Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 , You can contact your local Mental Health Mental Retardation center and they can help you set up counseling at usually no cost when you show you cannot afford to go to a private therapist. All the boys need it, your oldest especially(sp) He is in a hard time, the teen years, and to deal with a stutter and yours and your other sons health is difficult. I feel for him with the stutter, that is a present MS has given me at time and it is so frustrating. If you can, and I know it's hard, get with your husband and try to schedule one on one with your other two children, maybe a trip for ice cream or just take one with you on errands while your husband has the other two. Siblings at time get jealous of the sick child because they can see the extra attention they get.(Of course they don't do this on purpose and usually they don't understand these feelings) Plus, you might see if there's a teen chat room for kids whose parents are ill. Supervise of course, but it may help if he had someone to vent to just like we have each other, someone who knows what he is going through and he does not have to explain himself ' in Texas Deao wrote: Hi Everyone,Our family is in need of some help. We have three children, 12, 10 and 21 months. Our son who is 10 was diagnosed with Guillian-barre this year and of course I have MS. Well, it has really come to my attention that we are all in our own ways struggling to deal with this. My 10 year old is in depression (I think somewhat from his neurontin, he's up to 3300 mg/day + topamax + carnitine). Our 12 year old who is wonderful is getting a little rough with our other son - which is now starting to lead my husband and I to think that he may be acting out a little. And of course, we are all dealing with a toddler. I know it is hard on my husband as well. He's our sole provider here and he hasn't ever joined in any support group for care-givers of those with MS. We've kinda been in denial I think over the past 15 years. Those of you who have read some of my posts know my situation about not having a confirmed diagnosis for 12 years and so on. So he's working on dealing with that and then to add to it his son now having something almost identical to me.Our older son is now entering jr high years and almost a teenager and that's a lot on it's own to deal with - but add the confusion of me and his brother sick and the attention we end up getting from being sick. Add to this that he has a moderate stuttering problem that we now will be starting speech therapy twice a week. We homeschool and are very open with our children and we all talk a lot. But I am thinking we might need some help as a family in dealing with how to cope and manage.I don't want anyone in our family to feel lost or less important or not know how to express their feelings.Any advice as to what we should do or any recommendations to support groups that would include children.I love my entire family so much and I know that God allowed these situations in our lives for a reason - but I also know He doesn't want us to struggle in confusion. Any advice would be appreciated (advice and encouragement but please no judgement). Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 , I am sorry to hear about all the problems your family are having. I don't have MS but my husband does. I have started a group for caregivers if your husband would like to join us. Its slow right now and I am trying to figure a way to generate some activity. But we will get there. Here is the url http://health.groups.yahoo.com/group/WhispersofLoveforMSCaregivers/ I will keep everyone in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.com Looking for advice Hi Everyone,Our family is in need of some help. We have three children, 12, 10 and 21 months. Our son who is 10 was diagnosed with Guillian-barre this year and of course I have MS. Well, it has really come to my attention that we are all in our own ways struggling to deal with this. My 10 year old is in depression (I think somewhat from his neurontin, he's up to 3300 mg/day + topamax + carnitine). Our 12 year old who is wonderful is getting a little rough with our other son - which is now starting to lead my husband and I to think that he may be acting out a little. And of course, we are all dealing with a toddler. I know it is hard on my husband as well. He's our sole provider here and he hasn't ever joined in any support group for care-givers of those with MS. We've kinda been in denial I think over the past 15 years. Those of you who have read some of my posts know my situation about not having a confirmed diagnosis for 12 years and so on. So he's working on dealing with that and then to add to it his son now having something almost identical to me.Our older son is now entering jr high years and almost a teenager and that's a lot on it's own to deal with - but add the confusion of me and his brother sick and the attention we end up getting from being sick. Add to this that he has a moderate stuttering problem that we now will be starting speech therapy twice a week. We homeschool and are very open with our children and we all talk a lot. But I am thinking we might need some help as a family in dealing with how to cope and manage.I don't want anyone in our family to feel lost or less important or not know how to express their feelings.Any advice as to what we should do or any recommendations to support groups that would include children.I love my entire family so much and I know that God allowed these situations in our lives for a reason - but I also know He doesn't want us to struggle in confusion. Any advice would be appreciated (advice and encouragement but please no judgement). Thanks No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.405 / Virus Database: 268.12.4/448 - Release Date: 9/14/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 , I am sorry to hear about all the problems your family are having. I don't have MS but my husband does. I have started a group for caregivers if your husband would like to join us. Its slow right now and I am trying to figure a way to generate some activity. But we will get there. Here is the url http://health.groups.yahoo.com/group/WhispersofLoveforMSCaregivers/ I will keep everyone in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.com Looking for advice Hi Everyone,Our family is in need of some help. We have three children, 12, 10 and 21 months. Our son who is 10 was diagnosed with Guillian-barre this year and of course I have MS. Well, it has really come to my attention that we are all in our own ways struggling to deal with this. My 10 year old is in depression (I think somewhat from his neurontin, he's up to 3300 mg/day + topamax + carnitine). Our 12 year old who is wonderful is getting a little rough with our other son - which is now starting to lead my husband and I to think that he may be acting out a little. And of course, we are all dealing with a toddler. I know it is hard on my husband as well. He's our sole provider here and he hasn't ever joined in any support group for care-givers of those with MS. We've kinda been in denial I think over the past 15 years. Those of you who have read some of my posts know my situation about not having a confirmed diagnosis for 12 years and so on. So he's working on dealing with that and then to add to it his son now having something almost identical to me.Our older son is now entering jr high years and almost a teenager and that's a lot on it's own to deal with - but add the confusion of me and his brother sick and the attention we end up getting from being sick. Add to this that he has a moderate stuttering problem that we now will be starting speech therapy twice a week. We homeschool and are very open with our children and we