Guest guest Posted April 1, 2000 Report Share Posted April 1, 2000 I remember that when I had Dr. appointments at a well known hospital (that were arranged months and months in advance), they would sometimes pull someone from their file room who " knew " Sign Language. Of course, this person was not certified. It was very frustrating! June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2000 Report Share Posted April 1, 2000 I remember that when I had Dr. appointments at a well known hospital (that were arranged months and months in advance), they would sometimes pull someone from their file room who " knew " Sign Language. Of course, this person was not certified. It was very frustrating! June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2000 Report Share Posted April 1, 2000 I agree, Signing Nurses and Interps kick major booty, but one time when I had an appointment to see an appointment at UCLA the SL interpreter wasn't available that particular day so I was left with one choice: postponement of the appointment a month. I, however, didn't want to postpone the appointment another month so I requested CART (Computer Assisted Real Time captioning). But they didn't want to pay saying that they already have services (interpreting) so I had to pay for CART myself. Thankfully though, it was a CART person whom I knew from school so she was pretty empathetic with her rates. The moral of this story? I guess it doesn't have any moral, but I just wanted to tell you my experience. Mark ----Original Message Follows---- From: ManelyCat@... Reply-To: NF2_Crewonelist To: NF2_Crewonelist Subject: Re: Re: Signing Nurse Date: Sat, 1 Apr 2000 10:41:45 EST I remember that when I had Dr. appointments at a well known hospital (that were arranged months and months in advance), they would sometimes pull someone from their file room who " knew " Sign Language. Of course, this person was not certified. It was very frustrating! June ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2000 Report Share Posted April 1, 2000 Thanks for that bit of advice; I am filing this away (not that I will be able to find it if I need it!) for future reference! marie -----:50 AM Subject: Re: Signing Nurse >Hi Crew! > >The day I get a surgury date and pre-op etc (usually a month before) I >call MCDHH (MA commission for the deaf) and request interpreters. Let >the state have it out with MGH and explain the ADA laws and stuff. >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2000 Report Share Posted April 2, 2000 why didnt you request the dr to just write if the appt was that important? was it an all day appt or a 15 minute deal? Mark Sarmac wrote: > I agree, Signing Nurses and Interps kick major booty, but one time when I > had an appointment to see an appointment at UCLA the SL interpreter wasn't > available that particular day so I was left with one choice: postponement of > the appointment a month. I, however, didn't want to postpone the appointment > another month so I requested CART (Computer Assisted Real Time captioning). > But they didn't want to pay saying that they already have services > (interpreting) so I had to pay for CART myself. Thankfully though, it was a > CART person whom I knew from school so she was pretty empathetic with her > rates. > > The moral of this story? I guess it doesn't have any moral, but I just > wanted to tell you my experience. > > Mark > > ----Original Message Follows---- > From: ManelyCat@... > Reply-To: NF2_Crewonelist > To: NF2_Crewonelist > Subject: Re: Re: Signing Nurse > Date: Sat, 1 Apr 2000 10:41:45 EST > > I remember that when I had Dr. appointments at a well known hospital (that > were arranged months and months in advance), they would sometimes pull > someone from their file room who " knew " Sign Language. Of course, this > person was not certified. It was very frustrating! > > June > > ______________________________________________________ > Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2000 Report Share Posted April 2, 2000 Oh yeah !! Have to be carefull !! I went in, thought I was having an Apendectomy, ended up with a Vasectomy !! Make em write it down !! You could think a La Botomy was a French method for treating heamoroids and end up with your brain removed !!!!! FRom MR Information !!!! Me from Down Here Marcus >why didnt you request the dr to just write if the appt was that important? was >it an all day appt or a 15 minute deal? > >Mark Sarmac wrote: > >> I agree, Signing Nurses and Interps kick major booty, but one time when I >> had an appointment to see an appointment at UCLA the SL interpreter wasn't >> available that particular day