Guest guest Posted February 20, 1999 Report Share Posted February 20, 1999 Lori- You might want to look at some of the materials on autisim. There are many sources that have plans for teaching social interaction. I have some info at school on one such program. I will look it up and give you the information. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 1999 Report Share Posted February 20, 1999 Lori- You might want to look at some of the materials on autisim. There are many sources that have plans for teaching social interaction. I have some info at school on one such program. I will look it up and give you the information. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 1999 Report Share Posted February 20, 1999 Hi Laurie, I have been wondering if perhaps Alycia might have some mild PDD. I have been reluctant to admit it but it seems like there are some signs of it showing up. I keep waiting for her to outgrow her difficulties interaction with peers so I haven't been quite ready to think in terms of autism or PDD but....I think I need to start thinking about this. I would appreciate any information you can send my way. Thankyou, Lori Laurie wrote: > > > Lori- > > You might want to look at some of the materials on autisim. There are > many sources that have plans for teaching social interaction. I have > some info at school on one such program. I will look it up and give you > the information. > > Laurie > > ------------------------------------------------------------------------ > We have a new web site! http://www.onelist.com > ------------------------------------------------------------------------ > Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 1999 Report Share Posted February 20, 1999 Hi Laurie, I have been wondering if perhaps Alycia might have some mild PDD. I have been reluctant to admit it but it seems like there are some signs of it showing up. I keep waiting for her to outgrow her difficulties interaction with peers so I haven't been quite ready to think in terms of autism or PDD but....I think I need to start thinking about this. I would appreciate any information you can send my way. Thankyou, Lori Laurie wrote: > > > Lori- > > You might want to look at some of the materials on autisim. There are > many sources that have plans for teaching social interaction. I have > some info at school on one such program. I will look it up and give you > the information. > > Laurie > > ------------------------------------------------------------------------ > We have a new web site! http://www.onelist.com > ------------------------------------------------------------------------ > Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 1999 Report Share Posted February 21, 1999 Laurie, I wonder if that would help Tylynn as he too is too friendly and other kids don't take kindly to it. He finally stopped impulsively hugging the other kids but in 2nd grade many of the boys shyed away from him for this. I saw the funny looks they gave him. It's like he was a 3 or 4 yr old with the social behavior and I wonder if it has to do with the CAPD or what?? This sort of not knowing how to interact with the others is why the kids get labeled as nerds and become outcasts and yes, Lori like you said it hurts. I never fit in either. The adults see the tender lovingness of these sorts of kids but the other kids can't deal with it. S. Re: Aggression > > >Lori- > >You might want to look at some of the materials on autisim. There are >many sources that have plans for teaching social interaction. I have >some info at school on one such program. I will look it up and give you >the information. > >Laurie > > >------------------------------------------------------------------------ >We have a new web site! http://www.onelist.com >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 1999 Report Share Posted February 21, 1999 Laurie, I wonder if that would help Tylynn as he too is too friendly and other kids don't take kindly to it. He finally stopped impulsively hugging the other kids but in 2nd grade many of the boys shyed away from him for this. I saw the funny looks they gave him. It's like he was a 3 or 4 yr old with the social behavior and I wonder if it has to do with the CAPD or what?? This sort of not knowing how to interact with the others is why the kids get labeled as nerds and become outcasts and yes, Lori like you said it hurts. I never fit in either. The adults see the tender lovingness of these sorts of kids but the other kids can't deal with it. S. Re: Aggression > > >Lori- > >You might want to look at some of the materials on autisim. There are >many sources that have plans for teaching social interaction. I have >some info at school on one such program. I will look it up and give you >the information. > >Laurie > > >------------------------------------------------------------------------ >We have a new web site! http://www.onelist.com >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 1999 Report Share Posted February 21, 1999 wrote: > <snip>impulsively hugging > the other kids<snip>This sort of not knowing how to interact with the others is why the > kids get labeled as nerds and become outcasts <snip> Hi, This is exactly my fear for Alycia. Does anyone have any suggestions as to how to teach a child how to iniate interaction with other children in an appropriate manner? Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 1999 Report Share Posted February 21, 1999 wrote: > <snip>impulsively hugging > the other kids<snip>This sort of not knowing how to interact with the others is why the > kids get labeled as nerds and become outcasts <snip> Hi, This is exactly my fear for Alycia. Does anyone have any suggestions as to how to teach a child how to iniate interaction with other children in an appropriate manner? Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 1999 Report Share Posted February 22, 1999 Lori- There does seem to be a higher incidence of autism or PDD in mito folks. I asked Dr. Shoffner about it and he said that it is hard to know if all autism is caused by mito or not, since those with autism don't routinely have fresh muscle biopsies. Your best bet would be to find a doctor who specializes in autism and make an appointment. If it is not, then you will at least have peace of mind. These docs are usually found in the developmental disabilities departement of pediatric psychiatric departments of large medical centers. There are also some good psychologists that work exclusively with autism that can make the diagnosis. Ask around in your area. I know it will probably be hard to ask the parent of a child you know with autism, but they can be a great deal of help in finding the right person to take her to. You could also persue the Central Auditory Processing Disorder too. Some kids with CAPD look quite autistic in a group. They are usually much better one on one. I have to tell everyone about a 9 year old that I am working with. She is repeating second grade. She was born without a thyroid gland and has been slow developing. I started working with her last April. She just blossomed during the one on one sessions. She gained confidence, her articulation problems became corrected and she showed more academic skills than her testing indicated. Two weeks ago she got an Easy Listener to try for the remainder of the year. It is an individual FM transmitting device. The teacher wears a mike and transmitter and the student wears a receiver and ear phones. This little girl who was very shy and quiet and never participated in class and sat looking around when she was suppose to be doing an assignment, is now asking questions, answering questions, talking with peers more and has the same light in her eyes that she had one on one. She was diagnosed through a hearing center by an audiologist with CAPD. We are now talking about trying to pay for total room amplification for next year. It is great to see. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 1999 Report Share Posted February 23, 1999 - Yes, it helps the student to know what is important and what to ignore. If the teacher uses it correctly and turns off her unit when talking to other kids, then it helps the student to listen and take notice when he/she hears the sound in the earphones. Laurie > Laurie, how does her hearing the teacher with earphones help the CAPD-does > it cancel the competing distracting noises? S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 1999 Report Share Posted February 23, 1999 > Lori- Good luck with your search. Laurie > At this point, we are not ruling out anything as to the cause of Alycia's learning and social > difficulties. We are considering the effects of Hearing loss, diminished vision, possible CAPD and > possible Autism/PDD symptoms. It seems like it will be nearly impossible to pinpoint the cause but > hopefully the cause isn't really important as long as we can find methods for remediating the problem > irrespective of the cause. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 1999 Report Share Posted February 23, 1999 Laurie, how does her hearing the teacher with earphones help the CAPD-does it cancel the competing distracting noises? S. Re: Aggression > > >Lori- > >There does seem to be a higher incidence of autism or PDD in mito folks. >I asked Dr. Shoffner about it and he said that it is hard to know if all >autism is caused by mito or not, since those with autism don't routinely >have fresh muscle biopsies. > >Your best bet would be to find a doctor who specializes in autism and >make an appointment. If it is not, then you will at least have peace of >mind. These docs are usually found in the developmental disabilities >departement of pediatric psychiatric departments of large medical >centers. There are also some good psychologists that work exclusively >with autism that can make the diagnosis. Ask around in your area. I know >it will probably be hard to ask the parent of a child you know with >autism, but they can be a great deal of help in finding the