all talk a lot. But I am thinking we might need some help as a family in dealing with how to cope and manage.I don't want anyone in our family to feel lost or less important or not know how to express their feelings.Any advice as to what we should do or any recommendations to support groups that would include children.I love my entire family so much and I know that God allowed these situations in our lives for a reason - but I also know He doesn't want us to struggle in confusion. Any advice would be appreciated (advice and encouragement but please no judgement). Thanks No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.405 / Virus Database: 268.12.4/448 - Release Date: 9/14/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 Hi :Have you checked with your local chapter of the National Multiple Sclerosis Society to see if they have a support group for kids? You can also check with your hospital to see if there's a group/counseling for your 10 y/o as well as a sibling group/counseling for kids who have a sick sibling. In my humble opinion, I think keeping your 12 y/o old home in homeschooling is the best thing for him. He's feeling more vulnerable right now (hence the stutter, perhaps). Would he feel "tossed out" if he went to public school? Does he worry that he will be the next one to get sick? We are also a homeschooling family and the closeness is wonderful. But I know two of my grandkids have fears that they have, or will get, MS too. I just borrowed a tape from the NMMS for kids to explain MS. I'm going to watch the video first and then I'll have the kids watch it if I think it's appropriate.Does he use the computer? If so maybe he would like to email with my grandson who will be 12 on the 28th. If so, let me know. love...Sharon Sharon (MSersLife Group Owner/Creator) It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant Looking for advice Hi Everyone, Our family is in need of some help. We have three children, 12, 10 and 21 months. Our son who is 10 was diagnosed with Guillian-barre this year and of course I have MS. Well, it has really come to my attention that we are all in our own ways struggling to deal with this. My 10 year old is in depression (I think somewhat from his neurontin, he's up to 3300 mg/day + topamax + carnitine). Our 12 year old who is wonderful is getting a little rough with our other son - which is now starting to lead my husband and I to think that he may be acting out a little. And of course, we are all dealing with a toddler. I know it is hard on my husband as well. He's our sole provider here and he hasn't ever joined in any support group for care-givers of those with MS. We've kinda been in denial I think over the past 15 years. Those of you who have read some of my posts know my situation about not having a confirmed diagnosis for 12 years and so on. So he's working on dealing with that and then to add to it his son now having something almost identical to me. Our older son is now entering jr high years and almost a teenager and that's a lot on it's own to deal with - but add the confusion of me and his brother sick and the attention we end up getting from being sick. Add to this that he has a moderate stuttering problem that we now will be starting speech therapy twice a week. We homeschool and are very open with our children and we all talk a lot. But I am thinking we might need some help as a family in dealing with how to cope and manage. I don't want anyone in our family to feel lost or less important or not know how to express their feelings. Any advice as to what we should do or any recommendations to support groups that would include children. I love my entire family so much and I know that God allowed these situations in our lives for a reason - but I also know He doesn't want us to struggle in confusion. Any advice would be appreciated (advice and encouragement but please no judgement). Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 Your 10 year old is taking 3,300 mg of Neurontin a day?!?!?!? For what? What are they giving a child that much of such a drug?? I take 300 mg and if I took any more I would go totally psychotic! And I am a 220 lb 52-year old adult! We're talking about a 10 year old child? I'm not being mean, I am genuinely curious as to why they're giving him such a high dose? Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary & Eternal Optimist! http://yodamamma.blogspot.com/ http://www.solay-twinflames.com -- Looking for advice Hi Everyone,Our family is in need of some help. We have three children, 12, 10 and 21 months. Our son who is 10 was diagnosed with Guillian-barre this year and of course I have MS. Well, it has really come to my attention that we are all in our own ways struggling to deal with this. My 10 year old is in depression (I think somewhat from his neurontin, he's up to 3300 mg/day + topamax + carnitine). Our 12 year old who is wonderful is getting a little rough with our other son - which is now starting to lead my husband and I to think that he may be acting out a little. And of course, we are all dealing with a toddler. I know it is hard on my husband as well. He's our sole provider here and he hasn't ever joined in any support group for care-givers of those with MS. We've kinda been in denial I think over the past 15 years. Those of you who have read some of my posts know my situation about not having a confirmed diagnosis for 12 years and so on. So he's working on dealing with that and then to add to it his son now having something almost identical to me.Our older son is now entering jr high years and almost a teenager and that's a lot on it's own to deal with - but add the confusion of me and his brother sick and the attention we end up getting from being sick. Add to this that he has a moderate stuttering problem that we now will be starting speech therapy twice a week. We homeschool and are very open with our children and we all talk a lot. But I am thinking we might need some help as a family in dealing with how to cope and manage.I don't want anyone in our family to feel lost or less important or not know how to express their feelings.Any advice as to what we should do or any recommendations to support groups that would include children.I love my entire family so much and I know that God allowed these situations in our lives for a reason - but I also know He doesn't want us to struggle in confusion. Any advice would be appreciated (advice and encouragement but please no judgement). Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 , There is a radio program that is on every day 1:00 PM- 3:00 PM Mon- Fri. You can call in and get expert advice. It is "Reliant Radio" the phone # is 877-777-ROME. They will be of help. Also send me your address, maybe my books will help. www.copingandpreviling.com Keep listening to each other, Love and understanding will prevail and you have that. Regards, Tom Re: Looking for advice , You can contact your local Mental Health Mental Retardation center and they can help you set up counseling at usually no cost when you show you cannot afford to go to a private therapist. All the boys need it, your oldest especially(sp) He is in a hard time, the teen years, and to deal with a stutter and yours and your other sons health is difficult. I feel for him with the stutter, that is a present MS has given me at time and it is so frustrating. If you can, and I know it's hard, get with your husband and try to schedule one on one with your other two children, maybe a trip for ice cream or just take one with you on errands while your husband has the other two. Siblings at time get jealous of the sick child because they can see the extra attention they get.