Guest guest Posted May 28, 2001 Report Share Posted May 28, 2001 Hi All, I realize that this is probably the last thing that people want to here, but aren't thyroid cell made from iodine? I mean both healthy and cancerous ones? Would it be prudent to eliminate all iodine from our diet and prevent any possibility of recurrence. I was under the impression that thyroid cells need iodine in order to be grown? 4 to 1 is what was described to me at my last surgery visit. I guess what I am asking here is this...does it make sense to be on a low iodine/no iodine diet forever...whether hypo or suppressed? I would appreciate any information about this. Thanks...just food (iodine free of course as I am hypo) for thought. Thanks Daria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2001 Report Share Posted May 28, 2001 Michele-- > I am again writing about the LID. > I was wondering why they dont list ingredients on lables as " iodized > salt " instead of salt. Because they don't have to do so, at least in this country. Food labeling is a hugely complex & political issue. Manufacturers only report what is required by law. There are many areas that could use improvement--such as exact & full disclosure of animal content (which can currently hide behind terms like " natural flavoring " ), allergy issues, standardized reporting for ALL edible products regardless of type & source, etc. I would love to see " iodized salt " be required on food labels, but I doubt it will happen anytime soon. > Anyone know how we might me able to change > this with the food manufacturers and/or the FDA or whatever??? If you come up w/ anything on this, let us know. I'd be happy to get behind this issue. Nina geiger@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2001 Report Share Posted May 28, 2001 To add to Nina's comments, I think that, nutritionally speaking, iodine is just not considered to be an issue in this country. Also, since food manufacturers frequently change the source of their ingredients, it is easier for them to give as little information as possible. This also leads to ingredients such as " one or more of the following: palm oil ..... " (etc). This is also why we must treat with caution any information we get by calling them regarding the use of iodized or plain salt. BTW - In spite of what I just wrote, I once called a small food manufacturer who listed " salt " as an ingredient. When I asked if it was iodized, they said that, in fact, they only used sea salt, but that state regulations (Oregon, I think) prevented them from specifying that on the package, because it implied some sort of nutritional superiority which they (the FDA) did not condone. I had a brief correspondence a few years ago with the FDA, trying to get information on iodine content. I was hoping that they would either have the information for basic foods, or might recommend a reference source. I got back a rather curt letter saying that they " don't provide medical or nutritional advice to consumers/patients " , and suggested I consult a nutritionist or registered dietitian. I also agree that it will be a long time before there are enough of us to pressure the powers that be to include iodine in nutritional labeling, or even to clarify some of the many of the loopholes in the existing laws. Now, what would be really great is if someone came up with a low-iodine liquid meal replacement (good tasting, of course). For those of us who just cannot summon up the kind of thinking power required to prepare 2 weeks' worth of LID meals, that would be just the thing. - katie Geiger wrote: > Michele-- > > > I am again writing about the LID. > > I was wondering why they dont list ingredients on lables as " iodized > > salt " instead of salt. > > Because they don't have to do so, at least in this country. Food labeling > is a hugely complex & political issue. Manufacturers only report what is > required by law. > > There are many areas that could use improvement--such as exact & full > disclosure of animal content (which can currently hide behind terms like > " natural flavoring " ), allergy issues, standardized reporting for ALL edible > products regardless of type & source, etc. I would love to see " iodized > salt " be required on food labels, but I doubt it will happen anytime soon. > > > Anyone know how we might me able to change > > this with the food manufacturers and/or the FDA or whatever??? > > If you come up w/ anything on this, let us know. I'd be happy to get behind > this issue. > > Nina > geiger@... > > For more information regarding thyroid cancer visit www.thyca.org. If you do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank email to thyca-unsubscribe > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2001 Report Share Posted May 28, 2001 > for persons such as my neice who have iodine allergy, it could > be life or death. As I understand it, people who are allergic to iodine generally only have a problem w/ the massive amounts in something like CT contrast material & the lesser but still significant amounts in some seafood. I've never heard of anyone who couldn't tolerate iodized salt or processed food/restaurant food containing iodized salt. Likewise, people w/ an iodine allergy tolerate RAI, because the amount of iodine is very small, relatively. So, I'm not sure that people w/ an iodine allergy really need an iodized salt warning on food labels. Can't you niece tolerate iodized salt? Dairy products? I'll copy below list posts from Dr. & Dr. Ain on this. > We recently had a > death in a local restaurant r/t a peanut allergy (The food had > been cooked in peanut oil.) That's a huge problem. From what I've read, people w/ such allergies probably shouldn't eat at restaurants--just too many ways