Re: HELP, SCARED, CHLORELLA

[Guest guest]

Hi Debbie, I just wrote you a long note on the

list. I am so sorry you are feeling scared. If you can, please

don't hate yourself. I took chlorella because I had no idea.

I took a product w/chlorella in it for MANY MONTHS. I now suspect

(but will never know) that it may have been a factor in the really

icky " new " level of cognitive problems I developed at that time.

I know you are doing everything you know how to do, and then trying

to learn more. I don't know what else to say, just wanted to try

to send some encouragement. I'm sorry I can't be more help.

Moria

> Hi,

>

> Please help, anyone!

>

> I've been giving my son Primal Defense (a probiotic, mainly) which

also

> contains chlorella for six weeks at the advice of my son's DAN

doctor. During

> this time, he gradually seemed to be getting worse, until about a

week ago

> his pupils began to dilate. At this time, I took him off the Primal

Defense,

> not knowing what else could have been causing the problem. The

doctor does

> not seem to think chlorella is the problem. After searching for more

info

> about chlorella and mercury toxicity, I DO think it's the likely

problem.

>

> Had I known six weeks ago what I know about chlorella now, I'd never

have

> used the Primal Defense. I am REALLY, REALLY hating myself right

now. I feel

> like I've done it again...first the vaccinations, now the Primal

Defense.

>

> So HELP!!!! What can I do to reverse this problem? Was chlorella

adding

> mercury? Redistributing what's there? We've done the DDI Hair Test

and

> counting rules did not suggest mercury toxicity, but there was high

antimony,

> arsenic, aluminum, lead and uranium.

>

> I'm afraid to start ALA because I'm suspicious he may have high

> plasma/cysteine (he became hyperactive on transdermal glutathione,

though it

> may have been the carrying agent and not the glutathione itself, I

don't

> know..). I hate poking my poor son again to find out. He's

traumatized by

> needles. Isn't ALA supposed to be not used if high plasma/cysteine?

Also I

> wonder that sometime high sulfur foods make him drowsy (broccoli,

beans,

> MSM), so have pretty much cut them back.

>

> I'm losing my son on a daily basis, here, and am incredibly

frightened. Any

> help would be REALLY appreciated.

>

> Thanks,

> Debbie

[Guest guest]

I don't know if it is any comfort to you, but we have used Primal Defense

despite the chlorella in it, and like the product. It even seemed that Elliot's

periods of remission were when we were NOT using Primal Defense. I ran out

about a week ago, and planned on buying more soon.

What dose are you using? I never did follow the suggestions on the bottle (for

increasing the dose); he got one or two a day, only.

We did see regression before we gave the Primal Defense. In fact, we gave PD in

large part to prevent further regression. If you are chelating, you may have

just hit the point where the nasty metals are finally coming out. Or the " bad

bugs " may have taken up residence.

Good luck.

Lorilyn

[Guest guest]

Hi Debbie,

First, let me tell you that you didn't do anything else other that love

your son.

The fact that some doctors (lots of them) are... the way they are, the

fact that we (not me, but most of the people) trust them, these things

are not reasons for you to hate yourself but only to (maybe) hate the

doctors, not trust them anymore. I had some really bad experiences with

some of them too, and I have to say that some of them are... incredible

(I don't want to use some other word).

Anyway, I think the best thing for us (all of us here) is the fact that

we have this list. I really believe that this list simply changed my

life and of course my son's life in better. I don't know what I would

have done if it wasn't this list, the people here, Andy, Moria, all you

parents, that give a lot from the little time you have to contribute, to

try to help the others with advises, experiences (good or bad). This is

SO MUCH MORE that I could have gotten from doctors!

I am sorry Debbie I got carried away, but once again I feel like saying

" Thank you " to these wonderful people here.

I am sure you will soon manage to figure out what's the best way to make

your son feel better. If anybody is able to do that, you are that one!

Because you care for your son! So really, you have no reason to hate

yourself only because you tried to help him. We can try to help you too

the best we can, but only you can actually " fix " the damage. You can,

believe me!

I keep hearing lately how much worse people that took Primal Defense

feel. I am sorry you had to see that right on your son. Maybe it's time

now to start to chelate him. I understand cysteine can be a problem, but

I think it's the only way. Start with a really low dose and see what's

happening and increase the dose slowly. I am sure his body will become

comfortable with the chelator in a very short time.

You know, it's amazing how our bodies adapt to whatever new things we

try... I've seen that on myself. When I started to chelate, I am sure I

had a problems too with the cysteine, but in a very short time this

changed. I can say that I feel now better than in any other moment in my

life! My son... he feels great too. We had some problems too but as I

said, the body takes care of them... it adjusts slowly. Especially when

the body is so young.

> So HELP!!!! What can I do to reverse this problem?

chelate him

(my opinion)

I don't know what would be better for him, ALA or DMSA, but I'm sure you

have to try them. Maybe you should start with DMSA. I know I've read

some time ago that DMSA uses cysteine to pull out the metals. I have no

idea if it's true, maybe somebody else here can tell you more..

