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hello everyone.

i found this site while i was surching for amiodarone. my mother has

been on this drug for a long time.

she has been experiencing very bad stomach pain for a while and the

doctors can not determine the cause, so we thought maybe the drugs

she is on might be the problem.

i was wondering if others have had similar problems. if so could you

get back to me, the pain she is in is so bad she has seriously

thought of killing herself rather than continue like this. we are

running out of hope.

thank you

jessie

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> hello everyone.

> i found this site while i was surching for amiodarone. my mother

has

> been on this drug for a long time.

> she has been experiencing very bad stomach pain for a while and the

> doctors can not determine the cause, so we thought maybe the drugs

> she is on might be the problem.

> i was wondering if others have had similar problems. if so could

you

> get back to me, the pain she is in is so bad she has seriously

> thought of killing herself rather than continue like this. we are

> running out of hope.

> thank you

> jessie

Jessie, let me urge you to do two things. One is to get aggressive

with your doctors about treating your mother's pain so that she is

comfortable until they can figure out when is causing it.

Just a short time ago I was in the middle of several months of severe

pain, and, indeed, before I had medication for it, I sometimes had

pain so severe that I truly understood how people could not life with

prolonged severe pain. Fortunately after I made a quiet scene in a

specialist's office, he prescribed Vicodin for me. No doc had

prescribed ANYTHING for pain before that, even though I had

repeatedly said the pain was very bad. Vicodin is a narcotic, but I

used it only when I needed it, and just knowing that there was

something that would aleviate the pain helped enormously.

Secondly, let me encourage your Mom not to lose hope, and to continue

to look for a doc who can help her. Just this past week, after I had

pretty much lost hope, I found a doc who specialized in my condition,

recognized it, and things have improved markedly under his

treatment. He was the third specialist I had seen, not to mention

two primary care physicians and a doc in another speciality, all of

whom had no idea what was going on.

Certainly switching from the amiodarone to some other med, such as

dofetilide, might be a solution. (Does anyone know if the potential

things Amiodarone can damage can cause stomach pain?) However, it

takes some time for Amiodarone to get completely out of the system.

Has your Mom had an endoscopy? Could something about what she is

eating cause this? Is it truly stomach pain vs. abdominal pain, such

as from pelvic floor muscle disorder? Is it associated with anything

in particular, such as before or after eating? Or eating certain

types of foods?

What is the heart condition that your Mom has? Does she have other

medical conditions?

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> hello everyone.

> i found this site while i was surching for amiodarone. my mother

has

> been on this drug for a long time.

> she has been experiencing very bad stomach pain for a while and the

> doctors can not determine the cause, so we thought maybe the drugs

> she is on might be the problem.

> i was wondering if others have had similar problems. if so could

you

> get back to me, the pain she is in is so bad she has seriously

> thought of killing herself rather than continue like this. we are

> running out of hope.

> thank you

> jessie

Jessie, let me urge you to do two things. One is to get aggressive

with your doctors about treating your mother's pain so that she is

comfortable until they can figure out when is causing it.

Just a short time ago I was in the middle of several months of severe

pain, and, indeed, before I had medication for it, I sometimes had

pain so severe that I truly understood how people could not life with

prolonged severe pain. Fortunately after I made a quiet scene in a

specialist's office, he prescribed Vicodin for me. No doc had

prescribed ANYTHING for pain before that, even though I had

repeatedly said the pain was very bad. Vicodin is a narcotic, but I

used it only when I needed it, and just knowing that there was

something that would aleviate the pain helped enormously.

Secondly, let me encourage your Mom not to lose hope, and to continue

to look for a doc who can help her. Just this past week, after I had

pretty much lost hope, I found a doc who specialized in my condition,

recognized it, and things have improved markedly under his

treatment. He was the third specialist I had seen, not to mention

two primary care physicians and a doc in another speciality, all of

whom had no idea what was going on.

Certainly switching from the amiodarone to some other med, such as

dofetilide, might be a solution. (Does anyone know if the potential

things Amiodarone can damage can cause stomach pain?) However, it

takes some time for Amiodarone to get completely out of the system.