(Of course they don't do this on purpose and usually they don't understand these feelings) Plus, you might see if there's a teen chat room for kids whose parents are ill. Supervise of course, but it may help if he had someone to vent to just like we have each other, someone who knows what he is going through and he does not have to explain himself ' in Texas Deao <f8thfulmom> wrote: Hi Everyone,Our family is in need of some help. We have three children, 12, 10 and 21 months. Our son who is 10 was diagnosed with Guillian-barre this year and of course I have MS. Well, it has really come to my attention that we are all in our own ways struggling to deal with this. My 10 year old is in depression (I think somewhat from his neurontin, he's up to 3300 mg/day + topamax + carnitine). Our 12 year old who is wonderful is getting a little rough with our other son - which is now starting to lead my husband and I to think that he may be acting out a little. And of course, we are all dealing with a toddler. I know it is hard on my husband as well. He's our sole provider here and he hasn't ever joined in any support group for care-givers of those with MS. We've kinda been in denial I think over the past 15 years. Those of you who have read some of my posts know my situation about not having a confirmed diagnosis for 12 years and so on. So he's working on dealing with that and then to add to it his son now having something almost identical to me.Our older son is now entering jr high years and almost a teenager and that's a lot on it's own to deal with - but add the confusion of me and his brother sick and the attention we end up getting from being sick. Add to this that he has a moderate stuttering problem that we now will be starting speech therapy twice a week. We homeschool and are very open with our children and we all talk a lot. But I am thinking we might need some help as a family in dealing with how to cope and manage.I don't want anyone in our family to feel lost or less important or not know how to express their feelings.Any advice as to what we should do or any recommendations to support groups that would include children.I love my entire family so much and I know that God allowed these situations in our lives for a reason - but I also know He doesn't want us to struggle in confusion. Any advice would be appreciated (advice and encouragement but please no judgement). Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 , There is a radio program that is on every day 1:00 PM- 3:00 PM Mon- Fri. You can call in and get expert advice. It is "Reliant Radio" the phone # is 877-777-ROME. They will be of help. Also send me your address, maybe my books will help. www.copingandpreviling.com Keep listening to each other, Love and understanding will prevail and you have that. Regards, Tom Re: Looking for advice , You can contact your local Mental Health Mental Retardation center and they can help you set up counseling at usually no cost when you show you cannot afford to go to a private therapist. All the boys need it, your oldest especially(sp) He is in a hard time, the teen years, and to deal with a stutter and yours and your other sons health is difficult. I feel for him with the stutter, that is a present MS has given me at time and it is so frustrating. If you can, and I know it's hard, get with your husband and try to schedule one on one with your other two children, maybe a trip for ice cream or just take one with you on errands while your husband has the other two. Siblings at time get jealous of the sick child because they can see the extra attention they get.(Of course they don't do this on purpose and usually they don't understand these feelings) Plus, you might see if there's a teen chat room for kids whose parents are ill. Supervise of course, but it may help if he had someone to vent to just like we have each other, someone who knows what he is going through and he does not have to explain himself ' in Texas Deao <f8thfulmom> wrote: Hi Everyone,Our family is in need of some help. We have three children, 12, 10 and 21 months. Our son who is 10 was diagnosed with Guillian-barre this year and of course I have MS. Well, it has really come to my attention that we are all in our own ways struggling to deal with this. My 10 year old is in depression (I think somewhat from his neurontin, he's up to 3300 mg/day + topamax + carnitine). Our 12 year old who is wonderful is getting a little rough with our other son - which is now starting to lead my husband and I to think that he may be acting out a little. And of course, we are all dealing with a toddler. I know it is hard on my husband as well. He's our sole provider here and he hasn't ever joined in any support group for care-givers of those with MS. We've kinda been in denial I think over the past 15 years. Those of you who have read some of my posts know my situation about not having a confirmed diagnosis for 12 years and so on. So he's working on dealing with that and then to add to it his son now having something almost identical to me.Our older son is now entering jr high years and almost a teenager and that's a lot on it's own to deal with - but add the confusion of me and his brother sick and the attention we end up getting from being sick. Add to this that he has a moderate stuttering problem that we now will be starting speech therapy twice a week. We homeschool and are very open with our children and we all talk a lot. But I am thinking we might need some help as a family in dealing with how to cope and manage.I don't want anyone in our family to feel lost or less important or not know how to express their feelings.Any advice as to what we should do or any recommendations to support groups that would include children.I love my entire family so much and I know that God allowed these situations in our lives for a reason - but I also know He doesn't want us to struggle in confusion. Any advice would be appreciated (advice and encouragement but please no judgement). Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 Hello nne I believe that the idea of the caregiver support group is wonderful ! I love the name you picked. HAPPINESS and BUTTERFLIES Lynn Looking for advice> > > Hi Everyone,> Our family is in need of some help. We have three > children, 12, 10 > and 21 months. Our son who is 10 was diagnosed with > Guillian-barre > this year and of course I have MS. Well, it has really > come to my > attention that we are all in our own ways struggling to > deal with > this. My 10 year old is in depression (I think somewhat > from his > neurontin, he's up to 3300 mg/day + topamax + carnitine). > Our 12 > year old who is wonderful is getting a little rough with > our other > son - which is now starting to lead my husband and I to > think that > he may be acting out a little. And of course, we are all > dealing > with a toddler. > I know it is hard on my husband as well. He's our sole > provider > here and he hasn't ever joined in any support group for > care-givers > of those with MS. We've kinda been in denial I think over > the past > 15 years. Those of you who have read some of my posts > know my > situation about not having a confirmed diagnosis for 12 > years and so > on. So he's working on dealing with that and then to add > to it his > son now having something almost identical to me.> Our older son is now entering jr high years and almost a > teenager > and that's a lot on it's own to deal with - but add the > confusion of > me and his brother sick and the attention we end up > getting from > being sick. Add to this that he has a moderate stuttering > problem > that we now will be starting speech therapy twice a week. > We homeschool and are very open with our children and we > all talk a > lot. But I am thinking we might need some help as a > family in > dealing with how to cope and manage.> I don't want anyone in our family to feel lost or less > important or > not know how to express their feelings.