Re: Leah--progress/regress

[Guest guest]

Hi ,

Basically we see our son be very connected for weeks, he seems to

become aware of everything and very interested, changes in his

environment, his language becomes very conversational about the

things he see's and does and hears us and others say, and things that

we are doing, where we are going, why we went, when we will be back,

what we buy, what is is for, almost normal. He is more expressive

about his day without us asking, and will interact more with his

sister, with us, with the adults around him, and trys hard with the

children in the neighborhood, unfortunately the children are not very

nice or very receptive to his initiations because he is already

labeled the different child. He will spontaneously do chores without

being asked, ask about things in the past, things we didn't realize

he remembered. He wants us to teach him what ever it is we are doing,

as if he realizes he missed something along the way, his sense of

humor becomes abundant, he jokes in a child like way, we just see

leaps and bounds in all areas. He just become happy and with us.

Then when least expect it his conversation becomes perseverative, he

will ask the same questions over and over, or make the same

statments, and only wants to converse about the subjects he wants. He

becomes almost unaware of things around him, and uninterested, back

into the fog!!!! he humms alot as if to block everything out and

starts to talk to himself more then he does normally,he goes into his

own world again, does not want to interact with anyone and gets mad

at the therapists, his sister, my husband and I. He wants to be

alone, he spends alot of time doing things that are to be done alone,

plays with the dog, plays tether ball, if someone wants to play with

him, he has no interest, no desire ,and acts as if he did not even

hear the request, if I want him to show him or teach him something

new, he does not care to learn, he becomes more tempermental, more

bipolar, he sinks back into his deeper world of autism, and then

maybe weeks later he is back again. This has gone on since day one of

chelation.

The progess that we have seen that stays without to much regression

is his agression, though still there is not as bad as a year ago

prior to chelation. He has much more patience and does not loose it

if things don't happen immediately as he used to. The more advanced

words used in his language, whether normal langauge or perseverative

language stay. He has picked up slang, " that is cool " " wait up " "

what's up " silly things like that, that are so age appropriate. Sense

of humor, kidding around, and knowing what he is doing. Like last

night, I was on the computer not looking at him as he came down the

stairs and asked him if he put on warm pajamas because it is cold, he

said " No " and asked why he needed warm pajamas, and then asked me if

it was because it was cold, I finally turned my head towards him

because I knew he knew the answer to that one and I was going to give

him that mom look!!! and he had his warm pajamas on with a big silly

smile on his face. We get alot of that kind of thing with him whether

his conversation is normal or perseverative or whether he is out of

the fog or in the fog. This gets frustrating along the way, I think

we all would love any progress to stay and just continue to get

better. But that is the kind of thing we see when I say progress and

regression.

Leah

- In @y..., " TnT Pilger " <tntpilger@e...> wrote:

> Hi Leah,

>

> You mentioned in recent post progression and regression as you went

thru chelation. Can you explain what you meant by that and what you

have observed in your son? Thank you very much, tracy mom to

Blake

>

>

>

[Guest guest]

Leah,

Thank you for your thorough reply. I am noticing a similar situation with my

son......he becomes very with it and aware and extremely communicative during

chelation (noticed this once we started ALA along with the DMSA we were already

doing) and then he seemed to regress again this week. Started doing things he

used to do quite a while ago. Could be partially due to crazy holiday week

however, the progress during this last chelation weekend is so great and then

noticably different during the week again. Not sure what is going on. Thank

you for sharing your experience. I am wondering if he is getting something from

the ALA besides metal removal or if the metals were stirred up and so see the

effects the week after. I think this is why our DAN dr recommends some kids be

on low level ALA all the time. Scares me to do that but may be why he does it.

(Wont be going there yet). i know he says he sees three kinds of kids. Those

who regress during chelation weekend and then progress after; those who have no

effects during and progress after; and those who progress during and regress

after.

Keep seeing lots of comments on how people think negative side effects are an

indication of metal removal. It doesnt seem to me that this HAS to happen for

there to be indication that the metals are be being removed......comment

anyone????

