Guest guest Posted July 13, 2001 Report Share Posted July 13, 2001 Dianna, if you are using the Stanford meal planner that I am (and I think there's only one) you CAN use .5 or .1 grams.........the program rounds up the figure in the box, but it does figure the difference, and if you look in the top header, where it displays what you are currently looking at, the correct figure is displayed there. I don't know how else to explain it........took me forever to figure that out. Love, Deb > Bill, > Nick's calories haven't changed since when we first started and they > dropped 100 cal. He had gained 1 pound 4 ounces in three weeks. He has > remained the same weight now for the last 3 weeks. I use the Stanford > keto menu planner that I downloaded off the internet. I like it except > I would like the option of using .5 g instead of just 1. It would make > calculations easier. That program does it all for me. I just insert > the food and can increase and decrease amounts til I have the ratio > right and the calories. > Dianna > > ps. Do you have any info on sesame oil? > The Barbers wrote: > > > Hi Dianna, > > > > What happened to calories when you changed the ratio? Do you calculate > > the > > meals yourself? Perhaps you should recheck all the calculations. > > > > Bill > > > > Terry Krumrei wrote: > > > > > > Hi, > > > I need help. I will also e-mail my dietitian, but here is my > > problem. > > > We upped Nick's ratio to 3.5 on Sat. Sunday morning we had to use > > > diastat. He seemed to have increased seizures by about 15%. This > > > morning we had to use diastat again. So, should I drop his level > > back > > > down, or should I shift his protein carbs. I had to switch his > > protein > > > carbs at the transition from 2.5 to 3. He is still high on > > proteins, > > > 1.6 per kilo. Of course I can only speculate that it may be do to > > > gluclose levels. > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last > > resort! " > > > > List is for parent to parent support only. > > It is important to get medical advice from a > > professional keto team! > > Subscribe: ketogenic-subscribe > > Unsubscribe: ketogenic-unsubscribe > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2001 Report Share Posted July 13, 2001 Dianna, if you are using the Stanford meal planner that I am (and I think there's only one) you CAN use .5 or .1 grams.........the program rounds up the figure in the box, but it does figure the difference, and if you look in the top header, where it displays what you are currently looking at, the correct figure is displayed there. I don't know how else to explain it........took me forever to figure that out. Love, Deb > Bill, > Nick's calories haven't changed since when we first started and they > dropped 100 cal. He had gained 1 pound 4 ounces in three weeks. He has > remained the same weight now for the last 3 weeks. I use the Stanford > keto menu planner that I downloaded off the internet. I like it except > I would like the option of using .5 g instead of just 1. It would make > calculations easier. That program does it all for me. I just insert > the food and can increase and decrease amounts til I have the ratio > right and the calories. > Dianna > > ps. Do you have any info on sesame oil? > The Barbers wrote: > > > Hi Dianna, > > > > What happened to calories when you changed the ratio? Do you calculate > > the > > meals yourself? Perhaps you should recheck all the calculations. > > > > Bill > > > > Terry Krumrei wrote: > > > > > > Hi, > > > I need help. I will also e-mail my dietitian, but here is my > > problem. > > > We upped Nick's ratio to 3.5 on Sat. Sunday morning we had to use > > > diastat. He seemed to have increased seizures by about 15%. This > > > morning we had to use diastat again. So, should I drop his level > > back > > > down, or should I shift his protein carbs. I had to switch his > > protein > > > carbs at the transition from 2.5 to 3. He is still high on > > proteins, > > > 1.6 per kilo. Of course I can only speculate that it may be do to > > > gluclose levels. > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last > > resort! " > > > > List is for parent to parent support only. > > It is important to get medical advice from a > > professional keto team! > > Subscribe: ketogenic-subscribe > > Unsubscribe: ketogenic-unsubscribe > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2001 Report Share Posted July 13, 2001 Hi Terry, I get sesame oil as 884 Kcal which is 98.22 gm fat/100 gm. It is also listed at sat. 14.2, mono 39.7, and poly 41.7(if that interests you) I am only just getting into tuning the diet myself, having finally weaned from tegretol. I am adjusting calories based on weight. Even though we have been at the diet for 8 months, it can take a long time to adjust everything. Usually it can take 2 weeks to see the result of any changes. (I know that isn't much consolation if you have to use diastat). From what I have read, if there are early morning seizures, they can sometimes be caused by a lack of food over night. Giving a late night snack which is calculated in can be helpful in this regard. You could also consider moving calories down again by small amounts. But this is art not science. What do you mean by protein carbs? There are carbs and there are proteins. I use hand calculations so I don't know what you mean by .5 and 1. in the computer program. Because fat is 9 calories, I often have a decimal point for the amount of oil in