Enterolab

[Guest guest]

I attended a lecture by Dr. Fasano <http://www.celiaccenter.org/> on

Sunday and he was questioned about the stool test (without mentioning

any names). He said that the doctor (Dr. Fine, but again, no names

were mentioned) is the only person in the world claiming to get

accurate results via the stool test and he has yet to publish any

research results so that they can be reviewed and tested by other

scientists in the standard way. Because of this lack of documentation

and false results he has seen in his patients, he does not recommend

the stool tests.

I was wondering what your thoughts are on this. Dr. Fine's research

and results may be statistically accurate, but if so, why not allow his

research to be reviewed by his peers? Is he a quack out to make a

quick buck or is he legitimate but financially selfish? If he is

legitimate he is preventing millions of people outside the US from

benefitting from his work. Legitimate research is subjected to review

and testing with the main proving point being a " Yes. " to the question

" Can the reported results be duplicated by another scientist? " So,

thoughts anyone?

julie

---

IM/Yahoo/LJ: Maguire708

ICQ: 54035938

NCSSM '91

Antioch '95

IWG #708

[Guest guest]

I had to use Enterolab to get a diagnosis because I had been off

gluten a year before I being tested. Blood test and biopsy were

negative, although I now know my GI only took one biopsy sample.

They are supposed to take at least six. I am happy to have my

gluten sensitivity diagnosis because it is better than nothing. It

is bittersweet, though, because it is not generally recognized by

medical professionals, and has led to many tears while leaving

doctors' offices. I feel like a " second-class " celiac, if you will.

I don't have a GI to consult, like other celiacs. I am basically a

patient without a doctor. My current family doctor doesn't even

know of my condition, because I refuse to be treated like I'm crazy

again. It's insane that I'm afraid to tell my doctor I'm sick. I

just see him for minor things. There are so many drawbacks to this

diagnosis, but at least it's available, and maybe someday all the

work Dr. Fine is doing will be recognized for what it is: PROOF of a

life-threatening illness! The upside to my diagnosis is my family

members now are slowly starting to get tested. You can't argue with

a gene test. I could go on and on, but I honestly don't know if I

should. I rarely see Enterolab come up in these posts, and when it

does, it seems like very few people, if any, reply. I finally

decided to add my two-cents worth today to see if there of others

who used Enterolab. Anybody out there?

Audrey

> Hi, Everyone,

> I have another question. Actually a few. Has anyone used the stool

test from

> Enterolabs to diagnose gluten sensitivity? Also, have you used any

of the

> other tests besides the gene test I hear about? From my thinking

(and it

> could be flawed) I would rather have a definite gliadin presence

in the

> stool than wonder if I am in the 81% of the population that might

get

> celiac. The real reason I am asking though is that my 2nd son

tested

> negative on the blood test but showed classic symptoms, i.e. B12

deficiency

> anemia, malnutrition, lymphopenia, fell half of the growth chart

in one

> year, diarrhea, stomach aches, rash, it goes on. I don't need a

formal

> diagnosis for him to know that he is not doing gluten in any form.

But now

> my 15 month old is anemic, irritable and has never had a formed

stool (but

> doesn't have chronic diarrhea). He's slimmed down and dropped from

85% in

> height to 60%. He's wheat free but not gluten free. He has also

started the

> night wakings. Wouldn't it be better to do a stool test on him? I

also have

> a 6 year old with no symptoms other than a very fine rash that

looks like

> goose bumps in a few places. I noticed that they clear up when

he's been off

> wheat for a while. If I do a gene test and he's potentially celiac

and I

> stop him from consuming gluten, and then he gets into it at a

friend's house

> or school is he more likely to have an autoimmune response? Am I

being

> paranoid? This is fairly new to us. (And to complicate things the

biochemist

> said food allergies-which my middle son has-- can mimic celiac

> symptoms---AUGHHH!)

>

>

> Marcie Concepcion

[Guest guest]

Audrey,

I used EnteroLab after I had a negative blood test and negative biopsy (the inflammation in my intestines was ignored). I have read that 15 samples for a celiac biopsy is best because sometimes celiac disease is only in patches in the intestine--I had 6 in the small intestines. I also had gone gluten-free before the blood test, with a two or three-week gluten challenge before the biopsy. I will NEVER do a gluten challenge again, period! Having gone gluten-free already and having such remarkable and pleasing changes in my body, I knew I had to be a celiac. (My latest delightful change in a long list of delightful changes is that my poker-straight hair is growing in curly, thicker and dark instead of gray--although other celiacs might have different changes.)