right person >to take her to. > >You could also persue the Central Auditory Processing Disorder too. Some >kids with CAPD look quite autistic in a group. They are usually much >better one on one. > >I have to tell everyone about a 9 year old that I am working with. She >is repeating second grade. She was born without a thyroid gland and has >been slow developing. I started working with her last April. She just >blossomed during the one on one sessions. She gained confidence, her >articulation problems became corrected and she showed more academic >skills than her testing indicated. Two weeks ago she got an Easy >Listener to try for the remainder of the year. It is an individual FM >transmitting device. The teacher wears a mike and transmitter and the >student wears a receiver and ear phones. This little girl who was very >shy and quiet and never participated in class and sat looking around >when she was suppose to be doing an assignment, is now asking questions, >answering questions, talking with peers more and has the same light in >her eyes that she had one on one. She was diagnosed through a hearing >center by an audiologist with CAPD. We are now talking about trying to >pay for total room amplification for next year. It is great to see. > >Laurie > > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 1999 Report Share Posted February 23, 1999 Hi Laurie, That story about the little girl you are working with was very encouraging to hear. Good for you for bringing the best out of that little girl and knowing how to reach her. Unfortunately, we can't pursue a CAPD diagnosis for two reasons....Alycia is under 7 so Boston Children's won't test her and because she has a hearing loss they said there is on way to tell whether her difficulties are due to her hearing loss or CAPD. At this point, we are not ruling out anything as to the cause of Alycia's learning and social difficulties. We are considering the effects of Hearing loss, diminished vision, possible CAPD and possible Autism/PDD symptoms. It seems like it will be nearly impossible to pinpoint the cause but hopefully the cause isn't really important as long as we can find methods for remediating the problem irrespective of the cause. I have no problem contacting some parents of Autistic children in search of a good doctor or good information. In fact, I have a number for a Local Autism Support network that I got through the local Association for Retarted Citizens. Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 1999 Report Share Posted February 23, 1999 I also was told they couldn't test Kody for CAPD until he is 8 or 9, they prefer 12. But the audiologist is sending me information of testing for phonetics that the school may purchase or they can do the testing there and there is a learning program that goes with it. As with the CAPD tests this is the place that developed and distributes the test. He can't seem to learn or remember the sounds of the letters or letter blends. He also now informs me he would have an easier time writing in cursive and I agree with his small motor coordination. The teacher at school is rewarding him extra computer time for catching the bus in the mornings. He made it this morning and guess what? He felt so good about his accomplishment he has tried to be extra good about everything this evening (he even made his bed this morning and did a homework page!) S. Re: Aggression > > >Hi Laurie, > >That story about the little girl you are working with was very encouraging to hear. Good for you for >bringing the best out of that little girl and knowing how to reach her. > >Unfortunately, we can't pursue a CAPD diagnosis for two reasons....Alycia is under 7 so Boston Children's >won't test her and because she has a hearing loss they said there is on way to tell whether her >difficulties are due to her hearing loss or CAPD. > >At this point, we are not ruling out anything as to the cause of Alycia's learning and social >difficulties. We are considering the effects of Hearing loss, diminished vision, possible CAPD and >possible Autism/PDD symptoms. It seems like it will be nearly impossible to pinpoint the cause but >hopefully the cause isn't really important as long as we can find methods for remediating the problem >irrespective of the cause. > >I have no problem contacting some parents of Autistic children in search of a good doctor or good >information. In fact, I have a number for a Local Autism Support network that I got through the local >Association for Retarted Citizens. > >Lori > > > > >------------------------------------------------------------------------ >Check out our new web site! http://www.onelist.com >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 1999 Report Share Posted February 23, 1999 I also was told they couldn't test Kody for CAPD until he is 8 or 9, they prefer 12. But the audiologist is sending me information of testing for phonetics that the school may purchase or they can do the testing there and there is a learning program that