Guest guest Posted July 18, 2001 Report Share Posted July 18, 2001 Barb -- There's two components to NAET -- the testing and the treatment. We had done traditional allergy testing which showed nothing, so I was really expecting there to be nothing with the NAET testing. . .WRONG! was sensitive to virtually everything. We decided to go ahead with treatments -- in 's case, this was going to be a very long process, even if it took one clearing session per allergen group. It generally took 2-3 treatments to "clear." Each time we saw increased seizurse within 24-72 hours. We cleared egg, cleared milk but not cheese (just literally couldn't get it to clear), cleared Vitamin C but not citric acid and had a horrible time with the B vitamins. The weird things with the B vitamins (which kind of made me lose faith) was that she was initially clear on some, but not all -- and the next time we'd test it would have switched around. We were going to have to clear individually, which would have been 15 clearings. . . and that's if it only took one try! Given the increased seizures and the stress that it seemed to put on , we decided to shelve it. I'm not saying we'll never do it again, but I'd be cautious. Faye just had quite an experience with Mike, although it seemed to have turned out well in the end. Incidentally, I literally just got back from meeting with our chiropractor who's doing cranio-sacral work with . He's also a nutritionist and naturopath. I wanted someone to review what she was eating and the supplments she was taking, as well as those recommended on this list. We discussed the NAET when I asked about absorption with the B vitamins. . . his comment was that if you were taking digestive enzymes and acidopholus (which he thinks everyone should take every day. . . even he never misses them) there should be no need to worry about the absorption, which is one of the main issues with the sensitivities identified by NAET. Hope this helps and makes sense. . .let me know if you have more specific questions (either posting or private e-mail). Good luck and let us know what you decide to do.--DeEtte *** Looking for some information from those of you who have tried NAET treatments for seizures. Positive or negative feedback welcome. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2001 Report Share Posted July 18, 2001 Scary, and interesting....would you keep me posted please? I talked to a local Mom today who has been seeking alternative treatments for her son for 10 years....homeopath, osteopath, etc. NAET is the only thing that has helped both her and her son. They've been doing it for 16 months, twice a week. $$$$$ for sure.....and I'm considering at least a consult with the guy she uses. Thanks - Barb Re: NAET treatments.... Hi Barb We have started NAET with Mike just in the past couple of weeks. You may recall Mike is drug free and for now not doing the keto diet since I had suspected numerous food sensitivities which seemed to be becoming worse. Doing diet and allergy /elimination/rotation diets was becoming a nightmare so we decided to take a keto vacation until I could sort out some of the allergy stuff. After two months of marked diet restriction and nutritional supplements we were at the same or slightly better seizure control than when on Keto. I met several people who suggested NAET. I have researched this several times and being a very logical person thought it seemed too quacky for me so ignored it but after being pushed to it over and over again I though it may help to at least identify some undetected sensitivities- so I went just for the test. being very skeptical I did not tell the practitioner any of the items I knew Mike was sensitive to- well she ided all of these and many more- she was bang on. I agreed to a couple of treatments just to see what would happen but expected nothing. After the first session Mike had a seizure free day- we rarely have these. We went back the next day to see if treatment one had worked- apparently it had and we did treatment two- this was for calcium. Mike began seizuring on the way home and did not stop- these seizures were like none I've ever seen- complex partials according to our neuro but Mike had never had these. This was friday and i decided to wait it out- by Sunday I resorted to Ativan- no results still having tonic/clonics/myoclonics/atonics complex partials- the full bag. I of course was in denial that this kooky treatment could cause it. By tuesday I called neuro and we planned admission to hosp for wed- neuro was very grim- talked about LGS etc. Late tue I called NAET lady- act of desperation. She was very insistant that I come and see her- immediately- I was still skeptical and thought she was a quack but something in her voice made me go. She saw Mike- rubbed his back and five minutes later the complex partials stopped- haven't come back. His thoughts cleared and on the way home in the van he was sitting up and having a great conversation- hadn't talked in days. Small myoclonics came back and a couple of drops/day but this is less than normal. 