Guest guest Posted May 4, 2000 Report Share Posted May 4, 2000 a, 1,348 cases of NF2 is a lot. If we assume there is 1 person with NF2 for every 40,000 people then you would only need a country with a population of about 54 million to get 1,348 cases of NF2. I suspect some NF2 cases " slip through the cracks " and it would be hard to cover every hospital. With the populations of the UK plus the US (probably close to 500 million??), I am not surprized Dr. found 1,348 cases of NF2. Also, would it be possible for you to find out exactly where and when Dr. published his paper? ---------- From: NF Sent: Wednesday, April 26, 2000 11:54 AM To: 'NF2_Crewegroups' Subject: RE: a Tweedy I have written to ask Gareth which centres were involved in the study. After all, to have such large numbers in a research project (1348 people) he needed other centres and he says they are in North America and Europe. I'll let you know what he says when he gets back to me. a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2000 Report Share Posted May 5, 2000 a, I read that 5% (1 in 20) of unilateral AN people go on to have a second one (and therefore NF2). If 1 in 1,450 get an AN in their lifetime, then 1 in 290,000 will have NF2. This is close to the 1 in 200,000 said. Using the 1 in 200,000 figure, the population you would need to find 1,348 cases of NF2 is 270 million (ie, 200,000 times 1,348). This would be about the size of the US population assuming you have everyone covered. ---------- From: a Tweedy Sent: Friday, May 05, 2000 12:16 PM To: NF2_Crewegroups Subject: RE: a Tweedy That's true until the second acoustic is diagnosed. After all, many people have a unilateral AN and it is possible that either the second AN is very small or not noticed on the MRI or whatever scan is carried out when the first is discovered. I think in the UK it is reckoned that about 500 AN operations are done each year (population 58 million). Given a life span of 80 years, that's 40,000 in a lifetime. Divide that into the population and you get 1450. This means that 1 in 1450 will develop an AN during their lifetime and obviously a small proportion of these will have Nf2. Hope this helps a Re: the 1348 NF2 people and the 1:40 000 stat ... I read that the actual number of cases DIAGNOSED is only somewhere near 1:200000 !!! This means there are a lot of peopl with NF2 that don't even know it. -- Chartrand jchartra@... http://www.geocities.com/rainforest/vines/6079 " Anyone who tells you they can create a forest is either stupid, or lying. " - Suzuki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2000 Report Share Posted May 6, 2000 Do you guys like math or what???? Joanie How about compaing race like white verses black verses asian or male verses female. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2000 Report Share Posted May 6, 2000 Well Joanie, Now that would be interesting ~|) but we have this theory that if YOU suggest it then YOU do it then we check your math, and grade you accordingly. ~|) Thats only fair don't you think .......... he he he he...... cough cough .... .. Re: FW: a Tweedy > Do you guys like math or what???? > > Joanie > > How about compaing race like white verses black verses asian or male > verses female. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2000 Report Share Posted May 8, 2000 a, You are correct! It does work out to 1 in 29,000. Sorry for the error. I'm surprized did not pick it out as he volunteered to grade everyone on their math. Anyway, this is close to the 1 in 35,000 the docs quote. I wonder about s comment that only 1 in 200,000 are DIAGNOSED with NF2. I think there is something here but I've only seen the 1 in 35,000 to 40,000 number. ---------- From: a Tweedy Sent: Monday, May 08, 2000 6:19 PM To: NF2_Crewegroups Subject: RE: a Tweedy Is it my maths or have you got an extra '0' in there? If you multiply 1450 x 20, it isn't 290,000 but 29,000. Therefore, if 1 in 20 will develop a second AN, then the incidence of Nf2 is 1 in 29,000. Our books quote 1 in 35,000 but the doctors here say 1 in 33,000 - about 1500 in the UK. The US population is about 260 million - about 7,500 cases. (I think my the sums are correct!) a a, I read that 5% (1 in 20) of unilateral AN people go on to have a second one (and therefore NF2). If 1 in 1,450 get an AN in their lifetime, then 1 in 290,000 will have NF2. This is close to the 1 in 200,000 said. Using the 1 in 200,000 figure, the population you would need to find 1,348 cases of NF2 is 270 million (ie, 200,000 times 1,348). This would be about the size of the US population assuming you have everyone covered. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2000 Report Share Posted May 8, 2000 I hate math!!!!! then again, I am a blonde :-) Joan Emerick wrote: > Do you guys like math or what???? > > Joanie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2000 Report Share Posted May 12, 2000 Don't I get the dunce hat?? ---------- From: & Ann Cross Sent: Monday, May 08, 2000 5:46 PM To: NF2_Crewegroups Subject: Re: a Tweedy a to the top of the class!!!!!!!!! obviously superior education St Trinies I presume He he he. stay behind and do the times table, 10 times. ~|) .. Quote Link to comment Share on other sites More sharing options...
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