Guest guest Posted January 15, 2002 Report Share Posted January 15, 2002 Your Child Has Autism..What to Do Next This information is meant to give purposeful direction to parents in the those of anxiety and remorse when they receive the initial diagnosis of Autism Spectrum Disorder (PDD-NOS, PDD, Aspergers/Autism) or before a diagnosis, when there is suspicion in the mind of parents or teachers. These suggestions are in no way to represent or take the place of medical advice. 1. Immediately go to the UNLOCKING AUTISM web site. www.unlockingautism.org and locate the Open Your Mouth graphics that will give you a link to a UA State Representatives in your state. Once you contact these Reps, they will help you get started on the road to finding help for your family and for your child. They will give you information regarding the services available in your state and the agencies that provide them, as well as information regarding support groups in your area. 2. Talk to more than one parent to ensure that you get all the unbiased information. Different therapies and interventions work for different children and it is your job to investigate them all thoroughly so you can make the best decision for your child. 3. Locate the source of early intervention in your state, your school district or state special education department. 4. To begin learning about the special education law and your child's rights visit: www.edlaw.net & www.wrightslaw.com 5. Investigate options that are available to help your child learn. Learn the benefits and differences in ABA/Teacch/ Method/ Higashi Method Floortime/PECS/Social Stories. Web sites to get you started include the following. www.unc.edu/~cory/autism-info/autitrea www.autisminfo.com/aba www.apa.org/monitor/sep99/pi4 www.millermethod.org www.bostonhigashi.org www.members.tripod.com/~RSaffran/aba www.trainland.tripod.com/pecs nonverbal communication 6. Research biomedical interventions for children with autism. www.safeminds.org....Sensible Action For Ending Mercury-Induced Neurological Disorders www.home.att.net/~pediatricaac/main urocholine/ bethanechol/Vit.A therapy www.healing-arts.org/children/holmes Chelation of Mercury for Autism 7. Research Biomedical Testing done by those with experience. www.greatplainslaboratory Lenexa , Kansas www.gsdl.com Asheville, North Carolina www.doctorsdata.com www.medigenesis.com 8. Find a DAN! (DEFEAT AUTISM NOW! ) Doctor and make an appointment while you are doing your homework. It will seem like forever before you might be able to get in to see the doctor for the first time, but while you are waiting to get in to see the doctor, you can be learning about the disorder. This way you are not wasting time by learning about the disorder and THEN waiting to get in and see the doctor. www.autism.com/ari/danlist 9. Give serious thought to Dietary Interventions. Learn what you can about them. Make sure that you are working in conjunction with a licensed nutritionist or your child's pediatrician if you aren't yet working with a DAN doctor to make sure that your child's nutritional needs are being met. www.gfcfdiet.com...Gluten Free/Casein Free Diet www.newdiets.com...GF/CF Recipes www.healingarts.org/children Implementing the GF/CF Diet www.autismndi.com Autism Network for Dietary Intervention 10. Join a local Autism group in your area, talk to and meet local parents and professionals. You can find the closest chapter for the Autism Society of America by visiting: ww.autismsociety.org/membership/chapter_map. Your Unlocking Autism State Representative will be able to give you information regarding other support groups in your state/area. And you can visit: www.autism-info.com 11. Read some introductory books on autism. These are available at your local library or through www. Amazon.com Beyond the Wall - Shore Unraveling the Mysteries of Autism and PDD - Karyn Seroussi Let Me Hear Your Voice - Maurice Biological Treatments of Autism and PDD - Dr. Shaw Breaking Autism's Barriers - Bill 12. There is active research on a suggested link between the MMR vaccine and some forms of Autism: www.osiris.sunderland.ac.uk/autism/vaccine www.909shot.com NVICSpecialReport www.vaccineinfo.net 13 Locate and talk to parents whom have done specific treatments and therapies. Your Unlocking Autism State Representative will be able to help you find other parents if they have not used that particular therapy/treatment. 14. Remember that as parents of a child with autism, you need time to understand and accept this diagnosis. There is pain and grief that you may have to deal with during this time. Find support from other parents and from your family. Do not try to do this alone. www.unlockingautism.