But I'm sure what you can do is to keep your son away from " sulfury

foods " for a while, just to see what's happening, especially if you

think these are making him feel bad. Also, give him lots of baths with

Epsom salt (I am thinking that maybe his body cannot transform the

cysteine into sulfate, maybe this is why it's high).

> (he became hyperactive on transdermal glutathione,

I guess in your son's case the glutathion acted the same way as

clorella.

Debbie, I am really sorry I cannot be of more help. I really hope you

will do the right thing for your son. Believe me, only you can do this!

I hope the new year will bring you lots of great moments

Please let us know what's happening.

Valentina

> Please help, anyone!

>

> I've been giving my son Primal Defense (a probiotic, mainly) which

> also

> contains chlorella for six weeks at the advice of my son's DAN doctor.

> During

> this time, he gradually seemed to be getting worse, until about a week

> ago

> his pupils began to dilate. At this time, I took him off the Primal

> Defense,

> not knowing what else could have been causing the problem. The doctor

> does

> not seem to think chlorella is the problem. After searching for more

> info

> about chlorella and mercury toxicity, I DO think it's the likely

> problem.

>

> Had I known six weeks ago what I know about chlorella now, I'd never

> have

> used the Primal Defense. I am REALLY, REALLY hating myself right now.

> I feel

> like I've done it again...first the vaccinations, now the Primal

> Defense.

>

> So HELP!!!! What can I do to reverse this problem? Was chlorella

> adding

> mercury? Redistributing what's there? We've done the DDI Hair Test and

>

> counting rules did not suggest mercury toxicity, but there was high

> antimony,

> arsenic, aluminum, lead and uranium.

> I'm afraid to start ALA because I'm suspicious he may have high

> plasma/cysteine (he became hyperactive on transdermal glutathione,

> though it

> may have been the carrying agent and not the glutathione itself, I

> don't

> know..). I hate poking my poor son again to find out. He's traumatized

> by

> needles. Isn't ALA supposed to be not used if high plasma/cysteine?

> Also I

> wonder that sometime high sulfur foods make him drowsy (broccoli,

> beans,

> MSM), so have pretty much cut them back.

>

> I'm losing my son on a daily basis, here, and am incredibly

> frightened. Any

> help would be REALLY appreciated.

>

> Thanks,

> Debbie

[Guest guest]

I'm not an expert but the pupil dialation sounds more like an allergy

reaction than the possibility of him becoming mercury toxic from chlorella.

Sometimes really strong allergy reactions can last for weeks even so you may

see a gradual return as he's off the product.

As to what to do now, if you haven't started to chelate, I'd see a good

doctor and begin. The metals you listed that showed high could be causing

quite a bit a trouble. You may also find that once he begins releasing the

other metals, mercury will come out as well. If it were me, I would not

start with ALA. Ideally, with the arsenic, DMPS would probably be best but

DMSA would work as well. See an experienced chelation doc who can develop an

individualized program for your child and then research what the doc

recommends so you're comfortable.

Gaylen

[Guest guest]

Yes, do not blame yourself, Keep in mind that we all are unique, no two are a

like. What has worked for one may not work for the other. You must find the

combination that works for each child. Do not forget that the practice of

medicine is just that, practice...try if it doesn't work try again.

Fortunately with your children you do have some time to try again. My wife and

Lost a child to cancer. we didn't have the luxury of time, but we kept trying

till we found what would help in her case. And it did, but she was so weak when

we finally found it she succumbed to invasive strep A pneumonia.

But we would not have found it if we stopped to blame our selves! The cancer is

a genetic trait cancer called Ewings' Sarcoma. We have three other children and

four grand children that have the same potential. If they develop Ewings' we are

ready to beat it up front this time. It wasn't chemo or radiation, but that is

not what this board is about. However what this board is about is getting kids

healthy so their immune system will not let them get cancer etc.

LIFE IS ABOUT EXPERIMENTS AND EXPERIENCE and what you do with each and how well

you take care of each will be the mark you make in this life. Just do the best

you can with the information you have, that is all the best doctors can do!

C. W. D. C.

[ ] HELP, SCARED, CHLORELLA

I don't have technical advise on this issue. However, I can relate well

to your feeling of self-blame. My Advise, let it go. In helping our

toxic children, we are being stretched far beyond the limits of typical

parenting. We can not possibly know all there is to know about

everything and every angle to every supplement. So we, understandibly,

put a tiny bit of trust in doctors. Perhaps that is a mistake, but we

are only human. We can only be responsible for what we do know, not what

we don't know. And, bear in mind, some people have reported GREAT

results with Primal Defense (we never tried it). So maybe it would have

helped your kid. (I hate this analogy as, like you, I'm not crazy about

vaccines but: many kids appear to do just fine with all the thousands of

vaccinations on the schedule. Why, at that time, should you have thought

that your kid would fare any differently?).

Anyway, go easy on yourself (I've had to repeat this to myself many

times.) And, before long, your child will recover from this.

Marisol

[Guest guest]

Tina M. Hendrix

Cure2000@...

Vice-President, California Coalition

Neuro-Immune Dysfunction Syndromes

Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS,

etc.