the meal. Hope that helps, Bill Terry Krumrei wrote: > > Bill, > Nick's calories haven't changed since when we first started and they dropped > 100 cal. He had gained 1 pound 4 ounces in three weeks. He has remained > the same weight now for the last 3 weeks. I use the Stanford keto menu > planner that I downloaded off the internet. I like it except I would like > the option of using .5 g instead of just 1. It would make calculations > easier. That program does it all for me. I just insert the food and can > increase and decrease amounts til I have the ratio right and the calories. > Dianna > > ps. Do you have any info on sesame oil? > The Barbers wrote: > > > Hi Dianna, > > > > What happened to calories when you changed the ratio? Do you calculate the > > > > meals yourself? Perhaps you should recheck all the calculations. > > > > Bill > > > > Terry Krumrei wrote: > > > > > > Hi, > > > I need help. I will also e-mail my dietitian, but here is my problem. > > > We upped Nick's ratio to 3.5 on Sat. Sunday morning we had to use > > > diastat. He seemed to have increased seizures by about 15%. This > > > morning we had to use diastat again. So, should I drop his level back > > > down, or should I shift his protein carbs. I had to switch his protein > > > carbs at the transition from 2.5 to 3. He is still high on proteins, > > > 1.6 per kilo. Of course I can only speculate that it may be do to > > > gluclose levels. > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last > > resort! " > > > > List is for parent to parent support only. > > It is important to get medical advice from a professional > > keto team! > > Subscribe: ketogenic-subscribe > > Unsubscribe: ketogenic-unsubscribe > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2001 Report Share Posted July 13, 2001 Hi Terry, I get sesame oil as 884 Kcal which is 98.22 gm fat/100 gm. It is also listed at sat. 14.2, mono 39.7, and poly 41.7(if that interests you) I am only just getting into tuning the diet myself, having finally weaned from tegretol. I am adjusting calories based on weight. Even though we have been at the diet for 8 months, it can take a long time to adjust everything. Usually it can take 2 weeks to see the result of any changes. (I know that isn't much consolation if you have to use diastat). From what I have read, if there are early morning seizures, they can sometimes be caused by a lack of food over night. Giving a late night snack which is calculated in can be helpful in this regard. You could also consider moving calories down again by small amounts. But this is art not science. What do you mean by protein carbs? There are carbs and there are proteins. I use hand calculations so I don't know what you mean by .5 and 1. in the computer program. Because fat is 9 calories, I often have a decimal point for the amount of oil in the meal. Hope that helps, Bill Terry Krumrei wrote: > > Bill, > Nick's calories haven't changed since when we first started and they dropped > 100 cal. He had gained 1 pound 4 ounces in three weeks. He has remained > the same weight now for the last 3 weeks. I use the Stanford keto menu > planner that I downloaded off the internet. I like it except I would like > the option of using .5 g instead of just 1. It would make calculations > easier. That program does it all for me. I just insert the food and can > increase and decrease amounts til I have the ratio right and the calories. > Dianna > > ps. Do you have any info on sesame oil? > The Barbers wrote: > > > Hi Dianna, > > > > What happened to calories when you changed the ratio? Do you calculate the > > > > meals yourself? Perhaps you should recheck all the calculations. > > > > Bill > > > > Terry Krumrei wrote: > > > > > > Hi, > > > I need help. I will also e-mail my dietitian, but here is my problem. > > > We upped Nick's ratio to 3.5 on Sat. Sunday morning we had to use > > > diastat. He seemed to have increased seizures by about 15%. This > > > morning we had to use diastat again. So, should I drop his level back > > > down, or should I shift his protein carbs. I had to switch his protein > > > carbs at the transition from 2.5 to 3. He is still high on proteins, > > > 1.6 per kilo. Of course I can only speculate that it may be do to > > > gluclose levels. > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last > > resort! " > > > > List is for parent to parent support only. > > It is important to get medical advice from a professional > > keto team! > > Subscribe: ketogenic-subscribe > > Unsubscribe: ketogenic-unsubscribe > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2001 Report Share Posted July 13, 2001 Thanks Deb, I will check that out when I do his evening meal. We ran out of Efelax 4 days ago and now he's constipated. I should get it in tomorrow. Dianna Debbie Reynolds wrote: Dianna, if you are using the Stanford meal planner that I am (and I think there's only one) you CAN use .5 or .1 grams.........the program rounds up the figure in the box, but it does figure the difference, and if you look in the top header, where it displays what you are currently looking at, the correct figure is displayed there. I don't know how else to explain it........took me forever to figure that out. Love, Deb > Bill, > Nick's calories haven't changed since when we first started and they > dropped 100 cal. He had gained 1 pound 4 ounces in three weeks. He has > remained the same weight now for the last 3 weeks. I use the Stanford > keto menu