> > Any advice as to what we should do or any recommendations > to support > groups that would include children.> > I love my entire family so much and I know that God > allowed these > situations in our lives for a reason - but I also know He > doesn't > want us to struggle in confusion. > > Any advice would be appreciated (advice and encouragement > but > please no judgement). Thanks> > > > > > > > > -----------------------------------------------------------------> -------------> > > No virus found in this incoming message.> Checked by AVG Free Edition.> Version: 7.1.405 / Virus Database: 268.12.4/448 - Release > Date: 9/14/2006> May you always find HAPPINESS and BUTTERFLIES Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 Thanks Lynn, Actually it was Chuck that came up with name. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.com Looking for advice> > > Hi Everyone,> Our family is in need of some help. We have three > children, 12, 10 > and 21 months. Our son who is 10 was diagnosed with > Guillian-barre > this year and of course I have MS. Well, it has really > come to my > attention that we are all in our own ways struggling to > deal with > this. My 10 year old is in depression (I think somewhat > from his > & bsp; neurontin, he's up to 3300 mg/day + topamax + carnitine). > Our 12 > year old who is wonderful is getting a little rough with > our other > son - which is now starting to lead my husband and I to > think that > he may be acting out a little. And of course, we are all > dealing > with a toddler. > I know it is hard on my husband as well. He's our sole > provider > here and he hasn't ever joined in any support group for > care-givers > of those with MS. We've kinda been in denial I think over > the past > 15 years. Those of you who have read some of my posts > know my > situation about not having a confirmed diagnosis for 12 > years and so > on. So he's working on dealing with that and then to add > to it his > son now having something almost identical to me.> Our older on is now entering jr high years and almost a > teenager > and that's a lot on it's own to deal with - but add the > confusion of > me and his brother sick and the attention we end up > getting from > being sick. Add to this that he has a moderate stuttering > problem > that we now will be starting speech therapy twice a week. > We homeschool and are very open with our children and we > all talk a > lot. But I am thinking we might need some help as a > family in > dealing with how to cope and manage.> I don't want anyone in our family to feel lost or less > important or > not know how to express their feelings.> > Any advice as to what we should do or any recommendations > to support > groups that would include children.> > I love my entire family so much and I know that Go > allowed these > situations in our lives for a reason - but I also know He > doesn't > want us to struggle in confusion. > > Any advice would be appreciated (advice and encouragement > but > please no judgement). Thanks> > > > > > > > > -----------------------------------------------------------------> -------------> > > No virus found in this incoming message.> Checked by AVG Free Edition.> Version: 7.1.405 / Virus Database: 268.12.4/448 - Release > Date: 9/14/2006> May you always find HAPPINESS and BUTTERFLIES Lynn No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.405 / Virus Database: 268.12.4/448 - Release Date: 9/14/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 Hi Sharon, I will ask Cameron if he is interested in chatting with another teen about these things. That is very generous of you. I know a lot of families don't understand "homeschooling" and I am sure they feel that it is cruel to keep them home. But in all actuality it is working best for our family and we are closer because of it. Thanks for your support. Sharon Marsden wrote: Hi :Have you checked with your local chapter of the National Multiple Sclerosis Society to see if they have a support group for kids? You can also check with your hospital to see if there's a group/counseling for your 10 y/o as well as a sibling group/counseling for kids who have a sick sibling. In my humble opinion, I think keeping your 12 y/o old home in homeschooling is the best thing for him. He's feeling more vulnerable right now (hence the stutter, perhaps). Would he feel "tossed out" if he went to public school? Does he worry that he will be the next one to get sick? We are also a homeschooling family and the closeness is wonderful. But I know two of my grandkids have fears that they have, or will get, MS too. I just borrowed a tape from the NMMS for kids to explain MS. I'm going to watch the video first and then I'll have the kids watch it if I think it's appropriate.Does he use the computer? If so maybe he would like to email with my grandson who will be 12 on the 28th. If so, let me know. love...Sharon Sharon (MSersLife Group Owner/Creator) It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant Looking for advice Hi Everyone,Our family is in need of some help. We have three children, 12, 10 and 21 months. Our son who is 10 was diagnosed with Guillian-barre this year and of course I have MS. Well, it has really come to my attention that we are all in our own ways struggling to deal with this. My 10 year old is in depression (I think somewhat from his neurontin, he's up to 3300 mg/day + topamax + carnitine). Our 12 year old who is wonderful is getting a little rough with our other son - which is now starting to lead my husband and I to think that he may be acting out a little. And of course, we are all dealing with a toddler. I know it is hard on my husband as well. He's our sole provider here and he hasn't ever joined in any support group for care-givers of those with MS. We've kinda been in denial I think over the past 15 years. Those of you who have read some of my posts know my situation about not having a confirmed diagnosis for 12 years and so on. So he's working on dealing with that and then to add to it his son now having something almost identical to me.Our older son is now entering jr high years and almost a teenager and that's a lot on it's own to deal with - but add the confusion of me and his brother sick and the attention we end up getting from being sick. Add to this that he has a moderate stuttering problem that we now will be starting speech therapy twice a week. We homeschool and are very open with our children and we all talk a lot. But I am thinking we might need some help as a family in dealing with how to cope and manage.I don't want anyone in our family to feel lost or less important or not know how to express their feelings.Any advice as to what we should do or any recommendations to support groups that would include children.I love my entire family so much and I know that God allowed these situations in our lives for a reason - but I also know He doesn't want us to struggle in confusion. Any advice would be appreciated (advice and encouragement but please no judgement). Thanks Stay in the know. Pulse on the new Yahoo.com. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 I know I take 300 mg./day myself for the MS. He is having his muscles breakdown and also patchy denervation. We have lowered it ourselves - I think that's what's causing the depression personally. We have dropped it down at times dramatically. He was taking it before me - so after my first dose - I said on this med is strong - it wipes me out. They have him possibly diagnosed with Guillian-Barre and has been admitted in Loma Children's Hospital here in CA. Akiba wrote: Your 10 year old is taking 3,300 mg of Neurontin a day?!?!?!? For what? What are they giving a child that much of such a drug?? I take 300 mg and if I took any more I would go totally psychotic! And I am a 220 lb 52-year old adult! We're talking about a 10 year old child? I'm not being mean, I am genuinely curious as to why they're giving him such a high dose? Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary & Eternal Optimist! http://yodamamma.blogspot.com/ http://www.solay-twinflames.com -- Looking for advice Hi Everyone,Our family is in need of some help. We have three children, 12, 10 and 21 months. Our son who is 10 was diagnosed with Guillian-barre this year and of course I have MS. Well, it has really come to my attention that we are all in our own ways struggling to deal with this. My 10 year old is in depression (I think somewhat from his neurontin, he's up to 3300 mg/day + topamax + carnitine). Our 12 year old who is wonderful is getting a little rough with our other son - which is now starting to lead my husband and I to think that he may be acting out a little. And of course, we are all dealing with a toddler. I know it is hard on my husband as well. He's our sole provider here and he hasn't ever joined in any support group for care-givers of those with MS. We've kinda been in denial I think over the past 15 years. Those of you who have read some of my posts know my situation about not having a confirmed diagnosis for 12 years and so on. So he's working on dealing with that and then to add to it his son now having something almost identical to me.Our older son is now entering jr high years and almost a teenager and that's a lot on it's own to deal with - but add the confusion of me and his brother sick and the attention we end up getting from being sick. Add to this that he has a moderate stuttering problem that we now will be starting speech therapy twice a week. We homeschool and are very open with our children and we all talk a lot. But I am thinking we might need some help as a family in dealing with how to cope and manage.I don't want anyone in our family to feel lost or less important or not know how to express their feelings.Any advice as to what we should do or any recommendations to support groups that would include children.I love my entire family so much and I know that God allowed these situations in our lives for a reason - but I also know He doesn't want us to struggle in confusion. Any advice would be appreciated (advice and encouragement but please no judgement). Thanks Get your email and more, right on the new Yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 , I am homeschooling my boys too. I'm not sure if I mentioned that or not. My oldest is 13. () Let me know if your son is open to more email friends. loves getting emails. He has Asperger's Syndrome, ADHD, and probably Tourettes. He has a very kind heart and would love to make friends with other boys, but kids can be mean at times. I second what Sharon said earlier about continuing to HS. Public schools can be brutal. And when you stand out as different, you are a target. Take care, Trista Looking for advice Hi Everyone,Our family is in need of some help. We have three children, 12, 10 and 21 months. Our son who is 10 was diagnosed with Guillian-barre this year and of course I have MS. Well, it has really come to my attention that we are all in our own ways struggling to deal with this. My 10 year old is in depression (I think somewhat from his neurontin, he's up to 3300 mg/day + topamax + carnitine). Our 12 year old who is wonderful is getting a little rough with our other son - which is now starting to lead my husband and I to think that he may be acting out a little. And of course, we are all dealing with a toddler. I know it is hard on my husband as well. He's our sole provider here and he hasn't ever joined in any support group for care-givers of those with MS. We've kinda been in denial I think over the past 15 years. Those of you who have read some of my posts know my situation about not having a confirmed diagnosis for 12 years and so on. So he's working on dealing with that and then to add to it his son now having something almost identical to me.Our older son is now entering jr high years and almost a teenager and that's a lot on it's own to deal with - but add the confusion of me and his brother sick and the attention we end up getting from being sick. Add to this that he has a moderate stuttering problem that we now will be starting speech therapy twice a week. We homeschool and are very open with our children and we all talk a lot. But I am thinking we might need some help as a family in dealing with how to cope and manage.I don't want anyone in our family to feel lost or less important or not know how to express their feelings.Any advice as to what we should do or any recommendations to support groups that would include children.I love my entire family so much and I know that God allowed these situations in our lives for a reason - but I also know He doesn't want us to struggle in confusion. Any advice would be appreciated (advice and encouragement but please no judgement). Thanks Stay in the know. Pulse on the new Yahoo.com. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 Hello Trista, That is very thoughtful of you. I will pass on this to Cameron. I am sure he'd love to email back and forth. It's great that they are so close in age. Cameron is a real sweetie too. How does your family and children deal with MS? I did find a site tonight with a great article on children dealing with family members/siblings with chronic disease. All the info to help is great. How old is your other son? ( I don't know if you have only one other son or more than one more). It sounds like you have a full plate at home as well. Are you part of the HS with MS yahoo group? I was thrilled when I found that. Blessings to you, D.Trista wrote: , I am homeschooling my boys too. I'm not sure if I mentioned that or not. My oldest is 13. () Let me know if your son is open to more email friends. loves getting emails. He has Asperger's Syndrome, ADHD, and probably Tourettes. He has a very kind heart and would love to make friends with other boys, but kids can be mean at times. I second what Sharon said earlier about continuing to HS. Public schools can be brutal. And when you stand out as different, you are a target. Take care, Trista Looking for advice Hi Everyone,Our family is in need of some help. We have three children, 12, 10 and 21 months. Our son who is 10 was diagnosed with Guillian-barre this year and of course I have MS. Well, it has really come to my attention that we are all in our own ways struggling to deal with this. My 10 year old is in depression (I think somewhat from his neurontin, he's up to 3300 mg/day + topamax + carnitine). Our 12 year old who is wonderful is getting a little rough with our other son - which is now starting to lead my husband and I to think that he may be acting out a little. And of course, we are all dealing with a toddler. I know it is hard on my husband as well. He's our sole provider here and he hasn't ever joined in any support group for care-givers of those with MS. We've kinda been in denial I think over the past 15 years. Those of you who have read some of my posts know my situation about not having a confirmed diagnosis for 12 years and so on. So he's working on dealing with that and then to add to it his son now having something almost identical to me.Our older son is now entering jr high years and almost a teenager and that's a lot on it's own to deal with - but add the confusion of me and his brother sick and the attention we end up getting from being sick. Add to this that he has a moderate stuttering problem that we now will be starting speech therapy twice a week. We homeschool and are very open with our children and we all talk a lot. But I am thinking we might need some help as a family in dealing with how to cope and manage.I don't want anyone in