Re: Intro/Where To Start?

January 7, 2002

Use current hair samples, get the test through DDI (toxic AND essential

elements) and apply the counting rules for starters.

S

On Mon, 07 January 2002, " deedee832 " wrote:

>

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> <tt>

> Hello,

>

> My name is Deanna and I live in New Castle, DE. & nbsp; I have two wonderful

> children, who's 5 1/2 and who just turned 3. & nbsp; Both of

> my children are developmentally delayed. & nbsp; I've never received an

> official diagnosis for either one, however. & nbsp; My son was evaluated by

> the Autistic School and was found to not be autistic but he does have

> autistic tendancies. & nbsp; used no meaningful language until the age

> of 3 years and 3 months. & nbsp; He is doing very well in his program. & nbsp; He

> currently attends an inclusion Kindergarten program and does well but

> still has problems with social interactions as well as expressive and

> receptive language and temper control. & nbsp; He's very smart and far too

> clever for his own good sometimes. & nbsp; It's as if he knows exactly what

> he wants to say but just can't verbalize it. & nbsp; started her

> therapies a full year earlier than which we thought would put

> her ahead of where was at her age, but it didn't. & nbsp; While she has

> the same language delays as , she has a lot more sensory issues. & nbsp;

> She's on a brushing program now, which she loves and, in fact, we

> just started her in a tight huggy vest today hoping that would give

> her the input she seems to need and crave. & nbsp; She is still not using

> meaningful language and is having a difficult time catching onto the

> picture exchange ( picked this up right away at her age) that

> they are using at school. & nbsp; She currently attends a 5 day a week

> apecial ed pre-school program.

>

> Anyway, now that I've given a background on the kids, I need help on

> what to do first to get them tested for Mercury. & nbsp; I was sick over the

> weekend and while laying on the couch watching TV for a few hours I

> must have seen the same commercial about 6 times. & nbsp; It was for a

> lawyer who was getting a class action suit together for children who

> have Autism or Autistic type symptoms due to Mercury poisoning from

> childhood immunizations. & nbsp; I'm not really interested in a lawsuit but

> that would explain why I have 2 children with nearly the exact same

> problem which I always thought was very odd. & nbsp; I immediately began my

> research online. & nbsp; It seems that testing for excessive levels of

> mercury will be difficult since it's been so long since they've had

> the immunizations. & nbsp; I've been trying to hunt down their hair scraps

> from their 1st haircuts but haven't been able to find them yet. & nbsp; I'm

> hoping they didn't get lost in our move. & nbsp; So, where do I start? & nbsp; I

> have a wonderful pediatrician which I haven't spoken to about this

> yet. & nbsp; But I'm sure she'll be supportive. & nbsp; Do I just ask her to send

> us for blood/hair testing? & nbsp; Are there special tests we should ask

> for? & nbsp; Any help would be appreciated.

>

> Thanks,

> Deanna

> Mom to 5 1/2 and 3 going on 30!

>

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January 7, 2002

Hi Deanna, welcome,

>Anyway, now that I've given a background on the kids, I need help on

>what to do first to get them tested for Mercury.

You could start by doing a DDI hair test. Please read the following

files about how to do this, and how to make sense of the results:

/files/Counting%2BRules

/files/HOW_TO_hair_test

> I was sick over the

>weekend and while laying on the couch watching TV for a few hours I

>must have seen the same commercial about 6 times. It was for a

>lawyer who was getting a class action suit together for children who

>have Autism or Autistic type symptoms due to Mercury poisoning from

>childhood immunizations. I'm not really interested in a lawsuit but

>that would explain why I have 2 children with nearly the exact same

>problem which I always thought was very odd. I immediately began my

>research online. It seems that testing for excessive levels of

>mercury will be difficult since it's been so long since they've had

>the immunizations. I've been trying to hunt down their hair scraps

>from their 1st haircuts but haven't been able to find them yet. I'm

>hoping they didn't get lost in our move. So, where do I start?

see comments above about hair testing. current hair should work okay

> I

>have a wonderful pediatrician which I haven't spoken to about this

>yet. But I'm sure she'll be supportive. Do I just ask her to send

>us for blood/hair testing? Are there special tests we should ask

>for? Any help would be appreciated.

