Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 Christal, I have the exact same problem. I went back to my general family doctor (the one who thought I might have celiac disease and who FINALLY did some tests on me) and he said if I'm not seeing signs of being better within 3 months of being gluten free to go back to my GI doctor who did the biopsy. It may mean I'm still getting gluten and don't know it. It also may mean that another biopsy is necessary (going further in?) to determine if the Celiac Disease has progressed into something worst. I have a few more weeks to go, then I'm back to the GI dr. who knows, Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 It took my daughter a little longer than a month to feel better. She still had some symptoms but they gradually decreased. I know that some people feel a little bit worse before they feel better. Sharla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 It took my daughter a little longer than a month to feel better. She still had some symptoms but they gradually decreased. I know that some people feel a little bit worse before they feel better. Sharla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2004 Report Share Posted September 15, 2004 Hi, does any one else have children who manifest behavior problems the second day (about 36 hours) after accidentally ingesting gluten? The first day my 3 yr old son is his usual sweet, calm self. The change starts the second day and it lasts another 12 to 20 hours until he has his " gluten " bowel movement. He suddenly morphs into this child that cries easily, talks loudly, throws tantrums when he can't get his way, can't focus, and is much more aggressive with our youngest son. We've recently eliminated food allergens and this time it is much improved but I still feel like I'm dealing with Dr. Jekyll and Mr. Hyde. Also, what about cast iron skillets? Do they need to be replaced too? Marcie Concepcion Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2004 Report Share Posted September 15, 2004 You could be writing about our 5 y.o. son. I have gotten so that I know when he has wheat because his temper flares up disproportionate to the reason for it. I do cut him some slack because of his age, but know that the frequency and level of his anger are tied to gluten. He has no bowel irregularities, but will get a rash on occasion. Cheryl in Colorado Marcie Concepcion wrote: >Hi, does any one else have children who manifest behavior problems the >second day (about 36 hours) >after accidentally ingesting gluten? The first day my 3 yr old son is his >usual sweet, calm self. The change starts the second day and it lasts >another 12 to 20 hours until he has his " gluten " bowel movement. He suddenly >morphs into this child that cries easily, talks loudly, throws tantrums when >he can't get his way, can't focus, and is much more aggressive with our >youngest son. We've recently eliminated food allergens and this time it is >much improved but I still feel like I'm dealing with Dr. Jekyll and Mr. >Hyde. > >Also, what about cast iron skillets? Do they need to be replaced too? >Marcie Concepcion > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2004 Report Share Posted September 15, 2004 > I still feel like I'm dealing with Dr. Jekyll and Mr. Hyde. We have had the same exact experience! Before we went GF this was a regular occurrence... we didn't know which little boy we'd get that day. Some days he was very angry, fussy, aggressive... then he'd be a pleasure. After going GF these episodes subsided, but we still dealt with them occasionally. I was pretty ignorant about being GF and I KNOW that there were mistakes. In the recent months we've seen very few of these episodes... pinpointing them to a specific meal is sometimes difficult and knowing when and where he got " glutened " always requires good detective work. Most often it is linked to " cross contamination " issues. Since being GF, we are amazed at the change. He is like night and day from his old self... I am NOT a doctor, nor do I play one on t.v.! I am just a mother of a gluten intolerant child who has read and chatted with others in the same boat. Please feel free to challenge me or point me towards any research and information, I'm always searching! Priscilla Graham " Cleaning your house while your kids are still growing is like shoveling the walk before it stops snowing. " --Phyllis Diller SAHM to 3 beautiful boys and one adorable girl - 6 - 4 (Gluten Free since 11/03) - 2 Abigail - 6 months My hands are full, but my heart is not! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2004 Report Share Posted September 15, 2004 Marcie, yes, my grandson, who is 17 months, shows behavior differences when he gets gluten, but they are--clinging more to his mother who nurses him, difficulty sleeping, low level crying/irritability more. If he were 3 years, he might be doing more of what you say. He picks up food off the floor no matter where he goes (although that finally is getting to be less often). My daughter would check the floors, but something was hidden in a corner or a child drops something. He did it so much, I, jokingly, called him a bottom feeder. Bottom feeders are the fish who swim along the bottom of the ocean and pick up all the mercury poisoning, etc. Jo Anne RE: Symptoms Hi, does any one else have children who manifest behavior problems thesecond day (about 36 hours)after accidentally ingesting gluten? The first day my 3 yr old son is hisusual sweet, calm self. The change starts the second day and it lastsanother 12 to 20 hours until he has his "gluten" bowel movement. He suddenlymorphs into this child that cries easily, talks loudly, throws tantrums whenhe can't get his way, can't focus, and is much more aggressive with ouryoungest son. We've recently eliminated food allergens and this time it ismuch improved but I still feel like I'm dealing with Dr. Jekyll and Mr.Hyde.Also, what about cast iron skillets? Do they need to be replaced too?Marcie Concepcion Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2004 Report Share Posted September 15, 2004 My oldest child (who is almost 10) has behavior problems as his main symptom. His symptoms tend to start the same day though within a few hours of getting gluten. He is very hard to deal with during the next two days, but we try to be patient with him and give him lots of space to just let loose. His reaction is very similar to what you describe for your son. Of course we draw the line at hitting his siblings (or any other violent or destructive behavior) and slamming doors really bothers me. We recognize it now as a gluten problem and he is able to control himself more, since he knows he is just feeling sick during those times. He is now experiencing total body itching and I'm trying to pinpoint what is causing it. He has been off gluten and dairy since April and was doing fine with other foods, but he recently got a weird rash on his face around his mouth and then the itching. I might have to take him to an allergist if it doesn't stop. What other allergies does your son have? And cast iron skillets will need to be replaced. They are impossible to clean 100% of the food out of and part of what makes them cook so well is that they are "seasoned" with food over the years. So they most likely contain quite a bit of gluten in them. A similar thing happens with teflon, and part of the foods stays behind inside of the teflon. So you might want to think twice before using teflon as well. Stainless steel is the easiest to clean well. God bless, nn Marcie Concepcion wrote: Hi, does any one else have children who manifest behavior problems the second day (about 36 hours) after accidentally ingesting gluten? The first day my 3 yr old son is his usual sweet, calm self. The change starts the second day and it lasts another 12 to 20 hours until he has his "gluten" bowel movement. He suddenly morphs into this child that cries easily, talks loudly, throws tantrums when he can't get his way, can't focus, and is much more aggressive with our youngest son. We've recently eliminated food allergens and this time it is much improved but I still feel like I'm dealing with Dr. Jekyll and Mr. Hyde. Also, what about cast iron skillets? Do they need to be replaced too? Marcie Concepcion Quote Link to comment Share on other sites More sharing options...
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