Re: I just need to rant...again :o)

[Guest guest]

So, with my usual aggressive temperament, have I flown off the handle a

bit too far, or should I feel perfectly justified in doing what I feel is

best for my daughter and followed my gut instinct.

It's hard in the middle of seizures to continue to trust your gut because you just want someone to take care of it. But it sounds like to me you have a very trustworthy gut and that you are definitely the person with the greatest interest in your child's long-term well-being. Keep your chin up! feel perfectly justified...

Elaine

[Guest guest]

Cris, I am the mom of a child that has been on the diet almost 5 years. Prior to the diet Christian was on lamictal. He was overdosed and his liver was failing due to the overdose. The physician claimed the only reason for the liver enzymes escalating was hepatitis. Wrong, it was the lamictal. Bold as I am, I was scared and detoxed Christian cold turkey. It went very well. The diet has done more for Christian than any med and the way we found this out was to detox him. I did the same thing with a huge dose of Ativan. I don't know when I look back how I did it. I referred to my home as the detox center. Christian was med free for 4 years. What a miracle. Just for your info, detoxing and weining can be done without the assistance of a keto team or a neurologist. A Mom with strong conviction is really what rules the roost. Good luck Lori I just need to rant...again ) Here I go again...I have a suspicion that h's Lamictal level is too high, yet inconversations with the doctor via his nurse, I am totally brushed off. Ireally like this particular doc, but his staff really stinks. They don'tunderstand the point I am making, nor do they understand what I have beenliving with for the last 3 weeks, let alone the last 3 days...I don'tthink my whole argument for a drug wean was presented to the dotorr theway I asked, and of course they couldn't/wouldn't get him on the phonefor me.h gets her meds at say 7 a.m., by 8 or so she is SZ'ing...sacked outcold on the couch, shakey when she does happen to wake up, she isrefusing meals, refusing water, confused, mean, sad...not my child by along shot. So yesterday I put my foot down. I told the nurse at neuro'sthat I needed to know how to safely wean h off her meds and she gotreal snippy, telling me it was not what the doc wanted us to do...so Itold her fine, we are going Against Medical Advice (AMA for futurereference) and doing it ourselves. That didn't make her too happy. Ourdieitian is not supportive of the idea, and neuro in Buffalo who isoverseeing us while on the diet--who is pro drug--is on vacation. So, atthis point, I don't know if I have an intact Keto-team, let alone aneurologist.So, with my usual aggressive temperament, have I flown off the handle abit too far, or should I feel perfectly justified in doing what I feel isbest for my daughter and followed my gut instinct.By the way, we are weaning 1/2 of a 25mg tab once per week on Thursadys.First at night, then the morning dose will get cut. At the rate we'regoing it will be October 11 (???) before we are drug free.Any feedback is welcome, just try not to be too mean to me--my emotionsare raw...by 7 last night h's dad was thinking we should have her inthe hospital, and he doesn't get too excited too easily, so I knew HE wasreally worried--I was too. At least we all slept good--MAriah was realrelaxed and calm, not shaking...but I think it is all starting over againtoday as she just SZ'ed, refusing meals, sacked on the couch looking REALdopic...CrisProud mommy of h Lynne-KetoKid as of 4/9/01and Chance Huntermember...Mommies on the Web "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe

[Guest guest]

Cris

Follow your gut, hon.

When we started Jess on lamictal, with each dose increase she got wild with

rage. She was

no more than 4 or 5 at the time, one day she threw a plate across the kitchn and

almost

hit me in the head, got to the point that I was afraid that if she had access to

a knife

she would use it. Finally called neuro and said this is crazy. He said lamictal

shouldn't

do this, but I geuss theoretically any of the drugs could, told me to cut dose

back. I

did and our child was our child again.

Hang in

, 's mom

B Bowen wrote:

> Here I go again...

> I have a suspicion that h's Lamictal level is too high, yet in

> conversations with the doctor via his nurse, I am totally brushed off. I

> really like this particular doc, but his staff really stinks. They don't

> understand the point I am making, nor do they understand what I have been

> living with for the last 3 weeks, let alone the last 3 days...I don't

> think my whole argument for a drug wean was presented to the dotorr the

> way I asked, and of course they couldn't/wouldn't get him on the phone

> for me.