planner that I downloaded off the internet. I like it except > I would like the option of using .5 g instead of just 1. It would make > calculations easier. That program does it all for me. I just insert > the food and can increase and decrease amounts til I have the ratio > right and the calories. > Dianna > > ps. Do you have any info on sesame oil? > The Barbers wrote: > > > Hi Dianna, > > > > What happened to calories when you changed the ratio? Do you calculate > > the > > meals yourself? Perhaps you should recheck all the calculations. > > > > Bill > > > > Terry Krumrei wrote: > > > > > > Hi, > > > I need help. I will also e-mail my dietitian, but here is my > > problem. > > > We upped Nick's ratio to 3.5 on Sat. Sunday morning we had to use > > > diastat. He seemed to have increased seizures by about 15%. This > > > morning we had to use diastat again. So, should I drop his level > > back > > > down, or should I shift his protein carbs. I had to switch his > > protein > > > carbs at the transition from 2.5 to 3. He is still high on > > proteins, > > > 1.6 per kilo. Of course I can only speculate that it may be do to > > > gluclose levels. > > > > "The Ketogenic Diet....a realistic treatment option, NOT just a last > > resort!" > > > > List is for parent to parent support only. > > It is important to get medical advice from a > > professional keto team! > > Subscribe: ketogenic-subscribe > > Unsubscribe: ketogenic-unsubscribe > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2001 Report Share Posted July 13, 2001 Bill, Nick has 4 meals a day and his last one is at 9pm and he goes to bed at 10:15 or so. I don't think I could cram a snack between there. The decimal point is for the grams not calories. The menu planner I use I insert the grams and it figures all the calories etc. It even has how many grams to the tenth that I need of proteins, carbs and fats. When I talk protein carbs I am just talking about the way the two make up my extra non fat calories. Nick's dietitian wants us on 2g per kilo of protein which leaves us no carbs except for meds and supplements. I switched to 1.6g per kilo, but when our ratio went to 3.5:1 my proteins remain constant but my carbs are almost nothing again. I would like to have him closer to the RDA on proteins, maybe 1.4 per kilo so I could add some carbs to his diet. I commend you for working out your calculations by hand. My husband just commented that it would be impossible to do it that way. I told him ' Not impossible, but very time consuming.' Thanks for the info on sesame oil. Dianna The Barbers wrote: Hi Terry, I get sesame oil as 884 Kcal which is 98.22 gm fat/100 gm. It is also listed at sat. 14.2, mono 39.7, and poly 41.7(if that interests you) I am only just getting into tuning the diet myself, having finally weaned from tegretol. I am adjusting calories based on weight. Even though we have been at the diet for 8 months, it can take a long time to adjust everything. Usually it can take 2 weeks to see the result of any changes. (I know that isn't much consolation if you have to use diastat). From what I have read, if there are early morning seizures, they can sometimes be caused by a lack of food over night. Giving a late night snack which is calculated in can be helpful in this regard. You could also consider moving calories down again by small amounts. But this is art not science. What do you mean by protein carbs? There are carbs and there are proteins. I use hand calculations so I don't know what you mean by .5 and 1. in the computer program. Because fat is 9 calories, I often have a decimal point for the amount of oil in the meal. Hope that helps, Bill Terry Krumrei wrote: > > Bill, > Nick's calories haven't changed since when we first started and they dropped > 100 cal. He had gained 1 pound 4 ounces in three weeks. He has remained > the same weight now for the last 3 weeks. I use the Stanford keto menu > planner that I downloaded off the internet. I like it except I would like > the option of using .5 g instead of just 1. It would make calculations > easier. That program does it all for me. I just insert the food and can > increase and decrease amounts til I have the ratio right and the calories. > Dianna > > ps. Do you have any info on sesame oil? > The Barbers wrote: > > > Hi Dianna, > > > > What happened to calories when you changed the ratio? Do you calculate the > > > > meals yourself? Perhaps you should recheck all the calculations. > > > > Bill > > > > Terry Krumrei wrote: > > > > > > Hi, > > > I need help. I will also e-mail my dietitian, but here is my problem. > > > We upped Nick's ratio to 3.5 on Sat. Sunday morning we had to use > > > diastat. He seemed to have increased seizures by about 15%. This > > > morning we had to use diastat again. So, should I drop his level back > > > down, or should I shift his protein carbs. I had to switch his protein > > > carbs at the transition from 2.5 to 3. He is still high on proteins, > > > 1.6 per kilo. Of course I can only speculate that it may be do to > > > gluclose levels. > > > > "The Ketogenic Diet....a realistic treatment option, NOT just a last > > resort!" > > > > List is for parent to parent support only. > > It is important to get medical advice from a professional > > keto team! > > Subscribe: ketogenic-subscribe > > Unsubscribe: ketogenic-unsubscribe > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2001 Report Share Posted July 13, 2001 Hi Dianna, You might want to reduce the size of that last meal. It is a lot more than most kids get and the calorie needs are less at night? Just a thought. Is there a reason for the dietician wanting high protein? Or are you just trying to increase the ketones? I know that we are probably not getting high enough ketones. They are hard to measure. I don't remember seeing protein up to 2.0 for any age group. Curious. I do the calculations by hand because I only have 2 meals that I make right now, I am now experienced, and it keeps me away from the Internet! 