Re: symptoms

[Guest guest]

I have a lot of back pain. And just recently after having my son I

am having bladder pain. I have period like cramping pain. I am

breastfeeding and haven't had a period yet. So I am not bleeding

excessively. I have in the past though, with huge clots. Until now

researching fibroids on the internet. I haven't heard or been told

of any options. All I have been told is that " really nothing can be

done now because you are so young " . My fibroids are within the

uterine wall and would do more damage to my uterus to remove them. At

least that is what I was told at 19. I'm not sure if I want more

children or not. My son will be 3mo. old tomorrow. I would like to

wait a few years to see how life with 2 children is like. I hate the

uncertainty of the situation.

[Guest guest]

,

I have RSD in my right ankle. After you said that about the bitter email, I

didn't recall reading one, so I went back and just read it now. I think too

that my ex-boyfriend is shallow. Although I will say he emailed me back and

told me that he didn't realize what it was I actually am suffering from, I

still think for him to do what he did to me because of my injury was

something to be ashamed of. I only pray that he doesn't get that treatment

back.

I am not at the stage of admitting I will be suffering with this for the rest

of my life. Denial and hope combined together. Where do you have RSD and how

long have you been suffering? I am still trying to learn everyone's

individual story, so bear with me.

Take care,

Kris

[Guest guest]

,

I have RSD in my right ankle. After you said that about the bitter email, I

didn't recall reading one, so I went back and just read it now. I think too

that my ex-boyfriend is shallow. Although I will say he emailed me back and

told me that he didn't realize what it was I actually am suffering from, I

still think for him to do what he did to me because of my injury was

something to be ashamed of. I only pray that he doesn't get that treatment

back.

I am not at the stage of admitting I will be suffering with this for the rest

of my life. Denial and hope combined together. Where do you have RSD and how

long have you been suffering? I am still trying to learn everyone's

individual story, so bear with me.

Take care,

Kris

[Guest guest]

,

I have RSD in my right ankle. After you said that about the bitter email, I

didn't recall reading one, so I went back and just read it now. I think too

that my ex-boyfriend is shallow. Although I will say he emailed me back and

told me that he didn't realize what it was I actually am suffering from, I

still think for him to do what he did to me because of my injury was

something to be ashamed of. I only pray that he doesn't get that treatment

back.

I am not at the stage of admitting I will be suffering with this for the rest

of my life. Denial and hope combined together. Where do you have RSD and how

long have you been suffering? I am still trying to learn everyone's

individual story, so bear with me.

Take care,

Kris

[Guest guest]

Hi Kris, Sorry if I came off as a little 'bitter' last week, after I read my

post to you, I realized I had some unresolved issues of my own going on

there, and I was too quick to post. I meant no offense. Am I correct in

noting that your Doctor wants to give you lumbar blocks? I'm no Dr, but I

always thought those were for lower limb RSD. Don't you have right hand/arm

RSD? I was given a series of Stellate/Gangleon blocks for my hand/shoulder

RSD (My Dr. stopped after 8, saying the benefits did not outway the risks,

as they gave little relief) -

" Don't let the fear of the time it will take to accomplish something stand

in the way of your doing it.

The time will pass anyway, and you'll be none the wiser for it.

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

Hi Kris, Sorry if I came off as a little 'bitter' last week, after I read my

post to you, I realized I had some unresolved issues of my own going on

there, and I was too quick to post. I meant no offense. Am I correct in

noting that your Doctor wants to give you lumbar blocks? I'm no Dr, but I

always thought those were for lower limb RSD. Don't you have right hand/arm

RSD? I was given a series of Stellate/Gangleon blocks for my hand/shoulder

RSD (My Dr. stopped after 8, saying the benefits did not outway the risks,

as they gave little relief) -

" Don't let the fear of the time it will take to accomplish something stand

in the way of your doing it.

The time will pass anyway, and you'll be none the wiser for it.

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

Hi Kris, Sorry if I came off as a little 'bitter' last week, after I read my

post to you, I realized I had some unresolved issues of my own going on

there, and I was too quick to post. I meant no offense. Am I correct in

noting that your Doctor wants to give you lumbar blocks? I'm no Dr, but I

always thought those were for lower limb RSD. Don't you have right hand/arm

RSD? I was given a series of Stellate/Gangleon blocks for my hand/shoulder

RSD (My Dr. stopped after 8, saying the benefits did not outway the risks,

as they gave little relief) -

" Don't let the fear of the time it will take to accomplish something stand

in the way of your doing it.

The time will pass anyway, and you'll be none the wiser for it.