You could read whatever looks interesting to you in these files:

/files/Mercury-Autism%20FAQ

/files/Glossary

/files/ANDY_INDEX

Different stuff should likely look interesting over time, so revisit

these again another week or month to see what is interesting then too.

Moria

January 8, 2002

>I need help on

> what to do first to get them tested for Mercury.

Use current hair samples to get a " hair element profile " run by

Doctor's Data laboratories. Be careful to use that lab and to get a

hair element profile and not a " toxic element screen. "

Andy

January 8, 2002

Thanks to all who responded with your great information!

So, in other words, I can't just ask my pediatrician for a Hair

Elements screen and go to my local lab where we usually go for our

regular blood draws, etc? It has to be a Doctor's Data lab so they

can perform the correct test so that we can apply the counting rules,

right? Am I correct in saying that Doctor's Data labs are a mail

order type lab where they send you a kit and you send the samples

back to them and they mail you the results?

Sorry to ask so many questions but as you all know it's a long

frustrating road especially with 2 developmentally delayed children

and I want to do it right the first time so I don't waste time or

money in getting my kids diagnosed and, if need be, treated.

Thanks so much again! Keep the great information coming.

Deanna

Mom to 5 1/2 and 3 going on 30!

> Use current hair samples, get the test through DDI (toxic AND

essential elements) and apply the counting rules for starters.

> S

>

January 8, 2002

Hi Deanna

>So, in other words, I can't just ask my pediatrician for a Hair

>Elements screen and go to my local lab where we usually go for our

>regular blood draws, etc? It has to be a Doctor's Data lab so they

>can perform the correct test so that we can apply the counting rules,

>right?

yes, use Doctor's Data.

> Am I correct in saying that Doctor's Data labs are a mail

>order type lab where they send you a kit and you send the samples

>back to them and they mail you the results?

yeah, they will send a " kit " which has stuff like a little ziplock

bag for the hair sample, and directions, and a funny little " scale "

that you use to weigh the hair (so that you send " enough " ) and so on.

You mail the hair to them. It works fine.

>Sorry to ask so many questions but as you all know it's a long

>frustrating road especially with 2 developmentally delayed children

>and I want to do it right the first time so I don't waste time or

>money in getting my kids diagnosed and, if need be, treated.

very good.

best wishes,

Moria

January 8, 2002

This is going to sound really stupid but how do you get in touch with the

Doctors Data lab? My child does not have autism but she has Sensory I

ntegration Dysfunction? Does chelation and fatty acids, enzymes help SID? I

can offer something to those parents who have a child(ren) that willnot eat.

My daughter was prescribed Peri Actin.It is actually used as an

anti-histamine but the side effects are increased appetite and sleepiness.It

did not help her with sleeping,although it does most kids,it helped some with

eating.If you get this RX for your child the directions for dosing will be

for an anti-histamine. My doctor told me to put her on it a few days then off

a few days then back on. What we do is twice a day for 4 days (m-th_ than off

Friday, Saturday,Sunday.But all children are different so you may need to

find what works best for you. This medicine is used in childrens hospitals

for children who have cancer,etc. to help them gain weight.ne, mom to

Gillian 18mnths

January 8, 2002

Thank you for the e-mail on how to get in touch with Doctors data lab. I hope

this helps mr daughter.

January 8, 2002

Valentina, Thank you for your reply. My daughter was diagnosed with SID when

she was 11 months old. She is now 18months. She is completely normal in every

way except eating and speaking. She has a tremendous fear of food. She says

" dada " and that is it. I amnew to this chat room and I guess new to this

whole concept of SID. How do enzymes,etc help with speech? She babbles all

day, extremely lovey, gives kisses,and she understands everything you tell

her she just can not communicate back with words. Also, how are these

children when they are school age? Do most of them have learning

disorders?Pleasa help me. I am at the end of my rope. every Dr and therapist

she has does not no what to do for her anymore.She is not responding very

well to therapy when it comes to eating. She is better than she was but very

miniscule. Thanks, ne

January 8, 2002

> This is going to sound really stupid but how do you get in touch

with the

> Doctors Data lab?

