Re: Re:urinary tract infections???

June 15, 2000

A month or two ago we had a discussion about clitoridynia, often in isolation or

associated with painful sensitive nipples. In fact I am pressnting a poster on

6 casess in hamburg in Sept.

I think clitoridynia is a neuropathic sign

Do any of the new people who have mentioned a hypersensitive clitoral region

also have senstive nipples or tingling or numbness elsewhere in their bodies?

Allan

June 15, 2000

allan,

i only have the sensitivity in the clitoral area. i occasionally have

nipple sensitivity but it's usually as my period nears and it's always been

that way so i assume it's cycle related only.

lauren

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June 20, 2000

I started to reply to Dory's post yesterday but got sidetracked. I have

been having the same symptoms since I started taking Guaifenesen. I quit

taking the Guai hoping it would go away but it never did. Urethritis could

be the reason.Since Guai is purported to rid the body of phosphates and I

immediately started having the symptoms when I first started taking it,

perhaps it is the phosphates which cause the irritation with the urethra.

The people at the Guai site told me I was cycling and perhaps so but I quit

taking it anyway.

Guaifenesen is out there in many over the counter cough and cold remedies

and I am wondering if some of them (robitussin, etc.) could be causing the

phosphates to exit via the urine and causing pain while doing so.

How do you cure urethritis? Would antibiotic ointment help?

Ora

On Tue, 20 Jun 2000 03:11:09 -0500, Dorman

wrote:

> Dory,

> I do not want to interfere with any of your medical mgmt, etc,

> but I would suspect several possible problems with your symptoms.

>

> If some combination of urinary frequency, a diminished stream,

> difficulty in total emptying, a burning sensation during

> urination, a tendency to experience leakage if there is any

> delay in getting to a bathroom, etc, you may have some form of

> urethritis.

>

> On a pelvic exam, the urethra tends to be very tender on any

palpation.

> The urinalysis tends to be " normal. "

>

> One of the more common etiologies is a low estrogen level in the

> vagina, etc. Many women experience " dryness & tenderness " and on

> a vaginal exam, the vaginal mucosa often is " thin " and has a some-

> what characteristic appearance to an experienced gynecologist.

>

> I could go on and on but do not want to bore anyone with various

> details.

>

> john dorman

June 21, 2000

Hi Dory,

I can relate to the problems you are experiencing girl, and how! I have been

recently diagnosed with IC and evidently I must have had it for a very long

time before getting a test done on my bladder. I too suffered off and on

with vaginal discomfort and countless bladder infections. I knew when I had

a bladder infection and they always appeared from one-second to the next. I

don't know how that is possible but it would come up on me very quickly. I

suffered for about eight years with pain in the vag area, moving sensitivity

around the whole region. I was diagnosed first with Vulvodynia in January by

a GYN.

The gyn did every culture you can do and all that was found was high white

blood cell count. I had a biopsy done on the vag opening and that too showed

chronic inflammation and high white blood cell count. No infections of any

kind even after a four level block with the biopsy. My gyn didn't know what

to tell me. If my gyn wouldn't have asked another doctors opinion from those

tests, I would have never heard the word Vulvodynia.

I was in 24/7 pain when I went to find out what all this pain was. I

suffered 8 years with flare ups. The gyn never bothered to do urine sample

which would have told them I had a bladder infection. I didn't have the

normal symptoms that I was accustom to with bladder infections. I never

burned while urinating, I throbbed to the point that I stayed in tears. The

pain was so unbearable, I was on the verge of screaming. I lucked out by

going to a urologist because I thought they might have a better understanding

what my pain was all about.

The urologist checked my urine and said I has a multi bladder infection, my

bladder was filled with pus, gross I know, but I was shocked to hear that,

since I went to him for Vulvodynia. The test showed on a scale from 1-10,

that I did have IC and I was classified as a 6, which is pretty servere. I

also found out through the bladder test, that my bladder is damaged and has

shrunk in size tremendously. This is not repairable, the damage is done.

Don't waste time, ask for a cystoscopy. That is the only way to be sure you

do have IC.

As it turned out, my urologist has a dysfunctional pevic floor therapist that

works at his practice on certain days. I was started on elimron 2 capslues 3

times a day and started therapy for my pelvic floor. The therapy helped

after my first visit, I do still have pain, but nothing compared to what I

had with the bladder infection. While being treated for 3 weeks on

antibiotics, my urine was also showing biliruben, not something normally

found in urine, blood, yes, not urine. I was told that I have to medication

the rest of my life for this. I could have been diagnosed sooner, but for

what ever the reasons, 3 different doctors never checked my urine in a year,

because they didn't think it was nessasary.

Always make sure when going to a doctors appointment that they do a urine

specimen on you. I really think you need to be more assertive about getting

to the bottom of this. If you do have IC, it is better to catch it as soon

as possible, damage is permanant to the bladder and nothing can take away my

anger of not having been diagnosed sooner. I believe my vulvodynia pain is

from this and has been all along, it just got to the point where you can only

stand constant excrutiating pain for so long.

I still feel lucky although late, that my IC was diagnosed before my bladder

shrunk to nothing.

Terry

June 21, 2000