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

I had a crush injury to my right ring finger on Oct. 25, '99, and diagnosed

in March 2000. I did not realize the severity of the disease, and refused

treatment for a two more months, until I was hit with a muscle spasm in my

trapeziods that sent me to an emergency room. As you can see, I myself am

still very new to this, and my symptoms 'change' frequently. I have neck

and spinal pains, and muscle spasms that rival the pains of my hand and

shoulder. Plus I haven't been able to swallow properly for almost a year

now. Doctors keep blaming it on panic/anxiety, but I think they are wrong

and so does my psychiatrist (lot of depression still). Two Questions; How

did you injure your ankle? and as a dolphin lover, do you live near the

oceans? -

" Don't let the fear of the time it will take to accomplish something stand

in the way of your doing it.

The time will pass anyway, and you'll be none the wiser for it.

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

I had a crush injury to my right ring finger on Oct. 25, '99, and diagnosed

in March 2000. I did not realize the severity of the disease, and refused

treatment for a two more months, until I was hit with a muscle spasm in my

trapeziods that sent me to an emergency room. As you can see, I myself am

still very new to this, and my symptoms 'change' frequently. I have neck

and spinal pains, and muscle spasms that rival the pains of my hand and

shoulder. Plus I haven't been able to swallow properly for almost a year

now. Doctors keep blaming it on panic/anxiety, but I think they are wrong

and so does my psychiatrist (lot of depression still). Two Questions; How

did you injure your ankle? and as a dolphin lover, do you live near the

oceans? -

" Don't let the fear of the time it will take to accomplish something stand

in the way of your doing it.

The time will pass anyway, and you'll be none the wiser for it.

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

I had a crush injury to my right ring finger on Oct. 25, '99, and diagnosed

in March 2000. I did not realize the severity of the disease, and refused

treatment for a two more months, until I was hit with a muscle spasm in my

trapeziods that sent me to an emergency room. As you can see, I myself am

still very new to this, and my symptoms 'change' frequently. I have neck

and spinal pains, and muscle spasms that rival the pains of my hand and

shoulder. Plus I haven't been able to swallow properly for almost a year

now. Doctors keep blaming it on panic/anxiety, but I think they are wrong

and so does my psychiatrist (lot of depression still). Two Questions; How

did you injure your ankle? and as a dolphin lover, do you live near the

oceans? -

" Don't let the fear of the time it will take to accomplish something stand

in the way of your doing it.

The time will pass anyway, and you'll be none the wiser for it.

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

Kris I think the problem with you rmemory may be from the Neurotin. This is

the Second time I am on it, at 900mg 3 x daily, and this is also the second time

I am having memory problems, I have checked with a couple of others who have the

same effect Healing Hugs,

Lori

dolfnlver@... wrote: Being a new sufferer to RSD, I am wondering if anyone

else has had

problems other than pain. I don't know if it is my medication or part

of the RSD, but my memory is not the same as it used to be. I have a

hard time concentrating and just can't remember things to save my

life.

Also, what types of pain medication are some of you taking? I am on

Neurontin and Doxepin, and I take Ultram for breakthrough pain, but

it doesn't seem to be helping. Any suggestions?

Kris

[Guest guest]

Kris I think the problem with you rmemory may be from the Neurotin. This is

the Second time I am on it, at 900mg 3 x daily, and this is also the second time

I am having memory problems, I have checked with a couple of others who have the

same effect Healing Hugs,

Lori

dolfnlver@... wrote: Being a new sufferer to RSD, I am wondering if anyone

else has had

problems other than pain. I don't know if it is my medication or part

of the RSD, but my memory is not the same as it used to be. I have a

hard time concentrating and just can't remember things to save my

life.

Also, what types of pain medication are some of you taking? I am on

Neurontin and Doxepin, and I take Ultram for breakthrough pain, but

it doesn't seem to be helping. Any suggestions?

Kris

[Guest guest]

Kris I think the problem with you rmemory may be from the Neurotin. This is

the Second time I am on it, at 900mg 3 x daily, and this is also the second time

I am having memory problems, I have checked with a couple of others who have the

same effect Healing Hugs,

Lori

dolfnlver@... wrote: Being a new sufferer to RSD, I am wondering if anyone

else has had

problems other than pain. I don't know if it is my medication or part

of the RSD, but my memory is not the same as it used to be. I have a

hard time concentrating and just can't remember things to save my

life.

Also, what types of pain medication are some of you taking? I am on

Neurontin and Doxepin, and I take Ultram for breakthrough pain, but

it doesn't seem to be helping. Any suggestions?