/files/HOW_TO_hair_test

please read text at above location

January 8, 2002

Hi ne,

My son is ASD, and we started chelation two months ago.. He had a lot of

sensory problems... All his senses were messed up.

I wouldn't say the same thing now.

So... I guess chelation helps a lot SID.

I don't know about fatty acids or enzymes, sorry...

Valentina

> Does chelation and fatty acids, enzymes help SID?

January 8, 2002

I emailed them today at inquiries@.... They also have a

website www.doctorsdata.com. They told me that only my doctor can

order a test kit and that it's $76.00. As for chelation helping with

SID, I gess it would depend on how the test came back. If he/she is

positive, I would think it would help. One of the other more

experienced persons on this list would be able to tell you a little

better though.

Neither of my children have Autism but both have global developmental

delays with the exception of gross motor. They both also have some

sensory issues (more so my daughter than my son). Luckily neither

have significant food texture issues. I'm hoping that if their tests

come back positive that chelation will help them to improve. I'm

most concerned with their language (expressive and receptive)

improving. I'm not getting my hopes up but I'm hoping this is the

answer I've been looking for for 3 1/2 years.

Deanna

Mom to 5 1/2 and 3 going on 30!

> This is going to sound really stupid but how do you get in touch

with the

> Doctors Data lab? My child does not have autism but she has Sensory

I

> ntegration Dysfunction? Does chelation and fatty acids, enzymes

help SID? I

> can offer something to those parents who have a child(ren) that

willnot eat.

