surgery

June 24, 2000

Hey,

I have never heard that there even is such surgery......What can be done

? Remove the glands ?????

I don't think so.

June 24, 2000

Hi Leann!

Double x vitamin and minerals are excellent

the NBA takes them.....before I got vv I had depression....my wonderful

husband convinced me I didn't need lithium....and actually after 12

years on lithium it created acid in my stomach and I was medically

advised to stop it.....Just the secret agent in the double x .....my

mood was fine my appetite great and no sleepless nights..... I have

more info ......f your interested I can order for ya......

................ You are not given more than they required amount of b

and c vitamins on a daily basis.

I'm off work Sunday if you want to call me.

I'll have any questions you might have answered with my information in

front of me.

Valeryk@...

June 26, 2000

Valery,

I believe the surgery she is talking about is the

vestibulectomy. This type of surgery has a fairly

high success rate as some women on this list can

attest to. I had the surgery on 6/1 and will find out

on 7/14 if it worked or not. Different surgeons have

different success rates. My surgeon was Dr. Soper in

ton, SC and his is about 85%. The surgery

consists of either removing the glands or the glands

with the surrounding vestibular tissue. It sounds bad

but the recovery is really fairly quick. It has been

3 and a half weeks and I am already able to go hiking

and pretty much do everything I did before.

--- Valeryk@... wrote:

> Hey,

>

> I have never heard that there even is such

> surgery......What can be done

> ? Remove the glands ?????

>

> I don't think so.

>

__________________________________________________

June 26, 2000

It is great that you could have the surgery. The first thing I asked my

gyn was can you treat me for Vulvodynia.....( I have not been officially

diagnosed) the first thing he said was......I don't recommend

surgery........But come in for an appointment.....Money, money, money,

money..........It's a crime

Perhaps I should get out of Myrtle beach....I think Iv'e been to every

urologist and gyn here.

ha ha..... I am so glad that you will not have to suffer like some of

the rest of us will... I believe that Dr. Gazette in New York has the

right idea have you read about his work in Self Magizine?

If not I have an article I could e-mail you....I thought this was all

that could be done for vv.

Hope your healing continues quickly.....keep hiking.......

.

June 26, 2000

It is great that you could have the surgery. The first thing I asked my

gyn was can you treat me for Vulvodynia.....( I have not been officially

diagnosed) the first thing he said was......I don't recommend

surgery........But come in for an appointment.....Money, money, money,

money..........It's a crime

Perhaps I should get out of Myrtle beach....I think Iv'e been to every

urologist and gyn here.

ha ha..... I am so glad that you will not have to suffer like some of

the rest of us will... I believe that Dr. Gazette in New York has the

right idea have you read about his work in Self Magizine?

If not I have an article I could e-mail you....I thought this was all

that could be done for vv.

Hope your healing continues quickly.....keep hiking.......

.

June 26, 2000

Valery,

Vulvodynia is a general name for all different kinds

of symptoms related to vaginal pain. I did not realize

this till a few months ago. You need to find out more

specifically what your symptoms are related to. For

instance, I had the pain on contact where I

experienced painful intercourse. From there Dr. Soper

was able to diagnose me with vestibulitis and treat me

by performing the vestibulectomy. This surgery is not

what will work for everyone as you can see from the

variety of treatments women have obtained on this

list.

Another item I want to add is that different doctors

have different " preferred " treatments. I know Dr.

Soper is a big proponent of surgery if he thinks that

will solve your problem. But there are many doctors

including yours that do not believe that is the way to

go.

If you would like to go see Dr. Soper let me know and

I can give you his number. He is at the Medical

Center at the University of SC in ton. I was

referred to him by my Dr. in Greenville. It was about

a 3.5 hour drive for me but he is very knowledgeable

and I feel it was worth it. you might want to give it

a try.

What are your symptoms?

--- Valeryk@... wrote:

> It is great that you could have the surgery. The

> first thing I asked my

> gyn was can you treat me for Vulvodynia.....( I have

> not been officially

> diagnosed) the first thing he said was......I don't

> recommend

> surgery........But come in for an

> appointment.....Money, money, money,

> money..........It's a crime

>

> Perhaps I should get out of Myrtle beach....I think

> Iv'e been to every

> urologist and gyn here.

