Re: Re: [ASRSD_CRPS] Interesting Info

[Guest guest]

Hi Deb L.,

Very interesting. Platypus? It seems strange, but, okay, if it works!

I wonder what did they did with the snail venom? It was on the cover of Time

magazine last year as the new drug for pain too. I hope one of them works,

heck snail, platypus, snake, I 'm not picky!

Hugs and a pain free minute,

Deb

Debgena@...

listowner

" Hope is a thing with feathers that perches in the soul

and sings the tune without words and never stops at all "

Dickinson

______________________________________________________________________

PLEASE NOTE THE FOLLOWING WAIVER

No advise given by any member of this group is to be misconstrued as a reason

to start, stop or add anything to your treatment plan including medications

and procedures recommended by your physician.

We are not responsible for any advise given and used in anyway against your

doctors advise.

Please check with all the people treating your condition before attempting to

try anything new. Thanks.

Deb, Jo and Felice

listowners

RSD-CRPS

[Guest guest]

Hi Deb L.,

Very interesting. Platypus? It seems strange, but, okay, if it works!

I wonder what did they did with the snail venom? It was on the cover of Time

magazine last year as the new drug for pain too. I hope one of them works,

heck snail, platypus, snake, I 'm not picky!

Hugs and a pain free minute,

Deb

Debgena@...

listowner

" Hope is a thing with feathers that perches in the soul

and sings the tune without words and never stops at all "

Dickinson

______________________________________________________________________

PLEASE NOTE THE FOLLOWING WAIVER

No advise given by any member of this group is to be misconstrued as a reason

to start, stop or add anything to your treatment plan including medications

and procedures recommended by your physician.

We are not responsible for any advise given and used in anyway against your

doctors advise.

Please check with all the people treating your condition before attempting to

try anything new. Thanks.

Deb, Jo and Felice

listowners

RSD-CRPS

[Guest guest]

I agree with you Deb,I'm not picky either.Just get it here for us. Love sent

to all here. your friend cookie

Re: Re: [ASRSD_CRPS] Interesting Info

>Hi Deb L.,

>Very interesting. Platypus? It seems strange, but, okay, if it works!

>I wonder what did they did with the snail venom? It was on the cover of

Time

>magazine last year as the new drug for pain too. I hope one of them works,

>heck snail, platypus, snake, I 'm not picky!

>

>Hugs and a pain free minute,

>Deb

>Debgena@...

>listowner

>

>

> " Hope is a thing with feathers that perches in the soul

>and sings the tune without words and never stops at all "

> Dickinson

>

>

>

>______________________________________________________________________

>PLEASE NOTE THE FOLLOWING WAIVER

>No advise given by any member of this group is to be misconstrued as a

reason

>to start, stop or add anything to your treatment plan including medications

>and procedures recommended by your physician.

>We are not responsible for any advise given and used in anyway against your

>doctors advise.

>Please check with all the people treating your condition before attempting

to

>try anything new. Thanks.

>Deb, Jo and Felice

>listowners

>RSD-CRPS

>

>

>

[Guest guest]

Cheryl are u still on the snail juice in your pump? I was in the study too

but that danged stuff about did me in!! After 3 days they pulled the

epidural and sent me home with a danged horrible epidural headahce. No more

of that stuff for me but glad to hear somene is getting good results from

it!!!!! Margie

[Guest guest]

Deb G.,

Are you talking about the snail juice known as SNX 111/Ziconotide?? If so, I

have been on it since January of 1998 when it was in the Phase One Case Study

Trial. In other words, I am one of the first " guinea pigs " for this drug and

for me....it has been a lifesaver!!

At one time I wrote a short history of me and my " snail juice " and if any one is

interested in reading it again, please let me know and I would be happy to send

it in. Heck, when they first mentioned this to me, at first I

thought.....ugggg... " snail juice " .....but now...my motto is " Snail Juice

Rules " !!! LOL!!

I do know that this medication is not for everyone as each of us are individual

in our body systems and it does not work on everyone. I am grateful that it

works for me.

Take Care,

Cheryl in AR

Re: Re: [ASRSD_CRPS] Interesting Info

Hi Deb L.,

Very interesting. Platypus? It seems strange, but, okay, if it works!

I wonder what did they did with the snail venom? It was on the cover of Time

magazine last year as the new drug for pain too. I hope one of them works,

heck snail, platypus, snake, I 'm not picky!

Hugs and a pain free minute,

Deb

Debgena@...

listowner

" Hope is a thing with feathers that perches in the soul

and sings the tune without words and never stops at all "

Dickinson

______________________________________________________________________

PLEASE NOTE THE FOLLOWING WAIVER

No advise given by any member of this group is to be misconstrued as a reason

to start, stop or add anything to your treatment plan including medications

and procedures recommended by your physician.

We are not responsible for any advise given and used in anyway against your

doctors advise.

Please check with all the people treating your condition before attempting to

try anything new. Thanks.

Deb, Jo and Felice

listowners

RSD-CRPS

[Guest guest]

Margie,

Yeap...still got the " snail juice " flowing!! Maybe that is why I seem to move

moving so slow these days and not getting much done.......moving at a " snails

pace " ....LOL. Take Care, Margie!!

Cheryl in AR

Re: Re: [ASRSD_CRPS] Interesting Info

Cheryl are u still on the snail juice in your pump? I was in the study too

but that danged stuff about did me in!! After 3 days they pulled the

epidural and sent me home with a danged horrible epidural headahce. No more

of that stuff for me but glad to hear somene is getting good results from

it!!!!! Margie

[Guest guest]

Hi Cheryl, Do you take the snail juice orally or do you have a pump?

Hugs and a pain free minute,

Deb

Deborah Genatossio

Debgena@...

"Hope is a thing with feathers that perches in the soul and sings the tune without words and never stops at all "

Dickinson

PLEASE NOTE THE FOLLOWING WAIVER

______________________________________________________________________

No advise given by any member of this group is to be misconstrued as a reason to start, stop or add anything to your treatment plan including medications and procedures recommended by your physician.

We are not responsible for any advise given and used in anyway against your doctors advise. Please check with all the people treating your condition before attempting to try anything new. Thanks.

Deb, Jo and Felice

listowners

RSD-CRPS

[Guest guest]

Do you take the snail juice orally or do you have a pump?

Deb, I dont think they have come out with it orally yet. I was in the drug study for it and mine was in an epidural. No more epidurals or pumps for me but if they ever come out with it in pill form I will take it Love, margie