11 days went by with no tonic/clonics- very good for Mike- until today but he had an easy recovery. I'm now less skeptical - I think what i witnessed was nothing short of a miracle. We have done two more treatments with much less alarming results - at least no increase in seizures. Mike is clearer and happy. I'm not sure what is happening but we are certainly going to continue with this for a while. Faye swoyer wrote: Hi all,Looking for some information from those of you who have tried NAET treatments for seizures. Positive or negative feedback welcome. Found a local person who does this and am considering it for Jake. Thanks.Barb Swoyer, Jake's mom, Boston "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2001 Report Share Posted July 18, 2001 Anyone got any websites on NAET. Sounds like it has to do with food allergies. I'm very interested in learning more. Kathy in Tennessee Mom to - 6 - Keto kid since 02/00, Med free, seizures 95% reduced Mom to 'lil sis, a - 3 " Even to your old age and gray hairs I am He, I am He who will sustain you. I have made you and I will carry you; I will sustain you and I will rescue you. " Isaiah 46:4 On Thu, 19 Jul 2001 01:08:30 -0300 kevin cooper writes: > Hi Barb > We have started NAET with Mike just in the past couple of weeks. You > may > recall Mike is drug free and for now not doing the keto diet since I > had > suspected numerous food sensitivities which seemed to be becoming > worse. > Doing diet and allergy /elimination/rotation diets was becoming a > nightmare so we decided to take a keto vacation until I could sort > out > some of the allergy stuff. After two months of marked diet > restriction > and nutritional supplements we were at the same or slightly better > seizure control than when on Keto. I met several people who > suggested > NAET. I have researched this several times and being a very logical > person thought it seemed too quacky for me so ignored it but after > being > pushed to it over and over again I though it may help to at least > identify some undetected sensitivities- so I went just for the test. > being very skeptical I did not tell the practitioner any of the > items I > knew Mike was sensitive to- well she ided all of these and many > more- > she was bang on. I agreed to a couple of treatments just to see what > would happen but expected nothing. After the first session Mike had > a > seizure free day- we rarely have these. We went back the next day to > see > if treatment one had worked- apparently it had and we did treatment > two- > this was for calcium. Mike began seizuring on the way home and did > not > stop- these seizures were like none I've ever seen- complex partials > according to our neuro but Mike had never had these. This was friday > and > i decided to wait it out- by Sunday I resorted to Ativan- no results > still having tonic/clonics/myoclonics/atonics complex partials- the > full > bag. I of course was in denial that this kooky treatment could cause > it. > By tuesday I called neuro and we planned admission to hosp for wed- > neuro was very grim- talked about LGS etc. Late tue I called NAET > lady- > act of desperation. She was very insistant that I come and see her- > immediately- I was still skeptical and thought she was a quack but > something in her voice made me go. She saw Mike- rubbed his back and > five minutes later the complex partials stopped- haven't come back. > His > thoughts cleared and on the way home in the van he was sitting up > and > having a great conversation- hadn't talked in days. Small > myoclonics > came back and a couple of drops/day but this is less than normal. 11 > days went by with no tonic/clonics- very good for Mike- until today > but > he had an easy recovery. I'm now less skeptical - I think what i > witnessed was nothing short of a miracle. We have done two more > treatments with much less alarming results - at least no increase in > seizures. Mike is clearer and happy. I'm not sure what is happening > but > we are certainly going to continue with this for a while. > Faye > swoyer wrote: > > > Hi all,Looking for some information from those of you who have > tried > > NAET treatments for seizures. Positive or negative feedback > welcome. > > Found a local person who does this and am considering it for Jake. > > Thanks.Barb Swoyer, Jake's mom, Boston > > > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a > last > > resort! " > > > > List is for parent to parent support only. > > It is important to get medical advice from a > > professional keto team! > > Subscribe: ketogenic-subscribe > > Unsubscribe: > ketogenic-unsubscribe > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2001 Report Share Posted July 18, 2001 Hi Barb We have started NAET with Mike just in the past couple of weeks. You may recall Mike