> h gets her meds at say 7 a.m., by 8 or so she is SZ'ing...sacked out

> cold on the couch, shakey when she does happen to wake up, she is

> refusing meals, refusing water, confused, mean, sad...not my child by a

> long shot. So yesterday I put my foot down. I told the nurse at neuro's

> that I needed to know how to safely wean h off her meds and she got

> real snippy, telling me it was not what the doc wanted us to do...so I

> told her fine, we are going Against Medical Advice (AMA for future

> reference) and doing it ourselves. That didn't make her too happy. Our

> dieitian is not supportive of the idea, and neuro in Buffalo who is

> overseeing us while on the diet--who is pro drug--is on vacation. So, at

> this point, I don't know if I have an intact Keto-team, let alone a

> neurologist.

> So, with my usual aggressive temperament, have I flown off the handle a

> bit too far, or should I feel perfectly justified in doing what I feel is

> best for my daughter and followed my gut instinct.

> By the way, we are weaning 1/2 of a 25mg tab once per week on Thursadys.

> First at night, then the morning dose will get cut. At the rate we're

> going it will be October 11 (???) before we are drug free.

> Any feedback is welcome, just try not to be too mean to me--my emotions

> are raw...by 7 last night h's dad was thinking we should have her in

> the hospital, and he doesn't get too excited too easily, so I knew HE was

> really worried--I was too. At least we all slept good--MAriah was real

> relaxed and calm, not shaking...but I think it is all starting over again

> today as she just SZ'ed, refusing meals, sacked on the couch looking REAL

> dopic...

> Cris

> Proud mommy of h Lynne-KetoKid as of 4/9/01

> and Chance Hunter

> member...Mommies on the Web

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a professional

keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

>

>

>

[Guest guest]

I've just recently found that high doses of B6 really help Gillian

with her lamictal withdrawal siezures but we haven't told the keto

team yet because weve been compiling evidence. I've decided I am

going to email them with the info., that way the nurse can just give

the neuro the email. There's so much to say I'm afraid I'll forget

or miss things on the phone with the nurse or she'll loose some info.

in telling the neuro. It's so frustrating when its important and you

can't get past the nurse to the doctor. I can totally relate to your

ranting. I think, but I'm not sure yet, that Gilly may be B6

dependent.

As for the lamictal wean we found once a week was too much for

Gillian in the beginning. She wouldn't recovery from one decrease

and we'd hit her with another. It was incredible though, after each

of the first few drops she just came alive once she got though the

withdrawal. She started smiling at us again and laughing and

responding to us, it is wonderful to have her back. I don't notice

as much of a difference now, as in the beginning, after decreases but

I still notice some. I think you have to go by your own child to

tailor the rate of decreases to them. We had to slow down to one

every two weeks when she would become stable again. Three to five

days after each wean she would have large clusters of siezures and

cry all day and it would take up to the two week mark for the

siezures to settle down again. With the intro of B6 we have been

able to increase to one a week again. There is virtually no signs of

withdrawal since she started the B6, no siezures, no crying all day,

nothing except her constipation worsened but now we know we've been

able to counteract that too. Anyways this has gotten long, sorry.

Good Luck with the wean.

Liz4Gillian

> Here I go again...

> I have a suspicion that h's Lamictal level is too high, yet in

> conversations with the doctor via his nurse, I am totally brushed

off. I

> really like this particular doc, but his staff really stinks. They

don't

> understand the point I am making, nor do they understand what I

have been

> living with for the last 3 weeks, let alone the last 3 days...I

don't

> think my whole argument for a drug wean was presented to the dotorr

the

> way I asked, and of course they couldn't/wouldn't get him on the

phone

> for me.

> h gets her meds at say 7 a.m., by 8 or so she is

SZ'ing...sacked out

> cold on the couch, shakey when she does happen to wake up, she is

> refusing meals, refusing water, confused, mean, sad...not my child

by a

> long shot. So yesterday I put my foot down. I told the nurse at

neuro's

> that I needed to know how to safely wean h off her meds and

she got

> real snippy, telling me it was not what the doc wanted us to

do...so I

> told her fine, we are going Against Medical Advice (AMA for future

> reference) and doing it ourselves. That didn't make her too happy.