> ha ha..... I am so glad that you will not have to

> suffer like some of

> the rest of us will... I believe that Dr. Gazette

> in New York has the

> right idea have you read about his work in Self

> Magizine?

>

> If not I have an article I could e-mail you....I

> thought this was all

> that could be done for vv.

>

> Hope your healing continues quickly.....keep

> hiking.......

> .

>

__________________________________________________

June 26, 2000

Valery,

Vulvodynia is a general name for all different kinds

of symptoms related to vaginal pain. I did not realize

this till a few months ago. You need to find out more

specifically what your symptoms are related to. For

instance, I had the pain on contact where I

experienced painful intercourse. From there Dr. Soper

was able to diagnose me with vestibulitis and treat me

by performing the vestibulectomy. This surgery is not

what will work for everyone as you can see from the

variety of treatments women have obtained on this

list.

Another item I want to add is that different doctors

have different " preferred " treatments. I know Dr.

Soper is a big proponent of surgery if he thinks that

will solve your problem. But there are many doctors

including yours that do not believe that is the way to

go.

If you would like to go see Dr. Soper let me know and

I can give you his number. He is at the Medical

Center at the University of SC in ton. I was

referred to him by my Dr. in Greenville. It was about

a 3.5 hour drive for me but he is very knowledgeable

and I feel it was worth it. you might want to give it

a try.

What are your symptoms?

--- Valeryk@... wrote:

> It is great that you could have the surgery. The

> first thing I asked my

> gyn was can you treat me for Vulvodynia.....( I have

> not been officially

> diagnosed) the first thing he said was......I don't

> recommend

> surgery........But come in for an

> appointment.....Money, money, money,

> money..........It's a crime

>

> Perhaps I should get out of Myrtle beach....I think

> Iv'e been to every

> urologist and gyn here.

> ha ha..... I am so glad that you will not have to

> suffer like some of

> the rest of us will... I believe that Dr. Gazette

> in New York has the

> right idea have you read about his work in Self

> Magizine?

>

> If not I have an article I could e-mail you....I

> thought this was all

> that could be done for vv.

>

> Hope your healing continues quickly.....keep

> hiking.......

> .

>

__________________________________________________

July 13, 2000

Hi Dory,

I was wondering, in reference to a post of yours last week, if you could

tell me who this surgeon is (is it Dr. Marinoff?) so I could avoid seeing

him. My Dr. in NY has also told me that she won't do a partial

vestibulectomy, saying that her experience has shown that if you cut out

just the painful areas, the other areas that didn't hurt before start to

hurt. I haven't yet asked to speak to some patients who she did surgery on,

because i'm not contemplating it just yet. The surgeon below may be good,

but he sounds real cocky and why the heck can't he contact a patient and ask

her if she would speak to you. I'm sure the patients would be willing to

talk to you if they knew your e-mail/phone #. I could understand if he won't

give you their phone #s, because of the privacy issue, but he could sure let

them know that you would like to discuss the surgery and they could call

you. You should ask him if he'd be willing to have penile surgery never

having spoke to or heard from another patient who had it!

all the best, Sue-Ellen

>Message: 8

> Date: Wed, 05 Jul 2000 17:29:48 -0000

> From: kgadsby@...

>Subject: Re: HPV/Surgery

>I was referred to a gyn/oncologist who suggests a vestibulectomy.

>And he cautions that just removing the skin that is painful is not a

>successful procedure in 50 percent of the cases--so he goes even deeper,

>which he claims brings 100% success (he's very sure of himself). He can

>remove my whole problems supposedly--the inflamed vestibular tissue along

>with the lesions--if I am willing to have that sort of invasive procedure

>done. He's a prominent surgeon and very well trained in his field. Yet, he

>can not get one single of his vestibulectomy patients to call me and let me

>know how they are doing--

>

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

July 14, 2000

My prayers are with you, You are brave and strong. The bible says, God

doesn't put more on us than we can handle. I can see where your faith is, so

I know God won't let you down. You will come out of there with flying

colors!! I wish you a quick recovery, take care.

Terry

July 14, 2000

If you look up the success rate of vestibulectomies, it's very low. I

had a doctor who told me I had VV, but I don't. Upon examination, I

look totally normal. My pain feels like it's below the skin. It's been

3 years and I'm still trying to figure out what it is.