My long-suffering Yale-educated family doctor who was able to make improvements around the edges, but was never able to figure out what was fundamentally wrong with me, listened to me talk about EnteroLab, read their materials, and gave me an order for their tests. My gastroenterologist said that Dr. Fine was a very respected gastroenterologist. My EnteroLab tests came back positive for gluten sensitivity, fat malabsorption, casein sensitive and a celiac gene. (It felt great to be validated!.) Dr. Fine cannot say that a person is a celiac because a positive biopsy is required for that.

It should help to tell a questioning doctor that the United State government states that the celiac biopsy has too high a threshold to catch all of those who have celiac disease, and it is working on changing the testing standard. http://www.ahrq.gov/clinic/epcsums/celiacsum.htm

And it should help to show the doctor that the U.S. Patent Office has approved Dr. Fine's/EnteroLab's "novel" method in December, 2003. International patents are pending. EnteroLab's gene tests are done by conventional genetic testing.

http://www.pharmcast.com/Patents100/Yr2003/Dec2003/122303/6667160_Food122303.htm

It should also help to show that the celiac blood test has false negatives and false positives, the celiac biopsy has false negatives and false positives, and the celiac gene test has false negatives and false positives. However, a positive celiac gene test also should help because it proves you, at the minimum, have the potential of having celiac disease.

And there is a lot of research supporting Dr. Fine/EnteroLab's method. See http://www.enterolab.com ; http://www.intestinalhealth.org/ ; and http://www.finerhealth.com More information/discussion of Dr. Fine's/EnteroLab's method are available at http://health.groups.yahoo.com/group/GlutenSensitivity/

My attitude is that since doctors have been able to peer review his method since it has been patented and have found nothing wrong, I wouldn't respect any doctor who rejects Dr. Fine/EnteroLab because he has has no research to support his position. There is an enormous amount of research to support Dr. Fine/EnteroLab linked above.

And, of course, anyone that goes on a gluten-free diet who is doing much better should have their diet respected regardless of what test supports it.

Jo Anne

Re: Enterolab

I had to use Enterolab to get a diagnosis because I had been off gluten a year before I being tested. Blood test and biopsy were negative, although I now know my GI only took one biopsy sample. They are supposed to take at least six. I am happy to have my gluten sensitivity diagnosis because it is better than nothing. It is bittersweet, though, because it is not generally recognized by medical professionals, and has led to many tears while leaving doctors' offices. I feel like a "second-class" celiac, if you will. I don't have a GI to consult, like other celiacs. I am basically a patient without a doctor. My current family doctor doesn't even know of my condition, because I refuse to be treated like I'm crazy again. It's insane that I'm afraid to tell my doctor I'm sick. I just see him for minor things. There are so many drawbacks to this diagnosis, but at least it's available, and maybe someday all the work Dr. Fine is doing will be recognized for what it is: PROOF of a life-threatening illness! The upside to my diagnosis is my family members now are slowly starting to get tested. You can't argue with a gene test. I could go on and on, but I honestly don't know if I should. I rarely see Enterolab come up in these posts, and when it does, it seems like very few people, if any, reply. I finally decided to add my two-cents worth today to see if there of others who used Enterolab. Anybody out there?Audrey> Hi, Everyone,> I have another question. Actually a few. Has anyone used the stool test from> Enterolabs to diagnose gluten sensitivity? Also, have you used any of the> other tests besides the gene test I hear about? From my thinking (and it> could be flawed) I would rather have a definite gliadin presence in the> stool than wonder if I am in the 81% of the population that might get> celiac. The real reason I am asking though is that my 2nd son tested> negative on the blood test but showed classic symptoms, i.e. B12 deficiency> anemia, malnutrition, lymphopenia, fell half of the growth chart in one> year, diarrhea, stomach aches, rash, it goes on. I don't need a formal> diagnosis for him to know that he is not doing gluten in any form. But now> my 15 month old is anemic, irritable and has never had a formed stool (but> doesn't have chronic diarrhea). He's slimmed down and dropped from 85% in> height to 60%. He's wheat free but not gluten free. He has also started the> night wakings. Wouldn't it be better to do a stool test on him? I also have> a 6 year old with no symptoms other than a very fine rash that looks like> goose bumps in a few places. I noticed that they clear up when he's been off> wheat for a while. If I do a gene test and he's potentially celiac and I> stop him from consuming gluten, and then he gets into it at a friend's house> or school is he more likely to have an autoimmune response? Am I being> paranoid? This is fairly new to us. (And to complicate things the biochemist> said food allergies-which my middle son has-- can mimic celiac> symptoms---AUGHHH!)> > > Marcie Concepcion