Our

> dieitian is not supportive of the idea, and neuro in Buffalo who is

> overseeing us while on the diet--who is pro drug--is on vacation.

So, at

> this point, I don't know if I have an intact Keto-team, let alone a

> neurologist.

> So, with my usual aggressive temperament, have I flown off the

handle a

> bit too far, or should I feel perfectly justified in doing what I

feel is

> best for my daughter and followed my gut instinct.

> By the way, we are weaning 1/2 of a 25mg tab once per week on

Thursadys.

> First at night, then the morning dose will get cut. At the rate

we're

> going it will be October 11 (???) before we are drug free.

> Any feedback is welcome, just try not to be too mean to me--my

emotions

> are raw...by 7 last night h's dad was thinking we should have

her in

> the hospital, and he doesn't get too excited too easily, so I knew

HE was

> really worried--I was too. At least we all slept good--MAriah was

real

> relaxed and calm, not shaking...but I think it is all starting over

again

> today as she just SZ'ed, refusing meals, sacked on the couch

looking REAL

> dopic...

> Cris

> Proud mommy of h Lynne-KetoKid as of 4/9/01

> and Chance Hunter

> member...Mommies on the Web

[Guest guest]

I've just recently found that high doses of B6 really help Gillian

with her lamictal withdrawal siezures but we haven't told the keto

team yet because weve been compiling evidence. I've decided I am

going to email them with the info., that way the nurse can just give

the neuro the email. There's so much to say I'm afraid I'll forget

or miss things on the phone with the nurse or she'll loose some info.

in telling the neuro. It's so frustrating when its important and you

can't get past the nurse to the doctor. I can totally relate to your

ranting. I think, but I'm not sure yet, that Gilly may be B6

dependent.

As for the lamictal wean we found once a week was too much for

Gillian in the beginning. She wouldn't recovery from one decrease

and we'd hit her with another. It was incredible though, after each

of the first few drops she just came alive once she got though the

withdrawal. She started smiling at us again and laughing and

responding to us, it is wonderful to have her back. I don't notice

as much of a difference now, as in the beginning, after decreases but

I still notice some. I think you have to go by your own child to

tailor the rate of decreases to them. We had to slow down to one

every two weeks when she would become stable again. Three to five

days after each wean she would have large clusters of siezures and

cry all day and it would take up to the two week mark for the

siezures to settle down again. With the intro of B6 we have been

able to increase to one a week again. There is virtually no signs of

withdrawal since she started the B6, no siezures, no crying all day,

nothing except her constipation worsened but now we know we've been

able to counteract that too. Anyways this has gotten long, sorry.

Good Luck with the wean.

Liz4Gillian

> Here I go again...

> I have a suspicion that h's Lamictal level is too high, yet in

> conversations with the doctor via his nurse, I am totally brushed

off. I

> really like this particular doc, but his staff really stinks. They

don't

> understand the point I am making, nor do they understand what I

have been

> living with for the last 3 weeks, let alone the last 3 days...I

don't

> think my whole argument for a drug wean was presented to the dotorr

the

> way I asked, and of course they couldn't/wouldn't get him on the

phone

> for me.

> h gets her meds at say 7 a.m., by 8 or so she is

SZ'ing...sacked out

> cold on the couch, shakey when she does happen to wake up, she is

> refusing meals, refusing water, confused, mean, sad...not my child

by a

> long shot. So yesterday I put my foot down. I told the nurse at

neuro's

> that I needed to know how to safely wean h off her meds and

she got

> real snippy, telling me it was not what the doc wanted us to

do...so I

> told her fine, we are going Against Medical Advice (AMA for future

> reference) and doing it ourselves. That didn't make her too happy.

Our

> dieitian is not supportive of the idea, and neuro in Buffalo who is

> overseeing us while on the diet--who is pro drug--is on vacation.

So, at

> this point, I don't know if I have an intact Keto-team, let alone a

> neurologist.

> So, with my usual aggressive temperament, have I flown off the

handle a

> bit too far, or should I feel perfectly justified in doing what I

feel is

> best for my daughter and followed my gut instinct.

> By the way, we are weaning 1/2 of a 25mg tab once per week on

Thursadys.

> First at night, then the morning dose will get cut. At the rate

we're

> going it will be October 11 (???) before we are drug free.

