means), but I'm better. I'm not bleeding everyday. I'm not having clots. I can no longer feel my fibroids. I'm not carrying a box of tampons/pads everywhere I go. I'm living my life, finally. I would really suggest you get a second opinion. The first dr told me that there was a chance I would be completely infertile and probably had cancer!! Ha! You can bet your bottom I ran away from him as fast as possible to find a dr that 1. had a better bedside manner and 2. could tell me what was really going on! It sounds anyway like you are not completely confident with your dr. If you're going to be successful at all, you must have a dr you can trust - and is willing to communicate with you about ALL your options. I really just wanted to let you know you're not alone. And yes, things will work out somehow. They always do. Good luck. - > I am 24 and was first diagnosed with fibroids in Oct. 2000. I was > hospitalized because of the pain and spent a week there because they couldn't > decide what was wrong with me. The gyn. decided on fibroids after a cat > scan, numerous x-rays, and of course the ultrasound. Was not fun. I had an > infection and they didn't know why. Needless to say he scared me with the > words surgery and fertility specialist. I was 23 at the time. I've always > though I didn't want children until the option was taken away. He put me on > BCP. Never told me where the fibroid(s) were or how many. I found out later > that my uterus was the size of a 13 week pregnancy. Thank God my mom's best > friend in a nurse! My periods have never been what you would call regular. > Two weeks was always the longest with a very heavy bleeding about every 3-4 > months. Very frustrating. With the BCP's my period is now 7 days with heavy > heavy bleeding for about 3 days. It's awful. I was referred to a > specialist. I am now having a laproascopy, a D & C and hysterscopy on the 24th > of this month. The fibroid he is concerned about has grown a cm since Oct. > and is not attached on the inside of my uterus, he thinks. He also thinks > there may be another fibroid but couldn't be sure. He doesn't think he'll be > able to do anything about the heavy bleeding though. I'm scared to death > because fibroids run in my family and everyone who has them has had a > hysterectomy. They've also been in their 40's and have had their children. > I guess I'm looking for reassurances that things will be okay. I wasn't > given any other options except what I listed. Is this normal? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 Hi . Let me start by saying, welcome. I hope you find this group helpful... I know I have. I'm pretty much in the same boat you are, though a few steps ahead. I'm 26 now and was diagnosed when I was 23. Amazing that we got these so young, huh? All the literature says that it's common in women ages 35 and over. Joke's on us, I guess. As a result of my fibroids I went the UAE route and have been extremely happy with the results. That's not to say that I'm functioning normally (whatever that means), but I'm better. I'm not bleeding everyday. I'm not having clots. I can no longer feel my fibroids. I'm not carrying a box of tampons/pads everywhere I go. I'm living my life, finally. I would really suggest you get a second opinion. The first dr told me that there was a chance I would be completely infertile and probably had cancer!! Ha! You can bet your bottom I ran away from him as fast as possible to find a dr that 1. had a better bedside manner and 2. could tell me what was really going on! It sounds anyway like you are not completely confident with your dr. If you're going to be successful at all, you must have a dr you can trust - and is willing to communicate with you about ALL your options. I really just wanted to let you know you're not alone. And yes, things will work out somehow. They always do. Good luck. - > I am 24 and was first diagnosed with fibroids in Oct. 2000. I was > hospitalized because of the pain and spent a week there because they couldn't > decide what was wrong with me. The gyn. decided on fibroids after a cat > scan, numerous x-rays, and of course the ultrasound. Was not fun. I had an > infection and they didn't know why. Needless to say he scared me with the > words surgery and fertility specialist. I was 23 at the time. I've always > though I didn't want children until the option was taken away. He put me on > BCP. Never told me where the fibroid(s) were or how many. I found out later > that my uterus was the size of a 13 week pregnancy. Thank God my mom's best > friend in a nurse! My periods have never been what you would call regular. > Two weeks was always the longest with a very heavy bleeding about every 3-4 > months. Very frustrating. With the BCP's my period is now 7 days with heavy > heavy bleeding for about 3 days. It's awful. I was referred to a > specialist. I am now having a laproascopy, a D & C and hysterscopy on the 24th > of this month. The fibroid he is concerned about has grown a cm since Oct. > and is not attached on the inside of my uterus, he thinks. He also thinks > there may be another fibroid but couldn't be sure. He doesn't think he'll be > able to do anything about the heavy bleeding though. I'm scared to death > because fibroids run in my family and everyone who has them has had a > hysterectomy. They've also been in their 40's and have had their children. > I guess I'm looking for reassurances that things will be okay. I wasn't > given any other options except what I listed. Is this normal? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 Hi . Let me start by saying, welcome. I hope you find this group helpful... I know I have. I'm pretty much in the same boat you are, though a few steps ahead. I'm 26 now and was diagnosed when I was 23. Amazing that we got these so young, huh? All the literature says that it's common in women ages 35 and over. Joke's on us, I guess. As a result of my fibroids I went the UAE route and have been extremely happy with the results. That's not to say that I'm functioning normally (whatever that means), but I'm better. I'm not bleeding everyday. I'm not having clots. I can no longer feel my fibroids. I'm not carrying a box of tampons/pads everywhere I go. I'm living my life, finally. I would really suggest you get a second opinion. The first dr told me that there was a chance I would be completely infertile and probably had cancer!! Ha! You can bet your bottom I ran away from him as fast as possible to find a dr that 1. had a better bedside manner and 2. could tell me what was really going on! It sounds anyway like you are not completely confident with your dr. If you're going to be successful at all, you must have a dr you can trust - and is willing to communicate with you about ALL your options. I really just wanted to let you know you're not alone. And yes, things will work out somehow. They always do. Good luck. - > I am 24 and was first diagnosed with fibroids in Oct. 2000. I was > hospitalized because of the pain and spent a week there because they couldn't > decide what was wrong with me. The gyn. decided on fibroids after a cat > scan, numerous x-rays, and of course the ultrasound. Was not fun. I had an > infection and they didn't know why. Needless to say he scared me with the > words surgery and fertility specialist. I was 23 at the time. I've always > though I didn't want children until the option was taken away. He put me on > BCP. Never told me where the fibroid(s) were or how many. I found out later > that my uterus was the size of a 13 week pregnancy. Thank God my mom's best > friend in a nurse! My periods have never been what you would call regular. > Two weeks was always the longest with a very heavy bleeding about every 3-4 > months. Very frustrating. With the BCP's my period is now 7 days with heavy > heavy bleeding for about 3 days. It's awful. I was referred to a > specialist. I am now having a laproascopy, a D & C and hysterscopy on the 24th > of this month. The fibroid he is concerned about has grown a cm since Oct. > and is not attached on the inside of my uterus, he thinks. He also thinks > there may be another fibroid but couldn't be sure. He doesn't think he'll be > able to do anything about the heavy bleeding though. I'm scared to death > because fibroids run in my family and everyone who has them has had a > hysterectomy. They've also been in their 40's and have had their children. > I guess I'm looking for reassurances that things will be okay. I wasn't > given any other options except what I listed. Is this normal? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 Thank you Margaret. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 Thank you Margaret. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 Patty- The specialist is the one that suggested the surgery. He says that children are possible. The D & C is suppose to be like a cleaning. I should know more soon though. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 Patty- The specialist is the one that suggested the surgery. He says that children are possible. The D & C is suppose to be like a cleaning. I should know more soon though. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2001 Report Share Posted June 19, 2001 Why not look into UAE? I have similar symptoms, have never considered a myomectomy. I don't want to have children but many women who have had UAE go on to have normal pregnancies. My UAE is scheduled for 6/26. I have read several posts from women who seem to think that UAE will not help or cannot be done if their uterus is too large. Everything I have read on the embo list refutes this, even women with 16 -20 cm fibroids have had successful UAE's. new to the group Hello ladies: This is my first post. I've been suffering with fibroids for at least 20 years. I've had two abdominal myomectomies, first in l988, second in 1998. Both times my fibroids were ENORMOUS. Over twenty weeks and severely anemic. No children. In December I had a hysteroscopy after my doctor told me I had a small submucuous fibroid. Now, barely seven months later, I fear that there may be another problem. Tremendous urinating (a bad sign) some tenderness in the uterine area when I press. Last period was very light but long maybe 15 or 16 days. I just can't bear the idea of another problem and maybe all of this is okay. Could some of you tell me what you think. ly, for me, it's the urinary pressure which makes me most nervous. Of course, I should go back to my doctor--who walks on water but I may be overly sensitive and nothing is wrong. I'd really like to know have any of you experienced rapid regrowth. I guess with my history two major surgeries with huge fibroids, the