8-) You can get about 6000 food items at the US government site. Sorry, but I forget the URL at the moment. BFN, Bill Terry Krumrei wrote: > > Bill, > Nick has 4 meals a day and his last one is at 9pm and he goes to bed at > 10:15 or so. I don't think I could cram a snack between there. The decimal > point is for the grams not calories. The menu planner I use I insert the > grams and it figures all the calories etc. It even has how many grams to > the tenth that I need of proteins, carbs and fats. When I talk protein > carbs I am just talking about the way the two make up my extra non fat > calories. Nick's dietitian wants us on 2g per kilo of protein which leaves > us no carbs except for meds and supplements. I switched to 1.6g per kilo, > but when our ratio went to 3.5:1 my proteins remain constant but my carbs > are almost nothing again. I would like to have him closer to the RDA on > proteins, maybe 1.4 per kilo so I could add some carbs to his diet. > I commend you for working out your calculations by hand. My husband just > commented that it would be impossible to do it that way. I told him ' Not > impossible, but very time consuming.' > Thanks for the info on sesame oil. > Dianna > > The Barbers wrote: > > > Hi Terry, > > > > I get sesame oil as 884 Kcal which is 98.22 gm fat/100 gm. It is also > > listed > > at sat. 14.2, mono 39.7, and poly 41.7(if that interests you) > > > > I am only just getting into tuning the diet myself, having finally weaned > > from > > tegretol. I am adjusting calories based on weight. Even though we have > > been at > > the diet for 8 months, it can take a long time to adjust everything. > > Usually > > it can take 2 weeks to see the result of any changes. (I know that isn't > > much > > consolation if you have to use diastat). From what I have read, if there > > are > > early morning seizures, they can sometimes be caused by a lack of food > > over > > night. Giving a late night snack which is calculated in can be helpful in > > this regard. > > > > You could also consider moving calories down again by small amounts. But > > this > > is art not science. > > > > What do you mean by protein carbs? There are carbs and there are proteins. > > > > I use hand calculations so I don't know what you mean by .5 and 1. in the > > computer program. Because fat is 9 calories, I often have a decimal point > > for > > the amount of oil in the meal. > > > > Hope that helps, > > Bill > > > > Terry Krumrei wrote: > > > > > > Bill, > > > Nick's calories haven't changed since when we first started and they > > dropped > > > 100 cal. He had gained 1 pound 4 ounces in three weeks. He has > > remained > > > the same weight now for the last 3 weeks. I use the Stanford keto menu > > > planner that I downloaded off the internet. I like it except I would > > like > > > the option of using .5 g instead of just 1. It would make calculations > > > > > easier. That program does it all for me. I just insert the food and > > can > > > increase and decrease amounts til I have the ratio right and the > > calories. > > > Dianna > > > > > > ps. Do you have any info on sesame oil? > > > The Barbers wrote: > > > > > > > Hi Dianna, > > > > > > > > What happened to calories when you changed the ratio? Do you calculate > > the > > > > > > > > meals yourself? Perhaps you should recheck all the calculations. > > > > > > > > Bill > > > > > > > > Terry Krumrei wrote: > > > > > > > > > > Hi, > > > > > I need help. I will also e-mail my dietitian, but here is my > > problem. > > > > > We upped Nick's ratio to 3.5 on Sat. Sunday morning we had to use > > > > > diastat. He seemed to have increased seizures by about 15%. This > > > > > morning we had to use diastat again. So, should I drop his level > > back > > > > > down, or should I shift his protein carbs. I had to switch his > > protein > > > > > carbs at the transition from 2.5 to 3. He is still high on > > proteins, > > > > > 1.6 per kilo. Of course I can only speculate that it may be do to > > > > > gluclose levels. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2001 Report Share Posted July 13, 2001 Hi Dianna, You might want to reduce the size of that last meal. It is a lot more than most kids get and the calorie needs are less at night? Just a thought. Is there a reason for the dietician wanting high protein? Or are you just trying to increase the ketones? I know that we are probably not getting high enough ketones. They are hard to measure. I don't remember seeing protein up to 2.0 for any age group. Curious. I do the calculations by hand because I only have 2 meals that I make right now, I am now experienced, and it keeps me away from the Internet! 