> Any feedback is welcome, just try not to be too mean to me--my

emotions

> are raw...by 7 last night h's dad was thinking we should have

her in

> the hospital, and he doesn't get too excited too easily, so I knew

HE was

> really worried--I was too. At least we all slept good--MAriah was

real

> relaxed and calm, not shaking...but I think it is all starting over

again

> today as she just SZ'ed, refusing meals, sacked on the couch

looking REAL

> dopic...

> Cris

> Proud mommy of h Lynne-KetoKid as of 4/9/01

> and Chance Hunter

> member...Mommies on the Web

[Guest guest]

{{{{{{{{{{{CRIS}}}}}}}}}}}}}}}}

Follow your gut, hold my (our) hand(s) and remember what a wonderful mommy

you really are. If you can't remember, go in the bathroom, look in the

mirror, and repeat it until your brain goes fuzzy (doesn't take me long). I

will be praying that this helps, fast, and completely. Love, Deb

> Here I go again...

> I have a suspicion that h's Lamictal level is too high, yet in

> conversations with the doctor via his nurse, I am totally brushed off. I

> really like this particular doc, but his staff really stinks. They don't

> understand the point I am making, nor do they understand what I have been

> living with for the last 3 weeks, let alone the last 3 days...I don't

> think my whole argument for a drug wean was presented to the dotorr the

> way I asked, and of course they couldn't/wouldn't get him on the phone

> for me.

> h gets her meds at say 7 a.m., by 8 or so she is SZ'ing...sacked out

> cold on the couch, shakey when she does happen to wake up, she is

> refusing meals, refusing water, confused, mean, sad...not my child by a

> long shot. So yesterday I put my foot down. I told the nurse at neuro's

> that I needed to know how to safely wean h off her meds and she got

> real snippy, telling me it was not what the doc wanted us to do...so I

> told her fine, we are going Against Medical Advice (AMA for future

> reference) and doing it ourselves. That didn't make her too happy. Our

> dieitian is not supportive of the idea, and neuro in Buffalo who is

> overseeing us while on the diet--who is pro drug--is on vacation. So, at

> this point, I don't know if I have an intact Keto-team, let alone a

> neurologist.

> So, with my usual aggressive temperament, have I flown off the handle a

> bit too far, or should I feel perfectly justified in doing what I feel is

> best for my daughter and followed my gut instinct.

> By the way, we are weaning 1/2 of a 25mg tab once per week on Thursadys.

> First at night, then the morning dose will get cut. At the rate we're

> going it will be October 11 (???) before we are drug free.

> Any feedback is welcome, just try not to be too mean to me--my emotions

> are raw...by 7 last night h's dad was thinking we should have her in

> the hospital, and he doesn't get too excited too easily, so I knew HE was

> really worried--I was too. At least we all slept good--MAriah was real

> relaxed and calm, not shaking...but I think it is all starting over again

> today as she just SZ'ed, refusing meals, sacked on the couch looking REAL

> dopic...

> Cris

> Proud mommy of h Lynne-KetoKid as of 4/9/01

> and Chance Hunter

> member...Mommies on the Web

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a professional

keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

>

>

>

[Guest guest]

{{{{{{{{{{{CRIS}}}}}}}}}}}}}}}}

Follow your gut, hold my (our) hand(s) and remember what a wonderful mommy

you really are. If you can't remember, go in the bathroom, look in the

mirror, and repeat it until your brain goes fuzzy (doesn't take me long). I

will be praying that this helps, fast, and completely. Love, Deb

> Here I go again...

> I have a suspicion that h's Lamictal level is too high, yet in

> conversations with the doctor via his nurse, I am totally brushed off. I

> really like this particular doc, but his staff really stinks. They don't

> understand the point I am making, nor do they understand what I have been

> living with for the last 3 weeks, let alone the last 3 days...I don't

> think my whole argument for a drug wean was presented to the dotorr the

> way I asked, and of course they couldn't/wouldn't get him on the phone

> for me.