Has your Mom had an endoscopy? Could something about what she is

eating cause this? Is it truly stomach pain vs. abdominal pain, such

as from pelvic floor muscle disorder? Is it associated with anything

in particular, such as before or after eating? Or eating certain

types of foods?

What is the heart condition that your Mom has? Does she have other

medical conditions?

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> hello everyone.

> i found this site while i was surching for amiodarone. my mother

has

> been on this drug for a long time.

> she has been experiencing very bad stomach pain for a while and the

> doctors can not determine the cause, so we thought maybe the drugs

> she is on might be the problem.

> i was wondering if others have had similar problems. if so could

you

> get back to me, the pain she is in is so bad she has seriously

> thought of killing herself rather than continue like this. we are

> running out of hope.

> thank you

> jessie

Jessie, let me urge you to do two things. One is to get aggressive

with your doctors about treating your mother's pain so that she is

comfortable until they can figure out when is causing it.

Just a short time ago I was in the middle of several months of severe

pain, and, indeed, before I had medication for it, I sometimes had

pain so severe that I truly understood how people could not life with

prolonged severe pain. Fortunately after I made a quiet scene in a

specialist's office, he prescribed Vicodin for me. No doc had

prescribed ANYTHING for pain before that, even though I had

repeatedly said the pain was very bad. Vicodin is a narcotic, but I

used it only when I needed it, and just knowing that there was

something that would aleviate the pain helped enormously.

Secondly, let me encourage your Mom not to lose hope, and to continue

to look for a doc who can help her. Just this past week, after I had

pretty much lost hope, I found a doc who specialized in my condition,

recognized it, and things have improved markedly under his

treatment. He was the third specialist I had seen, not to mention

two primary care physicians and a doc in another speciality, all of

whom had no idea what was going on.

Certainly switching from the amiodarone to some other med, such as

dofetilide, might be a solution. (Does anyone know if the potential

things Amiodarone can damage can cause stomach pain?) However, it

takes some time for Amiodarone to get completely out of the system.

Has your Mom had an endoscopy? Could something about what she is

eating cause this? Is it truly stomach pain vs. abdominal pain, such

as from pelvic floor muscle disorder? Is it associated with anything

in particular, such as before or after eating? Or eating certain

types of foods?

What is the heart condition that your Mom has? Does she have other

medical conditions?

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> Hi my name is Joe. I have been afib for twelve years and I just was

taken off

> of amiaodarone because it didn't work. ...> I have chronic A-fib

and the doctors have told me that alternatives to drugs

> for me

> would probably have to be a pacemaker, or an implantable

dfibrillator...

Joe, there are better meds that amiodarone, such as dofetilide.

Also, even for permanent afib, ablation may work. I think you need

to see another doc for another opinion. Why don't you post the city

you live in, and someone can proobably recommend a doc.

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> Hi my name is Joe. I have been afib for twelve years and I just was

taken off

> of amiaodarone because it didn't work. ...> I have chronic A-fib

and the doctors have told me that alternatives to drugs

> for me

> would probably have to be a pacemaker, or an implantable

dfibrillator...

Joe, there are better meds that amiodarone, such as dofetilide.

Also, even for permanent afib, ablation may work. I think you need

to see another doc for another opinion. Why don't you post the city

you live in, and someone can proobably recommend a doc.

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> Hi my name is Joe. I have been afib for twelve years and I just was

taken off

> of amiaodarone because it didn't work. ...> I have chronic A-fib

and the doctors have told me that alternatives to drugs

> for me

> would probably have to be a pacemaker, or an implantable

dfibrillator...

Joe, there are better meds that amiodarone, such as dofetilide.

Also, even for permanent afib, ablation may work. I think you need

to see another doc for another opinion. Why don't you post the city

you live in, and someone can proobably recommend a doc.

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Hi Jessie and welcome to our Group. I am so sorry your Mom is going

through such a hard time. I myself have never been on Amiodarone,

but we have lots of members who have been, or still are. There are

pros and cons about Amiodarone...some members are for it and some

are not. I would venture to say that more are not in favor of it,

because of the side effects. I am sure you will be hearing from

them shortly.

We have had lots of discussions about Amiodarone on the Board. You

might want to type the word " Amiodarone " in the Search Archives box

in the upper right portion of your screeen. In this way, you can

pull up all the Messages with that particular word in it.....