Has anyone ever had Chlamydia? You can write me personally if you want.

My fiance was told he had it by one doctor and then told he didn't have

it by another. Now, I think that's what I've had all this time. Now,

just so you won't think I'm with an unfaithful fiance, I had these

symtoms before we met. I think I got it from my ex-husband and gave it

to him.

Joanne

July 14, 2000

You will be in my prayers. Try not to be scared, you will make it through

and you will be watched over. Good Luck.

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

July 16, 2000

Leann, Hope your surgery was a complete success! You are in my thoughts for

a speedy recovery! Take Care, O

July 16, 2000

Your didn't sign your name but whoever it is that is going to undergo vulva

surgery because of cancer on the 21st, just wanted to let you know that I

will be thinking of you and wishing you a speedy recovery with surgery that

is completely successful! Good Luck! O

August 25, 2001

well i had my surgery (gall bladder) boy am i sore.. and my son is still in

jail... (that is tearing my heart out) he is really mad at us for not getting

him out.... he has been in there two weeks yesterday. now last night i found out

he was involved in a situation at the jail so he got locked down... for a couple

of days.. please pray we are doing the right thing not helping him and pray for

his protectiong..

thank you so much

Anita

September 11, 2004

Good job Harry, I have missed your input with the group. Welcome back,

Jerry Litterell

Surgery

>

> > Hi Y'all,

> >

> > I just got out of the hospital after surgery for a partial resection of

> > the fifth metatarsel on my right foot right behind my little toe. Ouch!

> > I actually heard the doctor sawing my bone. The Osteo Myelitis had

split

> > my bone and I couldn't get the infection down even with six weeks of

> > Cubicin. I have to take the I.V. for two more weeks. I thought six was

> > long enough, but the infection got worse so they operated yesterday.

> >

> > I was going to write before the surgery, but I forgot. Oops. It is

very

> > painful, but I imagine it will feel better soon.

> >

> > Please keeps me in your thoughs and prayers.

> >

> > April

> >

> > The hospital staff really made me angry. They yelled at me cuz my sugar

> > was 511. I reminded them that they told me not to take my own

medication

> > and I had been without it for an entire day till they started the

insulin

> > drip. Good grief!

> >

> > Enough rambling,

> >

> > April

> >

> > Loyalty is an asset of the heart.

> >

September 11, 2004

Harry,

Now that you mention vitamin C, that prompts me to see if maybe that will help

in my recovery post umbilical hernia surgery. Two months after the surgery I

still have a horizontal scar across the umbilicus and have occasional lower

abdominal pain (suprapubic) and the doc has only given me one course of

antibiotics thus far treating it as a UTI. His treatment did make the acute pain

and fever go away but a lesser pain recurs every once in awhile. Perhaps vitamin

C would help accelerate the healing process, but I need to discuss with that

doctor other things that would finally get me 100% better. This recovery from

surgery has been the most prolonged I have ever had, but then I am older and now

diabetic, so that adds to the picture. Hopefully my doc or whoever he refers me

to can get me on a correct dose of vitamin C and something to heal up the

scarring. Will keep you posted.

Bill Powers

September 11, 2004

Harry is right about the vitamin c, my doc here in the City is a d o. he

says to take 1000 mg of vitamin c, once per hour until your stool is mealy.

then you add up how many mg's you took to get there and take 1000 mg away

from the total and divide this amount in to four different doses and spread

them out during the day. of course he says to do this all the time, not just

when you have an infection of some kind. how ever, I didn't know that more

then 500 mg of vitamin c, would raise your sugar reading. I guess we can

learn some thing new every day. glad to have you back on list, Harry. hope

you can stay longer this time.

Re: Surgery

> Harry,

>

> Now that you mention vitamin C, that prompts me to see if maybe that will

help in my recovery post umbilical hernia surgery. Two months after the

surgery I still have a horizontal scar across the umbilicus and have

occasional lower abdominal pain (suprapubic) and the doc has only given me

one course of antibiotics thus far treating it as a UTI. His treatment did

make the acute pain and fever go away but a lesser pain recurs every once in

awhile. Perhaps vitamin C would help accelerate the healing process, but I

need to discuss with that doctor other things that would finally get me 100%

better. This recovery from surgery has been the most prolonged I have ever

had, but then I am older and now diabetic, so that adds to the picture.