8-) You can get about 6000 food items at the US government site. Sorry, but I forget the URL at the moment. BFN, Bill Terry Krumrei wrote: > > Bill, > Nick has 4 meals a day and his last one is at 9pm and he goes to bed at > 10:15 or so. I don't think I could cram a snack between there. The decimal > point is for the grams not calories. The menu planner I use I insert the > grams and it figures all the calories etc. It even has how many grams to > the tenth that I need of proteins, carbs and fats. When I talk protein > carbs I am just talking about the way the two make up my extra non fat > calories. Nick's dietitian wants us on 2g per kilo of protein which leaves > us no carbs except for meds and supplements. I switched to 1.6g per kilo, > but when our ratio went to 3.5:1 my proteins remain constant but my carbs > are almost nothing again. I would like to have him closer to the RDA on > proteins, maybe 1.4 per kilo so I could add some carbs to his diet. > I commend you for working out your calculations by hand. My husband just > commented that it would be impossible to do it that way. I told him ' Not > impossible, but very time consuming.' > Thanks for the info on sesame oil. > Dianna > > The Barbers wrote: > > > Hi Terry, > > > > I get sesame oil as 884 Kcal which is 98.22 gm fat/100 gm. It is also > > listed > > at sat. 14.2, mono 39.7, and poly 41.7(if that interests you) > > > > I am only just getting into tuning the diet myself, having finally weaned > > from > > tegretol. I am adjusting calories based on weight. Even though we have > > been at > > the diet for 8 months, it can take a long time to adjust everything. > > Usually > > it can take 2 weeks to see the result of any changes. (I know that isn't > > much > > consolation if you have to use diastat). From what I have read, if there > > are > > early morning seizures, they can sometimes be caused by a lack of food > > over > > night. Giving a late night snack which is calculated in can be helpful in > > this regard. > > > > You could also consider moving calories down again by small amounts. But > > this > > is art not science. > > > > What do you mean by protein carbs? There are carbs and there are proteins. > > > > I use hand calculations so I don't know what you mean by .5 and 1. in the > > computer program. Because fat is 9 calories, I often have a decimal point > > for > > the amount of oil in the meal. > > > > Hope that helps, > > Bill > > > > Terry Krumrei wrote: > > > > > > Bill, > > > Nick's calories haven't changed since when we first started and they > > dropped > > > 100 cal. He had gained 1 pound 4 ounces in three weeks. He has > > remained > > > the same weight now for the last 3 weeks. I use the Stanford keto menu > > > planner that I downloaded off the internet. I like it except I would > > like > > > the option of using .5 g instead of just 1. It would make calculations > > > > > easier. That program does it all for me. I just insert the food and > > can > > > increase and decrease amounts til I have the ratio right and the > > calories. > > > Dianna > > > > > > ps. Do you have any info on sesame oil? > > > The Barbers wrote: > > > > > > > Hi Dianna, > > > > > > > > What happened to calories when you changed the ratio? Do you calculate > > the > > > > > > > > meals yourself? Perhaps you should recheck all the calculations. > > > > > > > > Bill > > > > > > > > Terry Krumrei wrote: > > > > > > > > > > Hi, > > > > > I need help. I will also e-mail my dietitian, but here is my > > problem. > > > > > We upped Nick's ratio to 3.5 on Sat. Sunday morning we had to use > > > > > diastat. He seemed to have increased seizures by about 15%. This > > > > > morning we had to use diastat again. So, should I drop his level > > back > > > > > down, or should I shift his protein carbs. I had to switch his > > protein > > > > > carbs at the transition from 2.5 to 3. He is still high on > > proteins, > > > > > 1.6 per kilo. Of course I can only speculate that it may be do to > > > > > gluclose levels. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2001 Report Share Posted July 13, 2001 Bill, I have questioned my young dietitian about the high protein and she says she once had a 2 1/2 year old who lost her hair and her nails were brittle. Therefore, all children she puts on the diet she wants at 1.8-2 per kilo. I am already going against her wishes doing the 1.6 per kilo. I feel that if I notice he is experiencing hair loss I can increase his proteins. I am being patient now, except I need to go pick up more diastat. We have been at 3.5:1 for a week now and it has only increased seizures. Do I stay here another week to see if they go down or do I go back to 3:1 when we had 25% improvement in seizures and wonderful changes in demeanor and activity level. Plus his BHB was 6.19 at that level. Any votes? It could be that seizure control is right around the corner, I don't know. SIGH Dianna The Barbers wrote: Hi Dianna, You might want to reduce the size of that last meal. It is a lot more than most kids get and the calorie needs are less at night? Just a thought. Is there a reason for the dietician wanting high protein? Or are you just trying to increase the ketones? I know that we are probably not getting high enough ketones. They are hard to measure. I don't remember seeing protein up to 2.0 for any age group. Curious. I do the calculations by hand because I only have 2 meals that I make right now, I am now experienced, and it keeps me away from the Internet! 