so I was left with one choice: postponement of >> the appointment a month. I, however, didn't want to postpone the appointment >> another month so I requested CART (Computer Assisted Real Time captioning). >> But they didn't want to pay saying that they already have services >> (interpreting) so I had to pay for CART myself. Thankfully though, it was a >> CART person whom I knew from school so she was pretty empathetic with her >> rates. >> >> The moral of this story? I guess it doesn't have any moral, but I just >> wanted to tell you my experience. >> >> Mark >> >> ----Original Message Follows---- >> From: ManelyCat@... >> Reply-To: NF2_Crewonelist >> To: NF2_Crewonelist >> Subject: Re: Re: Signing Nurse >> Date: Sat, 1 Apr 2000 10:41:45 EST >> >> I remember that when I had Dr. appointments at a well known hospital (that >> were arranged months and months in advance), they would sometimes pull >> someone from their file room who " knew " Sign Language. Of course, this >> person was not certified. It was very frustrating! >> >> June >> >> ______________________________________________________ >> Get Your Private, Free Email at http://www.hotmail.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2000 Report Share Posted April 2, 2000 FYI - , In my experiences with doctors (ALL, not just NF2 doctors), they are in such an all out hurry that they're not willing to take the time to write with you! It's VERY sad and twice as frustrating when you can't understand what's happening to you. ( Luckily, now, when I have an operation, I will request an interpreter. Most of my operations were pre-ADA. So, now I have ammo ) June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2000 Report Share Posted April 2, 2000 ----Original Message Follows---- was it an all day appt or a 15 minute deal?<-----it was an all day appointment, where I had to go over my 6 month MRI. If it was only a 15 minute deal, I would've asked him to. Mark ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2000 Report Share Posted April 2, 2000 Well put, June! I'm finding that also. Some doctors that I've seen are so rushed that they don't have time to write down everything, especially going through MRIs so an interp or CART would be very beneficial. Mark ----Original Message Follows---- From: ManelyCat@... Reply-To: NF2_Crewonelist To: NF2_Crewonelist Subject: Re: Re: Signing Nurse Date: Sun, 2 Apr 2000 15:12:25 EDT FYI - , In my experiences with doctors (ALL, not just NF2 doctors), they are in such an all out hurry that they're not willing to take the time to write with you! It's VERY sad and twice as frustrating when you can't understand what's happening to you. ( Luckily, now, when I have an operation, I will request an interpreter. Most of my operations were pre-ADA. So, now I have ammo ) June ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2000 Report Share Posted April 2, 2000 Well put, June! I'm finding that also. Some doctors that I've seen are so rushed that they don't have time to write down everything, especially going through MRIs so an interp or CART would be very beneficial. Mark ----Original Message Follows---- From: ManelyCat@... Reply-To: NF2_Crewonelist To: NF2_Crewonelist Subject: Re: Re: Signing Nurse Date: Sun, 2 Apr 2000 15:12:25 EDT FYI - , In my experiences with doctors (ALL, not just NF2 doctors), they are in such an all out hurry that they're not willing to take the time to write with you! It's VERY sad and twice as frustrating when you can't understand what's happening to you. ( Luckily, now, when I have an operation, I will request an interpreter. Most of my operations were pre-ADA. So, now I have ammo ) June ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2000 Report Share Posted April 2, 2000 In a message dated 4/2/2000 3:13:23 PM Eastern Daylight Time, ManelyCat@... writes: << In my experiences with doctors (ALL, not just NF2 doctors), they are in such an all out hurry that they're not willing to take the time to write with you! It's VERY sad and twice as frustrating when you can't understand what's happening to you. ( >> Actually.. I've had very good luck with getting the doctors to write to me.. a few insist on using my Laptop to type (prolly embarrased of their own handwriting) but very rarely do I need a 3rd party to write, and the one time I did get an interp.. the interp made it pretty clear she was there to sign, not write Pete Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2000 Report Share Posted April 2, 2000 No, I'm not. But, I've been thinking more about it since my original posting. I have a feeling that my doctors tend to forget that I cannot hear