cha! nces of another fibroid causing these annoying problems is possible Any thoughts. Thanks. email nyceve@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2001 Report Share Posted June 19, 2001 Wait a minute...this is an excerpt from the original message: > From: nyceve@... > Hello ladies: > > This is my first post. I've been suffering with fibroids for at least 20 > years. I've had two abdominal myomectomies, first in l988, second in 1998... ....In December I had a hysteroscopy after my doctor told me I had > a small submucuous fibroid. Now, barely seven months later, I fear that > there may be another problem. ... Could some of you tell me what you think. > nyceve@... (From me, B.): The last myomectomy was in 1998, and in December, " nyceve " was told she had a SMALL submucous fibroid. How big is the fibroid/uterus now? nyceve, I would find out how big your fibroid/uterus is now and then go from there. UAE is a good consideration if you don't want your fibroids to grow back. It may be a viable option for you. But as pointed out, a large uterus can inhibit how well UAE works. The fibroids only shrink a certain percentage with UAE, so if it shrinks by half, and your uterus is large, the shrinkage amount may not be enough to resolve your symptoms. B. Re: new to the group Caution! I had a very large uterus and UAE was NOT successful...I would research this very carefully before embarking on UAE on a large uterus. Bonnie Roianne wrote: > Why not look into UAE? ... I have read several posts from women who seem to think that UAE will not help or cannot be done if their uterus is too large. Everything I have read on the embo list refutes this, even women with 16 -20 cm fibroids have had successful UAE's. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2001 Report Share Posted June 19, 2001 Wait a minute...this is an excerpt from the original message: > From: nyceve@... > Hello ladies: > > This is my first post. I've been suffering with fibroids for at least 20 > years. I've had two abdominal myomectomies, first in l988, second in 1998... ....In December I had a hysteroscopy after my doctor told me I had > a small submucuous fibroid. Now, barely seven months later, I fear that > there may be another problem. ... Could some of you tell me what you think. > nyceve@... (From me, B.): The last myomectomy was in 1998, and in December, " nyceve " was told she had a SMALL submucous fibroid. How big is the fibroid/uterus now? nyceve, I would find out how big your fibroid/uterus is now and then go from there. UAE is a good consideration if you don't want your fibroids to grow back. It may be a viable option for you. But as pointed out, a large uterus can inhibit how well UAE works. The fibroids only shrink a certain percentage with UAE, so if it shrinks by half, and your uterus is large, the shrinkage amount may not be enough to resolve your symptoms. B. Re: new to the group Caution! I had a very large uterus and UAE was NOT successful...I would research this very carefully before embarking on UAE on a large uterus. Bonnie Roianne wrote: > Why not look into UAE? ... I have read several posts from women who seem to think that UAE will not help or cannot be done if their uterus is too large. Everything I have read on the embo list refutes this, even women with 16 -20 cm fibroids have had successful UAE's. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2001 Report Share Posted June 19, 2001 Wait a minute...this is an excerpt from the original message: > From: nyceve@... > Hello ladies: > > This is my first post. I've been suffering with fibroids for at least 20 > years. I've had two abdominal myomectomies, first in l988, second in 1998... ....In December I had a hysteroscopy after my doctor told me I had > a small submucuous fibroid. Now, barely seven months later, I fear that > there may be another problem. ... Could some of you tell me what you think. > nyceve@... (From me, B.): The last myomectomy was in 1998, and in December, " nyceve " was told she had a SMALL submucous fibroid. How big is the fibroid/uterus now? nyceve, I would find out how big your fibroid/uterus is now and then go from there. UAE is a good consideration if you don't want your fibroids to grow back. It may be a viable option for you. But as pointed out, a large uterus can inhibit how well UAE works. The fibroids only shrink a certain percentage with UAE, so if it shrinks by half, and your uterus is large, the shrinkage amount may not be enough to resolve your symptoms. B. Re: new to the group Caution! I had a very large uterus and UAE was NOT successful...I would research this very carefully before embarking on UAE on a large uterus. Bonnie Roianne wrote: > Why not look into UAE? ... I have read several posts from women who seem to think that UAE will not help or cannot be done if their uterus is too large. Everything I have read on the embo list refutes this, even women with 16 -20 cm fibroids have had successful UAE's. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2001 Report Share Posted June 19, 2001 Yes, some women do have complications from UAE. From your previous posts on the embo list you said you had a unilateral UAE, from everything I have read this is not the way it is done now and it is not surprising that it was not successful. I have my own reservations about UAE, but the low incidence of complications compared to a hysterectomy and the amount of recovery time made the decision easier, (not easy) for me. There have been many successful UAE's for women who have large fibroids, there is also a difference between uterine size and Fibroid size. My IR has been very straight with me, told me of all the complications possible and side effects. He cautions that UAE may not be as effective on larger fibroids but has also said that when he has done a UAE on women with larger fibroids he has been amazed at the amount of reduction that has occured and also how many women who have not had as much reduction in size but whose bulk symptoms went away. As a nurse I have been able to ask questions that most women would not even think of and I have been to every website and medical journal available looking for information. The main thing is to look at all the options and make an informed decision. Roianne new to the group > > Hello ladies: > > This is my first post. I've been suffering with fibroids for at least 20 > years. I've had two abdominal myomectomies, first in l988, second in 1998. > Both times my fibroids were ENORMOUS. Over twenty weeks and severely anemic. > No children. In December I had a hysteroscopy after my doctor told me I had > a small submucuous fibroid. Now, barely seven months later, I fear that > there may be another problem. Tremendous urinating (a bad sign) some > tenderness in the uterine area when I press. Last period was very light but > long maybe 15 or 16 days. I just can't bear the idea of another problem and > maybe all of this is okay. Could some of you tell me what you think. > ly, for me, it's the urinary pressure which makes me most nervous. Of > course, I should go back to my doctor--who walks on water but I may be > overly sensitive and nothing is wrong. I'd really like to know have any of > you experienced rapid regrowth. I guess with my history two major surgeries > with huge fibroids, the cha! > nces of another fibroid causing > these annoying problems is possible Any thoughts. Thanks. email > nyceve@... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2001 Report Share Posted June 19, 2001 Yes, some women do have complications from UAE. From your previous posts on the embo list you said you had a unilateral UAE, from everything I have read this is not the way it is done now and it is not surprising that it was not successful. I have my own reservations about UAE, but the low incidence of complications compared to a hysterectomy and the amount of recovery time made the decision easier, (not easy) for me. There have been many successful UAE's for women who have large fibroids, there is also a difference between uterine size and Fibroid size. My IR has been very straight with me, told me of all the complications possible and side effects. He cautions that UAE may not be as effective on larger fibroids but has also said that when he has done a UAE on women with larger fibroids he has been amazed at the amount of reduction that has occured and also how many women who have not had as much reduction in size but whose bulk symptoms went away. As a nurse I have been able to ask questions that most women would not even think of and I have been to every website and medical journal available looking for information. The main thing is to look at all the options and make an informed decision. Roianne new to the group > > Hello ladies: > > This is my first post. I've been suffering with fibroids for at least 20 > years. I've had two abdominal myomectomies, first in l988, second in 1998. > Both times my fibroids were ENORMOUS. Over twenty weeks and severely anemic. > No children. In December I had a hysteroscopy after my doctor told me I had > a small submucuous fibroid. Now, barely seven months later, I fear that > there may be another problem. Tremendous urinating (a bad sign) some > tenderness in the uterine area when I press. Last period was very light but > long maybe 15 or 16 days. I just can't bear the idea of another problem and > maybe all of this is okay. Could some of you tell me what you think. > ly, for me, it's the urinary pressure which makes me most nervous. Of > course, I should go back to my doctor--who walks on water but I may be > overly sensitive and nothing is wrong. I'd really like to know have any of > you experienced rapid regrowth. I guess with my history two major surgeries > with huge fibroids, the cha! > nces of another fibroid causing > these annoying problems is possible Any thoughts. Thanks. email > nyceve@... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2001 Report Share Posted June 19, 2001 Yes, some women do have complications from UAE. From your previous posts on the embo list you said you had a unilateral UAE, from everything I have read this is not the way it is done now and it is not surprising that it was not successful. I have my own reservations about UAE, but the low incidence of complications compared to a hysterectomy and the amount of recovery time made the decision easier, (not easy) for me. There have been many successful UAE's for women who have large fibroids, there is also a difference between uterine size and Fibroid size. My IR has been very straight with me, told me of all the complications possible and side effects. He cautions that UAE may not be as effective on larger