8-) You can get about 6000 food items at the US government site. Sorry, but I forget the URL at the moment. BFN, Bill Terry Krumrei wrote: > > Bill, > Nick has 4 meals a day and his last one is at 9pm and he goes to bed at > 10:15 or so. I don't think I could cram a snack between there. The decimal > point is for the grams not calories. The menu planner I use I insert the > grams and it figures all the calories etc. It even has how many grams to > the tenth that I need of proteins, carbs and fats. When I talk protein > carbs I am just talking about the way the two make up my extra non fat > calories. Nick's dietitian wants us on 2g per kilo of protein which leaves > us no carbs except for meds and supplements. I switched to 1.6g per kilo, > but when our ratio went to 3.5:1 my proteins remain constant but my carbs > are almost nothing again. I would like to have him closer to the RDA on > proteins, maybe 1.4 per kilo so I could add some carbs to his diet. > I commend you for working out your calculations by hand. My husband just > commented that it would be impossible to do it that way. I told him ' Not > impossible, but very time consuming.' > Thanks for the info on sesame oil. > Dianna > > The Barbers wrote: > > > Hi Terry, > > > > I get sesame oil as 884 Kcal which is 98.22 gm fat/100 gm. It is also > > listed > > at sat. 14.2, mono 39.7, and poly 41.7(if that interests you) > > > > I am only just getting into tuning the diet myself, having finally weaned > > from > > tegretol. I am adjusting calories based on weight. Even though we have > > been at > > the diet for 8 months, it can take a long time to adjust everything. > > Usually > > it can take 2 weeks to see the result of any changes. (I know that isn't > > much > > consolation if you have to use diastat). From what I have read, if there > > are > > early morning seizures, they can sometimes be caused by a lack of food > > over > > night. Giving a late night snack which is calculated in can be helpful in > > this regard. > > > > You could also consider moving calories down again by small amounts. But > > this > > is art not science. > > > > What do you mean by protein carbs? There are carbs and there are proteins. > > > > I use hand calculations so I don't know what you mean by .5 and 1. in the > > computer program. Because fat is 9 calories, I often have a decimal point > > for > > the amount of oil in the meal. > > > > Hope that helps, > > Bill > > > > Terry Krumrei wrote: > > > > > > Bill, > > > Nick's calories haven't changed since when we first started and they > > dropped > > > 100 cal. He had gained 1 pound 4 ounces in three weeks. He has > > remained > > > the same weight now for the last 3 weeks. I use the Stanford keto menu > > > planner that I downloaded off the internet. I like it except I would > > like > > > the option of using .5 g instead of just 1. It would make calculations > > > > > easier. That program does it all for me. I just insert the food and > > can > > > increase and decrease amounts til I have the ratio right and the > > calories. > > > Dianna > > > > > > ps. Do you have any info on sesame oil? > > > The Barbers wrote: > > > > > > > Hi Dianna, > > > > > > > > What happened to calories when you changed the ratio? Do you calculate > > the > > > > > > > > meals yourself? Perhaps you should recheck all the calculations. > > > > > > > > Bill > > > > > > > > Terry Krumrei wrote: > > > > > > > > > > Hi, > > > > > I need help. I will also e-mail my dietitian, but here is my > > problem. > > > > > We upped Nick's ratio to 3.5 on Sat. Sunday morning we had to use > > > > > diastat. He seemed to have increased seizures by about 15%. This > > > > > morning we had to use diastat again. So, should I drop his level > > back > > > > > down, or should I shift his protein carbs. I had to switch his > > protein > > > > > carbs at the transition from 2.5 to 3. He is still high on > > proteins, > > > > > 1.6 per kilo. Of course I can only speculate that it may be do to > > > > > gluclose levels. > > > > "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2001 Report Share Posted July 13, 2001 Bill, I have questioned my young dietitian about the high protein and she says she once had a 2 1/2 year old who lost her hair and her nails were brittle. Therefore, all children she puts on the diet she wants at 1.8-2 per kilo. I am already going against her wishes doing the 1.6 per kilo. I feel that if I notice he is experiencing hair loss I can increase his proteins. I am being patient now, except I need to go pick up more diastat. We have been at 3.5:1 for a week now and it has only increased seizures. Do I stay here another week to see if they go down or do I go back to 3:1 when we had 25% improvement in seizures and wonderful changes in demeanor and activity level. Plus his BHB was 6.19 at that level. Any votes? It could be that seizure control is right around the corner, I don't know. SIGH Dianna The Barbers wrote: Hi Dianna, You might want to reduce the size of that last meal. It is a lot more than most kids get and the calorie needs are less at night? Just a thought. Is there a reason for the dietician wanting high protein? Or are you just trying to increase the ketones? I know that we are probably not getting high enough ketones. They are hard to measure. I don't remember seeing protein up to 2.0 for any age group. Curious. I do the calculations by hand because I only have 2 meals that I make right now, I am now experienced, and it keeps me away from the Internet! 