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Your Child Has Autism..What to Do Next

This information is meant to give purposeful direction to parents in the

those of anxiety and remorse when they receive the initial diagnosis of

Autism Spectrum Disorder (PDD-NOS, PDD, Aspergers/Autism) or before a

diagnosis, when there is suspicion in the mind of parents or teachers.

These suggestions are in no way to represent or take the place of

medical advice.

1. Immediately go to the UNLOCKING AUTISM web site.

www.unlockingautism.org and locate the Open Your Mouth graphics that

will give you a link to a UA State Representatives in your state. Once

you contact these Reps, they will help you get started on the road to

finding help for your family and for your child. They will give you

information regarding the services available in your state and the

agencies that provide them, as well as information regarding support

groups in your area.

2. Talk to more than one parent to ensure that you get all the unbiased

information. Different therapies and interventions work for different

children and it is your job to investigate them all thoroughly so you

can make the best decision for your child.

3. Locate the source of early intervention in your state, your school

district or state special education department.

4. To begin learning about the special education law and your child's

rights visit:

www.edlaw.net & www.wrightslaw.com

5. Investigate options that are available to help your child learn.

Learn the benefits and differences in ABA/Teacch/ Method/ Higashi

Method Floortime/PECS/Social Stories.

Web sites to get you started include the following.

www.unc.edu/~cory/autism-info/autitrea

www.autisminfo.com/aba www.apa.org/monitor/sep99/pi4

www.millermethod.org

www.bostonhigashi.org

www.members.tripod.com/~RSaffran/aba

www.trainland.tripod.com/pecs nonverbal

communication

6. Research biomedical interventions for children with autism.

www.safeminds.org....Sensible Action For Ending

Mercury-Induced Neurological Disorders

www.home.att.net/~pediatricaac/main

urocholine/ bethanechol/Vit.A therapy

www.healing-arts.org/children/holmes

Chelation of Mercury for Autism

7. Research Biomedical Testing done by those with experience.

www.greatplainslaboratory Lenexa , Kansas

www.gsdl.com Asheville, North Carolina

www.doctorsdata.com

www.medigenesis.com

8. Find a DAN! (DEFEAT AUTISM NOW! ) Doctor and make an appointment

while you are doing your homework. It will seem like forever before you

might be able to get in to see the doctor for the first time, but while

you are waiting to get in to see the doctor, you can be learning about

the disorder. This way you are not wasting time by learning about the

disorder and THEN waiting to get in and see the doctor.

www.autism.com/ari/danlist

9. Give serious thought to Dietary Interventions. Learn what you can

about them. Make sure that you are working in conjunction with a

licensed nutritionist or your child's pediatrician if you aren't yet

working with a DAN doctor to make sure that your child's nutritional

needs are being met.

www.gfcfdiet.com...Gluten Free/Casein Free Diet

www.newdiets.com...GF/CF Recipes

www.healingarts.org/children Implementing the

GF/CF Diet

www.autismndi.com Autism Network for Dietary

Intervention

10. Join a local Autism group in your area, talk to

and meet local parents and professionals. You can find the

closest chapter for the Autism Society of America by visiting:

ww.autismsociety.org/membership/chapter_map.

Your Unlocking Autism State Representative will be able to give you

information regarding other support groups in your state/area. And you

can visit: www.autism-info.com

11. Read some introductory books on autism.

These are available at your local library or through www.

Amazon.com

Beyond the Wall - Shore

Unraveling the Mysteries of Autism and PDD

- Karyn Seroussi

Let Me Hear Your Voice - Maurice

Biological Treatments of Autism and PDD -

Dr. Shaw

Breaking Autism's Barriers - Bill

12. There is active research on a suggested link between the MMR vaccine

and some forms of Autism:

www.osiris.sunderland.ac.uk/autism/vaccine

www.909shot.com NVICSpecialReport

www.vaccineinfo.net

13 Locate and talk to parents whom have done specific treatments and

therapies. Your Unlocking Autism State Representative will be able to

help you find other parents if they have not used that particular

therapy/treatment.

14. Remember that as parents of a child with autism, you need time to

understand and accept this diagnosis. There is pain and grief that you

may have to deal with during this time. Find support from other parents

and from your family. Do not try to do this alone.

www.unlockingautism.org

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  • 1 month later...

I think your message is the most comprehensive list I have ever

seen! I wish I would of had this list as a reference a year ago. I

have seen several of these websites, but I found them thru trial and

trial again. Thank You for taking the time to post it.