for a deadly (for them) ingredient to end up on their plates. Even buying basic ingredients & cooking everything from scratch has its pitfalls for them. Their problem makes LID look easy! Nina geiger@... --It is not uncommon for people to be allergic to the high quantities of iodine found in radiographic contrast dye and sometimes in seafood. On the other hand, the physical quantities of iodine in the radioactive I-131 used for thyroid cancer scans or treatments are exceedingly small, although quite radioactive. For this reason, people with known iodine allergies do not typically have a problem with allergies to radioactive iodine. In fact, despite having treated many patients with known " iodine allergies " with radioactive iodine, I have never personally seen (or heard of) any patient having an allergic response to the radioactive iodine. Dr. Ain, thyca 10-99 --People are allergic to iodine when it is bound to a carrier molecule, like iodinated contrast used for CT scanning. In my opinion there is no routine indication for the use of antihistamines (like benadryl) and steroids (like cortisone or prednisone) in radioiodine therapy, even in people with known allergies to shellfish or iodinated contrast. There is more dietary iodine in a low iodine meal than there is in a single 100 mCi dose of I-131. An allergy to iodine at such low levels would be incompatible with life. When the rare patient does have an allergic reaction to radioiodine therapy (I have had only one patient in over 15 years), it is almost certainly related to a preservative or contaminant in the dose, not the radioiodine itself. That one patient is the only patient I have ever needed to pretreat with steriods and antihistamines. One use of steriods before radioiodine therapy is in the treatment of patients with brain metastases. The steriods are given to prevent life-threatening complications of brain swelling, not to prevent an allergy.-- A. , MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2001 Report Share Posted May 29, 2001 In a message dated 5/28/2001 5:12:08 PM Eastern Daylight Time, geiger@... writes: > . Manufacturers only report what is > required by law. > Having had kids with allergies, I've found that even all ingredients listed on the label doesn't necessarily mean that things are 'clear' of offending ingredients. I suppose that's why they now put 'this has been processed on machines with nuts' or whatever. I once (maybe around 1992) called a major cereal company to check on the ingredients because it looked okay -- no corn. The consumer affairs department informed me that no, that particular cereal was not on their 'corn-free' list. I asked, " well, where is the corn? " They replied they couldn't tell me {they probably don't know!} and that only the ones they had on their 'corn-free list' were corn-free. Thankfully, my kid's allergies aren't so severe that she'd die if she ate it. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2001 Report Share Posted June 1, 2001 Michele I agree with Nina on this, there is a massive political issue here, and iodine is not a major contender (but guess what would happen if a US president got THYCA...) Another major problem is that of consistency. With few exceptions, iodine is not a constituent of the food, it was in the ground water of the plant crops, or in the food supplement given to the livestock, or in the disinfectttant that the cow's udders were washed with. This means that the exact iodine content of each ingredient will vary - from place to place, from month to month and from year to year. An 'average' or 'typical' content would be of no value since it's the occasional high value that you want to avoid, and that would entail analysis of each batch of product, and overprinting the packaging with the current value like they do with 'Use by' dates. I don't see it happening. What could be more useful is a simple testing strip for iodine, like the ones that diabetics use. It wouldn't have to be terribly sophisticated - 3 colour bands would do: <5ug/100g = 'OK', 5-10ug/100g = 'caution/reduce intake', >10ug/100g = 'avoid'. Anyone got any contacts? Ian > Michele-- > > > I am again writing about the LID. > > I was wondering why they dont list ingredients on lables as " iodized > > salt " instead of salt. > > Because they don't have to do so, at least in this country. Food labeling > is a hugely complex & political issue. Manufacturers only report what is > required by law. > > There are many areas that could use improvement--such as exact & full > disclosure of animal content (which can currently hide behind terms like > " natural flavoring " ), allergy issues, standardized reporting for ALL edible > products regardless of type & source, etc. I would love to see " iodized > salt " be required on food labels, but I doubt it will happen anytime soon. > > > Anyone know how we might me able to change > > this with the food manufacturers and/or the FDA or whatever??? > > If you come up w/ anything on this, let us know. I'd be happy to get behind > this issue. > > Nina > geiger@... > > > > For more information regarding thyroid cancer visit www.thyca.org. If you do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank email to thyca-unsubscribe > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2001 Report Share Posted June 1, 2001 Ian said: >What could be more useful is a simple testing strip for iodine, like the ones >that diabetics use. It wouldn't have to be terribly sophisticated - 3 colour >bands would do: ><5ug/100g = 'OK', >5-10ug/100g = 'caution/reduce intake', >>10ug/100g = 'avoid'. > >Anyone got any contacts? I tried to do this years ago - with negative results. The standard test for Iodine is Starch - it turns it a nice