Re: Prolotherapy + magnets

[Guest guest]

Hmmmm Prolotherapy? isn't that poking of needles into ones body ... isn't

it??? Well that is out for me! I am a natural born chicken. <Cluck, cluck> I

don't do the needles thing ... At ALL. Cold sweat, screaming... you know the

deal!!!

Magnets? With a little research, one can buy the magnets of sufficient

strength, for a fraction of the price! I have used old hard drive magnets,

taped on my wrist, and it was quite successful. With a little trial and error,

I could imagine that I could find similar for my knees etc...

Hugz............... Helen

What worries me is often the cost of some of these new therapies which

is a major concern for many of us on limited incomes let alone whether

they work or make you worse or not....

[Guest guest]

Hmmmm Prolotherapy? isn't that poking of needles into ones body ... isn't

it??? Well that is out for me! I am a natural born chicken. <Cluck, cluck> I

don't do the needles thing ... At ALL. Cold sweat, screaming... you know the

deal!!!

Magnets? With a little research, one can buy the magnets of sufficient

strength, for a fraction of the price! I have used old hard drive magnets,

taped on my wrist, and it was quite successful. With a little trial and error,

I could imagine that I could find similar for my knees etc...

Hugz............... Helen

What worries me is often the cost of some of these new therapies which

is a major concern for many of us on limited incomes let alone whether

they work or make you worse or not....

[Guest guest]

What worries me is often the cost of some of these new therapies which

is a major concern for many of us on limited incomes let alone whether

they work or make you worse or not. I know many people advocate certain

supplements but these are often extremely expensive and will they work

for everyone? After all we're all different. The Internet is a wonderful

tool for providing information but I know everything I read there isn't

gospel truth. How it would be for someone newly diagnosed with EDS

looking for a miracle cure I dread to think.

Speaking of miracle cures, I know someone who is advocating magnets for

treating EDS. She says that she got out of her wheelchair because of

them. Has anyone heard of this treatment? Apparently it is a Japanese

company that manufactures them.

Jen

Barbara Uggen- wrote:

> You're just like me, Jill. Anything that is new and unproven is

> always

> suspect in my book. Experimental treatments are fine, but I have

> enough

> problems without having unexpected damage from some new therapy.

>

> -Barb

>

>

>

[Guest guest]

What worries me is often the cost of some of these new therapies which

is a major concern for many of us on limited incomes let alone whether

they work or make you worse or not. I know many people advocate certain

supplements but these are often extremely expensive and will they work

for everyone? After all we're all different. The Internet is a wonderful

tool for providing information but I know everything I read there isn't

gospel truth. How it would be for someone newly diagnosed with EDS

looking for a miracle cure I dread to think.

Speaking of miracle cures, I know someone who is advocating magnets for

treating EDS. She says that she got out of her wheelchair because of

them. Has anyone heard of this treatment? Apparently it is a Japanese

company that manufactures them.

Jen

Barbara Uggen- wrote:

> You're just like me, Jill. Anything that is new and unproven is

> always

> suspect in my book. Experimental treatments are fine, but I have

> enough

> problems without having unexpected damage from some new therapy.

>

> -Barb

>

>

>

[Guest guest]

Jen,

I know very little about magnets for treatment of pain-and nothing about

them for EDS, unless it's for treatment of the associated pain. Here's the

sum total of my personal experience:

A couple we're friends with use and swear by them ---they also began selling

them, saying the magnets relieve their pains among which are diagnosed

herniated disc; migraines: and degeneration in the knee, plus other joint

aches and pains. They let me borrow one of them for my hip that has

bursitis-the cost would be $90 for that particular size! ---I had no

results from it. Not meaning to be funny here, but there is more relief when

my cat lays up against it. There are lots of people that say they have

really good results from them, and then get into selling them to others.

I agree with you when you said:

" How it would be for someone newly diagnosed with EDS looking for a miracle

cure I dread to think. "

They could get into debt very easily.

cindyh

~

From: " Jen Longshaw "

Subject: Re: Prolotherapy + magnets

> What worries me is often the cost of some of these new therapies which is

a major concern for many of us on limited incomes let alone whether they

work or make you worse or not. I know many people advocate certain

supplements but these are often extremely expensive and will they work for

everyone? After all we're all different. The Internet is a wonderful tool

for providing information but I know everything I read there isn't gospel

truth. How it would be for someone newly diagnosed with EDS

looking for a miracle cure I dread to think.

> Speaking of miracle cures, I know someone who is advocating magnets for

treating EDS. She says that she got out of her wheelchair because of them.

Has anyone heard of this treatment? Apparently it is a Japanese company that

manufactures them.

>

> Jen

[Guest guest]

Jen,

I know very little about magnets for treatment of pain-and nothing about

them for EDS, unless it's for treatment of the associated pain. Here's the

sum total of my personal experience:

A couple we're friends with use and swear by them ---they also began selling

them, saying the magnets relieve their pains among which are diagnosed

herniated disc; migraines: and degeneration in the knee, plus other joint

aches and pains. They let me borrow one of them for my hip that has

bursitis-the cost would be $90 for that particular size! ---I had no

results from it. Not meaning to be funny here, but there is more relief when

my cat lays up against it. There are lots of people that say they have

really good results from them, and then get into selling them to others.

