Re: Need opionions, mito or not?

[Guest guest]

-

Thanks for sharing that very special moment with us.

Laurie

.L. wrote:

>

>

> I was touched by your story, especially because I live it too.My son is

> more like a 6 month old than 20 months, he is immobile and nonverbal but

> does this hinder his ability to be a loving, social being? Far from it!

> He has amazed me and everyone who meets him.All the nurses and docs we

> encounter fall in love with him.The nurses from my town come to the city

> when he is in because they miss him!He has single-handedly brought

> members of my family who had not talked to each other for years, back

> together and reunited me with my mom, which I thought was a relationship

> that could'nt be mended.He lights up a room when he smiles and has love

> for everyone who even looks his way!He makes people feel good in a world

> where there can be so much bad.One experience really hit me......we were

> at our metabolic clinic appointment in the city and while we were

> waiting in the play area a 15 yr old boy wheeled himself in.He was using

> his feet and had his head down.He was a patient on the ward and had

> obviously had extensive brain surgery.His scalp was all scars.There were

> other parents and kids in the room and they all started acting wary.The

> ones who knew him(he is a long time resident of this ward) were trying

> to convince him to leave and return to his room.I was shocked!Anyway

> Jonah is watching him and as soon as the boy makes eye contact with him

> his face lit up smiling.The boy wheeled over and slurrily asked if he

> could give Jonah a toy.I of course said yes and for the next 20 min they

> interacted with one another.The boy told me he looks scary and kids are

> afraid of him because of his scars.I said that Jonah didn't seem scared

> and he looked so sad for a minute and then he hung his head.I was

> starting to get a big lump in my throat when all of a sudden Jonah

> reached up (this is rare) and placed both hands on this boys head and

> began to rub one of the scars with his thumb.The boy looked up with a

> smile of such joy and said you are right! He isn't scared!I swear I

> barely kept the tears in!It may be a little wacky of me but it seemed

> like Jonah understood on some level what this boy needed and gave it to

> him.Despite his disabilities, Jonah connected withthis boy.Well, my

> novel is over.......Thanks for listening.

[Guest guest]

-

Thanks for sharing that very special moment with us.

Laurie

.L. wrote:

>

>

> I was touched by your story, especially because I live it too.My son is

> more like a 6 month old than 20 months, he is immobile and nonverbal but

> does this hinder his ability to be a loving, social being? Far from it!

> He has amazed me and everyone who meets him.All the nurses and docs we

> encounter fall in love with him.The nurses from my town come to the city

> when he is in because they miss him!He has single-handedly brought

> members of my family who had not talked to each other for years, back

> together and reunited me with my mom, which I thought was a relationship

> that could'nt be mended.He lights up a room when he smiles and has love

> for everyone who even looks his way!He makes people feel good in a world

> where there can be so much bad.One experience really hit me......we were

> at our metabolic clinic appointment in the city and while we were

> waiting in the play area a 15 yr old boy wheeled himself in.He was using

> his feet and had his head down.He was a patient on the ward and had

> obviously had extensive brain surgery.His scalp was all scars.There were

> other parents and kids in the room and they all started acting wary.The

> ones who knew him(he is a long time resident of this ward) were trying

> to convince him to leave and return to his room.I was shocked!Anyway

> Jonah is watching him and as soon as the boy makes eye contact with him

> his face lit up smiling.The boy wheeled over and slurrily asked if he

> could give Jonah a toy.I of course said yes and for the next 20 min they

> interacted with one another.The boy told me he looks scary and kids are

> afraid of him because of his scars.I said that Jonah didn't seem scared

> and he looked so sad for a minute and then he hung his head.I was

> starting to get a big lump in my throat when all of a sudden Jonah

> reached up (this is rare) and placed both hands on this boys head and

> began to rub one of the scars with his thumb.The boy looked up with a

> smile of such joy and said you are right! He isn't scared!I swear I

> barely kept the tears in!It may be a little wacky of me but it seemed

> like Jonah understood on some level what this boy needed and gave it to

> him.Despite his disabilities, Jonah connected withthis boy.Well, my

> novel is over.......Thanks for listening.

[Guest guest]

-

Thanks for sharing that very special moment with us.

Laurie

.L. wrote:

>

>

> I was touched by your story, especially because I live it too.My son is

> more like a 6 month old than 20 months, he is immobile and nonverbal but

> does this hinder his ability to be a loving, social being? Far from it!

> He has amazed me and everyone who meets him.All the nurses and docs we

> encounter fall in love with him.The nurses from my town come to the city

> when he is in because they miss him!He has single-handedly brought

> members of my family who had not talked to each other for years, back

> together and reunited me with my mom, which I thought was a relationship

> that could'nt be mended.He lights up a room when he smiles and has love

> for everyone who even looks his way!He makes people feel good in a world

> where there can be so much bad.One experience really hit me......we were

> at our metabolic clinic appointment in the city and while we were

> waiting in the play area a 15 yr old boy wheeled himself in.He was using

> his feet and had his head down.He was a patient on the ward and had

> obviously had extensive brain surgery.His scalp was all scars.There were

> other parents and kids in the room and they all started acting wary.The

> ones who knew him(he is a long time resident of this ward) were trying

> to convince him to leave and return to his room.I was shocked!Anyway

> Jonah is watching him and as soon as the boy makes eye contact with him

> his face lit up smiling.The boy wheeled over and slurrily asked if he

> could give Jonah a toy.I of course said yes and for the next 20 min they

> interacted with one another.The boy told me he looks scary and kids are

> afraid of him because of his scars.I said that Jonah didn't seem scared

> and he looked so sad for a minute and then he hung his head.I was

> starting to get a big lump in my throat when all of a sudden Jonah

> reached up (this is rare) and placed both hands on this boys head and

> began to rub one of the scars with his thumb.The boy looked up with a

> smile of such joy and said you are right! He isn't scared!I swear I

> barely kept the tears in!It may be a little wacky of me but it seemed

> like Jonah understood on some level what this boy needed and gave it to

> him.Despite his disabilities, Jonah connected withthis boy.Well, my

> novel is over.......Thanks for listening.

[Guest guest]

Hi,

When I was pregnant with our son I never felt movement. Even though our son

is still going through testing for mito I thoought I would share that with

you. Jill

[Guest guest]

Hi,

When I was pregnant with our son I never felt movement. Even though our son

is still going through testing for mito I thoought I would share that with

you. Jill

[Guest guest]

Hi,

When I was pregnant with our son I never felt movement. Even though our son

is still going through testing for mito I thoought I would share that with

you. Jill