Thanks, (Just finished 9 rounds on Blake age 4)

[ ] Re: Leah--progress/regress

Hi ,

Basically we see our son be very connected for weeks, he seems to

become aware of everything and very interested, changes in his

environment, his language becomes very conversational about the

things he see's and does and hears us and others say, and things that

we are doing, where we are going, why we went, when we will be back,

what we buy, what is is for, almost normal. He is more expressive

about his day without us asking, and will interact more with his

sister, with us, with the adults around him, and trys hard with the

children in the neighborhood, unfortunately the children are not very

nice or very receptive to his initiations because he is already

labeled the different child. He will spontaneously do chores without

being asked, ask about things in the past, things we didn't realize

he remembered. He wants us to teach him what ever it is we are doing,

as if he realizes he missed something along the way, his sense of

humor becomes abundant, he jokes in a child like way, we just see

leaps and bounds in all areas. He just become happy and with us.

Then when least expect it his conversation becomes perseverative, he

will ask the same questions over and over, or make the same

statments, and only wants to converse about the subjects he wants. He

becomes almost unaware of things around him, and uninterested, back

into the fog!!!! he humms alot as if to block everything out and

starts to talk to himself more then he does normally,he goes into his

own world again, does not want to interact with anyone and gets mad

at the therapists, his sister, my husband and I. He wants to be

alone, he spends alot of time doing things that are to be done alone,

plays with the dog, plays tether ball, if someone wants to play with

him, he has no interest, no desire ,and acts as if he did not even

hear the request, if I want him to show him or teach him something

new, he does not care to learn, he becomes more tempermental, more

bipolar, he sinks back into his deeper world of autism, and then

maybe weeks later he is back again. This has gone on since day one of

chelation.

The progess that we have seen that stays without to much regression

is his agression, though still there is not as bad as a year ago

prior to chelation. He has much more patience and does not loose it

if things don't happen immediately as he used to. The more advanced

words used in his language, whether normal langauge or perseverative

language stay. He has picked up slang, " that is cool " " wait up " "

what's up " silly things like that, that are so age appropriate. Sense

of humor, kidding around, and knowing what he is doing. Like last

night, I was on the computer not looking at him as he came down the

stairs and asked him if he put on warm pajamas because it is cold, he

said " No " and asked why he needed warm pajamas, and then asked me if

it was because it was cold, I finally turned my head towards him

because I knew he knew the answer to that one and I was going to give

him that mom look!!! and he had his warm pajamas on with a big silly

smile on his face. We get alot of that kind of thing with him whether

his conversation is normal or perseverative or whether he is out of

the fog or in the fog. This gets frustrating along the way, I think

we all would love any progress to stay and just continue to get

better. But that is the kind of thing we see when I say progress and

regression.

Leah

- In @y..., " TnT Pilger " <tntpilger@e...> wrote:

> Hi Leah,

>

> You mentioned in recent post progression and regression as you went

thru chelation. Can you explain what you meant by that and what you

have observed in your son? Thank you very much, tracy mom to

Blake

>

>

>

[Guest guest]

> >Keep seeing lots of comments on how people think negative side

effects are

> an indication of metal removal. It doesnt seem to me that this HAS

to

> happen for there to be indication that the metals are be being

> removed......comment anyone????

It does not have to happen.

Side effects while the chelating agents are in the system and for up

to a day afterwards are reasonable and expected. If you go slow enough

they can be negligible. Most people choose to go as fast as they can

without suffering a lot and do get some side effects.

Side effects or " regression " lasting longer than that are an

indication that the protocol being used is inappropriate for that

person. If the doc insists on continuing with it anyway, then it is

an indication that person needs a new physician.

Andy

> >

> >Thanks, (Just finished 9 rounds on Blake age 4)

>

> IMO the best indication that metals are being removed is reduction

in symptoms

> associated with metal poisoning. e.g. brain working better. People

do seem

> to have some negative effects along the way, too, at least

sometimes.

> I think it varies a lot.

>

> Just my 2 cents worth!

> Moria