is drug free and for now not doing the keto diet since I had suspected numerous food sensitivities which seemed to be becoming worse. Doing diet and allergy /elimination/rotation diets was becoming a nightmare so we decided to take a keto vacation until I could sort out some of the allergy stuff. After two months of marked diet restriction and nutritional supplements we were at the same or slightly better seizure control than when on Keto. I met several people who suggested NAET. I have researched this several times and being a very logical person thought it seemed too quacky for me so ignored it but after being pushed to it over and over again I though it may help to at least identify some undetected sensitivities- so I went just for the test. being very skeptical I did not tell the practitioner any of the items I knew Mike was sensitive to- well she ided all of these and many more- she was bang on. I agreed to a couple of treatments just to see what would happen but expected nothing. After the first session Mike had a seizure free day- we rarely have these. We went back the next day to see if treatment one had worked- apparently it had and we did treatment two- this was for calcium. Mike began seizuring on the way home and did not stop- these seizures were like none I've ever seen- complex partials according to our neuro but Mike had never had these. This was friday and i decided to wait it out- by Sunday I resorted to Ativan- no results still having tonic/clonics/myoclonics/atonics complex partials- the full bag. I of course was in denial that this kooky treatment could cause it. By tuesday I called neuro and we planned admission to hosp for wed- neuro was very grim- talked about LGS etc. Late tue I called NAET lady- act of desperation. She was very insistant that I come and see her- immediately- I was still skeptical and thought she was a quack but something in her voice made me go. She saw Mike- rubbed his back and five minutes later the complex partials stopped- haven't come back. His thoughts cleared and on the way home in the van he was sitting up and having a great conversation- hadn't talked in days. Small myoclonics came back and a couple of drops/day but this is less than normal. 11 days went by with no tonic/clonics- very good for Mike- until today but he had an easy recovery. I'm now less skeptical - I think what i witnessed was nothing short of a miracle. We have done two more treatments with much less alarming results - at least no increase in seizures. Mike is clearer and happy. I'm not sure what is happening but we are certainly going to continue with this for a while. Faye swoyer wrote: Hi all,Looking for some information from those of you who have tried NAET treatments for seizures. Positive or negative feedback welcome. Found a local person who does this and am considering it for Jake. Thanks.Barb Swoyer, Jake's mom, Boston "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2001 Report Share Posted July 19, 2001 Hey Hi all, Looking for some information from those of you who have tried NAET treatments for seizures. Positive or negative feedback welcome. Found a local person who does this and am considering it for Jake. Thanks. Hey Barb... Just wanted to add to Faye and De's posts... We did a year and half of NAET...all the way up until went status. I was more like th eothers and skeptical at first...and Dh?? Ohhhhh man oh man does he make the jokes!! but until youve had it done to yourself, its hard to understand. Its based on Kniesiology or muscle response testing...and this is a good descriptionhttp://www.drellencutler.com/html/testim.html We originally started with a chiropractor near Chicago...I kinda got this feeling bout him and he did help us with the amino acid testing and some other stuff, but he defiantly doesnt "have it" when it comes to NAET! I think it takes someone more sensitive...like Dio, the chiropractior that we worked with for so long. I tested him several times. I would bring in all kinds of things in jars to be tested. A few times I would bring in the same things (and not tell him) or I would bring in the same things several times...and he never was wrong. I was amazed! As far as how it helped Bry??? Well...During testing we found an extensive list of things that were causing seizures, more then just the wheat and dairy that I suspected. We went through and as we cleared things we would see all kinds of reactions in bry. I was amazed by some things. LIke quite a few times he would finish the clearing and Brys face woudl sometimes go flush, or sometimes go pale!! I mean how can simply beating and rubbing on someones back (hands, elbows, knees, and ankles) cause this if there isnt anything to it?? also we would see as everyone else noted...periods of increased seizures depending on what we were clearing. When it came to things like the specific nutrients...problems.... things like clearing the drugs he had been on or