It would appear to me that your Mom should see another doctor - she

shouldn't have to live with such pain, and certainly not be

considering taking her life.

My thoughts and prayers are with both of you.

Ellen

69 NC

(back in NSR on Dofetilide)

***************************

(snip) surching for amiodarone. my mother has been on (Amiodarone)

this drug for a long time. she has been experiencing very bad

stomach pain for a while and the doctors can not determine the

cause, so we thought maybe the drugs she is on might be the problem.

(snip) the pain she is in is so bad she has seriously thought of

killing herself (snip) jessie

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Hi Jessie and welcome to our Group. I am so sorry your Mom is going

through such a hard time. I myself have never been on Amiodarone,

but we have lots of members who have been, or still are. There are

pros and cons about Amiodarone...some members are for it and some

are not. I would venture to say that more are not in favor of it,

because of the side effects. I am sure you will be hearing from

them shortly.

We have had lots of discussions about Amiodarone on the Board. You

might want to type the word " Amiodarone " in the Search Archives box

in the upper right portion of your screeen. In this way, you can

pull up all the Messages with that particular word in it.....

It would appear to me that your Mom should see another doctor - she

shouldn't have to live with such pain, and certainly not be

considering taking her life.

My thoughts and prayers are with both of you.

Ellen

69 NC

(back in NSR on Dofetilide)

***************************

(snip) surching for amiodarone. my mother has been on (Amiodarone)

this drug for a long time. she has been experiencing very bad

stomach pain for a while and the doctors can not determine the

cause, so we thought maybe the drugs she is on might be the problem.

(snip) the pain she is in is so bad she has seriously thought of

killing herself (snip) jessie

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Hi Jessie and welcome to our Group. I am so sorry your Mom is going

through such a hard time. I myself have never been on Amiodarone,

but we have lots of members who have been, or still are. There are

pros and cons about Amiodarone...some members are for it and some

are not. I would venture to say that more are not in favor of it,

because of the side effects. I am sure you will be hearing from

them shortly.

We have had lots of discussions about Amiodarone on the Board. You

might want to type the word " Amiodarone " in the Search Archives box

in the upper right portion of your screeen. In this way, you can

pull up all the Messages with that particular word in it.....

It would appear to me that your Mom should see another doctor - she

shouldn't have to live with such pain, and certainly not be

considering taking her life.

My thoughts and prayers are with both of you.

Ellen

69 NC

(back in NSR on Dofetilide)

***************************

(snip) surching for amiodarone. my mother has been on (Amiodarone)

this drug for a long time. she has been experiencing very bad

stomach pain for a while and the doctors can not determine the

cause, so we thought maybe the drugs she is on might be the problem.

(snip) the pain she is in is so bad she has seriously thought of

killing herself (snip) jessie

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Hi Jessie,

I'm compelled to respond whenever someone touches home. I too have experienced

stomach/colon discomfort after being on Amio for 3 months. If the symptoms

continue, I will definitely go for tests. It seems to me that if your Mother

tested positive on all the stomach tests, then the Amio would be highly suspect

as the cause of her discomfort. Amiodarone is a very forgiving drug! It

store's up in the body for a very long time. My EP has advised me to

discontinue the Drug for 3 days and monitor for any changes. Ask your Doctor

about this. If your Mom can afford to go off the drug for several days it might

tell the tale. I'm also on 325mg Aspirin per day, and I'm reducing this to

81mg's. If your Mom is on Aspirin or Coumadin, both of these could also cause

stomach discomfort. Keep fighting Jessie!! Keep putting pressure on the

medics! There has to be a diagnosis!!

Good Luck!!