our family to feel lost or less important or not know how to express their feelings.Any advice as to what we should do or any recommendations to support groups that would include children.I love my entire family so much and I know that God allowed these situations in our lives for a reason - but I also know He doesn't want us to struggle in confusion. Any advice would be appreciated (advice and encouragement but please no judgement). Thanks Stay in the know. Pulse on the new Yahoo.com. Check it out. How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 Hello Trista, That is very thoughtful of you. I will pass on this to Cameron. I am sure he'd love to email back and forth. It's great that they are so close in age. Cameron is a real sweetie too. How does your family and children deal with MS? I did find a site tonight with a great article on children dealing with family members/siblings with chronic disease. All the info to help is great. How old is your other son? ( I don't know if you have only one other son or more than one more). It sounds like you have a full plate at home as well. Are you part of the HS with MS yahoo group? I was thrilled when I found that. Blessings to you, D.Trista wrote: , I am homeschooling my boys too. I'm not sure if I mentioned that or not. My oldest is 13. () Let me know if your son is open to more email friends. loves getting emails. He has Asperger's Syndrome, ADHD, and probably Tourettes. He has a very kind heart and would love to make friends with other boys, but kids can be mean at times. I second what Sharon said earlier about continuing to HS. Public schools can be brutal. And when you stand out as different, you are a target. Take care, Trista Looking for advice Hi Everyone,Our family is in need of some help. We have three children, 12, 10 and 21 months. Our son who is 10 was diagnosed with Guillian-barre this year and of course I have MS. Well, it has really come to my attention that we are all in our own ways struggling to deal with this. My 10 year old is in depression (I think somewhat from his neurontin, he's up to 3300 mg/day + topamax + carnitine). Our 12 year old who is wonderful is getting a little rough with our other son - which is now starting to lead my husband and I to think that he may be acting out a little. And of course, we are all dealing with a toddler. I know it is hard on my husband as well. He's our sole provider here and he hasn't ever joined in any support group for care-givers of those with MS. We've kinda been in denial I think over the past 15 years. Those of you who have read some of my posts know my situation about not having a confirmed diagnosis for 12 years and so on. So he's working on dealing with that and then to add to it his son now having something almost identical to me.Our older son is now entering jr high years and almost a teenager and that's a lot on it's own to deal with - but add the confusion of me and his brother sick and the attention we end up getting from being sick. Add to this that he has a moderate stuttering problem that we now will be starting speech therapy twice a week. We homeschool and are very open with our children and we all talk a lot. But I am thinking we might need some help as a family in dealing with how to cope and manage.I don't want anyone in our family to feel lost or less important or not know how to express their feelings.Any advice as to what we should do or any recommendations to support groups that would include children.I love my entire family so much and I know that God allowed these situations in our lives for a reason - but I also know He doesn't want us to struggle in confusion. Any advice would be appreciated (advice and encouragement but please no judgement). Thanks Stay in the know. Pulse on the new Yahoo.com. Check it out. How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 Neurontin is one of those drugs that can't be suddenly changed as far as dosage. There is a big danger of seizures if the drug is stopped suddenly or the dosage is dropped suddenly. A person must wean off of Neurontin. I take 3200 mg. a day. I'm not sleepy from it at all and I don't think it makes me depressed. My depression has come and gone over the years and I'm sure it's not related to Neurontin. I know other people have the drowsy effect from Neurontin, though, so it's possible to have depression from it as well. hugs)) Sharon (MSersLife Group Owner/Creator) It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant Looking for advice Hi Everyone,Our family is in need of some help. We have three children, 12, 10 and 21 months. Our son who is 10 was diagnosed with Guillian-barre this year and of course I have MS. Well, it has really come to my attention that we are all in our own ways struggling to deal with this. My 10 year old is in depression (I think somewhat from his neurontin, he's up to 3300 mg/day + topamax + carnitine). Our 12 year old who is wonderful is getting a little rough with our other son - which is now starting to lead my husband and I to think that he may be acting out a little. And of course, we are all dealing with a toddler. I know it is hard on my husband as well. He's our sole provider here and he hasn't ever joined in any support group for care-givers of those with MS. We've kinda been in denial I think over the past 15 years. Those of you who have read some of my posts know my situation about not having a confirmed diagnosis for 12 years and so on. So he's working on dealing with that and then to add to it his son now having something almost identical to me.Our older son is now entering jr high years and almost a teenager and that's a lot on it's own to deal with - but add the confusion of me and his brother sick and the attention we end up getting from being sick. Add to this that he has a moderate stuttering problem that we now will be starting speech therapy twice a week. We homeschool and are very open with our children and we all talk a lot. But I am thinking we might need some help as a family in dealing with how to cope and manage.I don't want anyone in our family to feel lost or less important or not know how to express their feelings.Any advice as to what we should do or any recommendations to support groups that would include children.I love my entire family so much and I know that God allowed these situations in our lives for a reason - but I also know He doesn't want us to struggle in confusion. Any advice would be appreciated (advice and encouragement but please no judgement). Thanks Get your email and more, right on the new Yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 , I do not have a "formal dx", but MS just "fits", kwim? I keep coming back to it, even though I try to deny it at times. LOL. ALL my sx's seem to point to MS, but my MRI is clean. But, my boys do see a big difference in me now, as opposed to how I was back in 2000 and before. At least remembers. ALL my sx's hit me hard after I got my Hep A & B vax, and flu shot while I was going through my Psych Tech program. is very helpful with the younger boys. (Baylee, 9 yr old Autistic Savant, OCD, , 2 yrs 8 months, who is EXTREMELY smart and probably Bi-Polar, and who is 13 months and seems neurotypical.) will keep an eye on if I need to lay down to rest. But, I can't rest if I know he's not napping. LOL. He helps a lot. and Bay both have their chores of taking out the trash, straightening up, loading dishes. That is a huge weight off me. Somedays has to bring to me, so I can change him, because My arms feel so weak and I'm fatigued. My sweet husband Steve, knows by looking at me, or my voice on the phone, how I feel. He jumps right in, and takes over for me. He's a huge blessing to me. I am still amazed I found a man like him. I was previously married to a real loser, that was very emotionally