8-) You can get about 6000 food items at the US government site. Sorry, but I forget the URL at the moment. BFN, Bill Terry Krumrei wrote: > > Bill, > Nick has 4 meals a day and his last one is at 9pm and he goes to bed at > 10:15 or so. I don't think I could cram a snack between there. The decimal > point is for the grams not calories. The menu planner I use I insert the > grams and it figures all the calories etc. It even has how many grams to > the tenth that I need of proteins, carbs and fats. When I talk protein > carbs I am just talking about the way the two make up my extra non fat > calories. Nick's dietitian wants us on 2g per kilo of protein which leaves > us no carbs except for meds and supplements. I switched to 1.6g per kilo, > but when our ratio went to 3.5:1 my proteins remain constant but my carbs > are almost nothing again. I would like to have him closer to the RDA on > proteins, maybe 1.4 per kilo so I could add some carbs to his diet. > I commend you for working out your calculations by hand. My husband just > commented that it would be impossible to do it that way. I told him ' Not > impossible, but very time consuming.' > Thanks for the info on sesame oil. > Dianna > > The Barbers wrote: > > > Hi Terry, > > > > I get sesame oil as 884 Kcal which is 98.22 gm fat/100 gm. It is also > > listed > > at sat. 14.2, mono 39.7, and poly 41.7(if that interests you) > > > > I am only just getting into tuning the diet myself, having finally weaned > > from > > tegretol. I am adjusting calories based on weight. Even though we have > > been at > > the diet for 8 months, it can take a long time to adjust everything. > > Usually > > it can take 2 weeks to see the result of any changes. (I know that isn't > > much > > consolation if you have to use diastat). From what I have read, if there > > are > > early morning seizures, they can sometimes be caused by a lack of food > > over > > night. Giving a late night snack which is calculated in can be helpful in > > this regard. > > > > You could also consider moving calories down again by small amounts. But > > this > > is art not science. > > > > What do you mean by protein carbs? There are carbs and there are proteins. > > > > I use hand calculations so I don't know what you mean by .5 and 1. in the > > computer program. Because fat is 9 calories, I often have a decimal point > > for > > the amount of oil in the meal. > > > > Hope that helps, > > Bill > > > > Terry Krumrei wrote: > > > > > > Bill, > > > Nick's calories haven't changed since when we first started and they > > dropped > > > 100 cal. He had gained 1 pound 4 ounces in three weeks. He has > > remained > > > the same weight now for the last 3 weeks. I use the Stanford keto menu > > > planner that I downloaded off the internet. I like it except I would > > like > > > the option of using .5 g instead of just 1. It would make calculations > > > > > easier. That program does it all for me. I just insert the food and > > can > > > increase and decrease amounts til I have the ratio right and the > > calories. > > > Dianna > > > > > > ps. Do you have any info on sesame oil? > > > The Barbers wrote: > > > > > > > Hi Dianna, > > > > > > > > What happened to calories when you changed the ratio? Do you calculate > > the > > > > > > > > meals yourself? Perhaps you should recheck all the calculations. > > > > > > > > Bill > > > > > > > > Terry Krumrei wrote: > > > > > > > > > > Hi, > > > > > I need help. I will also e-mail my dietitian, but here is my > > problem. > > > > > We upped Nick's ratio to 3.5 on Sat. Sunday morning we had to use > > > > > diastat. He seemed to have increased seizures by about 15%. This > > > > > morning we had to use diastat again. So, should I drop his level > > back > > > > > down, or should I shift his protein carbs. I had to switch his > > protein > > > > > carbs at the transition from 2.5 to 3. He is still high on > > proteins, > > > > > 1.6 per kilo. Of course I can only speculate that it may be do to > > > > > gluclose levels. > > > > "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2001 Report Share Posted July 13, 2001 Bill, I have questioned my young dietitian about the high protein and she says she once had a 2 1/2 year old who lost her hair and her nails were brittle. Therefore, all children she puts on the diet she wants at 1.8-2 per kilo. I am already going against her wishes doing the 1.6 per kilo. I feel that if I notice he is experiencing hair loss I can increase his proteins. I am being patient now, except I need to go pick up more diastat. We have been at 3.5:1 for a week now and it has only increased seizures. Do I stay here another week to see if they go down or do I go back to 3:1 when we had 25% improvement in seizures and wonderful changes in demeanor and activity level. Plus his BHB was 6.19 at that level. Any votes? It could be that seizure control is right around the corner, I don't know. SIGH Dianna The Barbers wrote: Hi Dianna, You might want to reduce the size of that last meal. It is a lot more than most kids get and the calorie needs are less at night? Just a thought. Is there a reason for the dietician wanting high protein? Or are you just trying to increase the ketones? I know that we are probably not getting high enough ketones. They are hard to measure. I don't remember seeing protein up to 2.0 for any age group. Curious. I do the calculations by hand because I only have 2 meals that I make right now, I am now experienced, and it keeps me away from the Internet! 