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2002 Report Share Posted February 25, 2002 I think your message is the most comprehensive list I have ever seen! I wish I would of had this list as a reference a year ago. I have seen several of these websites, but I found them thru trial and trial again. Thank You for taking the time to post it. Sincerely, Debbie (Mother to , Age 5) > Your Child Has Autism..What to Do Next > This information is meant to give purposeful direction to parents in the > those of anxiety and remorse when they receive the initial diagnosis of > Autism Spectrum Disorder (PDD-NOS, PDD, Aspergers/Autism) or before a > diagnosis, when there is suspicion in the mind of parents or teachers. > These suggestions are in no way to represent or take the place of > medical advice. > > 1. Immediately go to the UNLOCKING AUTISM web site. > www.unlockingautism.org and locate the Open Your Mouth graphics that > will give you a link to a UA State Representatives in your state. Once > you contact these Reps, they will help you get started on the road to > finding help for your family and for your child. They will give you > information regarding the services available in your state and the > agencies that provide them, as well as information regarding support > groups in your area. > 2. Talk to more than one parent to ensure that you get all the unbiased > information. Different therapies and interventions work for different > children and it is your job to investigate them all thoroughly so you > can make the best decision for your child. > 3. Locate the source of early intervention in your state, your school > district or state special education department. > 4. To begin learning about the special education law and your child's > rights visit: > www.edlaw.net & www.wrightslaw.com > 5. Investigate options that are available to help your child learn. > Learn the benefits and differences in ABA/Teacch/ Method/ Higashi > Method Floortime/PECS/Social Stories. > Web sites to get you started include the following. > www.unc.edu/~cory/autism-info/autitrea > www.autisminfo.com/aba www.apa.org/monitor/sep99/pi4 > www.millermethod.org > www.bostonhigashi.org > www.members.tripod.com/~RSaffran/aba > www.trainland.tripod.com/pecs nonverbal > communication > 6. Research biomedical interventions for children with autism. > www.safeminds.org....Sensible Action For Ending > Mercury-Induced Neurological Disorders > www.home.att.net/~pediatricaac/main > urocholine/ bethanechol/Vit.A therapy > www.healing-arts.org/children/holmes > Chelation of Mercury for Autism > 7. Research Biomedical Testing done by those with experience. > www.greatplainslaboratory Lenexa , Kansas > www.gsdl.com Asheville, North Carolina > www.doctorsdata.com > www.medigenesis.com > 8. Find a DAN! (DEFEAT AUTISM NOW! ) Doctor and make an appointment > while you are doing your homework. It will seem like forever before you > might be able to get in to see the doctor for the first time, but while > you are waiting to get in to see the doctor, you can be learning about > the disorder. This way you are not wasting time by learning about the > disorder and THEN waiting to get in and see the doctor. > www.autism.com/ari/danlist > 9. Give serious thought to Dietary Interventions. Learn what you can > about them. Make sure that you are working in conjunction with a > licensed nutritionist or your child's pediatrician if you aren't yet > working with a DAN doctor to make sure that your child's nutritional > needs are being met. > www.gfcfdiet.com...Gluten Free/Casein Free Diet > www.newdiets.com...GF/CF Recipes > www.healingarts.org/children Implementing the > GF/CF Diet > www.autismndi.com Autism Network for Dietary > Intervention > 10. Join a local Autism group in your area, talk to > and meet local parents and professionals. You can find the > closest chapter for the Autism Society of America by visiting: > ww.autismsociety.org/membership/chapter_map. > Your Unlocking Autism State Representative will be able to give you > information regarding other support groups in your state/area. And you > can visit: www.autism-info.com > 11. Read some introductory books on autism. > These are available at your local library or through www. > Amazon.com > Beyond the Wall - Shore > Unraveling the Mysteries of Autism and PDD > - Karyn Seroussi > Let Me Hear Your Voice - Maurice > Biological Treatments of Autism and PDD - > Dr. Shaw > Breaking Autism's Barriers - Bill > 12. There is active research on a suggested link between the MMR vaccine > and some forms of Autism: > www.osiris.sunderland.ac.uk/autism/vaccine > www.909shot.com NVICSpecialReport > www.vaccineinfo.net > 13 Locate and talk to parents whom have done specific treatments and > therapies. Your Unlocking Autism State Representative will be able to > help you find other parents if they have not used that particular > therapy/treatment. > 14. Remember that as parents of a child with autism, you need time to > understand and accept this diagnosis. There is pain and grief that you > may have to deal with during this time. Find support from other parents > and from your family. Do not try to do this alone. > www.unlockingautism.org Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.