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Re: Digest Number 207

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Christa,

In answer to your questions:

3. What are the chances if you are a celiac women, that your children will have it? Both parents have to be a carrier of the gene in order for one of their children

to get the disease.

5. I am also curious how you guys handle situations when you are at places where poeple don't know you are celiac and they ask questions why you are eating what you are eating or why you ask all these questions about the meal. I've tried the "I have bad allergies" response, but it usually just prompts more questions that I end up explaining the disease anyone. It's not a simple or usual disease to explain. I've gotten a lot of sarcastic and rude responses back and I get the impression that many people think I am exaggerating. I was just wondering if anyone had come up with a concise, simple answer that does not require much elaboration.

I just respind by saying that I have Celiac Disease and the treatment is not to have anything with Wheat, Rye Barley or Oats. Yes it does trigger questions also but I think that is because the person asking is truely interested in learning.

Donna

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Actually, both parents do NOT have to be carriers. One parent alone can pass DQ2 and/or DQ8 to the child.

Danna

Re: Digest Number 207

Christa,

In answer to your questions:

3. What are the chances if you are a celiac women, that your children will have it? Both parents have to be a carrier of the gene in order for one of their children

to get the disease.

5. I am also curious how you guys handle situations when you are at places where poeple don't know you are celiac and they ask questions why you are eating what you are eating or why you ask all these questions about the meal. I've tried the "I have bad allergies" response, but it usually just prompts more questions that I end up explaining the disease anyone. It's not a simple or usual disease to explain. I've gotten a lot of sarcastic and rude responses back and I get the impression that many people think I am exaggerating. I was just wondering if anyone had come up with a concise, simple answer that does not require much elaboration.

I just respind by saying that I have Celiac Disease and the treatment is not to have anything with Wheat, Rye Barley or Oats. Yes it does trigger questions also but I think that is because the person asking is truely interested in learning.

Donna

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Danna

I have Celiac and neither of my parents do. Is that possible?

Thanks,

Cari

Re: Digest Number 207

Christa,

In answer to your questions:

3. What are the chances if you are a celiac women, that your children will have it? Both parents have to be a carrier of the gene in order for one of their children

to get the disease.

5. I am also curious how you guys handle situations when you are at places where poeple don't know you are celiac and they ask questions why you are eating what you are eating or why you ask all these questions about the meal. I've tried the "I have bad allergies" response, but it usually just prompts more questions that I end up explaining the disease anyone. It's not a simple or usual disease to explain. I've gotten a lot of sarcastic and rude responses back and I get the impression that many people think I am exaggerating. I was just wondering if anyone had come up with a concise, simple answer that does not require much elaboration.

I just respind by saying that I have Celiac Disease and the treatment is not to have anything with Wheat, Rye Barley or Oats. Yes it does trigger questions also but I think that is because the person asking is truely interested in learning.

Donna

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Hi Cari,

I'm not Danna, but I do know the answer to that question. Yes, it is

possible. One of your parents was a carrier of the gene (it is also

possible that they both are carriers), only an estimated 30% (I think

that is the right number) of people with the gene actually get the

disease. This accounts for all of those out there who's parents aren't

diagnosed with the disease. It is also possible that one or both of

your parents do actually have the disease and are just not symptomatic

enough to be tested, or not producing enough antibodies to show

positive if they have in fact tested negative.

I hope this helps to answer your question.

God bless,

nn

Cari wrote:

Danna

I have Celiac and neither of my parents do. Is that possible?

Thanks,

Cari

-----

Original Message -----

From:

Danna

Korn - Raising Our Celiac Kids

To:

SillyYaks

Sent:

Tuesday, January 20, 2004 9:24 AM

Subject:

Re: Digest Number 207

Actually, both parents do NOT

have to be carriers. One parent alone can pass DQ2 and/or DQ8 to the

child.

Danna

-----

Original Message -----

From:

eyef0rg0t@...

To:

SillyYaks

Sent:

Monday, January 19, 2004 5:55 PM

Subject:

Re: Digest Number 207

Christa,

In answer to your questions:

3. What are the chances if you are a celiac women,

that your children will have it?

Both parents have to

be a carrier of the gene in order for one of their children

to get the disease.

5. I am also curious

how you guys handle situations when you are at places where poeple

don't know you are celiac and they ask questions why you are eating

what you are eating or why you ask all these questions about the meal.

I've tried the "I have bad allergies" response, but it usually just

prompts more questions that I end up explaining the disease anyone.

It's not a simple or usual disease to explain. I've gotten a lot of

sarcastic and rude responses back and I get the impression that many

people think I am exaggerating. I was just wondering if anyone had

come up with a concise, simple answer that does not require much

elaboration.

I just respind by saying that

I have Celiac Disease and the treatment is not to have anything with

Wheat, Rye Barley or Oats. Yes it does trigger questions also but I

think that is because the person asking is truely interested in

learning.

Donna

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