To: AFIBsupport

Sent: Monday, August 19, 2002 5:32 PM

Subject: desperate for help

hello everyone.

i found this site while i was surching for amiodarone. my mother has

been on this drug for a long time.

she has been experiencing very bad stomach pain for a while and the

doctors can not determine the cause, so we thought maybe the drugs

she is on might be the problem.

i was wondering if others have had similar problems. if so could you

get back to me, the pain she is in is so bad she has seriously

thought of killing herself rather than continue like this. we are

running out of hope.

thank you

jessie

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Hi Jessie,

I'm compelled to respond whenever someone touches home. I too have experienced

stomach/colon discomfort after being on Amio for 3 months. If the symptoms

continue, I will definitely go for tests. It seems to me that if your Mother

tested positive on all the stomach tests, then the Amio would be highly suspect

as the cause of her discomfort. Amiodarone is a very forgiving drug! It

store's up in the body for a very long time. My EP has advised me to

discontinue the Drug for 3 days and monitor for any changes. Ask your Doctor

about this. If your Mom can afford to go off the drug for several days it might

tell the tale. I'm also on 325mg Aspirin per day, and I'm reducing this to

81mg's. If your Mom is on Aspirin or Coumadin, both of these could also cause

stomach discomfort. Keep fighting Jessie!! Keep putting pressure on the

medics! There has to be a diagnosis!!

Good Luck!!

To: AFIBsupport

Sent: Monday, August 19, 2002 5:32 PM

Subject: desperate for help

hello everyone.

i found this site while i was surching for amiodarone. my mother has

been on this drug for a long time.

she has been experiencing very bad stomach pain for a while and the

doctors can not determine the cause, so we thought maybe the drugs

she is on might be the problem.

i was wondering if others have had similar problems. if so could you

get back to me, the pain she is in is so bad she has seriously

thought of killing herself rather than continue like this. we are

running out of hope.

thank you

jessie

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Hi Joe,

I'm interested in talking about Amiodarone. Could you please be a little more

specific about your history with this drug. Twelve years is a long time to be

on any drug, much less than Amiodarone. When you say " it didn't work " , were you

still in A-Fib all that time? Or, did the A-Fib just return recently? Did you

actually develop a Liver problem?

Thanks,

Tom

Re: desperate for help

Hi my name is Joe. I have been afib for twelve years and I just was taken off

of amiaodarone because it didn't work. It is toxic to the liver and if is any

way to get off of it, check it out. I understand it is usually used for

people who have high ventricular

fibrillation. I hope there is something you folks can do otherwise than to

take that drug. I have explored massage and accupuncture and a variety of

supplements and the best I have been able to do comes from massage and from

Cranio-Sacral work.

I have chronic A-fib and the doctors have told me that alternatives to drugs

for me

would probably have to be a pacemaker, or an implantable dfibrillator, but

I'd have to take coumadin the rest of my life. Massage is a lot cheaper than

drugs, but, like drugs, I have to keep doing it, but it makes me feel much

better. I will pray that you find the answer you seek. Thanks, ph

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Hi Joe,

I'm interested in talking about Amiodarone. Could you please be a little more

specific about your history with this drug. Twelve years is a long time to be

on any drug, much less than Amiodarone. When you say " it didn't work " , were you

still in A-Fib all that time? Or, did the A-Fib just return recently? Did you

actually develop a Liver problem?

Thanks,

Tom

Re: desperate for help

Hi my name is Joe. I have been afib for twelve years and I just was taken off

of amiaodarone because it didn't work. It is toxic to the liver and if is any

way to get off of it, check it out. I understand it is usually used for

people who have high ventricular

fibrillation. I hope there is something you folks can do otherwise than to

take that drug. I have explored massage and accupuncture and a variety of

supplements and the best I have been able to do comes from massage and from

Cranio-Sacral work.

I have chronic A-fib and the doctors have told me that alternatives to drugs

for me

would probably have to be a pacemaker, or an implantable dfibrillator, but

I'd have to take coumadin the rest of my life. Massage is a lot cheaper than

drugs, but, like drugs, I have to keep doing it, but it makes me feel much

better. I will pray that you find the answer you seek. Thanks, ph

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In a message dated 8/19/2002 6:50:16 PM Central Daylight Time,

candybrainuk@... writes:

> hello everyone.

> i found this site while i was surching for amiodarone. my mother has

> been on this drug for a long time.

> she has been experiencing very bad stomach pain for a while and the

> doctors can not determine the cause, so we thought maybe the drugs

> she is on might be the problem.

> i was wondering if others have had similar problems. if so could you

> get back to me, the pain she is in is so bad she has seriously

> thought of killing herself rather than continue like this. we are

> running out of hope.