abusive, along with cheating, living a double life. I am so thankful for my Dh and my family. But, all that said, sometimes being males, they just don't "see" that something needs done around here. I HATE clutter, and DH is a "stacker". He stacks piles on top of every surface he can find and it drives me nuts. And his idea of cleaning his clutter, is to move it all into a plastic tote, and move it to the "back room". This weekend his big project is to clean the back room. It is a huge room that we're supposed to turn into our bedroom. It is finished, it just needs new carpet. (that and the mound of crap removed! LOL.) I am a part of the HS group, although, I've only posted once or twice. I just don't have the energy to keep up with everything like I used to. How many children do you have? I just started homeschooling them last spring. The school totally failed my boys. had all F's and was being teased and Bay was being beat up daily, and no one told me. They both had IEP's and the were not meeting their goals outlined in them. At this point I am totally disgusted with the public schools here, and wish I'd pulled them out sooner. Well, I better get a shower while I can! Nice getting to know you. Take care, Trista Looking for advice Hi Everyone,Our family is in need of some help. We have three children, 12, 10 and 21 months. Our son who is 10 was diagnosed with Guillian-barre this year and of course I have MS. Well, it has really come to my attention that we are all in our own ways struggling to deal with this. My 10 year old is in depression (I think somewhat from his neurontin, he's up to 3300 mg/day + topamax + carnitine). Our 12 year old who is wonderful is getting a little rough with our other son - which is now starting to lead my husband and I to think that he may be acting out a little. And of course, we are all dealing with a toddler. I know it is hard on my husband as well. He's our sole provider here and he hasn't ever joined in any support group for care-givers of those with MS. We've kinda been in denial I think over the past 15 years. Those of you who have read some of my posts know my situation about not having a confirmed diagnosis for 12 years and so on. So he's working on dealing with that and then to add to it his son now having something almost identical to me.Our older son is now entering jr high years and almost a teenager and that's a lot on it's own to deal with - but add the confusion of me and his brother sick and the attention we end up getting from being sick. Add to this that he has a moderate stuttering problem that we now will be starting speech therapy twice a week. We homeschool and are very open with our children and we all talk a lot. But I am thinking we might need some help as a family in dealing with how to cope and manage.I don't want anyone in our family to feel lost or less important or not know how to express their feelings.Any advice as to what we should do or any recommendations to support groups that would include children.I love my entire family so much and I know that God allowed these situations in our lives for a reason - but I also know He doesn't want us to struggle in confusion. Any advice would be appreciated (advice and encouragement but please no judgement). Thanks Stay in the know. Pulse on the new Yahoo.com. Check it out. How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 , I do not have a "formal dx", but MS just "fits", kwim? I keep coming back to it, even though I try to deny it at times. LOL. ALL my sx's seem to point to MS, but my MRI is clean. But, my boys do see a big difference in me now, as opposed to how I was back in 2000 and before. At least remembers. ALL my sx's hit me hard after I got my Hep A & B vax, and flu shot while I was going through my Psych Tech program. is very helpful with the younger boys. (Baylee, 9 yr old Autistic Savant, OCD, , 2 yrs 8 months, who is EXTREMELY smart and probably Bi-Polar, and who is 13 months and seems neurotypical.) will keep an eye on if I need to lay down to rest. But, I can't rest if I know he's not napping. LOL. He helps a lot. and Bay both have their chores of taking out the trash, straightening up, loading dishes. That is a huge weight off me. Somedays has to bring to me, so I can change him, because My arms feel so weak and I'm fatigued. My sweet husband Steve, knows by looking at me, or my voice on the phone, how I feel. He jumps right in, and takes over for me. He's a huge blessing to me. I am still amazed I found a man like him. I was previously married to a real loser, that was very emotionally abusive, along with cheating, living a double life. I am so thankful for my Dh and my family. But, all that said, sometimes being males, they just don't "see" that something needs done around here. I HATE clutter, and DH is a "stacker". He stacks piles on top of every surface he can find and it drives me nuts. And his idea of cleaning his clutter, is to move it all into a plastic tote, and move it to the "back room". This weekend his big project is to clean the back room. It is a huge room that we're supposed to turn into our bedroom. It is finished, it just needs new carpet. (that and the mound of crap removed! LOL.) I am a part of the HS group, although, I've only posted once or twice. I just don't have the energy to keep up with everything like I used to. How many children do you have? I just started homeschooling them last spring. The school totally failed my boys. had all F's and was being teased and Bay was being beat up daily, and no one told me. They both had IEP's and the were not meeting their goals outlined in them. At this point I am totally disgusted with the public schools here, and wish I'd pulled them out sooner. Well, I better get a shower while I can! Nice getting to know you. Take care, Trista Looking for advice Hi Everyone,Our family is in need of some help. We have three children, 12, 10 and 21 months. Our son who is 10 was diagnosed with Guillian-barre this year and of course I have MS. Well, it has really come to my attention that we are all in our own ways struggling to deal with this. My 10 year old is in depression (I think somewhat from his neurontin, he's up to 3300 mg/day + topamax + carnitine). Our 12 year old who is wonderful is getting a little rough with our other son - which is now starting to lead my husband and I to think that he may be acting out a little. And of course, we are all dealing with a toddler. I know it is hard on my husband as well. He's our sole provider here and he hasn't ever joined in any support group for care-givers of those with MS. We've kinda been in denial I think over the past 15 years. Those of you who have read some of my posts know my situation about not having a confirmed diagnosis for 12 years and so on. So he's working on dealing with that and then to add to it his son now having something almost identical to me.Our older son is now entering jr high years and almost a teenager and that's a lot on it's own to deal with - but add the confusion of me and his brother sick and the attention we end up getting from being sick. Add to this that he has a moderate stuttering problem that we now will be starting speech therapy twice a week. We homeschool and are very open with our children and we all talk a lot. But I am thinking we might need some help as a family in dealing with how to cope and manage.I don't want anyone in our family to feel lost or less important or not know how to express their feelings.Any advice as to what we should do or any recommendations to support groups that would include children.I love my entire family so much and I know that God allowed these situations in our lives for a reason - but I also know He doesn't want us to struggle in confusion. Any advice would be appreciated (advice and encouragement but