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Barbara,

as tumor is also 2cm. What is the status on your hearingfor now.

as first surgery was successful - however she has no useable hearing

left (on the operated side). Her remaining tumor is 2cm with normal hearing

and they dont want to operate. Ive had numerous drs. and they all say leave

her alone. Of course everyone's situation is different - is your hearing

good on that side?

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  • 2 years later...
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> I am glad to see this group is here. I had my first episode one

month ago

> today. I must admit it was truely life altering. To be sure, I have

never

> been so affraid in my life. I was out of town with my daughter and

before I

> knew it I was in an ambulance be ing transported to the local

hospital with a

> heart rate of 200bpm. I am 40 and otherwise in really good health

or so I

> thought. I have had no subsequent episodes, however, I am having

really bad

> panic attacks.

Paroxysmal afib means you are not in afib all the time, it only

happens sometimes. Lone afib means there is no underlying heart

problem such as a heart valve problem. They should have done an

echocardiogram and stress test to determine if you have an underlying

heart problem. If those came out fine, then as I understand it, you

would have lone paroxysml afib.

We all truly understand the panic. It is a rare person who doesn't

react this way. Trying to get control of the panic helps a lot,

because as you note, you can drive yourself into afib. Easier said

than done, though. There are some relaxation tapes listed on the web

site.

The docs always say afib is not immediately life threatening. Of

course, it helps to know you aren't going to drop dead when you have

an afib attack, but some primitive part of the brain freaks when the

heart goes nuts.

I would not take meds either if my attacks were few and far between.

I take them only because a beta blocker helps suppress the extra

beats and those do drive my anxiety.

What were you doing when you had the afib attack? If you were very

unusually stressed, you may never have another. My doc had two

attacks when he was going thru a stressful divorce about ten years

ago, and has not had one since.

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Hello swkfc

Your question reminded me again of when I first started with AF. I had gone

ot the Dr on numerous occassions with a racing heart and a terrible feeling

of panic. Usually I was sent away again and told not to drink coffeee etc.

So I thought I was over reacting. I decided that what I was suffereing was

panic attacks, although I couldn't think for the life of me why . One time I

was getting BP done when I was having a 'panic attack'. The Dr said

something funny is going on in your heart. I told him it was just me having

a panic attack. He said that is not a panic attack. That originates in your

heart. What did I do? I had a real PANIC.

Anyway, what I am saying is that the feelings of panic often comes from the

racing heart, rather than from any real panic. Of course you can panic when

your heart goes funny and you don't know what it is. The difference between

panic and AF is that when you have a panic attack there is a fear or

something that causes adrenaline to rush through the veins and cause a

racing heart beat. With AF there is no reason for panic. It just happens.

I'm not quite sure how they tell, but they do. Either way the feeling of

panic is overwhelming. I think once you recognise AF for what it is the

feeling of panic can be played down as you know it is not life threatening.

Also taking proactive measures or meds helps.

Lone AF means that there is no underlying cause for the AF. Paroxysmal means

that the AF is not constant. It comes in bursts.

Hope that helps

Fran

(no subject)

> I am glad to see this group is here. I had my first episode one month ago

> today. I must admit it was truely life altering. To be sure, I have never

> been so affraid in my life. I was out of town with my daughter and before

I

> knew it I was in an ambulance be ing transported to the local hospital

with a

> heart rate of 200bpm. I am 40 and otherwise in really good health or so I

> thought. I have had no subsequent episodes, however, I am having really

bad

> panic attacks. The first couple of weeks I would have the panic attacks

daily

> and at night I would wake up with them thinking any minute I would die or

my

> heart had truely stopped. I would get so scared that I could make my heart

> race convincing myself even further that I would soon be back in the

hospital

> only to be cardioverted once again. I have found myself to be a little

more

> at ease over the last few days but any premature heart beat or bump in the

> road while driving sets me into a gaurded panic.

> Questions: When does the panic leave?

> My brother had one of these 8 years ago took no meds and

> has not had another. I was given meds but made me feel worse so I quit the

> 2nd day. Is that a bad thing?