clearing the vaccines, brought relief! I freaked at one session. We were testing him for vaccines...the minute he put the MMR in s hand he went in to an immediate seizure!! Doc was so scared after his reaction he got the individual vaccines and we cleared them one at a time. The first one he used himself as the surrogate! (but no problems in clearing them) Other things that are helpful with this muscle response....we checked for parasites and viruses...never did get very far clearing them, but they are a problem. Plan to tackle this soon... I would take Bry during an increased seizure time, and this guy could tell me if it was a stomach bug, or sometimes something else. One time he had bryan spit in a vile and along with another vile, cleared the virus and got some seizure relief. He told me has liver, pancreas, and a clogged bile duct among other things. THis can be helpful too! After my car accident, he was treating me for double whiplash, and threw in some free NAET treatments when I went in for my adjustments. Some of the things that we cleared stayed cleared, but I still have my gluten intolerance, no matter what we did, I still had the problem. We tried clearing corn and dairy, but I still get stomach upset from it. Ive since read that its one of the hardest things to clear and stay cleared, and it takes a combination of clearings....never did do more on myself. Ive read that sometimes since these nutrients effect one another that repeat clearings are necessary. Well in light of recent developments with (hemispherectomy) I really dont plan to go back for more NAET treatments. I have no doubt that it works, and can be an excellent diagnosing tool! In fact I plan to take Bry to a different doc bout 1 hour away that is more into homeopathics using the muscle response as his diagnosis tool. I think that NAET is only scratching the surface of a deeper problem. Some with food sensitivities could be dealing with a systematic yeast problem....wasnt s. So treating them would be avoiding the root of the problem....although most of these people who do NAET should be able to diagnose this. s problem is an auto-immune problem...and my plan is to research the immune system further to try and figure out what is the root of our problem here!!! LIke I explained in an earlier post...from what I understand like with my celiacs disease, my body recognizes gluten as toxic and the immune response is to destroy my digestive (the cellia in my small intestine) s immune response from the glutamate (excitory amino acid) was to attack his brain tissure, causing encephalitis. I cant believe that removing half his brain will stop this out of wack immune system. Soooooo anyhooo....didnt mean to ramble on....But yes....I think NAET is a good idea, especially if youve found someone that comes with a recommendation from a friend! Cya BArb.....s mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2001 Report Share Posted July 19, 2001 Thanks you very much for the explanation, DeEtte. Liz -- In ketogenic@y..., " Person, DeEtte " <dperson@c...> wrote: > Wow. . .hard to explain. It's based on the principle that when the body > meets and allergen, it " short circuits " in some way due to an energy > blockage. An NAET test uses muscle response testing to see how strong or > weak the body is when met with an allergen. For young children, you can > actually test through a surrogate (my husband and I have both been surogates > for our daughter). The treatment involves " clearing " the allergen through > the system. That's a lot harder to explain, but it's based on the meridians > in the body -- kind of like an accupuncture without needles. There's a > book, " Say Goodbye to Illness " by Dr. Devi Nambudripad (after whom the > treatment is named). Also, you can learn more at www.naet.com > <http://www.naet.com> . > > To Barb and others. . .I posted earlier about some of the difficulties we > faced with NAET. I should also mention that: > > 1) I truly believe it could have been and may still be an answer. It's > just that we were going through this when things were at their worst and it > was very hard to watch the increased seizures. I do believe that it was a > " healing crises " and that may very well ultimately have helped. But, it > would have been a long haul. . .with lots of seizures. . . lots of time. . > .and lots of money. > > 2) We were in the midst of NAET when got chicken pox and that's really > when all H_LL broke loose. . . so we just tried to cut back on alternative > things and stay simple. > > One more thing. . . > > I've done the NAET testing myself. I have chronic bladder infections that > may be leading to interstitial cystitis (no fun). When I went through the > testing, I also had a number of sensitivities. One of them was to salt. We > figured out that my problems started when my husband fixed the water > softener which had been turned off when we bought our house -- water > softeners use salt. When my husband turned the water softener off and I > began taking an herb, Uva Ursi, my symptoms cleared up. I just recently had > a check-up and they found blood in my urine, so they think that I never > really healed. My doctor recommended a whole natural regiman of healing and > the things he told me to avoid or cut out altogether -- caffeine, alcohol, > artificial sweeteners and spices -- were all things I turned up highly > sensitive to with NAET. I never did the treatments. . . it's enough to > focus time, energy and money on . . .but it is interesting food for > thought.