please no judgement). Thanks Stay in the know. Pulse on the new Yahoo.com. Check it out. How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 Hi Sharon, I did some additional research on children on neurontin and he's within the acceptable range of the meds. It did concern me when I realized how much higher his dose was than mine. But it also made me wonder how bad must this Guillain-barre be? I did read a lot about the neurontin - not much was specifically menitoned about Guillain-barre but mostly about children with seizures. I think he might be sensitive to the poss. of depression from this. It mentions that children might develop depression. I keep telling them that he is depressed and they haven't changed his meds at all. I read that Guillain-barre is one of the one neurological diseases that are categorized as an emergency. So I am keeping a close eye on him. We are both taking our meds as prescribed now. It has also gave me incentive to use my neurontin regularly - especially after hearing how many of you feel better on the meds. Thanks for your insight. He was on this months before me - so I didn't have the experience with this med until now. Sharon Marsden wrote: Neurontin is one of those drugs that can't be suddenly changed as far as dosage. There is a big danger of seizures if the drug is stopped suddenly or the dosage is dropped suddenly. A person must wean off of Neurontin. I take 3200 mg. a day. I'm not sleepy from it at all and I don't think it makes me depressed. My depression has come and gone over the years and I'm sure it's not related to Neurontin. I know other people have the drowsy effect from Neurontin, though, so it's possible to have depression from it as well. hugs))Sharon (MSersLife Group Owner/Creator) It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant Looking for adviceHi Everyone,Our family is in need of some help. We have three children, 12, 10 and 21 months. Our son who is 10 was diagnosed with Guillian-barre this year and of course I have MS. Well, it has really come to my attention that we are all in our own ways struggling to deal with this. My 10 year old is in depression (I think somewhat from his neurontin, he's up to 3300 mg/day + topamax + carnitine). Our 12 year old who is wonderful is getting a little rough with our other son - which is now starting to lead my husband and I to think that he may be acting out a little. And of course, we are all dealing with a toddler. I know it is hard on my husband as well. He's our sole provider here and he hasn't ever joined in any support group for care-givers of those with MS. We've kinda been in denial I think over the past 15 years. Those of you who have read some of my posts know my situation about not having a confirmed diagnosis for 12 years and so on. So he's working on dealing with that and then to add to it his son now having something almost identical to me.Our older son is now entering jr high years and almost a teenager and that's a lot on it's own to deal with - but add the confusion of me and his brother sick and the attention we end up getting from being sick. Add to this that he has a moderate stuttering problem that we now will be starting speech therapy twice a week. We homeschool and are very open with our children and we all talk a lot. But I am thinking we might need some help as a family in dealing with how to cope and manage.I don't want anyone in our family to feel lost or less important or not know how to express their feelings.Any advice as to what we should do or any recommendations to support groups that would include children.I love my entire family so much and I know that God allowed these situations in our lives for a reason - but I also know He doesn't want us to struggle in confusion. Any advice would be appreciated (advice and encouragement but please no judgement). ThanksGet your email and more, right on the new Yahoo.com Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 Hi Sharon, I did some additional research on children on neurontin and he's within the acceptable range of the meds. It did concern me when I realized how much higher his dose was than mine. But it also made me wonder how bad must this Guillain-barre be? I did read a lot about the neurontin - not much was specifically menitoned about Guillain-barre but mostly about children with seizures. I think he might be sensitive to the poss. of depression from this. It mentions that children might develop depression. I keep telling them that he is depressed and they haven't changed his meds at all. I read that Guillain-barre is one of the one neurological diseases that are categorized as an emergency. So I am keeping a close eye on him. We are both taking our meds as prescribed now. It has also gave me incentive to use my neurontin regularly - especially after hearing how many of you feel better on the meds. Thanks for your insight. He was on this months before me - so I didn't have the experience with this med until now. Sharon Marsden wrote: Neurontin is one of those drugs that can't be suddenly changed as far as dosage. There is a big danger of seizures if the drug is stopped suddenly or the dosage is dropped suddenly. A person must wean off of Neurontin. I take 3200 mg. a day. I'm not sleepy from it at all and I don't think it makes me depressed. My depression has come and gone over the years and I'm sure it's not related to Neurontin. I know other people have the drowsy effect from Neurontin, though, so it's possible to have depression from it as well. hugs))Sharon (MSersLife Group Owner/Creator) It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant Looking for adviceHi Everyone,Our family is in need of some help. We have three children, 12, 10 and 21 months. Our son who is 10 was diagnosed with Guillian-barre this year and of course I have MS. Well, it has really come to my attention that we are all in our own ways struggling to deal with this. My 10 year old is in depression (I think somewhat from his neurontin, he's up to 3300 mg/day + topamax + carnitine). Our 12 year old who is wonderful is getting a little rough with our other son - which is now starting to lead my husband and I to think that he may be acting out a little. And of course, we are all dealing with a toddler. I know it is hard on my husband as well. He's our sole provider here and he hasn't ever joined in any support group for care-givers of those with MS. We've kinda been in denial I think over the past 15 years. Those of you who have read some of my posts know my situation about not having a confirmed diagnosis for 12 years and so on. So he's working on dealing with that and then to add to it his son now having something almost identical to me.Our older son is now entering jr high years and almost a teenager and that's a lot on it's own to deal with - but add the confusion of me and his brother sick and the attention we end up getting from being sick. Add to this that he has a moderate stuttering problem that we now will be starting speech therapy twice a week. We homeschool and are very open with our children and we all talk a lot. But I am thinking we might need some help as a family in dealing with how to cope and manage.I don't want anyone in our family to feel lost or less important or not know how to express their feelings.Any advice as to what we should do or any recommendations to support groups that would include children.I love my entire family so much and I know that God allowed these situations in our lives for a reason - but I also know He doesn't want us to struggle in confusion. Any advice would be appreciated (advice and encouragement but please no judgement). ThanksGet your email and more, right on the new Yahoo.com Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
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