8-) You can get about 6000 food items at the US government site. Sorry, but I forget the URL at the moment. BFN, Bill Terry Krumrei wrote: > > Bill, > Nick has 4 meals a day and his last one is at 9pm and he goes to bed at > 10:15 or so. I don't think I could cram a snack between there. The decimal > point is for the grams not calories. The menu planner I use I insert the > grams and it figures all the calories etc. It even has how many grams to > the tenth that I need of proteins, carbs and fats. When I talk protein > carbs I am just talking about the way the two make up my extra non fat > calories. Nick's dietitian wants us on 2g per kilo of protein which leaves > us no carbs except for meds and supplements. I switched to 1.6g per kilo, > but when our ratio went to 3.5:1 my proteins remain constant but my carbs > are almost nothing again. I would like to have him closer to the RDA on > proteins, maybe 1.4 per kilo so I could add some carbs to his diet. > I commend you for working out your calculations by hand. My husband just > commented that it would be impossible to do it that way. I told him ' Not > impossible, but very time consuming.' > Thanks for the info on sesame oil. > Dianna > > The Barbers wrote: > > > Hi Terry, > > > > I get sesame oil as 884 Kcal which is 98.22 gm fat/100 gm. It is also > > listed > > at sat. 14.2, mono 39.7, and poly 41.7(if that interests you) > > > > I am only just getting into tuning the diet myself, having finally weaned > > from > > tegretol. I am adjusting calories based on weight. Even though we have > > been at > > the diet for 8 months, it can take a long time to adjust everything. > > Usually > > it can take 2 weeks to see the result of any changes. (I know that isn't > > much > > consolation if you have to use diastat). From what I have read, if there > > are > > early morning seizures, they can sometimes be caused by a lack of food > > over > > night. Giving a late night snack which is calculated in can be helpful in > > this regard. > > > > You could also consider moving calories down again by small amounts. But > > this > > is art not science. > > > > What do you mean by protein carbs? There are carbs and there are proteins. > > > > I use hand calculations so I don't know what you mean by .5 and 1. in the > > computer program. Because fat is 9 calories, I often have a decimal point > > for > > the amount of oil in the meal. > > > > Hope that helps, > > Bill > > > > Terry Krumrei wrote: > > > > > > Bill, > > > Nick's calories haven't changed since when we first started and they > > dropped > > > 100 cal. He had gained 1 pound 4 ounces in three weeks. He has > > remained > > > the same weight now for the last 3 weeks. I use the Stanford keto menu > > > planner that I downloaded off the internet. I like it except I would > > like > > > the option of using .5 g instead of just 1. It would make calculations > > > > > easier. That program does it all for me. I just insert the food and > > can > > > increase and decrease amounts til I have the ratio right and the > > calories. > > > Dianna > > > > > > ps. Do you have any info on sesame oil? > > > The Barbers wrote: > > > > > > > Hi Dianna, > > > > > > > > What happened to calories when you changed the ratio? Do you calculate > > the > > > > > > > > meals yourself? Perhaps you should recheck all the calculations. > > > > > > > > Bill > > > > > > > > Terry Krumrei wrote: > > > > > > > > > > Hi, > > > > > I need help. I will also e-mail my dietitian, but here is my > > problem. > > > > > We upped Nick's ratio to 3.5 on Sat. Sunday morning we had to use > > > > > diastat. He seemed to have increased seizures by about 15%. This > > > > > morning we had to use diastat again. So, should I drop his level > > back > > > > > down, or should I shift his protein carbs. I had to switch his > > protein > > > > > carbs at the transition from 2.5 to 3. He is still high on > > proteins, > > > > > 1.6 per kilo. Of course I can only speculate that it may be do to > > > > > gluclose levels. > > > > "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2001 Report Share Posted July 14, 2001 Terry, I am probably not the best person to be advising on this as my daughter's hair started to fall out 2 months ago after being on the diet for six months! She was on a supplement made up locally and I have changed to WholeLife. The Keto Book mentions this as a side effect that is currently under study. " In some children hair may begin to fall out or may become coarse and reddish. This may be due to lack of minerals but has not been adequately studied. We supplement those children with a carbohydrate-free mineral supplement. " Maybe it has something to do with protein, maybe not. Bill Terry Krumrei wrote: > > Bill, > I have questioned my young dietitian about the high protein and she says she > once had a 2 1/2 year old who lost her hair and her nails were brittle. > Therefore, all children she puts on the diet she wants at 1.8-2 per kilo. I > am already going against her wishes doing the 1.6 per kilo. I feel that if > I notice he is experiencing hair loss I can increase his proteins. I am > being patient now, except I need to go pick up more diastat. We have been > at 3.5:1 for a week now and it has only increased seizures. Do I stay here > another week to see if they go down or do I go back to 3:1 when we had 25% > improvement in seizures and wonderful changes in demeanor and activity > level. Plus his BHB was 6.19 at that level. Any votes? It could be that > seizure cont Quote Link to comment Share on other sites More sharing options...
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