them. I talk a blue streak and they just forget. Also, I sometimes ask tons of questions. I'm going to MGH soon. Maybe I'll run a test and write out the questions beforehand and not utter a sound while I'm there. June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2000 Report Share Posted April 2, 2000 In a message dated 4/2/2000 6:57:23 PM Eastern Daylight Time, mark_sarmac@... writes: << it was an all day appointment, where I had to go over my 6 month MRI. If it was only a 15 minute deal, I would've asked him to. >> Wow, it takes them all day to go over an MRI? Either I'm lucky or missing something.. Because at the most it usually takes an hour to do my 6 month neuro checkup..That includes going over the MRI that they did that morning and dicsussing any other problems/concerns I get a copy of the Radiologists report to read, so I can safely say we cover about everything that they see in our interview too. And my Doc writes it all out himself Pete Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2000 Report Share Posted April 2, 2000 In a message dated 4/2/2000 6:57:23 PM Eastern Daylight Time, mark_sarmac@... writes: << it was an all day appointment, where I had to go over my 6 month MRI. If it was only a 15 minute deal, I would've asked him to. >> Wow, it takes them all day to go over an MRI? Either I'm lucky or missing something.. Because at the most it usually takes an hour to do my 6 month neuro checkup..That includes going over the MRI that they did that morning and dicsussing any other problems/concerns I get a copy of the Radiologists report to read, so I can safely say we cover about everything that they see in our interview too. And my Doc writes it all out himself Pete Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2000 Report Share Posted April 2, 2000 i have never had a dr treat me that way. in fact my dr will WRITE to me every word, then say he wants me to repeat to confirm to make sure i did not misunderstand. he is a professional, i cannot imagine anything less! i do not believe any dr wud put themselves in the position of being sued bc a patient misundestood due to deafness. u on an HMO by chance? im not and glad.! ManelyCat@... wrote: > FYI - , > > In my experiences with doctors (ALL, not just NF2 doctors), they are in such > an all out hurry that they're not willing to take the time to write with you! > It's VERY sad and twice as frustrating when you can't understand what's > happening to you. ( > > Luckily, now, when I have an operation, I will request an interpreter. Most > of my operations were pre-ADA. So, now I have ammo ) > > June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2000 Report Share Posted April 2, 2000 i have never had a dr treat me that way. in fact my dr will WRITE to me every word, then say he wants me to repeat to confirm to make sure i did not misunderstand. he is a professional, i cannot imagine anything less! i do not believe any dr wud put themselves in the position of being sued bc a patient misundestood due to deafness. u on an HMO by chance? im not and glad.! ManelyCat@... wrote: > FYI - , > > In my experiences with doctors (ALL, not just NF2 doctors), they are in such > an all out hurry that they're not willing to take the time to write with you! > It's VERY sad and twice as frustrating when you can't understand what's > happening to you. ( > > Luckily, now, when I have an operation, I will request an interpreter. Most > of my operations were pre-ADA. So, now I have ammo ) > > June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2000 Report Share Posted April 2, 2000 > Wow, it takes them all day to go over an MRI? ............................................................................. .................................... His apointment is probably 15 min.but factor in the waiting room time,yeah " all day " sounds about right. Jimmy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2000 Report Share Posted April 2, 2000 i was thinking the same. mark? all day? wow! are you ok?? lol Jimmy wrote: > > Wow, it takes them all day to go over an MRI? > ............................................................................ > ................................... > His apointment is probably 15 min.but factor in the waiting room time,yeah > " all day " sounds about right. > Jimmy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2000 Report Share Posted April 3, 2000 Hi Crew!! I gaurentee the doctors and nurses will forget, because they are so busy and with pre op we tend to pass thru 6-10 sets of people and no way will each one be informed....thats why its so important to have it in your chart that u are deaf or hoh. Not just small writting, I mean BIG in bright letters and I have them write deaf on my bracelet too. I have had many bad experiences so all this gives me some peace of mind...Also when I get to my room I make a big sign. PATIENT IS DEAF just for the sake of anyone who wanders in (lab techs etc). I got these great ideas from nne Schneider years ago and they have worked well ever since!! peace~ JJ ) -------------------------------------------------------------------------------- No, I'm not. But, I've been thinking more about it since my original posting. I have a feeling that my doctors tend to forget that I cannot hear Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2000 Report Share Posted April 3, 2000 They(nurses) usually tack a sign on the wall above my head " patient is deaf,please write to him " .I never had a sign nurse,of course I'm a fingerspeller,with a large " limited " vocabulary thrown in Jimmy(no sports talk:),but it's opening day !!!!!!WHOOOOO) Re: Re: Signing Nurse > Hi Crew!! > I gaurentee the doctors and nurses will forget, because they are so > busy and with pre op we tend to pass thru 6-10 sets of people and no way > will each one be informed....thats why its so important to have it in > your chart that u are deaf or hoh. Not just small writting, I mean BIG > in bright letters and I have them write deaf on my bracelet too. I have > had many bad experiences so all this gives me some peace of mind...Also > when I get to my room I make a big sign. PATIENT IS DEAF just for the > sake of anyone who wanders in (lab techs etc). I got these great ideas > from nne Schneider years ago and they have worked well ever since!! > > peace~ JJ ) > -------------------------------------------------------------------------- ------ > > No, I'm not. But, I've been thinking more about it since my original > posting. I have a feeling that my doctors tend to forget that I > cannot hear > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2000 Report Share Posted April 3, 2000 Jimmy's right! if you factor in the waiting, plus the MRI with the grandolin contrast along with the other doctor's appointments and his lectures at UCLA it takes ALL day. Besides, I'm with an HMO so I'm not as fortunate as some people here. Mark ----Original Message Follows---- Reply-To: NF2_Crewonelist To: NF2_Crewonelist Subject: Re: Re: Signing Nurse Date: Sun, 02 Apr 2000 20:21:26 -0400 i was thinking the same. mark? all day? wow! are you ok?? lol Jimmy wrote: > > Wow, it takes them all day to go over an MRI? > ............................................................................. > ................................... > His apointment is probably 15 min.but factor in the waiting room time,yeah > " all day " sounds about right. > Jimmy ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2000 Report Share Posted April 3, 2000 , I'm curious Which NS you are referring to, and has he done any surgery for you? And are you saying Dr. Nedzelski removed 1 AN and Dr. Tator the first. Have you had more than 1 surgery on either of your AN's or is your scheduled Gamma Ray the first treatment you have had since the AN's removal. You leave soon don't you? and did you say you had an appointment with them in Pittsburgh before going for treatment? Are there followups required after the Gamma Ray treatments? I wonder if you would consider asking if they do any Gamma Ray in the foramen area of the neck or the voice, throat area? Thanks, Sheryn > Most doctors are like you say but not all. . > > My present NS does not write as much. However, he speaks at the right speed and its easy to understand him. He is also not really in a rush during our appointments and that certainly helps. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2000 Report Share Posted April 3, 2000 Hi - Well, I understand your point but I reallly don't have a good voice (almost none) so I have to say I really would not care if they think I'm dumb- they're the ones who feel ridiculous when I write " Chill out and relax! I'm deaf not stupid!! " But sometimes its just not worth the effort and I let them go without a bashing, but sometimes I do like you and go with the flow, it depends. peace- JJ ) ------------------------------------------------------------ Hey Hey JJ, If you tack a big sign " PATIENT IS DEAF " , I bet they will assume you are dumb too!! I find nothing really works well so I let anyone new talk for a few seconds. Then I say something like " wait a sec, I can't hear. Can you back up a bit? " Quote Link to comment Share on other sites More sharing options...
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