> h gets her meds at say 7 a.m., by 8 or so she is SZ'ing...sacked out

> cold on the couch, shakey when she does happen to wake up, she is

> refusing meals, refusing water, confused, mean, sad...not my child by a

> long shot. So yesterday I put my foot down. I told the nurse at neuro's

> that I needed to know how to safely wean h off her meds and she got

> real snippy, telling me it was not what the doc wanted us to do...so I

> told her fine, we are going Against Medical Advice (AMA for future

> reference) and doing it ourselves. That didn't make her too happy. Our

> dieitian is not supportive of the idea, and neuro in Buffalo who is

> overseeing us while on the diet--who is pro drug--is on vacation. So, at

> this point, I don't know if I have an intact Keto-team, let alone a

> neurologist.

> So, with my usual aggressive temperament, have I flown off the handle a

> bit too far, or should I feel perfectly justified in doing what I feel is

> best for my daughter and followed my gut instinct.

> By the way, we are weaning 1/2 of a 25mg tab once per week on Thursadys.

> First at night, then the morning dose will get cut. At the rate we're

> going it will be October 11 (???) before we are drug free.

> Any feedback is welcome, just try not to be too mean to me--my emotions

> are raw...by 7 last night h's dad was thinking we should have her in

> the hospital, and he doesn't get too excited too easily, so I knew HE was

> really worried--I was too. At least we all slept good--MAriah was real

> relaxed and calm, not shaking...but I think it is all starting over again

> today as she just SZ'ed, refusing meals, sacked on the couch looking REAL

> dopic...

> Cris

> Proud mommy of h Lynne-KetoKid as of 4/9/01

> and Chance Hunter

> member...Mommies on the Web

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a professional

keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

>

>

>

[Guest guest]

,

Can you take h in and have a Lamictal level drawn? My local

docs are so great about doing levels on whatever I ask (I have had

phenobarb, BHB, & trace mineral levels drawn on my request alone, or

just by mentioning that our consultants want them done) - we have to

go through the ER for blood draws, because Lucas has a Hickman

catheter (a central permanent IV line), but our ER docs have just put

us in their computer as an outpatient for whenever I want blood

levels of anything taken. Maybe if you take her in, and insist on

drawing a Lamictal level, you'll have some ammo with your neuro if it

comes back on the high side. At least maybe it will help rest your

mind. Our ER nurses told me once that as a parent, you have a right

to have med levels done at ANY TIME you want, just by your say-so.

Hope things get better for you guys!

Heidi

> Here I go again...

> I have a suspicion that h's Lamictal level is too high, yet in

> conversations with the doctor via his nurse, I am totally brushed

off. I

> really like this particular doc, but his staff really stinks. They

don't

> understand the point I am making, nor do they understand what I

have been

> living with for the last 3 weeks, let alone the last 3 days...I

don't

> think my whole argument for a drug wean was presented to the dotorr

the

> way I asked, and of course they couldn't/wouldn't get him on the

phone

> for me.

> h gets her meds at say 7 a.m., by 8 or so she is

SZ'ing...sacked out

> cold on the couch, shakey when she does happen to wake up, she is

> refusing meals, refusing water, confused, mean, sad...not my child

by a

> long shot. So yesterday I put my foot down. I told the nurse at

neuro's

> that I needed to know how to safely wean h off her meds and

she got

> real snippy, telling me it was not what the doc wanted us to

do...so I

> told her fine, we are going Against Medical Advice (AMA for future

> reference) and doing it ourselves. That didn't make her too happy.

Our

> dieitian is not supportive of the idea, and neuro in Buffalo who is

> overseeing us while on the diet--who is pro drug--is on vacation.

So, at

> this point, I don't know if I have an intact Keto-team, let alone a

> neurologist.

> So, with my usual aggressive temperament, have I flown off the

handle a

> bit too far, or should I feel perfectly justified in doing what I

feel is

> best for my daughter and followed my gut instinct.

> By the way, we are weaning 1/2 of a 25mg tab once per week on

Thursadys.

> First at night, then the morning dose will get cut. At the rate

we're

> going it will be October 11 (???) before we are drug free.

> Any feedback is welcome, just try not to be too mean to me--my

emotions

> are raw...by 7 last night h's dad was thinking we should have

her in

> the hospital, and he doesn't get too excited too easily, so I knew

HE was

> really worried--I was too. At least we all slept good--MAriah was

real

> relaxed and calm, not shaking...but I think it is all starting over

again

> today as she just SZ'ed, refusing meals, sacked on the couch

looking REAL

> dopic...

