Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 Oh Jen, Poor you! It is OK to complain. I know how hard it can be without being 8 months pregnant and having hot humid weather to boot. Is there anything Marissa particularly likes? Maybe you could keep giving the meal she likes most, to tide over this rough spot. Rohan easily takes 1 hour over breakfast. Sometimes he can be sick after that - all the while ketones are about 0.5. I hope Marissa decides to eat soon (remember her not sleeping) and you have a really easy delivery. Love & best wishes. Saro > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 Dear Jen: I FEEL THE SAME WAY A KAZILLION TIMES. But we must go on-It is impossible to explain to any-one (except us) what you go thru. Were you not the one who was trying to get me to try Yoga or meditation? I have missed you, where have you been. Especially since it seems like you had some complaining to do-why didn't you start earlier:-) Somedays it seems like we want the little ones to appreciate our part in the diet-CAN'T THEY SEE WHAT WE GO THROUGH, BUT NO THEY SAY YUCK AND CLENCH THEIR LITTLE TEETH AND WITHOUT THE JAWS OF LIFE-YOU AIN'T GONNA GET THAT FOOD IN THERE. And yes I spend 5 hours in the kitchen daily-I actually think I am developing vericose veins from standing-but may-be we could invent a keto rolling stool that we could coast around the kitchen on, with a soft seat and backrest. You couldn't hire someone to do your job-nor mine or any of the fabulous amazing women and ((men)) ((since its father's day, and I must assume that some of the ladies get help from their husbands)) Jen you must go on and I know you will, their will be better days to come Hugs Diane Just complaining > I am so FED UP with this diet. I know that is an incredibly stupid thing to > say, when you look at the fact the Marissa has been med free for a year and > seizure free for three months. Sometimes, like right now, I feel like I > can't handle it one more minute. Marissa has been in a stage for the last > two weeks where she spits every bite I give her right back out. It takes an > hour to get one meal down. I know I'm supposed to get it done in 20 > minutes, but honestly, it doesn't seem to make a difference and if I did > that, she would never get any food. It's also been really hot and humid > (which certainly doesn't help my patience level, especially being 8 months > pregnant) and she refuses to drink. So I do sugar free jello (stevia > sweetened), which is even more fun to spit out than other food apparently > because she really cracks up when she does it. Can't use a syringe, comes > right back out no matter where in her mouth I put it. Can't use a sippy > cup, she pinches her lips together so tight no way is anything gonna get in > there. So I figure with all the meal planning and preparing and ratio > adjusting and feeding, I spend about 5 hours every day doing nothing but the > stupid keto diet. And probably an hour either crying or on the verge of > tears. We were promised some nursing care last fall, which would certainly > come in handy now, but we are now on our third agency and either no one is > available, or the person scheduled doesn't show up, or they send us someone > totally incompetent. Like the last nurse, who fed Marissa everything but > the oil. Thank god I was watching when she went to dump it out! > I just don't want to do it anymore. I want everything to just be OK all by > itself. > I know I sound like a big baby. That's what I feel like right now. Please > please tell me I'm not the only one that feels like this sometimes. > Love > Jen- Proud mommy to Marissa (3 1/2 Years old, Cortical Dysplasia, > intractable epilepsy, cerebral palsy, keto kid since 12/99, med free since > 6/2000, the light of my life), (21 months, the other light of my > life), and New Baby due August 15, 2001:o) > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 Dear Jen: I FEEL THE SAME WAY A KAZILLION TIMES. But we must go on-It is impossible to explain to any-one (except us) what you go thru. Were you not the one who was trying to get me to try Yoga or meditation? I have missed you, where have you been. Especially since it seems like you had some complaining to do-why didn't you start earlier:-) Somedays it seems like we want the little ones to appreciate our part in the diet-CAN'T THEY SEE WHAT WE GO THROUGH, BUT NO THEY SAY YUCK AND CLENCH THEIR LITTLE TEETH AND WITHOUT THE JAWS OF LIFE-YOU AIN'T GONNA GET THAT FOOD IN THERE. And yes I spend 5 hours in the kitchen daily-I actually think I am developing vericose veins from standing-but may-be we could invent a keto rolling stool that we could coast around the kitchen on, with a soft seat and backrest. You couldn't hire someone to do your job-nor mine or any of the fabulous amazing women and ((men)) ((since its father's day, and I must assume that some of the ladies get help from their husbands)) Jen you must go on and I know you will, their will be better days to come Hugs Diane Just complaining > I am so FED UP with this diet. I know that is an incredibly stupid thing to > say, when you look at the fact the Marissa has been med free for a year and > seizure free for three months. Sometimes, like right now, I feel like I > can't