Kris

[Guest guest]

In a message dated 6/25/01 12:11:57 AM Eastern Daylight Time,

gypsymom19@... writes:

> take Ultram for breakthrough pain, but

> it doesn't seem to be helping. Any suggestions?

>

>

>

Hi Kris,

I tend to think the pain may cause memory loss too. I take neurontin also

though so I guess the only way to differentiate would be to stop taking the

neurontin. I tried to cut down on it but the burning started to comeback with

a vengeance.

I do not think Ultram is a sufficient breakthrough medication, well it didn't

help me at all.

I take oxycontin, with Percocet for breakthrough.

Maybe ask for something a bit stronger?

Hugs and a pain free minute,

Deb

Deb Jo Felice

______________________________________________________________________

PLEASE NOTE THE FOLLOWING WAIVER

No advise given by any member of this group is to be misconstrued as a reason

to start, stop or add anything to your treatment plan including medications

and procedures recommended by your physician.

We are not responsible for any advise given and used in anyway against your

doctors advise.

Please check with all the people treating your condition before attempting to

try anything new. Thanks.

Deb, Jo and Felice

listowners

RSD-CRPS

[Guest guest]

In a message dated 6/25/01 12:11:57 AM Eastern Daylight Time,

gypsymom19@... writes:

> take Ultram for breakthrough pain, but

> it doesn't seem to be helping. Any suggestions?

>

>

>

Hi Kris,

I tend to think the pain may cause memory loss too. I take neurontin also

though so I guess the only way to differentiate would be to stop taking the

neurontin. I tried to cut down on it but the burning started to comeback with

a vengeance.

I do not think Ultram is a sufficient breakthrough medication, well it didn't

help me at all.

I take oxycontin, with Percocet for breakthrough.

Maybe ask for something a bit stronger?

Hugs and a pain free minute,

Deb

Deb Jo Felice

______________________________________________________________________

PLEASE NOTE THE FOLLOWING WAIVER

No advise given by any member of this group is to be misconstrued as a reason

to start, stop or add anything to your treatment plan including medications

and procedures recommended by your physician.

We are not responsible for any advise given and used in anyway against your

doctors advise.

Please check with all the people treating your condition before attempting to

try anything new. Thanks.

Deb, Jo and Felice

listowners

RSD-CRPS

[Guest guest]

I injured my ankle in an auto accident on 7/7/00. So much for lucky #7!! As

far as the dolphins, I live in NH but not very close to the ocean. About 45

miles away.

Kris

[Guest guest]

Thanks for the help! I guess I will just grin and bear it. I would rather be

pain free and a dingbat than in pain and sharp as a nail! I think everyone

can understand that.

[Guest guest]

Hi Kris. Ultram isn't a good pain Med. for RSD its about the same strength as

The family of Darvocet and mabey Vico-prophen. ([Loatab) I am not a Dr. IAM a

nurse and these are my opine and the fact that most of us are on smarting in

the Morphine family. Ask your Doc for something stronger, you should not have

to bare all this pain. And there's a law now re Doctors have to administer

pain Meds based on the Pt. pain scale. Good luck to U. Gentle Hug's Debi

[Guest guest]

Hi Kris. Ultram isn't a good pain Med. for RSD its about the same strength as

The family of Darvocet and mabey Vico-prophen. ([Loatab) I am not a Dr. IAM a

nurse and these are my opine and the fact that most of us are on smarting in

the Morphine family. Ask your Doc for something stronger, you should not have

to bare all this pain. And there's a law now re Doctors have to administer

pain Meds based on the Pt. pain scale. Good luck to U. Gentle Hug's Debi

[Guest guest]

In a message dated 6/25/01 5:54:27 PM Eastern Daylight Time, dolfnlver@...

writes:

> I would rather be

>

LOL Yes I understand. But I doubt that your a dingbat!

Hugs and a pain free minute,

Deb

Deb Jo Felice

______________________________________________________________________

PLEASE NOTE THE FOLLOWING WAIVER

No advise given by any member of this group is to be misconstrued as a reason

to start, stop or add anything to your treatment plan including medications

and procedures recommended by your physician.

We are not responsible for any advise given and used in anyway against your

doctors advise.

Please check with all the people treating your condition before attempting to

try anything new. Thanks.

Deb, Jo and Felice

listowners

RSD-CRPS

[Guest guest]

In a message dated 6/25/01 5:54:27 PM Eastern Daylight Time, dolfnlver@...

writes:

> I would rather be

>

LOL Yes I understand. But I doubt that your a dingbat!

Hugs and a pain free minute,

Deb

Deb Jo Felice

______________________________________________________________________

PLEASE NOTE THE FOLLOWING WAIVER

No advise given by any member of this group is to be misconstrued as a reason

to start, stop or add anything to your treatment plan including medications

and procedures recommended by your physician.