> thank you

> jessie

>

>

Amiodarone can definitly be the cause, it is a known side effect. At the end

of my one month loading period I started having severe stomach pain. When I

dropped the dossage from 400mg to 200mg the pain went away. I don't know if I

had a bug or if it was the amiodarone, but I have never had that type of

stomach pain. I can't believe her doctors would not suspect the amiodarone.

Guy in Iowa

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> In a message dated 8/19/2002 6:50:16 PM Central Daylight Time,

> candybrainuk@y... writes:

>

>

> > hello everyone.

> > i found this site while i was surching for amiodarone. my mother

has

> > been on this drug for a long time.

> > she has been experiencing very bad stomach pain for a while

>

> Amiodarone can definitly be the cause, it is a known side effect.

At the end

> of my one month loading period I started having severe stomach

pain. When I

> dropped the dossage from 400mg to 200mg the pain went away.

Guy, how long did it take after you dropped the dosage of amiodarone

for the pain to go away?

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Hi Jessie

My heart goes out to you and your mum. As someone else on the board said.

Get aggressive. It is not on that someone should be left in such pain. I did

a search on amioderone side effects for you (thankfully this is a drug I

never got given). It does mention upset stomach and says you should contact

your Dr if it is severe.

From medline

Amiodarone may cause lung damage. If you experience any of the following

symptoms, call your doctor immediately: difficulty breathing, cough, or any

other unusual breathing changes.Amiodarone may cause liver and eye damage.

Keep all scheduled appointments with your doctor so that your liver and eye

function can be monitored.Amiodarone may worsen your heart rhythm. Your

doctor will monitor you carefully when you start taking amiodarone or when a

change to your dose is made.Keep all appointments with your doctor and the

laboratory. Blood tests, EKGs (electrocardiograms), and chest X-rays may be

performed periodically.

Why is this medication prescribed?

Amiodarone is used to treat and prevent arrhythmias (abnormal heart

rhythms). Amiodarone is in a class of medications called antiarrhythmics. It

works by relaxing an overactive heart.

How should this medicine be used?

Amiodarone comes as a tablet to take by mouth. It usually is taken once or

twice a day. Follow the directions on your prescription label carefully, and

ask your doctor or pharmacist to explain any part you do not understand.

Take amiodarone exactly as directed. Do not take more or less of it or take

it more often than prescribed by your doctor.

Amiodarone controls arrhythmias but does not cure them. Continue to take

amiodarone even if you feel well. Do not stop taking amiodarone without

talking to your doctor.

Other uses for this medicine

This medication should not be prescribed for other uses; ask your doctor or

pharmacist for more information.

What special precautions should I follow?

Before taking amiodarone,

tell your doctor and pharmacist if you are allergic to amiodarone or any

other drugs.

tell your doctor and pharmacist what prescription and nonprescription

medications you are taking, especially anticoagulants (blood thinners) such

as warfarin (Coumadin), cyclosporine (Neoral, Sandimmune), digoxin

(Lanoxin), other antiarrhythmic drugs such as quinidine (Quinaglute) or

procainamide (Pronestyl), and vitamins.

tell your doctor if you have or have ever had thyroid disease.

tell your doctor if you are pregnant, plan to become pregnant, or are

breast-feeding. If you become pregnant while taking amiodarone, call your

doctor immediately.

if you are having surgery, including dental surgery, tell your doctor or

dentist that you are taking amiodarone.

plan to avoid unnecessary or prolonged exposure to sunlight and to wear

protective clothing, sunglasses, and sunscreen. Amiodarone may make your

skin sensitive to sunlight; exposed skin may turn blue-gray.

What should I do if I forget a dose?

Take the missed dose as soon as you remember it. However, if it is almost

time for the next dose, skip the missed dose and continue your regular

dosing schedule. Do not take a double dose to make up for a missed one.

What side effects can this medication cause?

Although side effects from amiodarone are not common, they can occur. Tell

your doctor if any of these symptoms are severe or do not go away:

excessive tiredness

tremor and involuntary movements

poor coordination

upset stomach

vomiting

constipation

loss of appetite

light sensitivity

dry eyes

skin sensitivity

If you experience any of the following symptoms, or those listed in the

IMPORTANT WARNING section, call your doctor immediately:

chest pain

shortness of breath, especially with exercise

rapid or irregular heartbeat

decreased vision or changes in your ability to see

tingling in the hands and feet

What storage conditions are needed for this medicine?

