Guest guest Posted June 15, 2001 Report Share Posted June 15, 2001 ----- Original Message ----- > I am so FED UP with this diet. > ............ > I just don't want to do it anymore. I want everything to just be OK all by > itself. > I know I sound like a big baby. That's what I feel like right now. Please > please tell me I'm not the only one that feels like this sometimes. Jen, This was passed on from another list today and when I read your post I thought it might help, not in a practical way, but just to know that someone identifies with your struggle. Hannah is 100% tube fed which makes my struggle to feed so much less than yours, but there are days when I am so sick of the impact that the diet has on our life that I consider dropping it. They are the days when she is too ketotic and vomiting, the days when she is unwell and I am limited in the regular meds that I can use to relieve her symptoms, the routine of having to split all her meals into three portions and the time that takes and the impact it has on our family time and routine. All these things and more make me want to give up at times, and I am so aware that others such as yourself have it much much harder than I do in some ways. Quite frankly I take my hat off to you for sticking at it so long. Sending love and hugs to you, and to all of those who are struggling with any of this keto life. (Hannah's mum, Australia) -x-x-x-x-x-x-x-x-x-x-x-x-x-x-x-x-x-x-x- STRENGTH We don't always have to be strong to be strong. Sometimes our strength is expressed in being vulnerable. Sometimes we need to fall apart to regroup and stay on track. We all have days when we cannot push any harder, cannot hold back self-doubt, cannot stop focusing on fear, cannot be strong. There are days when we cannot focus on being responsible. Occasionally, we don't want to get out of our pajamas. Sometimes we cry in front of people. We expose our tiredness, irritability, or anger. Those days are okay. They are just okay. Part of taking care of ourselves means we give ourselves permission to " fall apart " when we need to. We do not need to be perpetual towers of strength. We ARE strong. We have proven that. Our strength will continue if we allow ourselves the courage to feel scared, weak, and vulnerable when we need to experience those feelings. Today, help me to know that is it okay to allow myself to be human. Help me not to feel guilty or punish myself when I need to " fall apart. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2001 Report Share Posted June 15, 2001 ----- Original Message ----- > I am so FED UP with this diet. > ............ > I just don't want to do it anymore. I want everything to just be OK all by > itself. > I know I sound like a big baby. That's what I feel like right now. Please > please tell me I'm not the only one that feels like this sometimes. Jen, This was passed on from another list today and when I read your post I thought it might help, not in a practical way, but just to know that someone identifies with your struggle. Hannah is 100% tube fed which makes my struggle to feed so much less than yours, but there are days when I am so sick of the impact that the diet has on our life that I consider dropping it. They are the days when she is too ketotic and vomiting, the days when she is unwell and I am limited in the regular meds that I can use to relieve her symptoms, the routine of having to split all her meals into three portions and the time that takes and the impact it has on our family time and routine. All these things and more make me want to give up at times, and I am so aware that others such as yourself have it much much harder than I do in some ways. Quite frankly I take my hat off to you for sticking at it so long. Sending love and hugs to you, and to all of those who are struggling with any of this keto life. (Hannah's mum, Australia) -x-x-x-x-x-x-x-x-x-x-x-x-x-x-x-x-x-x-x- STRENGTH We don't always have to be strong to be strong. Sometimes our strength is expressed in being vulnerable. Sometimes we need to fall apart to regroup and stay on track. We all have days when we cannot push any harder, cannot hold back self-doubt, cannot stop focusing on fear, cannot be strong. There are days when we cannot focus on being responsible. Occasionally, we don't want to get out of our pajamas. Sometimes we cry in front of people. We expose our tiredness, irritability, or anger. Those days are okay. They are just okay. Part of taking care of ourselves means we give ourselves permission to " fall apart " when we need to. We do not need to be perpetual towers of strength. We ARE strong. We have proven that. Our strength will continue if we allow ourselves the courage to feel scared, weak, and vulnerable when we need to experience those feelings. Today, help me to know that is it okay to allow myself to be human. Help me not to feel guilty or punish myself when I need to " fall apart. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2001 Report Share Posted June 15, 2001 Jen... Sev has eating issues as well...BOY do I get tired to trying to feed him sometimes!!!!! I know all too well the nothings gonna get through, pinched lip tactic! When he's sick, I spend a RIDICULOUS amount of time even keeping him hydrated, much less eating his keto meals! So in short....NO YOU SHOULD NOT FEEL ALONE!!!! This diet makes me insane somedays...like really " I need a rubber room " insane! But, it's the best thing we have going, so I stick with it and then head for the jacuzzi! Nan ----Original Message Follows---- Reply-To: ketogenic To: ketogenic Subject: Just complaining Date: Fri, 15 Jun 2001 18:48:28 -0400 I am so FED UP with this diet. I know that is an incredibly stupid thing to say, when you look at the fact the Marissa has been med free for a year and seizure free for three months. Sometimes, like right now, I feel like I can't handle it one more minute. Marissa has been in a stage for the last two weeks where she spits every bite I give her right back out. It takes an hour to get one meal down. I know I'm supposed to get it done in 20 minutes, but honestly, it doesn't seem to make a difference and if I did that, she would never get any food. It's also been really hot and humid (which certainly doesn't help my patience level, especially being 8 months pregnant) and she refuses to drink. So I do sugar free jello (stevia sweetened), which is even more fun to spit out than other food apparently because she really cracks up when she does it. Can't use a syringe, comes right back out no matter where in her mouth I put it. Can't use a sippy cup, she pinches her lips together so tight no way is anything gonna get in there. So I figure with all the meal planning and preparing and ratio adjusting and feeding, I spend about 5 hours every day doing nothing but the stupid keto diet. And probably an hour either crying or on the verge of tears. We were promised some nursing care last fall, which would certainly come in handy now, but we are now on our third agency and either no one is available, or the person scheduled doesn't show up, or they send us someone totally incompetent. Like the last nurse, who fed Marissa everything but the oil. Thank god I was watching when she went to dump it out! I just don't want to do it anymore. I want everything to just be OK all by itself. I know I sound like a big baby. That's what I feel like right now. Please please tell me I'm not the only one that feels like this sometimes. Love Jen- Proud mommy to Marissa (3 1/2 Years old, Cortical Dysplasia, intractable epilepsy, cerebral palsy, keto kid since 12/99, med free since 6/2000, the light of my life), (21 months, the other light of my life), and New Baby due August 15, 2001:o) _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 Jen- know that you are not alone! THere is not a day goes by that I am not so thankful for the diet and all it has done for Brittany but wow.... it is really hard!! I think when this is all over I will never cook again!!! For a diet that is all about limiting foods- it seems all we do is think of what the next meal is for the day!! I am hoping things improve for you but keep the faith- as my husband keeps telling me- remember the big picture!! ( Hard to do when they are spitting food at you!!) Hopefully you will get some cooler weather too= if just for a day= it's hard to be pregnant in the middle of the summer!!! = mom to Brittany= ketokid 1/29/01 - seizure and med free Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 " GAVAN J. CANAVAN " wrote: > Jen, > This was passed on from another list today and when I read your post I > thought it might help, not in a practical way, but just to know that someone > identifies with your struggle. Definitely a keeper for the files sections, don't you think? > STRENGTH > > We don't always have to be strong to be strong. > Sometimes our strength is expressed in being vulnerable. > Sometimes we need to fall apart to regroup and stay on track. > We all have days when we cannot push any harder, cannot hold back > self-doubt, cannot stop focusing on fear, cannot be strong. > There are days when we cannot focus on being responsible. > Occasionally, we don't want to get out of our pajamas. > Sometimes we cry in front of people. > We expose our tiredness, irritability, or anger. > Those days are okay. > They are just okay. > Part of taking care of ourselves means we give ourselves permission to " fall > apart " when we need to. > We do not need to be perpetual towers of strength. > We ARE strong. > We have proven that. > Our strength will continue if we allow ourselves the courage to feel scared, > weak, and vulnerable when we need to experience those feelings. > Today, help me to know that is it okay to allow myself to be human. > Help me not to feel guilty or punish myself when I need to " fall apart. " > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 Jen, This may be incredibly dumb on my part to suggest, but does Marissa like to drink from a straw? Especially one of those curly, color- changing straws? Lucas is tube-fed, so I don't have to work at getting him to take his food, but I remember my girls LOVED to drink juice or milk from those funky straws. They always said they weren't thirsty until I got out the straws, but then suddenly they were parched! Maybe that would be worth a try? Even though Lucas is tube-fed, which simplifies his meals