Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 Hi, I have started to deal with something like this. My fingers started with what look like a simple hangnail but it has just kept going now I have areas on my thumbs and around fingernails that look like areas of flesh just bursting through the skin. It hurts and doesn't seem to be clearing up. Cpuld this be yet another EDS thing? Sue K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 Hi , I didn't respond earlier because Petra's problems didn't sound like anything we had tackle but now that I think about it had similar problems when he was first diagnosed with the latex allergy. The skin peeled and fell off in chuncks where the tape we used to stabilize his fingers touched the skin. This may be totally off base but figured that it was worth mentioning. When the latex was eliminated and the cellulitis treated everything cleared up quickly. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 Hi Sue, What type of eds do you have, Petra is being tested for vascular. She also bruises like crazy. What you have stated is exactly what Petra is going through. Re: Petra's skin > Hi, > > I have started to deal with something like this. My fingers started with what > look like a simple hangnail but it has just kept going now I have areas on > my thumbs and around fingernails that look like areas of flesh just bursting > through the skin. It hurts and doesn't seem to be clearing up. Cpuld this be > yet another EDS thing? > > Sue K > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 Thank you Lilian, that was helpful. Re: Petra's skin > Hi , > > My elder daughter, Ann has the same problems with the skin round her > nail beds. She has Hypermobile EDS like me but I also have vascular > overlays. Ann is allergic to latex, many drugs, and washing up > liquid. When she has to wash dishes at her work, after a lunch > meeting, etc her hands break out and the skin peels within a day of > exposure to washing up liquid. I used to think it was an excuse not > to do dishes but have since realised that she has a real problem. Of > course, I bought her rubber gloves before I found out she was > allergic to latex and that made the problem worse. Even cotton > gloves under the rubber gloved did not help at all. > > I hope you can find the trigger for Petra as it is extremely painful. > Avoidance of the substance is the only answer. Ann uses only pure > unscented soap to wash her hands and find that she can get by with > that. Which reminds me, I am highly allergic to Palmolive soap or > toothpaste. It makes me so violently sick that I break the blood > vessels around my eyes and on my cheeks and my eyes swell up so much > that I can hardly open them. Gosh, I have not thought about that in > 40 years!!! > > Good luck in finding what causes this to Petra. It may be a process > of elimination, but worth the effort. > > Love and hugs, > > Lilian > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 Hi , My elder daughter, Ann has the same problems with the skin round her nail beds. She has Hypermobile EDS like me but I also have vascular overlays. Ann is allergic to latex, many drugs, and washing up liquid. When she has to wash dishes at her work, after a lunch meeting, etc her hands break out and the skin peels within a day of exposure to washing up liquid. I used to think it was an excuse not to do dishes but have since realised that she has a real problem. Of course, I bought her rubber gloves before I found out she was allergic to latex and that made the problem worse. Even cotton gloves under the rubber gloved did not help at all. I hope you can find the trigger for Petra as it is extremely painful. Avoidance of the substance is the only answer. Ann uses only pure unscented soap to wash her hands and find that she can get by with that. Which reminds me, I am highly allergic to Palmolive soap or toothpaste. It makes me so violently sick that I break the blood vessels around my eyes and on my cheeks and my eyes swell up so much that I can hardly open them. Gosh, I have not thought about that in 40 years!!! Good luck in finding what causes this to Petra. It may be a process of elimination, but worth the effort. Love and hugs, Lilian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 , Petra may want to try and keep her fingers away from her mouth at all times if she is a nail biter, if she is not, then she may want to try a thick moisturizer like Neutrogena Hand cream or the like, this solves the problem for me! Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 Thanks Jill, I have a feeling, That moisture has alot to do with it. Are you familar with fishers spelling? because Petra has had one and it was bleeding quite badly Isn't a fisher a form of a tear? Petra was not even constipated. when this happened. Do these complications happen with VEDS? Thanks Re: Petra's skin > , > > Petra may want to try and keep her fingers away from her mouth at > all times if she is a nail biter, if she is not, then she may want > to try a thick moisturizer like Neutrogena Hand cream or the like, > this solves the problem for me! > > Jill > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 , I am confused. Where is the dry and peeling skin located? When you mentioned fissure just now, I started to think of different things, other than her hands! An anal fissure is a fairly common painful condition in which a portion of the skin lining in the anal canal is torn. The anal canal is the cylindrical tube at the end of the rectum which ends at the anus. Stool passes through the anal canal and anus during a bowel movement. An anal fissure is generally caused by constipation or a forceful bowel movement. Once the skin is torn, each subsequent bowel movement can be painful. This pain is often quite severe. Many times there is bleeding associated with the painful bowel movement. Blood may be noticed in the toilet bowel or on the toilet paper and is generally bright red in colour. The symptoms of an anal fissure are commonly mistaken for haemorrhoids, but haemorrhoids generally do not cause pain with bowel movements. This is common to all people, not VEDS alone. Have you contacted Dr. Meschino yet or gotten a repeat test from Sick Kids yet? I'd get on this straight away for the diagnosis point of view. Jill Thanks Jill, I have a feeling, That moisture has alot to do with it. Are you familar with fishers spelling? because Petra has had one and it was bleeding quite badly Isn't a fisher a form of a tear? Petra was not even constipated. when this happened. Do these complications happen with VEDS? Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 Hi Jill, I did get a hold of Sick Kids and they took another slice of the biopsy from the one they had there. According to them everything is going well. They are growing the cells there and then they are sending to Seattle. this was happening two to three weeks ago. So it should be there. I was talking with Pepin. She told me once the cells are grown it should take no longer than two to three weeks. Melaine seems to want to stay on top of things I think you might be familar with her. She has a couple of articles on the site. Petra's skin is peeling around the finger nails, Some times big chunks come off. My main concern is her bowel movements because she is not constipated. Her stool has good form. There was alot of blood from this fissure. Please get back to me. thanks Re: Re: Petra's skin > , > > I am confused. Where is the dry and peeling skin located? When you > mentioned fissure just now, I started to think of different things, other > than her hands! > > An anal fissure is a fairly common painful condition in which a portion of > the skin lining in the anal canal is torn. The anal canal is the > cylindrical tube at the end of the rectum which ends at the anus. Stool > passes through the anal canal and anus during a bowel movement. An anal > fissure is generally caused by constipation or a forceful bowel movement. > Once the skin is torn, each subsequent bowel movement can be painful. This > pain is often quite severe. Many times there is bleeding associated with > the painful bowel movement. Blood may be noticed in the toilet bowel or on > the toilet paper and is generally bright red in colour. The symptoms of an > anal fissure are commonly mistaken for haemorrhoids, but haemorrhoids > generally do not cause pain with bowel movements. > > This is common to all people, not VEDS alone. > > Have you contacted Dr. Meschino yet or gotten a repeat test from Sick Kids > yet? I'd get on this straight away for the diagnosis point of view. > > Jill > > > > > Thanks Jill, I have a feeling, That moisture has alot to do with it. > Are you familar with fishers spelling? because Petra has had one and > it was bleeding quite badly > Isn't a fisher a form of a tear? Petra was not even constipated. when this > happened. Do these complications > happen with VEDS? Thanks > > > > > Quote Link to comment Share on other sites More sharing options...
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