Sincerely,

Debbie (Mother to , Age 5)

> Your Child Has Autism..What to Do Next

> This information is meant to give purposeful direction to parents

in the

> those of anxiety and remorse when they receive the initial

diagnosis of

> Autism Spectrum Disorder (PDD-NOS, PDD, Aspergers/Autism) or before

a

> diagnosis, when there is suspicion in the mind of parents or

teachers.

> These suggestions are in no way to represent or take the place of

> medical advice.

>

> 1. Immediately go to the UNLOCKING AUTISM web site.

> www.unlockingautism.org and locate the Open Your Mouth graphics that

> will give you a link to a UA State Representatives in your state.

Once

> you contact these Reps, they will help you get started on the road

to

> finding help for your family and for your child. They will give you

> information regarding the services available in your state and the

> agencies that provide them, as well as information regarding support

> groups in your area.

> 2. Talk to more than one parent to ensure that you get all the

unbiased

> information. Different therapies and interventions work for

different

> children and it is your job to investigate them all thoroughly so

you

> can make the best decision for your child.

> 3. Locate the source of early intervention in your state, your

school

> district or state special education department.

> 4. To begin learning about the special education law and your

child's

> rights visit:

> www.edlaw.net & www.wrightslaw.com

> 5. Investigate options that are available to help your child learn.

> Learn the benefits and differences in ABA/Teacch/ Method/

Higashi

> Method Floortime/PECS/Social Stories.

> Web sites to get you started include the following.

> www.unc.edu/~cory/autism-info/autitrea

> www.autisminfo.com/aba www.apa.org/monitor/sep99/pi4

> www.millermethod.org

> www.bostonhigashi.org

> www.members.tripod.com/~RSaffran/aba

> www.trainland.tripod.com/pecs nonverbal

> communication

> 6. Research biomedical interventions for children with autism.

> www.safeminds.org....Sensible Action For Ending

> Mercury-Induced Neurological Disorders

> www.home.att.net/~pediatricaac/main

> urocholine/ bethanechol/Vit.A therapy

> www.healing-arts.org/children/holmes

> Chelation of Mercury for Autism

> 7. Research Biomedical Testing done by those with experience.

> www.greatplainslaboratory Lenexa , Kansas

> www.gsdl.com Asheville, North Carolina

> www.doctorsdata.com

> www.medigenesis.com

> 8. Find a DAN! (DEFEAT AUTISM NOW! ) Doctor and make an appointment

> while you are doing your homework. It will seem like forever

before you

> might be able to get in to see the doctor for the first time, but

while

> you are waiting to get in to see the doctor, you can be learning

about

> the disorder. This way you are not wasting time by learning about

the

> disorder and THEN waiting to get in and see the doctor.

> www.autism.com/ari/danlist

> 9. Give serious thought to Dietary Interventions. Learn what you

can

> about them. Make sure that you are working in conjunction with a

> licensed nutritionist or your child's pediatrician if you aren't yet

> working with a DAN doctor to make sure that your child's nutritional

> needs are being met.

> www.gfcfdiet.com...Gluten Free/Casein Free Diet

> www.newdiets.com...GF/CF Recipes

> www.healingarts.org/children Implementing the

> GF/CF Diet

> www.autismndi.com Autism Network for Dietary

> Intervention

> 10. Join a local Autism group in your area, talk to

> and meet local parents and professionals. You can find

the

> closest chapter for the Autism Society of America by visiting:

> ww.autismsociety.org/membership/chapter_map.

> Your Unlocking Autism State Representative will be able to

give you

> information regarding other support groups in your state/area. And

you

> can visit: www.autism-info.com

> 11. Read some introductory books on autism.

> These are available at your local library or through www.

> Amazon.com

> Beyond the Wall - Shore

> Unraveling the Mysteries of Autism and PDD

> - Karyn Seroussi

> Let Me Hear Your Voice - Maurice

> Biological Treatments of Autism and PDD -

> Dr. Shaw

> Breaking Autism's Barriers - Bill

> 12. There is active research on a suggested link between the MMR

vaccine

> and some forms of Autism:

> www.osiris.sunderland.ac.uk/autism/vaccine

> www.909shot.com NVICSpecialReport

> www.vaccineinfo.net

> 13 Locate and talk to parents whom have done specific treatments and

> therapies. Your Unlocking Autism State Representative will be able

to

> help you find other parents if they have not used that particular

> therapy/treatment.

> 14. Remember that as parents of a child with autism, you need time

to

> understand and accept this diagnosis. There is pain and grief that

you

> may have to deal with during this time. Find support from other

parents

> and from your family. Do not try to do this alone.

> www.unlockingautism.org

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