> Cris

> Proud mommy of h Lynne-KetoKid as of 4/9/01

> and Chance Hunter

> member...Mommies on the Web

[Guest guest]

Cris -- You're having such a time here. . .I just feel awful for you. And, I wish I had some good advice. Only one thing that sticks out to me is that we felt that we needed to get 's drug regime balanced. . .so we weaned first a morning dose, then an afternoon dose, then an evening dose and then back again and back again, etc. Finally ended up completely eliminating the afternoon dose (which gave Lamictal to her three times/day because it made her so hyper at night) so the morning and evening doses remained even through the end. That might be something to consider, rather than completely weaning morning and then completely weaning evening. Hang in there. . . and keep us posted.--DeEtte

***By the way, we are weaning 1/2 of a 25mg tab once per week on Thursadys.First at night, then the morning dose will get cut. At the rate we'regoing it will be October 11 (???) before we are drug free.

[Guest guest]

Oh my God. . . I had the same thought with Lamictal about being around knives!!! This is such scary stuff. . . I just want to cry. This is so insane what's being done to our babies. I've even had thoughts about the Columbine kids and McVeigh -- all from Lamictal because will hit or hurt and then laugh with no conscience. . . never, not in a million years, would she have ever done this pre-Lamictal. I just pray with every fiber that these drugs don't permanently alter personality.

***

When we started Jess on lamictal, with each dose increase she got wild with rage. She wasno more than 4 or 5 at the time, one day she threw a plate across the kitchn and almosthit me in the head, got to the point that I was afraid that if she had access to a knifeshe would use it. Finally called neuro and said this is crazy. He said lamictal shouldn'tdo this, but I geuss theoretically any of the drugs could, told me to cut dose back. Idid and our child was our child again.

[Guest guest]

Oh, I do understand so. Hope the Neuro gets back

to you now, and talks over your concerns. In the

meantime something to remember is that weans usually

cause sz, whether the drug was helping in the first place

or not.

Hope things get better soon.

Love

Saro....Rohan's mum

B Bowen wrote:

Here I go again...

I have a suspicion that h's Lamictal level is too high, yet

in

conversations with the doctor via his nurse, I am totally brushed

off. I

really like this particular doc, but his staff really stinks. They

don't

understand the point I am making, nor do they understand what I

have been

living with for the last 3 weeks, let alone the last 3 days...I

don't

think my whole argument for a drug wean was presented to the dotorr

the

way I asked, and of course they couldn't/wouldn't get him on the

phone

for me.

h gets her meds at say 7 a.m., by 8 or so she is SZ'ing...sacked

out

cold on the couch, shakey when she does happen to wake up, she

is

refusing meals, refusing water, confused, mean, sad...not my child

by a

long shot. So yesterday I put my foot down. I told the nurse at

neuro's

that I needed to know how to safely wean h off her meds and

she got

real snippy, telling me it was not what the doc wanted us to do...so

I

told her fine, we are going Against Medical Advice (AMA for future

reference) and doing it ourselves. That didn't make her too happy.

Our

dieitian is not supportive of the idea, and neuro in Buffalo who

is

overseeing us while on the diet--who is pro drug--is on vacation.

So, at

this point, I don't know if I have an intact Keto-team, let alone

a

neurologist.

So, with my usual aggressive temperament, have I flown off the

handle a

bit too far, or should I feel perfectly justified in doing what

I feel is

best for my daughter and followed my gut instinct.

By the way, we are weaning 1/2 of a 25mg tab once per week on Thursadys.

First at night, then the morning dose will get cut. At the rate

we're

going it will be October 11 (???) before we are drug free.

Any feedback is welcome, just try not to be too mean to me--my

emotions

are raw...by 7 last night h's dad was thinking we should have

her in

the hospital, and he doesn't get too excited too easily, so I knew

HE was

really worried--I was too. At least we all slept good--MAriah was

real

relaxed and calm, not shaking...but I think it is all starting

over again

today as she just SZ'ed, refusing meals, sacked on the couch looking

REAL

dopic...

Cris

Proud mommy of h Lynne-KetoKid as of 4/9/01

and Chance Hunter

member...Mommies on the Web

"The Ketogenic Diet....a realistic treatment option, NOT

just a last resort!"

List is for parent to parent support only.

It is important to get medical advice from a professional keto team!

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