and feedings, I still get frustrated too, dealing with ketone fluctuations and wondering what is going on with them. You're definitely not alone! I hope things settle down for you soon. I'm sure this stage will pass. Take care! Heidi >Can't use a syringe, comes > right back out no matter where in her mouth I put it. Can't use a sippy > cup, she pinches her lips together so tight no way is anything gonna get in > there. > Love > Jen- Proud mommy to Marissa (3 1/2 Years old, Cortical Dysplasia, > intractable epilepsy, cerebral palsy, keto kid since 12/99, med free since > 6/2000, the light of my life), (21 months, the other light of my > life), and New Baby due August 15, 2001:o) > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 ... I've added the 'Strength' essay to the inspirational writings folder... thanks for sharing it! http://groups.yahoo.com/group/ketogenic/files Nan _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 I'm so glad no one told me what a bad mom I am. I wished I hadn't posted after I sent it because I realized it sounded like I was doing a terrible job as a mommy. But I feel better after reading the replies. Thank you all so much for letting me know I am not alone. Love Jen _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 , yeah, we probably have it harder in some ways, and you probably have it harder in other ways. I bet it's a tie:o) I completely identify with the throwing up thing. Marissa vomits at least four days a week because ketones are too high. Then they get too low and we do it again. Fun fun fun. It really is worth it, though. If I could only skip over days like I had yesterday. It's never even anything specific that happens, it's just me feeling like I've reached the end of my rope. Then I have my mini crisis and everything goes back to normal. Such is life, I guess. Thanks so much for posting " Strength " . I cried when I read it, but in a good way. It felt very cleansing. Love en > >Reply-To: ketogenic >To: <ketogenic > >Subject: Re: Just complaining >Date: Sat, 16 Jun 2001 10:33:23 +1000 > >----- Original Message ----- > > > I am so FED UP with this diet. > > ............ > > I just don't want to do it anymore. I want everything to just be OK all >by > > itself. > > I know I sound like a big baby. That's what I feel like right now. >Please > > please tell me I'm not the only one that feels like this sometimes. > >Jen, > This was passed on from another list today and when I read your post I >thought it might help, not in a practical way, but just to know that >someone >identifies with your struggle. Hannah is 100% tube fed which makes my >struggle to feed so much less than yours, but there are days when I am so >sick of the impact that the diet has on our life that I consider dropping >it. They are the days when she is too ketotic and vomiting, the days when >she is unwell and I am limited in the regular meds that I can use to >relieve >her symptoms, the routine of having to split all her meals into three >portions and the time that takes and the impact it has on our family time >and routine. All these things and more make me want to give up at times, >and >I am so aware that others such as yourself have it much much harder than I >do in some ways. Quite frankly I take my hat off to you for sticking at it >so long. > Sending love and hugs to you, and to all of those who are struggling >with any of this keto life. > (Hannah's mum, Australia) >-x-x-x-x-x-x-x-x-x-x-x-x-x-x-x-x-x-x-x- > >STRENGTH > >We don't always have to be strong to be strong. >Sometimes our strength is expressed in being vulnerable. >Sometimes we need to fall apart to regroup and stay on track. >We all have days when we cannot push any harder, cannot hold back >self-doubt, cannot stop focusing on fear, cannot be strong. >There are days when we cannot focus on being responsible. >Occasionally, we don't want to get out of our pajamas. >Sometimes we cry in front of people. >We expose our tiredness, irritability, or anger. >Those days are okay. >They are just okay. >Part of taking care of ourselves means we give ourselves permission to > " fall >apart " when we need to. >We do not need to be perpetual towers of strength. >We ARE strong. >We have proven that. >Our strength will continue if we allow ourselves the courage to feel >scared, >weak, and vulnerable when we need to experience those feelings. >Today, help me to know that is it okay to allow myself to be human. >Help me not to feel guilty or punish myself when I need to " fall apart. " > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 Heidi, The straw is a really good idea, but I can't get Marissa to understand how to use one. She loves to play with them, though:o) I might try it with my toddler, though. Maybe I can get her to drink something besides rice milk. Thanks! Love Jen >From: heididoe@... >Reply-To: ketogenic >To: ketogenic >Subject: Re: Just complaining >Date: Sat, 16 Jun 2001 13:57:52 -0000 > >Jen, > >This may be incredibly dumb on my part to suggest, but does Marissa >like to drink from a straw? Especially one of those curly, color- >changing straws? Lucas is tube-fed, so I don't have to work at >getting him to take his food, but I