goes with it. As with the CAPD tests this is the place that developed and distributes the test. He can't seem to learn or remember the sounds of the letters or letter blends. He also now informs me he would have an easier time writing in cursive and I agree with his small motor coordination. The teacher at school is rewarding him extra computer time for catching the bus in the mornings. He made it this morning and guess what? He felt so good about his accomplishment he has tried to be extra good about everything this evening (he even made his bed this morning and did a homework page!) S. Re: Aggression > > >Hi Laurie, > >That story about the little girl you are working with was very encouraging to hear. Good for you for >bringing the best out of that little girl and knowing how to reach her. > >Unfortunately, we can't pursue a CAPD diagnosis for two reasons....Alycia is under 7 so Boston Children's >won't test her and because she has a hearing loss they said there is on way to tell whether her >difficulties are due to her hearing loss or CAPD. > >At this point, we are not ruling out anything as to the cause of Alycia's learning and social >difficulties. We are considering the effects of Hearing loss, diminished vision, possible CAPD and >possible Autism/PDD symptoms. It seems like it will be nearly impossible to pinpoint the cause but >hopefully the cause isn't really important as long as we can find methods for remediating the problem >irrespective of the cause. > >I have no problem contacting some parents of Autistic children in search of a good doctor or good >information. In fact, I have a number for a Local Autism Support network that I got through the local >Association for Retarted Citizens. > >Lori > > > > >------------------------------------------------------------------------ >Check out our new web site! http://www.onelist.com >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 1999 Report Share Posted February 23, 1999 Laurie, this would be great for Tylynn but I know he wouldn't use them. Thanks for the explanation. S. Re: Aggression > > >- > >Yes, it helps the student to know what is important and what to ignore. If the teacher uses it correctly >and turns off her unit when talking to other kids, then it helps the student to listen and take notice >when he/she hears the sound in the earphones. > >Laurie > > >> Laurie, how does her hearing the teacher with earphones help the CAPD-does >> it cancel the competing distracting noises? S. > > > > >------------------------------------------------------------------------ >If you like the colors orange and blue, you will like our new web site! >http://www.onelist.com >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 1999 Report Share Posted February 23, 1999 Laurie, I am so grateful you mentioned this. When I told Tylynn's teacher about it I said but I know he won't wear the earphones as he won't use his colored lenses sheets either even tho he was amazed how he could see the print with them and she said she had some for the whole room! I said oh, you had mentioned those. She said she will get them out and use them to see if they help Tylynn. Isn't this the best school-what a neat teacher. S. (And she is the substitute while his teacher is out with her new baby) Re: Aggression > > >- > >Yes, it helps the student to know what is important and what to ignore. If the teacher uses it correctly >and turns off her unit when talking to other kids, then it helps the student to listen and take notice >when he/she hears the sound in the earphones. > >Laurie > > >> Laurie, how does her hearing the teacher with earphones help the CAPD-does >> it cancel the competing distracting noises? S. > > > > >------------------------------------------------------------------------ >If you like the colors orange and blue, you will like our new web site! >http://www.onelist.com >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 1999 Report Share Posted February 23, 1999 Laurie, I am so grateful you mentioned this. When I told Tylynn's teacher about it I said but I know he won't wear the earphones as he won't use his colored lenses sheets either even tho he was amazed how he could see the print with them and she said she had some for the whole room! I said oh, you had mentioned those. She said she will get them out and use them to see if they help Tylynn. Isn't this the best school-what a neat teacher. S. (And she is the substitute while his teacher is out with her new baby) Re: Aggression > > >- > >Yes, it helps the student to know what is important and what to ignore. If the teacher uses it correctly >and turns off her unit when talking to other kids, then it helps the student to listen and take notice >when he/she hears the sound in the earphones. > >Laurie > > >> Laurie, how does her hearing the teacher with earphones help the CAPD-does >> it cancel the competing distracting noises? S. > > > > >------------------------------------------------------------------------ >If you like the colors orange and