I agree with you when you said:

" How it would be for someone newly diagnosed with EDS looking for a miracle

cure I dread to think. "

They could get into debt very easily.

cindyh

~

From: " Jen Longshaw "

Subject: Re: Prolotherapy + magnets

> What worries me is often the cost of some of these new therapies which is

a major concern for many of us on limited incomes let alone whether they

work or make you worse or not. I know many people advocate certain

supplements but these are often extremely expensive and will they work for

everyone? After all we're all different. The Internet is a wonderful tool

for providing information but I know everything I read there isn't gospel

truth. How it would be for someone newly diagnosed with EDS

looking for a miracle cure I dread to think.

> Speaking of miracle cures, I know someone who is advocating magnets for

treating EDS. She says that she got out of her wheelchair because of them.

Has anyone heard of this treatment? Apparently it is a Japanese company that

manufactures them.

>

> Jen

[Guest guest]

Jen,

There are several people I know that swear by the Nikken magnets for a

variety of ailments. My Uncle was even a distributor for awhile and my

grandmother is convinced that they help her arthritis. The people who sell

them point to studies that show their effectiveness. In America, the Food

and Drug Administration has not approved magnets for the treatment of any

medical condition, so the sellers are not legally allowed to make any

medical claims, (but they sure do hint at their usefulness).

My mother met someone and wanted me to try them out. They did a magnet

massage on me and it was relaxing, but I wouldn't call it a miracle cure.

The major benefit was from the massage more than anything else, I think.

After that, they got us to go to some big multi-level distributor meeting.

Essentially, for every new distributor you bring into the pyramid, you take

a bigger and bigger cut from the profits. By being a distributor, you buy

the products for a lower price. The stated reason for this type of

marketing is that it bypasses the FDA requirements. The whole marketing

approach for this makes me uncomfortable.

Now, just because I don't like the company's marketing methods, does not

mean that they don't work. I have talked to many people who tell me that

they have really worked wonders for them. Who am I to tell them it doesn't

work? It didn't work for me, but I know people who say that they have found

relief from them who are NOT distributors. If it were only people selling

the product who claimed that it worked, I would dismiss it out of hand.

That's not the case though. They have nothing to gain by telling me the

product works. Because of that, I am not as quick to say it's a waste of

money. I don't have any idea whether these people are getting real relief

from the magnets or if it is simply a placebo effect. Either way, they have

certainly had real benefits from using the magnets. Who am I to judge?

-Barb

(just my skeptical opinion, do with it whatever you wish)

[Guest guest]

Dear Jen,

I have tried magnet therapy, and unfortunately it didn't help me too much.

The company is called Nikken (Japanese Co.), and the products are very

expensive. I do use some of their products like their neck pillow, but it

doesn't take the pain away--just keeps my neck in a good position, and helps

decrease pain in the AM. I tried the magnets in my shoes--caused a lot of

neuropathy pain. And the bracelet did nothing. Now this is just my

experience--others may have better results. Hope this helps you.

Love, Sue Ginley

[Guest guest]

Hi Helen.

Yes the thought of needles would put me off too! I can only just manage

blood tests. I once put a fridge magnet (yes I'm cheap!) under my pillow

as this was meant to keep away headaches. I never woke up with one but

then I don't suffer much from them anyway so my experiment wasn't too

successful! lol

Jen

>

>

>

[Guest guest]

Hi .

Thanks for your opinions on magnets. Wow $90 for just one! And then to

get no benefit from it, well that's terrible. I am firmly of the belief

that not everything works for everyone but it is a shame that people are

being encouraged to expend such a large sum of money for something that

may not work.

<They let me borrow one of them for my hip that has bursitis-the cost

would be $90 for that particular size! ---I had no results from it. Not

meaning to be funny here, but there is more relief

when my cat lays up against it.>

LOL It's all that purrfect love flowing through- takes away pain!

Jen

>

>

[Guest guest]

Hi Sue.

Yes Nikken was the company this person mentioned. She claims the magnets

stopped her hips dislocating so that she could get up and walk. Boy I

would be sooo tempted if this were true believe me! LOL

Jen

>

[Guest guest]

Hi Barb.

Thank you so much for your opinions on the Nikken magnets. As I stated

in a previous email this individual is claiming that they stopped her

hips dislocating so that she could get out of her wheelchair. However

she has made similar claims with other treatments as well so I was

interested to see if anyone else had had any beneficial results from

them.

I was interested to read about distributing aspect. I don't have much

faith in MLM schemes although I realize that some companies are

successful this way (Nu Skin and Amway for example).I know that a few

years ago I would have tried any new therapy to improve my condition but

time (and finances) are a great benefit in teaching you to take

everything with a grain of salt. I still have my granddad's copper

bracelets which he wore to help ease his arthritis- never worked for him

either.

Jen

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