remember my girls LOVED to drink >juice or milk from those funky straws. They always said they weren't >thirsty until I got out the straws, but then suddenly they were >parched! Maybe that would be worth a try? > >Even though Lucas is tube-fed, which simplifies his meals and >feedings, I still get frustrated too, dealing with ketone >fluctuations and wondering what is going on with them. You're >definitely not alone! I hope things settle down for you soon. I'm >sure this stage will pass. Take care! > >Heidi > > > >Can't use a syringe, comes > > right back out no matter where in her mouth I put it. Can't use a >sippy > > cup, she pinches her lips together so tight no way is anything >gonna get in > > there. > Love > > Jen- Proud mommy to Marissa (3 1/2 Years old, Cortical Dysplasia, > > intractable epilepsy, cerebral palsy, keto kid since 12/99, med >free since > > 6/2000, the light of my life), (21 months, the other light of >my > > life), and New Baby due August 15, 2001:o) > > > > _________________________________________________________________ > > Get your FREE download of MSN Explorer at http://explorer.msn.com > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 Nan, Oooooooohhhhhhh, can I borrow your jacuzzi? Is it common for keto kids to not want liquids? It seems so wierd, but Marissa doesn't like to stay hydrated either. Thanks! Love Jen > >Reply-To: ketogenic >To: ketogenic >Subject: Re: Just complaining >Date: Fri, 15 Jun 2001 21:03:27 -0600 > >Jen... > >Sev has eating issues as well...BOY do I get tired to trying to feed him >sometimes!!!!! I know all too well the nothings gonna get through, pinched >lip tactic! When he's sick, I spend a RIDICULOUS amount of time even >keeping him hydrated, much less eating his keto meals! So in short....NO >YOU SHOULD NOT FEEL ALONE!!!! This diet makes me insane somedays...like >really " I need a rubber room " insane! But, it's the best thing we have >going, so I stick with it and then head for the jacuzzi! Nan > >----Original Message Follows---- > >Reply-To: ketogenic >To: ketogenic >Subject: Just complaining >Date: Fri, 15 Jun 2001 18:48:28 -0400 > >I am so FED UP with this diet. I know that is an incredibly stupid thing >to >say, when you look at the fact the Marissa has been med free for a year and >seizure free for three months. Sometimes, like right now, I feel like I >can't handle it one more minute. Marissa has been in a stage for the last >two weeks where she spits every bite I give her right back out. It takes >an >hour to get one meal down. I know I'm supposed to get it done in 20 >minutes, but honestly, it doesn't seem to make a difference and if I did >that, she would never get any food. It's also been really hot and humid >(which certainly doesn't help my patience level, especially being 8 months >pregnant) and she refuses to drink. So I do sugar free jello (stevia >sweetened), which is even more fun to spit out than other food apparently >because she really cracks up when she does it. Can't use a syringe, comes >right back out no matter where in her mouth I put it. Can't use a sippy >cup, she pinches her lips together so tight no way is anything gonna get in >there. So I figure with all the meal planning and preparing and ratio >adjusting and feeding, I spend about 5 hours every day doing nothing but >the >stupid keto diet. And probably an hour either crying or on the verge of >tears. We were promised some nursing care last fall, which would certainly >come in handy now, but we are now on our third agency and either no one is >available, or the person scheduled doesn't show up, or they send us someone >totally incompetent. Like the last nurse, who fed Marissa everything but >the oil. Thank god I was watching when she went to dump it out! >I just don't want to do it anymore. I want everything to just be OK all by >itself. >I know I sound like a big baby. That's what I feel like right now. Please >please tell me I'm not the only one that feels like this sometimes. >Love >Jen- Proud mommy to Marissa (3 1/2 Years old, Cortical Dysplasia, >intractable epilepsy, cerebral palsy, keto kid since 12/99, med free since >6/2000, the light of my life), (21 months, the other light of my >life), and New Baby due August 15, 2001:o) > >_________________________________________________________________ >Get your FREE download of MSN Explorer at http://explorer.msn.com > > >_________________________________________________________________ >Get your FREE download of MSN Explorer at http://explorer.msn.com > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 , I know what you mean, I'm planning on bombing the food scale when we're done. The rest of the family usually doesn't get very good meals right now because I am so sick and tired of being in the kitchen all day. Today is a tiny bit cooler and a lot less humid, so I'm feeling a little more positive. Love Jen >From: rywilbrit@... >Reply-To: ketogenic >To: ketogenic >Subject: Re: Just complaining >Date: Sat, 16 Jun 2001 07:35:17 EDT > >Jen- know that you are not alone! THere is not a day goes by that I am not >so >thankful for the diet and all it has done for Brittany but wow.... it is >really hard!! I think when this is all