--DeEtte > > *** > > what is this treatment... NAET? > Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2001 Report Share Posted July 19, 2001 Kathy -- Go to www.naet.com. Also, there's a book, "Say Goodbye to Illness," by Dr. Devi S. Nambudripad, after whom NAET is named.--D *** Anyone got any websites on NAET. Sounds like it has to do with foodallergies. I'm very interested in learning more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2001 Report Share Posted July 23, 2001 nyone got any websites on NAET. Sounds like it has to do with foodallergies. I'm very interested in learning more. Happy reading Kathy...(didnt check to make sure these links were dead...appologize if some dont work anymore) http://www.drellencutler.com/ this site is Nimbudrapads site http://www.naet.com/subscribers/index3.htmlthis is a good descriptionhttp://www.drellencutler.com/html/testim.htmlinteresting info http://www.drellencutler.com/html/news.htmlanother list of NAET practitioners http://www.drellencutler.com/html/naet2.html http://www.neurowaves.com/naet.htm http://www.cihci.com/naet.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2001 Report Share Posted July 23, 2001 nyone got any websites on NAET. Sounds like it has to do with foodallergies. I'm very interested in learning more. Happy reading Kathy...(didnt check to make sure these links were dead...appologize if some dont work anymore) http://www.drellencutler.com/ this site is Nimbudrapads site http://www.naet.com/subscribers/index3.htmlthis is a good descriptionhttp://www.drellencutler.com/html/testim.htmlinteresting info http://www.drellencutler.com/html/news.htmlanother list of NAET practitioners http://www.drellencutler.com/html/naet2.html http://www.neurowaves.com/naet.htm http://www.cihci.com/naet.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2001 Report Share Posted July 24, 2001 Thanks Barb! On Mon, 23 Jul 2001 09:17:07 -0500 " martin " writes: > > nyone got any websites on NAET. Sounds like it has to do with food > allergies. I'm very interested in learning more. > > Happy reading Kathy...(didnt check to make sure these links were > dead...appologize if some dont > work anymore) > > http://www.drellencutler.com/ > > this site is Nimbudrapads site > http://www.naet.com/subscribers/index3.html > > this is a good description > http://www.drellencutler.com/html/testim.html > > interesting info > http://www.drellencutler.com/html/news.html > > another list of NAET practitioners > http://www.drellencutler.com/html/naet2.html > > http://www.neurowaves.com/naet.htm > > http://www.cihci.com/naet.htm > > ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2001 Report Share Posted July 24, 2001 Thanks Barb! On Mon, 23 Jul 2001 09:17:07 -0500 " martin " writes: > > nyone got any websites on NAET. Sounds like it has to do with food > allergies. I'm very interested in learning more. > > Happy reading Kathy...(didnt check to make sure these links were > dead...appologize if some dont > work anymore) > > http://www.drellencutler.com/ > > this site is Nimbudrapads site > http://www.naet.com/subscribers/index3.html > > this is a good description > http://www.drellencutler.com/html/testim.html > > interesting info > http://www.drellencutler.com/html/news.html > > another list of NAET practitioners > http://www.drellencutler.com/html/naet2.html > > http://www.neurowaves.com/naet.htm > > http://www.cihci.com/naet.htm > > ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2001 Report Share Posted July 24, 2001 Thanks Barb! On Mon, 23 Jul 2001 09:17:07 -0500 " martin " writes: > > nyone got any websites on NAET. Sounds like it has to do with food > allergies. I'm very interested in learning more. > > Happy reading Kathy...(didnt check to make sure these links were > dead...appologize if some dont > work anymore) > > http://www.drellencutler.com/ > > this site is Nimbudrapads site > http://www.naet.com/subscribers/index3.html > > this is a good description > http://www.drellencutler.com/html/testim.html > > interesting info > http://www.drellencutler.com/html/news.html > > another list of NAET practitioners > http://www.drellencutler.com/html/naet2.html > > http://www.neurowaves.com/naet.htm > > http://www.cihci.com/naet.htm > > ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
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