Hopefully my doc or whoever he refers me to can get me on a correct dose of

vitamin C and something to heal up the scarring. Will keep you posted.

>

> Bill Powers

>

September 11, 2004

Gee, April,

Sorry to hear you are having those problems. Also, your doc should have

told you to take some insulin-usually they have to take half the dose when

having surgery so you won't have such high blood sugars. That was a big

goof on the part of your doc. Hope it heals up quickly and the pain will

not be so bad.

Surgery

Hi Y'all,

I just got out of the hospital after surgery for a partial resection of the

fifth metatarsel on my right foot right behind my little toe. Ouch! I

actually heard the doctor sawing my bone. The Osteo Myelitis had split my

bone and I couldn't get the infection down even with six weeks of Cubicin.

I have to take the I.V. for two more weeks. I thought six was long enough,

but the infection got worse so they operated yesterday.

I was going to write before the surgery, but I forgot. Oops. It is very

painful, but I imagine it will feel better soon.

Please keeps me in your thoughs and prayers.

April

The hospital staff really made me angry. They yelled at me cuz my sugar was

511. I reminded them that they told me not to take my own medication and I

had been without it for an entire day till they started the insulin drip.

Good grief!

Enough rambling,

April

Loyalty is an asset of the heart.

September 11, 2004

Unfortunately, most physicians like to treat diabetics as though they were

" normal " folks, which they aren't. Diabetics are different and it is a rare

time when a single course of antibiotics will resolve a diabetics infection,

but what do I know? I am only a diabetic who has had several infections and

it usually took at least two refills of an antibiotic prescription to

resolve an infection if not more than two refills.

Also when dosing vitamin C to a theraputic level it is important to get

advice and treatment from a physician who knows what he/she is talking

about, and this is why you would want to consult a medical doctor/physician

who knows about alternative medicine methods and treatments.

Fortunately for me, I have a qualified m. d. treating me, but he did not

know really how to treat a diabetic, but with help from the folks here, I

have taught him well.

Re: Surgery

> Harry,

>

> Now that you mention vitamin C, that prompts me to see if maybe that will

> help in my recovery post umbilical hernia surgery. Two months after the

> surgery I still have a horizontal scar across the umbilicus and have

> occasional lower abdominal pain (suprapubic) and the doc has only given me

> one course of antibiotics thus far treating it as a UTI. His treatment did

> make the acute pain and fever go away but a lesser pain recurs every once

> in awhile. Perhaps vitamin C would help accelerate the healing process,

> but I need to discuss with that doctor other things that would finally get

> me 100% better. This recovery from surgery has been the most prolonged I

> have ever had, but then I am older and now diabetic, so that adds to the

> picture. Hopefully my doc or whoever he refers me to can get me on a

> correct dose of vitamin C and something to heal up the scarring. Will keep

> you posted.

>

> Bill Powers

>

September 11, 2004

Thanks ,

You have made my point once again. For some strange reason unknown to me

physicians want to use the same treatment methods on diabetics as though

they were nondiabetics, but it just ain't so.

Surgery

>

> Hi Y'all,

>

> I just got out of the hospital after surgery for a partial resection of

> the

> fifth metatarsel on my right foot right behind my little toe. Ouch! I

> actually heard the doctor sawing my bone. The Osteo Myelitis had split my

> bone and I couldn't get the infection down even with six weeks of Cubicin.

> I have to take the I.V. for two more weeks. I thought six was long

> enough,

> but the infection got worse so they operated yesterday.

>

> I was going to write before the surgery, but I forgot. Oops. It is very

> painful, but I imagine it will feel better soon.

>

> Please keeps me in your thoughs and prayers.

>

> April

>

> The hospital staff really made me angry. They yelled at me cuz my sugar

> was

> 511. I reminded them that they told me not to take my own medication and

> I

> had been without it for an entire day till they started the insulin drip.

> Good grief!

>

> Enough rambling,

>

> April

>

> Loyalty is an asset of the heart.

>

September 11, 2004

I really think the raised blood sugar thing over 500 mgm of Vit. C varies

with people. I always take 1000 mgm of Vit. Ca in the evening and never

have high blood sugars from it.