over I will never cook again!!! For >a >diet that is all about limiting foods- it seems all we do is think of what >the next meal is for the day!! I am hoping things improve for you but keep >the faith- as my husband keeps telling me- remember the big picture!! ( >Hard >to do when they are spitting food at you!!) Hopefully you will get some >cooler weather too= if just for a day= it's hard to be pregnant in the >middle >of the summer!!! > >= mom to Brittany= ketokid 1/29/01 - seizure and med free _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 Jen- When we started Savanna had lots of eating problems-loved to spit the food out etc. We used all sorts of tactics and even had to go to holding her mouth shut and pinching her nose until she swallowed-BOY could she hold food in her mouth for a long time. Eventually she got to the point where she will almost always eat/drink at meal time. Try making some freezer pops with keto-koolaid. I even have the kids save the plastic tubes from the regular freezer pops so Savanna thinks she's getting the same as them. Yesterday she ate 7 of them in a row- We've also used a turkey baster and make believe that she's a bird--takes a long time to get 7 oz. in but it was fun to her. If you're close enough you can come and use the hot tub anytime!! (only problem is Savanna also loves that) Kathy/WI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 Jen... Anytime!!!! You'll have to scootch in with Ran and I though...it's the only 'date' we ever get anymore! I HIGHLY recommend everyone buying one...with a child with special needs, getting out and having time alone is such a big important deal. A jucuzzi is an instant date when the kids go to bed. Our is right outside our bedroom window, so we can crack the window and see and hear Sev as were soaking! So though we're home most of the time, we feel like we have special time. Nan ----Original Message Follows---- Reply-To: ketogenic To: ketogenic Subject: Re: Just complaining Date: Sat, 16 Jun 2001 17:14:37 -0400 Nan, Oooooooohhhhhhh, can I borrow your jacuzzi? Is it common for keto kids to not want liquids? It seems so wierd, but Marissa doesn't like to stay hydrated either. Thanks! Love Jen > >Reply-To: ketogenic >To: ketogenic >Subject: Re: Just complaining >Date: Fri, 15 Jun 2001 21:03:27 -0600 > >Jen... > >Sev has eating issues as well...BOY do I get tired to trying to feed him >sometimes!!!!! I know all too well the nothings gonna get through, pinched >lip tactic! When he's sick, I spend a RIDICULOUS amount of time even >keeping him hydrated, much less eating his keto meals! So in short....NO >YOU SHOULD NOT FEEL ALONE!!!! This diet makes me insane somedays...like >really " I need a rubber room " insane! But, it's the best thing we have >going, so I stick with it and then head for the jacuzzi! Nan > >----Original Message Follows---- > >Reply-To: ketogenic >To: ketogenic >Subject: Just complaining >Date: Fri, 15 Jun 2001 18:48:28 -0400 > >I am so FED UP with this diet. I know that is an incredibly stupid thing >to >say, when you look at the fact the Marissa has been med free for a year and >seizure free for three months. Sometimes, like right now, I feel like I >can't handle it one more minute. Marissa has been in a stage for the last >two weeks where she spits every bite I give her right back out. It takes >an >hour to get one meal down. I know I'm supposed to get it done in 20 >minutes, but honestly, it doesn't seem to make a difference and if I did >that, she would never get any food. It's also been really hot and humid >(which certainly doesn't help my patience level, especially being 8 months >pregnant) and she refuses to drink. So I do sugar free jello (stevia >sweetened), which is even more fun to spit out than other food apparently >because she really cracks up when she does it. Can't use a syringe, comes >right back out no matter where in her mouth I put it. Can't use a sippy >cup, she pinches her lips together so tight no way is anything gonna get in >there. So I figure with all the meal planning and preparing and ratio >adjusting and feeding, I spend about 5 hours every day doing nothing but >the >stupid keto diet. And probably an hour either crying or on the verge of >tears. We were promised some nursing care last fall, which would certainly >come in handy now, but we are now on our third agency and either no one is >available, or the person scheduled doesn't show up, or they send us someone >totally incompetent. Like the last nurse, who fed Marissa everything but >the oil. Thank god I was watching when she went to dump it out! >I just don't want to do it anymore. I want everything to just be OK all by >itself. >I know I sound like a big baby. That's what I feel like right now. Please >please tell me I'm not the only one that feels like this sometimes. >Love >Jen- Proud mommy to Marissa (3 1/2 Years old, Cortical Dysplasia, >intractable epilepsy, cerebral palsy, keto kid since 12/99, med free since >6/2000, the light of my life), (21 months, the other light of my >life), and New Baby due August 15, 2001:o) > >_________________________________________________________________ >Get your FREE download of MSN Explorer at