Doctors - Can you please help answer a question?

December 29, 2001

I had a TT 8/93 that showed papillary ca with follicular variant that was not

in solid mass form, but were projections with distant vascular stalks. Other

areas were almost uniform arrangements of follicles & occasional sheets of

neoplastic cells. This was through out both lobes & the isthmus & exceeded

the thyroid margins into the soft tissue. The biopsy showed many areas where

the thyca was extended to the margins in the periglandular soft tissue.

My ENT at that time swore to me that it was only goiter. He didn't do a

frozen section during surgery or even check any lymph nodes.

Quickly to catch up to present : RAI 155 mCi 9/93; Pos I131 scan 8/96; I131

177 mCi 8/96; 3 neg RAI scans (last 5/99); Tg 19.6 9/00; ? pos CAT scan

10/00; MRND 11/00 path report neg for ca; Neg Tg, Tg Anti, & RAI scan 2/01.;

Tg Anti 39 - 9/01; Tg Anti - 68 & pos PET 12/01.

The new ENT that did my MRND said he cleaned out all he could in the thyroid

bed & went down into the chest past the clavicles. The PET scan showed a

small area in the lower mid neck & a large area in the left supraclvicular

area, buth areas the the ENT explored 13 months ago.

Two questions:

1. Since my ENT that did my TT could not even tell that it was cancerous or

that he even cut throught it. And my last ENT couldn't find it either. Can

it be a form that they would not beable to identify when they go in again?

2. I'm sure that my thyca has become iodine resistant, since it hasn't shown

up on the last 4 RAI scans. But, why did the Tg go from positive pre MRND to

neg post for about 8-10 months, then show Tg Antibodies (which I have not had

since 6 mos post TT in '93)? Could they have been stunnned from the surgery?

Thanks for reading this, & I'd appreciate any info!!!

Sabin

Tampa

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