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Re: Digest Number 635

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Unless your insurance company keeps notes in the computers about who called

and when...for example... mother states child's loss was genetic. Also if

you have all those genetic tests, which the insurance has paid for, which

say the deafness is or is not genetic. If you are going to be less than

truthful it could come back to bite you in the butt. My insurance company

knows when I called and who I talked to regarding claims, every time.

>From: LSVG@...

>Reply-To: Listen-Upegroups

>To: Listen-Upegroups

>Subject: Re: Digest Number 635

>Date: Thu, 17 Aug 2000 22:08:09 EDT

>

>In a message dated 8/17/00 2:42:52 PM Eastern Daylight Time,

>Listen-Upegroups writes:

>

><< Here's the lawyer side of me sneaking out -- unless you have a confirmed

>genetic blood test of the presence of a gene that is aboslutely

>inextricably

>linked with hearing loss, you can say that you don't know the source

>without

>lying.

>

> Sheri >>

>

>Oooo la la! I do love this thought! GO WITH IT DIANE! Don't give up! If

>all else fails, then maybe the media needs to hear about all these denial

>cases.

>

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In a message dated 8/17/00 2:42:52 PM Eastern Daylight Time,

Listen-Upegroups writes:

<< I called

back United Healthcare and they now tell me that they don't cover speech for

genetic hearing loss. They said that I can challenge the decision. >>

Diane,

One of the best weapons is to have your daughter's ENT write a letter stating

that the child needs INTENSIVE therapy in order for her to maximize the

potential her aids give her etc. etc. Have your SLP write a letter stating

PROGRESS that your daughter's been making and that by stopping therapy or

cutting down sessions, she will NOT continue to make this progress. I say

this because if there is progress, then it's working and they can't deny it.

If possible, have the audiologist send a letter stating the gains she has

with her aids and that speech production will happen with INTENSIVE.

I too went through this many years ago with my son. First it was a covered

expense. Then all of a sudden they told me that I shouldn't of been having

the therapy to begin with! I fought it with letters and all and they did

extend some therapy. KEEP FIGHTING! They are hoping you get tired of it.

It's so frustrating isn't it? It is time for us to write our politicians and

tell them that insurance companies are hurting our children by limiting

coverage in this area.

GOOD LUCK!

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In a message dated 8/17/00 2:42:52 PM Eastern Daylight Time,

Listen-Upegroups writes:

<< Here's the lawyer side of me sneaking out -- unless you have a confirmed

genetic blood test of the presence of a gene that is aboslutely inextricably

linked with hearing loss, you can say that you don't know the source without

lying.

Sheri >>

Oooo la la! I do love this thought! GO WITH IT DIANE! Don't give up! If

all else fails, then maybe the media needs to hear about all these denial

cases.

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I never really told them that her loss was genetic. The words I used this

week were binaural sensorneural hearing loss. The guy who answered the

phone had to ask a nurse what that meant. I doubt that he took notes.

By the way, my husband called yesterday and they agreed to twenty sessions a

year. I told him he has to keep going so that we get 50 a year. If the

insurance co pays for 50 and the school district provides for one hour a

week and we get back up for saturdays, then we should be ok. Its just that

at 100 per hour, we can't pay for 2 sessions a week.

I'll keep you posted on how the insurance shapes up.

diane

Re: Digest Number 635

>Date: Thu, 17 Aug 2000 22:08:09 EDT

>

>In a message dated 8/17/00 2:42:52 PM Eastern Daylight Time,

>Listen-Upegroups writes:

>

><< Here's the lawyer side of me sneaking out -- unless you have a confirmed

>genetic blood test of the presence of a gene that is aboslutely

>inextricably

>linked with hearing loss, you can say that you don't know the source

>without

>lying.

>

> Sheri >>

>

>Oooo la la! I do love this thought! GO WITH IT DIANE! Don't give up! If

>all else fails, then maybe the media needs to hear about all these denial

>cases.

>

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In a message dated 8/18/00 11:37:58 AM Eastern Daylight Time,

DGIORDANO@... writes:

> No, thats my point. I didn't go into connexin 26. I thought I'd save that.

> No one knows what it is anyway. I've mentioned it to doctors and have

> gotten blank stares.

>

They may not know, but they can ask! Was the testing done thru your

insurance? It may well be listed as genetic testing! I would drag out the

paperwork you got for the testing and see if it lists it anywhere on it.

A hearing loss due to Connexin 26 IS genetic!

Orla

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That doesnt mean it is genetic...does it?

Betty

> I never really told them that her loss was genetic. The words I used this

> week were binaural sensorneural hearing loss.

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No, thats my point. I didn't go into connexin 26. I thought I'd save that.

No one knows what it is anyway. I've mentioned it to doctors and have

gotten blank stares.

Re: Digest Number 635

That doesnt mean it is genetic...does it?

Betty

> I never really told them that her loss was genetic. The words I used this

> week were binaural sensorneural hearing loss.

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

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> By the way, my husband called yesterday and they agreed to twenty sessions

a

> year. I told him he has to keep going so that we get 50 a year.

Do you happen to be in Colorado? Recent changes in the law there now only

require insurance companies to pay for 20 visits a year (like they think

less than 1/2 hour a week is going to make a difference?

Good luck on the battle!

Kay

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we are in NY. I'm trying to find the state insurance law on this issue.

Re: Digest Number 635

> By the way, my husband called yesterday and they agreed to twenty sessions

a

> year. I told him he has to keep going so that we get 50 a year.

Do you happen to be in Colorado? Recent changes in the law there now only

require insurance companies to pay for 20 visits a year (like they think

less than 1/2 hour a week is going to make a difference?

Good luck on the battle!

Kay

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

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> If you are going to be less than

> truthful it could come back to bite you in the butt.

I agree with you . Be aware, everybody, that if your insurance company

decides down the road that they paid something in error (whether it was your

fault or not), you have to pay the money back to the insurance company. If

they determine that you intentionally misled them, then they could terminate

all your benefits.

Once again, if it were me, I would for a copy in writing of clarification of

the determination including how they determined the loss was genetic. My

thinking on this is actually that when he asked someone, they probably said

generic and the guy re-stated it as genetic. At any rate, either way, it

smacks of discrimination and a if you indeed get their policy in writing, a

complaint to your states agency that oversees insurance companies might be

in order.

Hugs,

Kay

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At 11:05 AM 8/18/00 -0400, you wrote:

>No, thats my point. I didn't go into connexin 26. I thought I'd save that.

>No one knows what it is anyway. I've mentioned it to doctors and have

>gotten blank stares.

If you had the test, though, isn't there a record of it with your ENT? Your

insurance company can get access to those records if they want to.

--kerri

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