http://explorer.msn.com > > >_________________________________________________________________ >Get your FREE download of MSN Explorer at http://explorer.msn.com > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 Just to add a little levity here. . .the first couple months I was so absorbed with 's meals that I just did very simple meals -- marinate some chicken and stick it in the oven, stir frys -- stuff that could just literally be thrown together. I remember the first time I made a real meal, from a real recipe. . . I literally felt a little baffled by measuring spoons and teaspoons. . . I was so used to a scale and grams! My husband walked through the kitchen and asked me what was wrong. . .and I just stared through him saying I'd forgotten how to cook "normally"! Jen -- As for your issue with Marissa . . . we've been relatively lucky, except when 's got a virus. . .then all bets are off. She really doesn't want to drink then (and drinking is really never a problem with her). . . so I'm wondering if Patti's comment about dehydration isn't pretty close to home. It could be a viscious cycle. Also, I don't remember what ratio Marissa is on, but when was on 4.0 we had lots of battles. We're only down to 3.8, but there's a huge difference. One more thing -- when 's sick, the cream is really tough to get in her (that's an understatement. . .it's impossible!). This last virus go-around I figured out that I could make some meals without the cream. It's a ton of mayo and oil -- but if I make it up as chicken salad or something like that it seems to work out okay. Sounds like you're beyond that with Marissa, but maybe you could try something similar? Thinking of you!--D *** I'm planning on bombing the food scale when we're done. The rest of the family usually doesn't get very good meals right now because I am so sick and tired of being in the kitchen all day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 Jen: I'm sure you'll get other messages as well (probably already have), but since I'm just reading this on Sunday morning this is my first oportunity. You are NOT alone in your feelings of frustration. I certainly feel the same many times. I'm sure we've all been there. Sometimes it just seems easier to give it all up, but then we try to remember why we're doing this in the first place. Keep up the good work! _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 Kathy, Well, I live in Michigan, so I guess I could zip over in 5 to 10 hours depending on where in WI you live:o) I haven't tried koolaid pops for a while. Since it's pretty warm, maybe they would go over well. Love Jen > >Reply-To: ketogenic >To: <ketogenic > >Subject: Re: Just complaining >Date: Sat, 16 Jun 2001 16:57:06 -0500 > >Jen- >When we started Savanna had lots of eating problems-loved to spit the food >out etc. We used all sorts of tactics and even had to go to holding her >mouth shut and pinching her nose until she swallowed-BOY could she hold >food in her mouth for a long time. Eventually she got to the point where >she will almost always eat/drink at meal time. Try making some freezer >pops with keto-koolaid. I even have the kids save the plastic tubes from >the regular freezer pops so Savanna thinks she's getting the same as them. >Yesterday she ate 7 of them in a row- We've also used a turkey baster and >make believe that she's a bird--takes a long time to get 7 oz. in but it >was fun to her. If you're close enough you can come and use the hot tub >anytime!! (only problem is Savanna also loves that) > >Kathy/WI _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 Kathy, Well, I live in Michigan, so I guess I could zip over in 5 to 10 hours depending on where in WI you live:o) I haven't tried koolaid pops for a while. Since it's pretty warm, maybe they would go over well. Love Jen > >Reply-To: ketogenic >To: <ketogenic > >Subject: Re: Just complaining >Date: Sat, 16 Jun 2001 16:57:06 -0500 > >Jen- >When we started Savanna had lots of eating problems-loved to spit the food >out etc. We used all sorts of tactics and even had to go to holding her >mouth shut and pinching her nose until she swallowed-BOY could she hold >food in her mouth for a long time. Eventually she got to the point where >she will almost always eat/drink at meal time. Try making some freezer >pops with keto-koolaid. I even have the kids save the plastic tubes from >the regular freezer pops so Savanna thinks she's getting the same as them. >Yesterday she ate 7 of them in a row- We've also used a turkey baster and >make believe that she's a bird--takes a long time to get 7 oz. in but it >was fun to her. If you're close enough you can come and use the hot tub >anytime!! (only problem is Savanna also loves that) > >Kathy/WI _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 Kathy, Well, I live in Michigan, so I guess I could zip over in 5 to 10 hours depending on where in WI you live:o) I haven't tried koolaid pops for a while. Since it's pretty warm, maybe they would go over well. Love Jen > >Reply-To: ketogenic >To: <ketogenic > >Subject: Re: Just complaining >Date: Sat, 16 Jun 2001 16:57:06 -0500 > >Jen- >When we started Savanna had lots of eating problems-loved to spit the