RE: response to New member looking for advice

[Guest guest]

Welcome to the list. My daughter is 3 and she has a loss similar to your

son's. She wears widex senso p38s with a microlink boot for speech

sessions. This is the only type that was recommended to us by the NY League

for the Hard of Hearing as well as our audiologist. She hears a wide range

of sounds and her last audiogram in May had her hearing above the speech

banana.

She is now starting to immitate all that we say without prompting. For

example: We were driving in a grocery store shopping lot this week and the

car in front of us was going slow. I said out loud " Move you dope " Guess

what the little voice in the car seat said very clear right after me? Yes,

Move you dope. Besides this, she copies what I say when I am on the phone

too.

We went to the beach in July and there were a lot of seagulls in the sky.

When we were walking to the sand she said to me " Hear birds " With her loss,

I never thought that she would hear birds.

So far we have been happy with this choice for her loss.

diane, kara's mom, soon to be 3, hoh

New member looking for advice

Hi,

We just found out about 2 weeks ago that my 2 year old son has

moderate-severe hearing loss and will need to wear hearing aids in

both ears. Our audiologist have been great, with supplying with us

with tons of information/websites on different hearing aids. But I

would like to find out what others recommend from their own

experiences. If you have any suggestions, please let me know.

Deanna

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[Guest guest]

Hi!

I'm not familiar with all the technology that is out there, the widex senso

is digital? What is the p38s with a microlink boot? We meet with our

audiologist next Wednesday, so I'm sure we will learn more then.

Wow how exciting that is for her to hear the birds and copy what you're

saying (even if it wasn't too nice :-)). I'd be in tears!!

It really shocked us that he had such a significant amount of hearing loss.

We expected some, but not 60-70 decibels. He follows directions really

well, and has some words he says really clearly ( " ou " - for a ouch, mama,

up, no, hou (for house), ba (for ball), da (dog), gaga (for dada)). he has

always watched our mouths when we talk directly to him, so I think that will

be a great help, when he can actually start hearing us clearly. We just got

another cordless phone (in addition to the regular phone we have in the

family room) and he runs to the phone now everytime it rings! We were

floored, he'd never responded to the phone or doorbell before, so it must

just be the two phones ringing together is loud enough for him to hear it.

Did it take Kara a while before you noticed her responses to sounds after

getting the hearing aids? How does she do with them? How long has she had

them?

How does Kara do with her speech sessions? Why type of program do you have

her in? Is she in preschool? This will be our next step. We have a

meeting with the County's Infant Development Program on the 5th.

Sorry for all the questions! You are the first person I've actually had a

chance to talk with, who has a similar situation.

Deanna, Triston's mom.

New member looking for advice

Hi,

We just found out about 2 weeks ago that my 2 year old son has

moderate-severe hearing loss and will need to wear hearing aids in

both ears. Our audiologist have been great, with supplying with us

with tons of information/websites on different hearing aids. But I

would like to find out what others recommend from their own

experiences. If you have any suggestions, please let me know.

Deanna

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

[Guest guest]

Diane, Who paid for the digital programmable aids? How much were they?

[Guest guest]

Widex senso p38s are digital programable. Kara was diagnosed at 18 months

and really had no words. She did not respond to the phone or the dryer buzz.

She was aided in May of 1999 and within a month she had some words. Baby was

the first. We kept a list for a long time, but when she started to exceed a

few hundred words, we stopped.

We got her into a program and aided with an auditory trainer right after her

diagnosis. In the toddler program she went to school three days a week for

1 1/2 hours with a class of 6 and got 3 hours of speech at home. Starting

this sept, she will be in a full time program (9 to 3) for hearing impaired

three year olds with a few hours of after school speech at home.

I also signed her up for dance classes starting in Sept in a studio near by

so we can do something fun together.

Kara hears the phone now and responds. Since your son has some words and

knows how to look in your face for prompts he may have better hearing then

kara.

I think most audis will recommend a programmable digital for you.

I know how you feel about the shock. We were in tears. Sometimes, it still

breaks my heart when I see and hear other three year olds.

Good luck.

diane

New member looking for advice

Hi,

We just found out about 2 weeks ago that my 2 year old son has

moderate-severe hearing loss and will need to wear hearing aids in

both ears. Our audiologist have been great, with supplying with us

with tons of information/websites on different hearing aids. But I

would like to find out what others recommend from their own

experiences. If you have any suggestions, please let me know.

Deanna

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

[Guest guest]

Wow that is a good amount of progress over the last year and a half! I'mso

happy to hear a postive story!!

So are the programs she's in through public agencies or private?

Triston has been going to a home daycare since he was a baby and we have

contemplated putting him in a more structured daycare that has a preschool

program. I'm just not sure though with all the changes he's gona go through

right now if we may just keep him where he is. I have visited the school

and they are willing to work with the therapist if we do put him there.

Triston has always been very good at communicating. I think that was one

reason I wasn't too concerned at first. He has his own way of getting what

he wants or needs and we've developed our own signs for different things

(mainly animals). He responses really well to music, so I've been trying to

put gestures to the songs we listen to in the car.

I know I'll want the digital hearing aids, our problem is that the insurance

doesn't pay for them.

Have a good weekend!

Deanna

New member looking for advice

Hi,

We just found out about 2 weeks ago that my 2 year old son has

moderate-severe hearing loss and will need to wear hearing aids in

both ears. Our audiologist have been great, with supplying with us

with tons of information/websites on different hearing aids. But I

would like to find out what others recommend from their own

experiences. If you have any suggestions, please let me know.

Deanna

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

[Guest guest]

DGIORDANO@... wrote:

>

>I thought all states EI programs paid for aids prior to age 3. Is this not

>the case in each state?

>

Diane

absolutely not. In Calif you have to have an income of less than 40,000 (no

more) to get hearing aids paid for.

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[Guest guest]

Early intervention in NYS pays for the first set of aids. I got the aids,

two sets of molds, and the microlink boots with the microphone and the

charger and 6 months of batteries with the program. There is only one

audiologist in Suffolk county who has a contract with the state and he is

very nice. I asked him what the retail was for what I got. His cost was

$4500 and retail it is $7000. We ordered separate wires for school through

our own ENT at a cost of $150 and put that through the insurance.

I thought all states EI programs paid for aids prior to age 3. Is this not

the case in each state?

Diane

Re: response to New member looking for advice

Diane, Who paid for the digital programmable aids? How much were they?

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

[Guest guest]

-I thought all states EI programs paid for aids prior to age 3. Is this not

the case in each state?

NOOOO, if that was the case, then we wouldn't have so many problems with the

insurance companies not paying for them.

Luckily, we qualified for 's hearing aids based on his eligibility for

SSI and through that he gets Medicaid, which in turn pays for hearing aids.

Strange that Medicaid will pay for aids and regular insurance won't. There is

some good in all that red tape!!!

Of course I would feel much better if the insurance that I am paying for too

would cover them. You never know how long the SSI is gonna last, especially now

that I will be making more money in the long run. Scares me because I am a

single mom with two kids, and I might have to pay for new aids by myself!!!

OUCH!

, TX

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