dark blue. Unfortunately it is just not sensitive enough for the microgram quantities that we need to test for. I attach my post of October '97 that details the test that we did. You may take this as a challenge to do better !! Alan ==== Date: Wed, 22 Oct 1997 00:49:12 +0100 To: thyca@... Subject: No easy test for Iodine :-( Sender: thyca-approval@... Reply-To: thyca@... On the basis that even a negative contribution is still a contribution. With all this iodine diet stuff going on and with me preparing to go on my first iodine free diet I thought:- Wouldn't it be nice if there was a simple test for Iodine in food So I contacted my industrial chemist friend and we played at laboratories in my kitchen over the weekend. I am sorry to report that there is a nice simple starch test for Iodine but it does not seem sensitive enough to detect the trace amounts present in food. Details below for the curious and for for anybody who wants to take research further. This is a challenge to do better than we did. Now does anybody have access to a mass spectrograph - maybe that would be more sesntive! Alan P.S. By Industrial chemist friend works for a distillery company that makes spirits. He does bring some work home occasionally which I help him test <g> So we are still on good terms even after this failure! Details. The test for Iodine is starch. Iodine in starch turns a nice dark shade of blue which is easy to see. Iodine is normaly a part of an Iodide group so you have first seperate it out into free Iodine by oxidiseing it. What we did: 1) take your test sample (food or whatever) and oxidise it. We used sodium hypochlorate - but household bleach should work as this is the main ingredient. 2) Add some starch. We used liquid starch - but you can make starch in the kitchen by heating plain flour and water. 3) Look for the dark blue color. If present it shows that there is Iodine there. Our results: a) On a test sample of potassium iodide - even at the most extreme dilutions - this test was effective. On any food sample - no matter what we tried - we could not detect the iodine. We tested iodized salt solution, a piece of fish, some milk. All our food results were negative. Our conclusion: Iodine is such a small trace element in food that this test is not sensitive enough for our purposes. -- London, England dx 9/97, tt 10/97; pap/fol with spine and rib mets; RAI(100 mCi 12/97, 244mCi 10/98); 150ug T4; -ve scan, +ve Tg; bilateral neck dissection 7/99; EBR (60 Gray) to neck 10-11/99; 5AZA trial 9/2000; Retinol trial 2/2001; Tg 238 ICQ# 67445221 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2001 Report Share Posted June 1, 2001 Ian said: >What could be more useful is a simple testing strip for iodine, like the ones >that diabetics use. It wouldn't have to be terribly sophisticated - 3 colour >bands would do: ><5ug/100g = 'OK', >5-10ug/100g = 'caution/reduce intake', >>10ug/100g = 'avoid'. > >Anyone got any contacts? I tried to do this years ago - with negative results. The standard test for Iodine is Starch - it turns it a nice dark blue. Unfortunately it is just not sensitive enough for the microgram quantities that we need to test for. I attach my post of October '97 that details the test that we did. You may take this as a challenge to do better !! Alan ==== Date: Wed, 22 Oct 1997 00:49:12 +0100 To: thyca@... Subject: No easy test for Iodine :-( Sender: thyca-approval@... Reply-To: thyca@... On the basis that even a negative contribution is still a contribution. With all this iodine diet stuff going on and with me preparing to go on my first iodine free diet I thought:- Wouldn't it be nice if there was a simple test for Iodine in food So I contacted my industrial chemist friend and we played at laboratories in my kitchen over the weekend. I am sorry to report that there is a nice simple starch test for Iodine but it does not seem sensitive enough to detect the trace amounts present in food. Details below for the curious and for for anybody who wants to take research further. This is a challenge to do better than we did. Now does anybody have access to a mass spectrograph - maybe that would be more sesntive! Alan P.S. By Industrial chemist friend works for a distillery company that makes spirits. He does bring some work home occasionally which I help him test <g> So we are still on good terms even after this failure! Details. The test for Iodine is starch. Iodine in starch turns a nice dark shade of blue which is easy to see. Iodine is normaly a part of an Iodide group so you have first seperate it out into free Iodine by oxidiseing it. What we did: 1) take your test sample (food or whatever) and oxidise it. We used sodium hypochlorate - but household bleach should work as this is the main ingredient. 2) Add some starch. We used liquid starch - but you can make starch in the kitchen by heating plain flour and water. 3) Look for the dark blue color. If present it shows that there is Iodine there. Our results: a) On a test sample of potassium iodide - even at the most extreme dilutions - this test was effective. On any food sample - no matter what we tried - we could not detect the iodine. We tested iodized salt solution, a piece of fish, some milk. All our food results were negative. Our conclusion: Iodine is such a small trace element in food that this test is not sensitive enough for our purposes. -- London, England dx 9/97, tt 10/97; pap/fol with spine and rib mets; RAI(100 mCi 12/97, 244mCi 10/98); 150ug T4; -ve scan, +ve Tg; bilateral neck dissection 7/99; EBR (60 Gray) to neck 10-11/99; 5AZA trial 9/2000; Retinol trial 2/2001; Tg 238 ICQ# 67445221 Quote Link to comment Share on other sites More sharing options...
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