> What is the difference between " paroxysmal afib " and

" lone

> afib " ?

> I was diagnosed with pafib. What does that mean?

>

> Thanks to all who reply

>

>

>

> Web Page - http://groups.yahoo.com/group/AFIBsupport

> FAQ -

http://groups.yahoo.com/group/AFIBsupport/files/Administrative/faq.htm

> For more information: http://www.dialsolutions.com/af

> Unsubscribe: AFIBsupport-unsubscribe

> List owner: AFIBsupport-owner

> For help on how to use the group, including how to drive it via email,

> send a blank email to AFIBsupport-help

>

> Nothing in this message should be considered as medical advice, or should

be acted upon without consultation with one's physician.

>

>

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>The difference between

>panic and AF is that when you have a panic attack there is a fear or

>something that causes adrenaline to rush through the veins and cause

>a

>racing heart beat. With AF there is no reason for panic. It just

>happens.

>I'm not quite sure how they tell, but they do.

Take your pulse - with a little practice, you will be able to tell

panic (normal heart rate although likely somewhat fast) from afib

(chaotic beats.)

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Of course, silly me. Panic would just be in sinus and AF all over the place.

Thanks

Fran

> >The difference between

> >panic and AF is that when you have a panic attack there is a fear or

> >something that causes adrenaline to rush through the veins and cause

> >a

> >racing heart beat. With AF there is no reason for panic. It just

> >happens.

> >I'm not quite sure how they tell, but they do.

>

> Take your pulse - with a little practice, you will be able to tell

> panic (normal heart rate although likely somewhat fast) from afib

> (chaotic beats.)

>

>

>

>

> Web Page - http://groups.yahoo.com/group/AFIBsupport

> FAQ -

http://groups.yahoo.com/group/AFIBsupport/files/Administrative/faq.htm

> For more information: http://www.dialsolutions.com/af

> Unsubscribe: AFIBsupport-unsubscribe

> List owner: AFIBsupport-owner

> For help on how to use the group, including how to drive it via email,

> send a blank email to AFIBsupport-help

>

> Nothing in this message should be considered as medical advice, or should

be acted upon without consultation with one's physician.

>

>

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  • 2 months later...
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In a message dated 7/19/2002 9:37:43 AM Pacific Daylight Time,

celtic8586@... writes:

<< This address is the " Atrial Fibrillation Page " It's sponsored by the Maze

people.

I lost it and wondered if anyone had it. >>

Here it is, Rich:

http://members.aol.com/mazern/post.htm

I hope you're doing well after your ablation. Best wishes,

in sinus in Seattle (58th day)

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In a message dated 7/19/2002 10:53:33 AM Pacific Daylight Time,

celtic8586@... writes:

<< MARY!

I KNEW YOU HAD IT!

Congrads on you long run. >>

Thanks, Rich! I'm delighted about my long run of 58 days. Actually out of

the past 106 days, I've only had 30 hours of afib. Time will tell whether

this long sinus run is the trend of the future. I've had long runs of sinus

before though. After the frequent afib I've experienced in the past three

years, reverting to the two or three times a year pattern of the first few

years of my nineteen year afib career would seem like almost no afib at all.

I'm trying to follow my cardiologist's advice to " not rock the boat. " That

means I conscientiously avoid my summertime triggers. Although I love to

work in the garden, I wouldn't dream of overexerting myself in the hot sun.

My gardening is done in early morning or evening when it's cooler. Exertion

in hot weather is a definite trigger for me. Also, I drink only room

temperature water. It's not as refreshing as the ice cold variety, but it

certainly beats having afib or having to change medications! For the past

three summers I've experienced more afib than during the rest of the year

because of the role of the heat trigger, I think, but I guess I've finally

learned to curtail activity in the heat. So far this summer is the first in

many years that I have experienced no afib.

Congratulations to you on your ablation, and keep us posted on the results.

in sinus in Seattle

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  • 7 years later...

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