> My daughter was prescribed Peri Actin.It is actually used as an

> anti-histamine but the side effects are increased appetite and

sleepiness.It

> did not help her with sleeping,although it does most kids,it helped

some with

> eating.If you get this RX for your child the directions for dosing

will be

> for an anti-histamine. My doctor told me to put her on it a few

days then off

> a few days then back on. What we do is twice a day for 4 days (m-

th_ than off

> Friday, Saturday,Sunday.But all children are different so you may

need to

> find what works best for you. This medicine is used in childrens

hospitals

> for children who have cancer,etc. to help them gain

weight.ne, mom to

> Gillian 18mnths

>

January 8, 2002

Valentina, What I mean about a tremendous fear of food is she starts cring

and slapping you when you even show her food. She will eat a couple of things

and that is it. As soon as you put her in her high chair she starts crying

because she associates the high chair with food. We gave up on the high chair

a long time ago. What is ASD and what exactly are global delays? Like I said

I am new at this and have never heard of any of this until my daughter was

diagnosed with SID. I live in Kentucky and not very many doctors here even

think SID is a true condition. I had a pediatric gastro doctor tell me I had

one spoiled child and if I stop breast feeding and starve her then she will

eat when she gets hungry enough. I walked straight out of that office. I

would not even no where to begin with enzyme therapy, chelation, etc. Also,

here is some info that might help some of you: I started olive oil massages

on my daughter twice daily. This helps with allowing her body to absorb and

digest every bit of nutrition her body gets and helps with tactile

stimulation. She screamed when we first started this and now she loves it. It

also helps calm her. We have tried mouth massagers, electric toothbrushes,

rubbing our fingers across her teeh and gums and this has not helped. I hope

when she does get to school she will be o.k. I have this terrible fear that

she will be the child in the class that teachers call about daily because of

her issues and that she is made fun of because of her issues. I no that

sounds bizarre but she is absolutely beautiful and I want her to do well with

everything. Thanks, ne

January 8, 2002

Deanna, We have tried brushing protocol for 6 months and it does not help

her. We are going through an organization called First Steps in Kentucky. It

is free and all the therapists come to my house. She has OT,ST,DI,

NUTRITIONIST.She is anemic from not eating. She takes RX iron. Everyone tells

me that she is a puzzle. No one seems to no how to help her. I was told that

she may need to go to Rainbow Babies in Cleveland, Ohio where they specialize

in feeding disorders. ne,mom to Gillian(pronounced like Jillian) 18

months old

January 8, 2002

I have " The Out Of Sync Child " and another book called " Unlocking The

mysteries Of SID " .I can not recall the author right now.The latter book was

great . It was written by two women who have children with SID. I do not no

if Gillian has allergies or not. Her doctor does not seem to think it is an

issue. I am switching doctors. The Out Of Sync Child is really depressing. I

get so depressed thinking about what Gillian must be feeling inside. It helps

me sometimes to no that Gillian does have something that is not right

inside,when she is driving me crazy,but a person can only take so much. I

feel like I amlosing my mind sometimes.My husband gave me a great gift-4 days

in New Orleans BY MYSELF to visit some friends.I am just wooried about being

away from my daughter Thanks, ne

January 8, 2002

Hi,

Right now, after some rounds of chelation and a few other supplements

and... God knows what other things I give to my son enzymes too,

starting today he finally seems to be able to understand almost

everything I tell him, but he cannot communicate back. So I kind of have

the same problem as you... Just that my kid is 3

I'm not sure how I could help you... I wish I could...

I am sure though you will find a lot of really nice people on this board

and many good advises, warm words to make you understand that you're not

alone.

I don't know how other people see this problem, but I think all these

developmental problems are actually because of the heavy metals our

children's bodies are loaded with. I use these terms, ASD SID AS....

whatever... only to make a difference between the symptoms, but I think

actually all are about how the toxic metals affect our kids' bodies.

What do you mean when you say " tremendous fear of food " ?

Did you try any kind of therapy with your daughter? Did you try to

desensitize her mouth with an electric tooth brush maybe? Or just a

regular one... I don't know much about this... My son is 3 1/2 and he

just started to chew the food that he eats. Also his words are better..

they're not just... chinese anymore.

I have no idea how these children will be at school age. I am sure

somebody else can help you here... Mine is only 3, as I said, and...

well... I don't think you are talking about kindergarten, do you?

ne, I really hope you will start to feel better soon.

Don't despair. There are a lot of things you can do/try you can try

lots of vitamins, you can try enzymes if you think she had a digestive

problem, or even a yeast/parasites problem. You can even try chelation I

guess It depends... You will have to read a lot... I think Moria can

tell you exactly what

Hope you're well ne

Valentina

> Valentina, Thank you for your reply. My daughter was diagnosed with

> SID when she was 11 months old. She is now 18months. She is completely

> normal in every

> way except eating and speaking. She has a tremendous fear of food. She

> says " dada " and that is it. I amnew to this chat room and I guess new

> to this whole concept of SID. How do enzymes,etc help with speech? She

> babbles all

> day, extremely lovey, gives kisses,and she understands everything you

> tell her she just can not communicate back with words. Also, how are

> these

> children when they are school age? Do most of them have learning

> disorders?Pleasa help me. I am at the end of my rope. every Dr and

> therapist she has does not no what to do for her anymore.She is not

> responding very

> well to therapy when it comes to eating. She is better than she was

> but very miniscule. Thanks, ne

January 8, 2002

ne,

First of all, welcome. I consider myself new to this group as well. What I

found is our children are all very different but when you said, " I am at the

end of my ropes " I think most if not all share your sentiment. My son Tim is

8 and amongst other issues has sensory integration sensitivities with his

vision, sound, and touch. I don't have the knowledge to help with your

questions, but this is a wonderful group of caring individuals that will

offer their insight, share their knowledge and help ease your concerns.

Sharon Etchemendy

Re: [ ] Re: Intro/Where To Start?

Valentina, Thank you for your reply. My daughter was diagnosed with SID when

she was 11 months old. She is now 18months. She is completely normal in

every