blue, you will like our new web site! >http://www.onelist.com >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 1999 Report Share Posted February 25, 1999 Two weeks ago she got an Easy > Listener to try for the remainder of the year. It is an individual FM > transmitting device. Thanks for this story Laurie. This was recommended for Zachary when the audiologist diagnosed him last year with CAPD. We have not needed to do it yet as he is in kindergarten and compensates pretty well but the audiologist feels we will need it in a year or two. We have what is called an " open " school where there are partitions between classrooms but not walls and doors. It was a popular thing in the seventies I guess. The school is excellent. We were allowed to choose where Zach would go last year as our district is very accommodating of parent's desires but this is our home school and we wanted to give it a try for social reasons. It is very encouraging to me to hear how well your student is doing with this. Thanks ! Anne - mom to 4 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 1999 Report Share Posted February 25, 1999 Anne- Just so you know, they can make ear molds to connect to the " easy listener " instead of the ear phones. Some of the older students prefer this, since they aren't as noticeable. They do have their downside, which my student figured out on her own. They are harder to take on and off. She doesn't wear the unit to gym, recess and lunch. Laurie > > > Thanks for this story Laurie. This was recommended for Zachary when the > audiologist diagnosed him last year with CAPD. We have not needed to do it > yet as he is in kindergarten and compensates pretty well but the > audiologist feels we will need it in a year or two. We have what is called > an " open " school where there are partitions between classrooms but not > walls and doors. It was a popular thing in the seventies I guess. The > school is excellent. We were allowed to choose where Zach would go last > year as our district is very accommodating of parent's desires but this is > our home school and we wanted to give it a try for social reasons. It is > very encouraging to me to hear how well your student is doing with this. > Thanks ! > Anne - mom to 4 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 1999 Report Share Posted February 25, 1999 - The thinking is that the two can't go together. The reason being is that a hearing loss will make it hard for someone to separate out the important sounds from the unimportant, just like in CAPD. There are other aspects to CAPD, but a hearing loss can also produce similar problems. A person with a hearing loss can have processing difficulties. They can repeat the sentence that has been said (those hearing it), but be unable to figure out what it means. Poor auditory memory is also a component of CAPD and this can go along with a hearing loss. I think it is a problem of trying to keep definitions as pure as possible. Where I work, the audiologist doesn't even consider a CAPD evaluation for those with a hearing loss, because they already qualify for FM amplification. He starts all kids out with individual FM amplification at school and aides at home. This way the child is not having to filter out competeing sounds. I hope this helps. Laurie > I believe it was Lori who mentioned that Alycia had hearing problems and > maybe CAPD. (Sorry, Lori, if I'm mixed up on this). I have a 6.5 year old > daughter who has (unofficially) been diagnosed with CAPD, as well as, a > Language Processing Disorder (officially). Phoenix Children's Hospital will > not test a child until 7 years of age, although they agreed to test > Mackenzie at 6.5 yrs old. Additionally, I was told that a child with CAPD > does not have a hearing loss/problem. Mackenzie's hearing is great, and > this, according to the hearing specialtist at Phx. Children's, helped > support the theory that she has CAPD. Could this person be wrong about how > a child couldn't have a hearing loss and CAPD? > > Thanks! > > Lipps > Savannah (almost 3 yrs old!) > And anxiously waiting for biopsy results from Shoffner! > > ------------------------------------------------------------------------ > If you like orange and blue, then you will love our new web site! > http://www.onelist.com > Onelist: ing connections and information exchange > ------------------------------------------------------------------------ > Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 1999 Report Share Posted February 25, 1999 Hi Anne- What is CAPD? Re: Aggression > > > Two weeks ago she got an Easy >> Listener to try for the remainder of the year. It is an individual FM >> transmitting device. > >Thanks for this story Laurie. This was recommended for Zachary when the >audiologist diagnosed him last year with CAPD. We have not needed to do it >yet as he is in kindergarten and compensates pretty well but the >audiologist feels we will need it in a year or two. We have what is called >an " open " school where there are partitions