food >out etc. We used all sorts of tactics and even had to go to holding her >mouth shut and pinching her nose until she swallowed-BOY could she hold >food in her mouth for a long time. Eventually she got to the point where >she will almost always eat/drink at meal time. Try making some freezer >pops with keto-koolaid. I even have the kids save the plastic tubes from >the regular freezer pops so Savanna thinks she's getting the same as them. >Yesterday she ate 7 of them in a row- We've also used a turkey baster and >make believe that she's a bird--takes a long time to get 7 oz. in but it >was fun to her. If you're close enough you can come and use the hot tub >anytime!! (only problem is Savanna also loves that) > >Kathy/WI _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 DeEtte, Actually Marissa has a gluten and dairy allergy, so no cream for any of her meals. You're right, it is a ton of mayo or oil. It took her a while to get used to the volume. Her ratio is usually 2:1 for breakfast and lunch and 1.8:1 for dinner. Although last night her urine ketones were barely showing small, so we went up to 2.5 and this morning 2.3. I have no idea what goes on with her ketones. They fluctuate like mad. Love Jen > >Reply-To: ketogenic >To: " 'ketogenic ' " <ketogenic > >Subject: RE: Just complaining >Date: Sat, 16 Jun 2001 21:55:56 -0700 > >Just to add a little levity here. . .the first couple months I was so >absorbed with 's meals that I just did very simple meals -- marinate >some chicken and stick it in the oven, stir frys -- stuff that could just >literally be thrown together. I remember the first time I made a real >meal, >from a real recipe. . . I literally felt a little baffled by measuring >spoons and teaspoons. . . I was so used to a scale and grams! My husband >walked through the kitchen and asked me what was wrong. . .and I just >stared >through him saying I'd forgotten how to cook " normally " ! > >Jen -- As for your issue with Marissa . . . we've been relatively lucky, >except when 's got a virus. . .then all bets are off. She really >doesn't want to drink then (and drinking is really never a problem with >her). . . so I'm wondering if Patti's comment about dehydration isn't >pretty >close to home. It could be a viscious cycle. Also, I don't remember what >ratio Marissa is on, but when was on 4.0 we had lots of battles. >We're >only down to 3.8, but there's a huge difference. One more thing -- when >'s sick, the cream is really tough to get in her (that's an >understatement. . .it's impossible!). This last virus go-around I figured >out that I could make some meals without the cream. It's a ton of mayo and >oil -- but if I make it up as chicken salad or something like that it seems >to work out okay. Sounds like you're beyond that with Marissa, but maybe >you could try something similar? > >Thinking of you!--D > >*** > >I'm planning on bombing the food scale when we're >done. The rest of the family usually doesn't get very good meals right now >because I am so sick and tired of being in the kitchen all day. > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 DeEtte, Actually Marissa has a gluten and dairy allergy, so no cream for any of her meals. You're right, it is a ton of mayo or oil. It took her a while to get used to the volume. Her ratio is usually 2:1 for breakfast and lunch and 1.8:1 for dinner. Although last night her urine ketones were barely showing small, so we went up to 2.5 and this morning 2.3. I have no idea what goes on with her ketones. They fluctuate like mad. Love Jen > >Reply-To: ketogenic >To: " 'ketogenic ' " <ketogenic > >Subject: RE: Just complaining >Date: Sat, 16 Jun 2001 21:55:56 -0700 > >Just to add a little levity here. . .the first couple months I was so >absorbed with 's meals that I just did very simple meals -- marinate >some chicken and stick it in the oven, stir frys -- stuff that could just >literally be thrown together. I remember the first time I made a real >meal, >from a real recipe. . . I literally felt a little baffled by measuring >spoons and teaspoons. . . I was so used to a scale and grams! My husband >walked through the kitchen and asked me what was wrong. . .and I just >stared >through him saying I'd forgotten how to cook " normally " ! > >Jen -- As for your issue with Marissa . . . we've been relatively lucky, >except when 's got a virus. . .then all bets are off. She really >doesn't want to drink then (and drinking is really never a problem with >her). . . so I'm wondering if Patti's comment about dehydration isn't >pretty >close to home. It could be a viscious cycle. Also, I don't remember what >ratio Marissa is on, but when was on 4.0 we had lots of battles. >We're >only down to 3.8, but there's a huge difference. One more thing -- when >'s sick, the cream is really tough to get in her (that's an >understatement. . .it's impossible!). This last virus go-around I figured >out that I could make some meals without the cream. It's a ton of mayo and >oil -- but if I make it up as chicken salad or something like that it seems >to work out okay. Sounds like you're beyond that with Marissa, but maybe >you could try something similar? > >Thinking of you!