handle it one more minute. Marissa has been in a stage for the last > two weeks where she spits every bite I give her right back out. It takes an > hour to get one meal down. I know I'm supposed to get it done in 20 > minutes, but honestly, it doesn't seem to make a difference and if I did > that, she would never get any food. It's also been really hot and humid > (which certainly doesn't help my patience level, especially being 8 months > pregnant) and she refuses to drink. So I do sugar free jello (stevia > sweetened), which is even more fun to spit out than other food apparently > because she really cracks up when she does it. Can't use a syringe, comes > right back out no matter where in her mouth I put it. Can't use a sippy > cup, she pinches her lips together so tight no way is anything gonna get in > there. So I figure with all the meal planning and preparing and ratio > adjusting and feeding, I spend about 5 hours every day doing nothing but the > stupid keto diet. And probably an hour either crying or on the verge of > tears. We were promised some nursing care last fall, which would certainly > come in handy now, but we are now on our third agency and either no one is > available, or the person scheduled doesn't show up, or they send us someone > totally incompetent. Like the last nurse, who fed Marissa everything but > the oil. Thank god I was watching when she went to dump it out! > I just don't want to do it anymore. I want everything to just be OK all by > itself. > I know I sound like a big baby. That's what I feel like right now. Please > please tell me I'm not the only one that feels like this sometimes. > Love > Jen- Proud mommy to Marissa (3 1/2 Years old, Cortical Dysplasia, > intractable epilepsy, cerebral palsy, keto kid since 12/99, med free since > 6/2000, the light of my life), (21 months, the other light of my > life), and New Baby due August 15, 2001:o) > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2001 Report Share Posted June 20, 2001 Diane, Yeah, I'm the one that does meditation and yoga. But I have to admit that I have not been doing either like I should. And boy, can I tell. Plus I tend to get irritable when I get to the end of my pregnancies anyway, and it's so hard to get myself to do anything at all, let alone yoga. Of course, once I start, it's wonderful. I really don't always feel like complaining, just had to get it off my chest that time. I've not been on line as much as I would like, either. When I'm already feeling overwhelmed, opening my mailbox to 300 new messages or so is a bit overwhelming!) Hopefully after this baby comes I will feel more up to it. Can I have one of those keto rolling stools? You could make a lot of money with those!! Thanks for the response, it's really good to hear from you:o) Ever start the meditation thing? Love Jen _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2001 Report Share Posted June 20, 2001 Diane, Yeah, I'm the one that does meditation and yoga. But I have to admit that I have not been doing either like I should. And boy, can I tell. Plus I tend to get irritable when I get to the end of my pregnancies anyway, and it's so hard to get myself to do anything at all, let alone yoga. Of course, once I start, it's wonderful. I really don't always feel like complaining, just had to get it off my chest that time. I've not been on line as much as I would like, either. When I'm already feeling overwhelmed, opening my mailbox to 300 new messages or so is a bit overwhelming!) Hopefully after this baby comes I will feel more up to it. Can I have one of those keto rolling stools? You could make a lot of money with those!! Thanks for the response, it's really good to hear from you:o) Ever start the meditation thing? Love Jen _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2001 Report Share Posted June 21, 2001 Dear Jen: No....I did try the meditation thing, but I never get more than a moment without someone yelling, MOM...You know what I mean-but I have looked at some books and videos on it-and I have plans for one day... I'll start working on that Chair-I might need Auto-Cad to design it properly-might take me awhile and every-one will be off of the diet by then;-( Hugs & tons of strength( just like you sent me before) Diane Re: Just complaining > Diane, > Yeah, I'm the one that does meditation and yoga. But I have to admit that I > have not been doing either like I should. And boy, can I tell. Plus I tend > to get irritable when I get to the end of my pregnancies anyway, and it's so > hard to get myself to do anything at all, let alone yoga. Of course, once I > start, it's wonderful. > I really don't always feel like complaining, just had to get it off my chest > that time. > I've not been on line as much as I would like, either. When I'm already > feeling overwhelmed, opening my mailbox to 300 new messages or so is a bit > overwhelming!) Hopefully after this baby comes I will feel more up to it. > Can I have one of those keto rolling stools? You could make a lot of money > with those!! > Thanks for the response, it's really good to hear from you:o) > Ever start the meditation thing? > Love > Jen > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
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