between classrooms but not >walls and doors. It was a popular thing in the seventies I guess. The >school is excellent. We were allowed to choose where Zach would go last >year as our district is very accommodating of parent's desires but this is >our home school and we wanted to give it a try for social reasons. It is >very encouraging to me to hear how well your student is doing with this. >Thanks ! >Anne - mom to 4 > >------------------------------------------------------------------------ >We are proud as punch of our new web site! >http://www.onelist.com >Onelist: The leading provider of free email community services >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 1999 Report Share Posted February 25, 1999 Central auditory processing disorder. His hearing per se is fine but he when tested as to how he processes it once in the brain he was more than 2 standard deviations from the normal and diagnosed with a severe disorder. However, at the moment e have found all sorts of things to do - mainly with visuals , slowing down our speech and re wording things in a simpler, less wordy way so that he is compensating beautifully in school. he has more trouble at home as it is not as structured and quiet here . We were told this was due to cerebral involvement from the Mito disease. Anne ---------- > > > Hi Anne- > > What is CAPD? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 1999 Report Share Posted February 25, 1999 >From: " Anne and Lou Juhlmann " > >Central auditory processing disorder. His hearing per se is fine but he >when tested as to how he processes it once in the brain he was more than 2 >standard deviations from the normal and diagnosed with a severe disorder. I started to post yesterday concerning this topic, but my computer decided to gobble up my saved e-mail messages and I lost the original post! (Thanks Jim for trying to help - still no luck!) I believe it was Lori who mentioned that Alycia had hearing problems and maybe CAPD. (Sorry, Lori, if I'm mixed up on this). I have a 6.5 year old daughter who has (unofficially) been diagnosed with CAPD, as well as, a Language Processing Disorder (officially). Phoenix Children's Hospital will not test a child until 7 years of age, although they agreed to test Mackenzie at 6.5 yrs old. Additionally, I was told that a child with CAPD does not have a hearing loss/problem. Mackenzie's hearing is great, and this, according to the hearing specialtist at Phx. Children's, helped support the theory that she has CAPD. Could this person be wrong about how a child couldn't have a hearing loss and CAPD? Thanks! Lipps Savannah (almost 3 yrs old!) And anxiously waiting for biopsy results from Shoffner! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 1999 Report Share Posted February 25, 1999 - The kind of system used by our countywide district is the " Easy Listener " by Phonic Ear. It cost about $1,600. We are going to room amplification in this area. The room is analyzed and good stereo speakers are placed around the room, off the floor. Some rooms require some sound absorbsion things be put in place like carpeting. The teacher then wears the same kind of mike and transmitter. This way more than one child benefits from the device. This kind of system runs between $800 and $1,100 dollars per room. If your child is diagnosed with CAPD, then I would request that they certify her as Learning Disabled. This way you can not only get the amplification that she needs, but small group and one on one support if needed. Laurie > The FM amplification was recommended for Mackenzie, but the school didn't > feel it was appropriate at this time, that the teacher could implement other > techniques to help her. Because I was in a battle with the school to get > services for Mack, I let go of the issue of the FM device. We finally got > her help through a 504 Plan instead of an ISP. She is still struggling, but > slowly improving. I decided to wait on the FM amplification until she has > the CAPD testing done. I think the school will have a harder time denying > it if she is definitely diagnosed with CAPD and it is recommended again. > > Thank you Laurie for replying to my post. Would you (or anyone else) have > any suggestions on how to deal with the school on this issue. If after the > testing, she is diagnose with CAPD and a FM amplification is recommended, > are there different kinds (some better than others) that we can suggest to > the school? > > Thanks for reading, > Lipps > Savannah (almost 3 yrs old!) > And anxiously waiting for biopsy results from Shoffner! > > ------------------------------------------------------------------------ > We have a new web site! > http://www.onelist.com > Onelist: The leading provider of free email community services > ------------------------------------------------------------------------ > Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. Quote Link to comment Share on other sites More sharing options...
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