--D > >*** > >I'm planning on bombing the food scale when we're >done. The rest of the family usually doesn't get very good meals right now >because I am so sick and tired of being in the kitchen all day. > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 DeEtte, Actually Marissa has a gluten and dairy allergy, so no cream for any of her meals. You're right, it is a ton of mayo or oil. It took her a while to get used to the volume. Her ratio is usually 2:1 for breakfast and lunch and 1.8:1 for dinner. Although last night her urine ketones were barely showing small, so we went up to 2.5 and this morning 2.3. I have no idea what goes on with her ketones. They fluctuate like mad. Love Jen > >Reply-To: ketogenic >To: " 'ketogenic ' " <ketogenic > >Subject: RE: Just complaining >Date: Sat, 16 Jun 2001 21:55:56 -0700 > >Just to add a little levity here. . .the first couple months I was so >absorbed with 's meals that I just did very simple meals -- marinate >some chicken and stick it in the oven, stir frys -- stuff that could just >literally be thrown together. I remember the first time I made a real >meal, >from a real recipe. . . I literally felt a little baffled by measuring >spoons and teaspoons. . . I was so used to a scale and grams! My husband >walked through the kitchen and asked me what was wrong. . .and I just >stared >through him saying I'd forgotten how to cook " normally " ! > >Jen -- As for your issue with Marissa . . . we've been relatively lucky, >except when 's got a virus. . .then all bets are off. She really >doesn't want to drink then (and drinking is really never a problem with >her). . . so I'm wondering if Patti's comment about dehydration isn't >pretty >close to home. It could be a viscious cycle. Also, I don't remember what >ratio Marissa is on, but when was on 4.0 we had lots of battles. >We're >only down to 3.8, but there's a huge difference. One more thing -- when >'s sick, the cream is really tough to get in her (that's an >understatement. . .it's impossible!). This last virus go-around I figured >out that I could make some meals without the cream. It's a ton of mayo and >oil -- but if I make it up as chicken salad or something like that it seems >to work out okay. Sounds like you're beyond that with Marissa, but maybe >you could try something similar? > >Thinking of you!--D > >*** > >I'm planning on bombing the food scale when we're >done. The rest of the family usually doesn't get very good meals right now >because I am so sick and tired of being in the kitchen all day. > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 , Thank you, it is so nice to know that other people stuggle with the same feelings, especially since we are the only family I know outside the cyber world that does the diet. Love Jen > >Reply-To: ketogenic >To: ketogenic >Subject: Re: Just complaining >Date: Sun, 17 Jun 2001 09:00:33 -0400 > >Jen: >I'm sure you'll get other messages as well (probably already have), but >since I'm just reading this on Sunday morning this is my first oportunity. > >You are NOT alone in your feelings of frustration. I certainly feel the >same many times. I'm sure we've all been there. Sometimes it just seems >easier to give it all up, but then we try to remember why we're doing this >in the first place. > >Keep up the good work! > > > > >_________________________________________________________________________ >Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 , Thank you, it is so nice to know that other people stuggle with the same feelings, especially since we are the only family I know outside the cyber world that does the diet. Love Jen > >Reply-To: ketogenic >To: ketogenic >Subject: Re: Just complaining >Date: Sun, 17 Jun 2001 09:00:33 -0400 > >Jen: >I'm sure you'll get other messages as well (probably already have), but >since I'm just reading this on Sunday morning this is my first oportunity. > >You are NOT alone in your feelings of frustration. I certainly feel the >same many times. I'm sure we've all been there. Sometimes it just seems >easier to give it all up, but then we try to remember why we're doing this >in the first place. > >Keep up the good work! > > > > >_________________________________________________________________________ >Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 , Thank you, it is so nice to know that other people stuggle with the same feelings, especially since we are the only family I know outside the cyber world that does the diet. Love Jen > >Reply-To: ketogenic >To: ketogenic >Subject: Re: Just complaining >Date: Sun, 17 Jun 2001 09:00:33 -0400 > >Jen: >I'm sure you'll get other messages as well (probably already have), but >since I'm just reading this on Sunday morning this is my first oportunity. > >You are NOT alone in your feelings of frustration. I certainly feel the >same many times. I'm sure we've all been there. Sometimes it just seems >easier to give it all up, but then we try to remember why we're doing this >in the first place. > >Keep up the good work! > > > > >_________________________________________________________________________ >Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
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