Guest guest Posted May 23, 2000 Report Share Posted May 23, 2000 Hi everyone, I just wanted to share with you all my findings at my biofeedback consultation today with Dr. Glazer. I have no muscle tone, 0, ZILCH. Just like that flat line we see on ER when the patient dies! Last year a biofeedback center said it was one of the highest resting levels they'd ever seen and now my muscle level was a flat line way at the bottom of the screen. My resting level was about .1 ( should be 1 -2) and my maximum strength was a 4 (should be 25 - 30). I am devastated. This is yet another finding that my extreme, unrelenting pain is due to a neurological disorder. And except for Allan, it seems like it is a very difficult task to find a neurologist with an interest in pelvic pain. I guess there is Dr. Wesselman at JH, but my neurologist knew of no one in the NYC area. What a nightmare. I did get something new to try - an anti-inflammatory. I also will get off the Doxepin and citrate due to the severe constipation. That can't be good for the muscles there. I will also try neurontin again. I have so much to live for - but I just don't know how I will do it if nothing works as seems to be my typical pattern. Perhaps these things will help. It is so hard to keep up hoping. Sandi Quote Link to comment Share on other sites More sharing options...
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