fibroids but has also said that when he has done a UAE on women with larger fibroids he has been amazed at the amount of reduction that has occured and also how many women who have not had as much reduction in size but whose bulk symptoms went away. As a nurse I have been able to ask questions that most women would not even think of and I have been to every website and medical journal available looking for information. The main thing is to look at all the options and make an informed decision. Roianne new to the group > > Hello ladies: > > This is my first post. I've been suffering with fibroids for at least 20 > years. I've had two abdominal myomectomies, first in l988, second in 1998. > Both times my fibroids were ENORMOUS. Over twenty weeks and severely anemic. > No children. In December I had a hysteroscopy after my doctor told me I had > a small submucuous fibroid. Now, barely seven months later, I fear that > there may be another problem. Tremendous urinating (a bad sign) some > tenderness in the uterine area when I press. Last period was very light but > long maybe 15 or 16 days. I just can't bear the idea of another problem and > maybe all of this is okay. Could some of you tell me what you think. > ly, for me, it's the urinary pressure which makes me most nervous. Of > course, I should go back to my doctor--who walks on water but I may be > overly sensitive and nothing is wrong. I'd really like to know have any of > you experienced rapid regrowth. I guess with my history two major surgeries > with huge fibroids, the cha! > nces of another fibroid causing > these annoying problems is possible Any thoughts. Thanks. email > nyceve@... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2001 Report Share Posted June 19, 2001 I'm reacting to a the suggestions that a very large uterus be undertaken for UAE Bonnie Browning wrote: > Wait a minute...this is an excerpt from the original message: > > > From: nyceve@... > > Hello ladies: > > > > This is my first post. I've been suffering with fibroids for at least 20 > > years. I've had two abdominal myomectomies, first in l988, second in 1998... > ...In December I had a hysteroscopy after my doctor told me I had > > a small submucuous fibroid. Now, barely seven months later, I fear that > > there may be another problem. ... Could some of you tell me what you think. > > nyceve@... > > (From me, B.): The last myomectomy was in 1998, and in December, " nyceve " was told she had a SMALL submucous fibroid. How big is the fibroid/uterus now? > > nyceve, I would find out how big your fibroid/uterus is now and then go from there. UAE is a good consideration if you don't want your fibroids to grow back. It may be a viable option for you. But as pointed out, a large uterus can inhibit how well UAE works. The fibroids only shrink a certain percentage with UAE, so if it shrinks by half, and your uterus is large, the shrinkage amount may not be enough to resolve your symptoms. > > B. > > Re: new to the group > > Caution! I had a very large uterus and UAE was NOT successful...I would research this very carefully before embarking on UAE on a large uterus. > Bonnie > > Roianne wrote: > > > Why not look into UAE? ... I have read several posts from women who seem to think that UAE will not help or cannot be done if their uterus is too large. Everything I have read on the embo list refutes this, even women with 16 -20 cm fibroids have had successful UAE's. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2001 Report Share Posted June 19, 2001 I'm reacting to a the suggestions that a very large uterus be undertaken for UAE Bonnie Browning wrote: > Wait a minute...this is an excerpt from the original message: > > > From: nyceve@... > > Hello ladies: > > > > This is my first post. I've been suffering with fibroids for at least 20 > > years. I've had two abdominal myomectomies, first in l988, second in 1998... > ...In December I had a hysteroscopy after my doctor told me I had > > a small submucuous fibroid. Now, barely seven months later, I fear that > > there may be another problem. ... Could some of you tell me what you think. > > nyceve@... > > (From me, B.): The last myomectomy was in 1998, and in December, " nyceve " was told she had a SMALL submucous fibroid. How big is the fibroid/uterus now? > > nyceve, I would find out how big your fibroid/uterus is now and then go from there. UAE is a good consideration if you don't want your fibroids to grow back. It may be a viable option for you. But as pointed out, a large uterus can inhibit how well UAE works. The fibroids only shrink a certain percentage with UAE, so if it shrinks by half, and your uterus is large, the shrinkage amount may not be enough to resolve your symptoms. > > B. > > Re: new to the group > > Caution! I had a very large uterus and UAE was NOT successful...I would research this very carefully before embarking on UAE on a large uterus. > Bonnie > > Roianne wrote: > > > Why not look into UAE? ... I have read several posts from women who seem to think that UAE will not help or cannot be done if their uterus is too large. Everything I have read on the embo list refutes this, even women with 16 -20 cm fibroids have had successful UAE's. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2001 Report Share Posted June 19, 2001 I do not think that all complications are being accurately reported-mine were not.The uni-lateral would have lessened the symptoms -NOT increased them.In other words God only knows what would have happened had both sides been done. I have also understood that some IRs will not accept patients over a certain size.To keep in mind also is that any surgery,infectious or inflammatory process MAY create adhesions and may make other options more difficult should the UAE not work out. My intention is to contribute MY experience towards an informed choice. Best, bonnie Roianne wrote: > Yes, some women do have complications from UAE. From your previous posts on > the embo list you said you had a unilateral UAE, from everything I have read > this is not the way it is done now and it is not surprising that it was not > successful. I have my own reservations about UAE, but the low incidence of > complications compared to a hysterectomy and the amount of recovery time > made the decision easier, (not easy) for me. > > There have been many successful UAE's for women who have large fibroids, > there is also a difference between uterine size and Fibroid size. My IR has > been very straight with me, told me of all the complications possible and > side effects. He cautions that UAE may not be as effective on larger > fibroids but has also said that when he has done a UAE on women with larger > fibroids he has been amazed at the amount of reduction that has occured and > also how many women who have not had as much reduction in size but whose > bulk symptoms went away. As a nurse I have been able to ask questions that > most women would not even think of and I have been to every website and > medical journal available looking for information. > > The main thing is to look at all the options and make an informed decision. > > Roianne > new to the group > > > > Hello ladies: > > > > This is my first post. I've been suffering with fibroids for at least > 20 > > years. I've had two abdominal myomectomies, first in l988, second in > 1998. > > Both times my fibroids were ENORMOUS. Over twenty weeks and severely > anemic. > > No children. In December I had a hysteroscopy after my doctor told me I > had > > a small submucuous fibroid. Now, barely seven months later, I fear that > > there may be another problem. Tremendous urinating (a bad sign) some > > tenderness in the uterine area when I press. Last period was very light > but > > long maybe 15 or 16 days. I just can't bear the idea of another problem > and > > maybe all of this is okay. Could some of you tell me what you think. > > ly, for me, it's the urinary pressure which makes me most nervous. > Of > > course, I should go back to my doctor--who walks on water but I may be > > overly sensitive and nothing is wrong. I'd really like to know have any > of > > you experienced rapid regrowth. I guess with my history two major > surgeries > > with huge fibroids, the cha! > > nces of another fibroid causing > > these annoying problems is possible Any thoughts. Thanks. email > > nyceve@... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2006 Report Share Posted October 13, 2006 Hi . I'm Trista , 36 w/ 4 boys. No dx as of yet. Welcome! Trista New to the group My name is . I am new to the group and not real good at the computer. I am learning though. I am 33 years old and have MS. I was diagnosed one year ago. I have two beautiful children. I wanted to get involved with a group that could relate with what I deal with everyday of my life. I think I found that with you all. Thanks for being here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2006 Report Share Posted October 13, 2006 Hi , Welcome aboard! ) I'm Challis... daughter of Sharon (Wobbletowalk), who has MS and leads our list. She brought me here a couple years ago and everyone has been wonderful! ) I don't have a dx myself, but I know there's an answer for me somewhere out there. I can probably trace symptoms back 7 to 10 years and just about two years ago I finally decided to see what I might find out. I found a Neuro, did the eval, lab work, brain MRI, and the follow-up left me feeling worse than when I went in! LOL No answers. But that Neuro grasped at some interesting straws. LOL Now I've just been sitting and waiting. Until yesterday and I finally made a phone call to another Neuro. This Neuro I met when my eldest son saw him recently. My doc had mentioned him long ago, too. I can't say I'm either happy or eager to see the Neuro, but I'm doing it anyway! LOL My husband is and we live in Arizona where we raise our four children. is 19½ now and I'm not really sure how that happened. LOL is 16, Jenna is 6½ and Maya is 3. It's nice to meet you! ) Challis ~PS... if you're new to the comptuer, maybe I should explain some of those goofy letters and such, just in case? lol LOL = Laughing Out Load. ) is a smile, sideways. I think that's it. hey, that might be a record low for me. LOL jensabeamer wrote: My name is . I am new to the group and not real good at the computer. I am learning though. I am 33 years old and have MS. I was diagnosed one year ago. I have two beautiful children. I wanted to get involved with a group that could relate with what I deal with everyday of my life. I think I found that with you all. Thanks for being here. Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
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