Re: Trach Infection...the saga continues

[Guest guest]

Sue and Jack, Thank goodness for 's own inner strength and what loving

parents you both are. I will remember in my prayers.

I have to tell you I was surprised to see you say he couldn't keep his stats

past the upper 80's. I took Tylynn the 9 yr old in for some Zyrtek refill

thinking he is well but the Dr. did a breathing test and his #s came out

like 67, and 80s, and maybe on 90. I took the test strip back to the Dr.

from the lab thinking this is fine and he was shocked. He said in no

uncertain terms that his breathing is way too compromised and he is to have

a breathing treatment morning and night (the home spray thing). I was so

shocked and I guess until I saw your message I still couldn't believe it was

SO bad as the Dr. seemed to feel.

Maybe this is alot of Tylynn's problems with just laying in his room and

trouble thinking and of course why with the least sickness I have to run him

to the hospital for the reg. breathing treatments.

My older son couldn't get in the armed services for the asthma either and

Tylynn is such a carbon copy of Clay in so many ways.

I hope recovers and is home soon. S.

Trach Infection...the saga continues

>

>

>Hi Everyone,

> Sorry for the cross posting. This is just a quickie as I'm heading

>back to the hospital. First I would like to thank everyone who wrote me

>about 's trach infection. It was wonderful info and I used it to ask

>the doc questions. I ended up taking into the ER last night

(Tuesday)

>because he still wasn't breathing right. Actually I called the ped and he

>said to bring in. Well 6 hours and 2 LONG breathing treatments

later,

> couldn't keep his sats past the upper 80's w/o O2 so he was admitted.

>He is still coughing alot even though nothing much is coming up. It was

>explained to me that 's cough is from Reactive Airway Disease since

the

>chest x-ray didn't show pneumonia or anything. The ped did take another

>sample of 's secretions to check for tracheitis and to rule out

>anything else wrong with it. He also changed his antibiotic to one that I

>never heard of but I guess is better for Pseudamonas. Poor little

has

>been coughing for a week straight and it's no wonder he hasn't ruptured his

>trachea! He's such a trooper. He did even cry when they put the IV in.

>Again thanks for all your help, and if you're the praying kind, could you

>send some 's way? Thanks!! Heidi, and my family, I'll write ya

>as soon as I can. Jack's here though. )

>

>Sue ( & Jack)-worn out parents to the greatest kids on earth--

>Chris-8: Leigh's Disease, MR (mild), hypotonia, non-walker/talker

>-7: Leigh's Disease, MR (mild), hypotonia, non-walker/talker, trach

>tube (tracheomalasia), g-tube/fundo http://jscb.home.mindspring.com

>

>

>------------------------------------------------------------------------

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>Brought to you by www.imdn.org - an on-line support group for those

affected by mitochondrial disease.

>

[Guest guest]

Yes, I will include little in my prayers.

Linna with CPEO

Sue & Jack wrote:

>

>

>

> Hi Everyone,

> Sorry for the cross posting. This is just a quickie as I'm heading

> back to the hospital. First I would like to thank everyone who wrote me

> about 's trach infection. It was wonderful info and I used it to ask

> the doc questions. I ended up taking into the ER last night (Tuesday)

> because he still wasn't breathing right. Actually I called the ped and he

> said to bring in. Well 6 hours and 2 LONG breathing treatments later,

> couldn't keep his sats past the upper 80's w/o O2 so he was admitted.

> He is still coughing alot even though nothing much is coming up. It was

> explained to me that 's cough is from Reactive Airway Disease since the

> chest x-ray didn't show pneumonia or anything. The ped did take another

> sample of 's secretions to check for tracheitis and to rule out

> anything else wrong with it. He also changed his antibiotic to one that I

> never heard of but I guess is better for Pseudamonas. Poor little has

> been coughing for a week straight and it's no wonder he hasn't ruptured his

> trachea! He's such a trooper. He did even cry when they put the IV in.

> Again thanks for all your help, and if you're the praying kind, could you

> send some 's way? Thanks!! Heidi, and my family, I'll write ya

> as soon as I can. Jack's here though. )

>

> Sue ( & Jack)-worn out parents to the greatest kids on earth--

> Chris-8: Leigh's Disease, MR (mild), hypotonia, non-walker/talker

> -7: Leigh's Disease, MR (mild), hypotonia, non-walker/talker, trach

> tube (tracheomalasia), g-tube/fundo http://jscb.home.mindspring.com

>

> ------------------------------------------------------------------------

> Start a new hobby. Meet a new friend.

> http://www.onelist.com

> ONElist: The leading provider of free e-mail list services!

> ------------------------------------------------------------------------

> Brought to you by www.imdn.org - an on-line support group for those affected

by mitochondrial disease.