Keep this medication in the container it came in, tightly closed, and out of

reach of children. Store it at room temperature and away from excess heat

and moisture (not in the bathroom). Throw away any medication that is

outdated or no longer needed. Talk to your pharmacist about the proper

disposal of your medication.

What other information should I know?

Amiodarone can cause visual impairment. You will need to have regular eye

examinations while taking amiodarone.

Do not let anyone else take your medication. Ask your pharmacist any

questions you have about refilling your prescription.

Last Revised - 11/08/2001

desperate for help

> hello everyone.

> i found this site while i was surching for amiodarone. my mother has

> been on this drug for a long time.

> she has been experiencing very bad stomach pain for a while and the

> doctors can not determine the cause, so we thought maybe the drugs

> she is on might be the problem.

> i was wondering if others have had similar problems. if so could you

> get back to me, the pain she is in is so bad she has seriously

> thought of killing herself rather than continue like this. we are

> running out of hope.

> thank you

> jessie

>

>

>

>

> Web Page - http://groups.yahoo.com/group/AFIBsupport

> FAQ -

http://groups.yahoo.com/group/AFIBsupport/files/Administrative/faq.htm

> For more information: http://www.dialsolutions.com/af

> Unsubscribe: AFIBsupport-unsubscribe

> List owner: AFIBsupport-owner

> For help on how to use the group, including how to drive it via email,

> send a blank email to AFIBsupport-help

>

> Nothing in this message should be considered as medical advice, or should

be acted upon without consultation with one's physician.

>

>

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In a message dated 8/20/2002 12:33:29 PM Central Daylight Time,

trudyjh@... writes:

> Guy, how long did it take after you dropped the dosage of amiodarone

> for the pain to go away?

>

I think it was the 2nd day when I started to feel better and felt completely

normal by the 5th. Since amiodarone stays in the body so long it seems to me

that her doctors would agree to stop treatment for a few days and see if it

helped. Don't do it without talking to the doctor!!!!!

Guy

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> Guy, how long did it take after you dropped the dosage of amiodarone

> for the pain to go away?

>

<<I think it was the 2nd day when I started to feel better and felt

completely

normal by the 5th. Since amiodarone stays in the body so long it seems to me

that her doctors would agree to stop treatment for a few days and see if it

helped. Don't do it without talking to the doctor!!!!!

Guy>>

I think it can take up to 10 days for the first 50% of plasma amiodarone to

reduce. The half-life is any where between 26 and 107 days after that. It's

different from person to person but it could be a few weeks before you start

noticing any differences.

--

D

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> Guy, how long did it take after you dropped the dosage of amiodarone

> for the pain to go away?

>

<<I think it was the 2nd day when I started to feel better and felt

completely

normal by the 5th. Since amiodarone stays in the body so long it seems to me

that her doctors would agree to stop treatment for a few days and see if it

helped. Don't do it without talking to the doctor!!!!!

Guy>>

I think it can take up to 10 days for the first 50% of plasma amiodarone to

reduce. The half-life is any where between 26 and 107 days after that. It's

different from person to person but it could be a few weeks before you start

noticing any differences.

--

D

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> Based on my experience I thought that maybe the stomach upset was

due to the

> presence of amiodarone in the stomach before it passed through to

the

> intestines and was absorbed.

> Has anyone talked to a Dr about this or otherwise know the

mechanism for

> stomach upset?

> Guy

If that's the mechanism, taking it with a meal, if that's allowed,

may help.

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> Based on my experience I thought that maybe the stomach upset was

due to the

> presence of amiodarone in the stomach before it passed through to

the

> intestines and was absorbed.

> Has anyone talked to a Dr about this or otherwise know the

mechanism for

> stomach upset?

> Guy

If that's the mechanism, taking it with a meal, if that's allowed,

may help.

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> Based on my experience I thought that maybe the stomach upset was

due to the

> presence of amiodarone in the stomach before it passed through to

the

> intestines and was absorbed.

> Has anyone talked to a Dr about this or otherwise know the

mechanism for

> stomach upset?

> Guy

If that's the mechanism, taking it with a meal, if that's allowed,

may help.

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