We are not responsible for any advise given and used in anyway against your

doctors advise.

Please check with all the people treating your condition before attempting to

try anything new. Thanks.

Deb, Jo and Felice

listowners

RSD-CRPS

[Guest guest]

Hi Kris,

I've been quiet again lately, but reading about the itching you get from

Ultram, it probably is an allergic reaction and you shouldn't continue it

without advising the Dr. There are some things I cannot take due to the same

reaction.

I had real problems with the Neurontin and memory. I stopped taking all meds

last July, and found that I could function somewhat normally again (mentally).

However, for the second time in two months, our car was involved in an auto

accident on Saturday..... We were rear ended, and I suffered some whiplash,

which has thrown my RSD into a real " tizzy. " At this point, I cannot take

the horrible burning, etc., that is here with a vengeance, so it appears as

if I'll have to go back to the meds for a while until it settles down some.

Too much stress, too much pain. Not a good combo.

Hugs,

Jo

[Guest guest]

Hi Kris,

I was on Ultram for quite a while with vicodin for breakthrough pain. I was

not even getting the edge off my pain. The doctor finally put me on zanaflex

and oxycontin. Oxy is okay if taken correctly. If the doctor puts you on

that, please never cut it in half or crush it or chew it. It is a time

release medication and this is where people are getting in trouble with it.

If broken, it releases all the medication at once, hence the problem.

However I agree. There comes a time when the Ultram just won't do it for RSD

pain. I also discovered that the zanaflex helped tremendously when it came

to the spasms and my body being able to relax.

Good luck. I hope your doctor understands and helps.

May God bless you and keep you,

" Pain is a subjective experience; it is a personal possession, a private

feeling, and as individual as a fingerprint. " How to Cope With Chronic Pain,

by Hendler, M.D. and Judith A. Fenton, 1986, page 5.

Deb Lundquist (McPixie@...)

Administrative Director, American Society for RSD-CRPS (ASRSD/CRPS)

Co-Chair, American Society for RSD-CRPS Assistance Center (ASRSD/CRPS AC)

Web Manager

PO Box 1397, Abingdon, MD  21009

Toll Free Hotline:  1-866-OUR-PAIN

Main Office: (office hours: Mon, wed, Fri 10 am to 3 pm)

online membership: ASRSD_CRPSegroups

http://www.americansocietyforrsd-crps.org

http://americansocietyforrsd-crps.org/societypages/handbook.html

[Guest guest]

In a message dated 6/24/2001 7:57:24 PM Pacific Daylight Time,

wetstonze@... writes:

<< I was given a series of Stellate/Gangleon blocks for my hand/shoulder

RSD (My Dr. stopped after 8, saying the benefits did not outway the risks,

as they gave little relief) -

>>

Hi,

I am going to say something here that I hope doesn't upset anyone and if so I

apologize now. However here goes.

I had 2 stellates that did absolutely nothing. Then after 2 years of this

disease, I went to a doctor in Indy and he did a stellate, but this time he

went lower in the neck, T1-2, and used a floroscope so he could see exactly

where he was going. He was like night and day. The stellate wasn't horrid,

of course he made me very non-caring prior to doing it, and I didn't get

hornor's syndrome. But the most important thing was it worked. I was sure

it wouldn't, but it did.

So my question is this. If they do lumbar blocks and they use floroscopes,

why don't they with stellates. I don't think I'll ever them anyone stick a

needle in my spine, including neck, without one now. How can they see what

they are doing? Especially if you have had a neck injury. And everyone is

wired different so wouldn't they need to see this?

May God bless you and keep you,

" Pain is a subjective experience; it is a personal possession, a private

feeling, and as individual as a fingerprint. " How to Cope With Chronic Pain,

by Hendler, M.D. and Judith A. Fenton, 1986, page 5.

Deb Lundquist (McPixie@...)

Administrative Director, American Society for RSD-CRPS (ASRSD/CRPS)

Co-Chair, American Society for RSD-CRPS Assistance Center (ASRSD/CRPS AC)

Web Manager

PO Box 1397, Abingdon, MD  21009

Toll Free Hotline:  1-866-OUR-PAIN

Main Office: (office hours: Mon, wed, Fri 10 am to 3 pm)

online membership: ASRSD_CRPSegroups

http://www.americansocietyforrsd-crps.org

http://americansocietyforrsd-crps.org/societypages/handbook.html

[Guest guest]

My Dr never gives any type of block without using a fluoroscope but he also

doesnt believe in giving alot of them if they dont help much. Margie in NC