Re: Weaning difficulties - DeEtte

[Guest guest]

Heidi -- It must be so difficult to have such a little guy going through

these things. 's seizures didn't start until she was nearly 4 and so

she could verbalize, plus we knew what she had been like without meds and

without seizures.

Here's what I can tell you. For us, the " nasty wean " has consisted of maybe

a 30 second or so complex partial every day or other day. . . much less

dramatic than what you're seeing with Lucas. Still -- it's better than she

was before and I believe you'll see " better " with Lucas. My husband and I

were just discussing putting the last 1/2 tablet of Lamictal back until

these disappeared. . . I was worried she was going to have more at summer

camp today. . .when I picked her up, her teacher said, " we're finally

meeting the 'old ' -- the one you were telling us about whom we'd never

met before. . . the one who was calm, loving and attentive. . .today she did

things she'd never done before and I'm confident she's going to be reading

before she's out of my classroom! " WOW!!! That's what the drugs had done.

.. .put a cloud over her and hidden her sweet, loving, eager-to-learn

personality.

Needless to say, when my husband gets home, I'm going to recommend not

putting that dose back. . .I truly believe today was a sign that we're

heading in the right direction.

Follow your gut. . .that's all we can do. And always, always keep searching

for answers. My thought on the diet is that I'm hoping it can get her

drug-free, to remove that " cloud " while we still work out the seizure-free

part.

Take care of that little guy and trust that you will see better days

ahead.-D

Oh, DeEtte, I can completely sympathize with your weaning

difficulties - we're going through a wicked bad tranxene wean right

now.. . I am really dreading the next months . .. and this is getting

exasperating. Can thisbe withdrawal? I am putting my money on it, but it's

so hard to not

know for sure. I know EXACTLY what you mean!

Heidi

[Guest guest]

> My husband and I

>were just discussing putting the last 1/2 tablet of Lamictal back until

>these disappeared. . .

DeEtte,

I just replied to your other note, but you captured in this sentence

what we went through over and over again with the Lamictal wean -

should we go back from our dosage drop...no, not yet...how about

now....no, let's wait...and then finally, it would be OK.

We did 1/4 tab drops of Lamictal at the end. I don't know if the 1/2

tab you mention is the last one (if so, yippee!), but you may

consider doing even smaller dosage changes.

Janine

[Guest guest]

> My husband and I

>were just discussing putting the last 1/2 tablet of Lamictal back until

>these disappeared. . .

DeEtte,

I just replied to your other note, but you captured in this sentence

what we went through over and over again with the Lamictal wean -

should we go back from our dosage drop...no, not yet...how about

now....no, let's wait...and then finally, it would be OK.

We did 1/4 tab drops of Lamictal at the end. I don't know if the 1/2

tab you mention is the last one (if so, yippee!), but you may

consider doing even smaller dosage changes.

Janine

[Guest guest]

Well guess what. . . it might not be the weaning after all. Last night, my

husband said, " DeEtte, she has a huge cold sore. . . and sure enough, one

had just erupted. " It's this danged Gingivastomatitis virus again. . .the

one that set everything off in the first place. I'm quite sure that's it

this time. . .probably exacerbated by the stress of traveling and being in

different climates, etc. The homeopathic physician we just started working

with gave us a series of three drops -- one for immune strength, one for

" brain balancing " and one to combat this virus. I've been working into them

VERY slowly -- guess it's time to get working on the one specific to this

virus and see what happens. . . --D

DeEtte,

I just replied to your other note, but you captured in this sentence

what we went through over and over again with the Lamictal wean -

should we go back from our dosage drop...no, not yet...how about

now....no, let's wait...and then finally, it would be OK.

[Guest guest]

It's this danged Gingivastomatitis virus again. . .the

one that set everything off in the first place

Hey...

I was thinking about this and have you considered grapefruitseed extract??

colloidal silver or garlic??

I donno much about that virus, but here are several things I think you should

check into...

I know there are alot of things that can cause seizures including

viruses, parasites and along with yeast and nutritional stuff...these are things

the usual md doesnt look for.

[Guest guest]

It's this danged Gingivastomatitis virus again. . .the

one that set everything off in the first place

Hey...

I was thinking about this and have you considered grapefruitseed extract??

colloidal silver or garlic??

I donno much about that virus, but here are several things I think you should

check into...

http://www.kyolic.com/inf3.htm

http://www.nutriteam.com/index2.html

I cant find my info on colloidal silver...but its known to have anitviral,

anifungal,

antibacterial properties!! do a web search!

I know there are alot of things that can cause seizures including

viruses, parasites and along with yeast and nutritionals stuff...these are

things

the usual md doesnt look for, and cures a neuro would not suggest that are

worth a try.

cya

Barb

[Guest guest]

It's this danged Gingivastomatitis virus again. . .the

one that set everything off in the first place

Hey...

I was thinking about this and have you considered grapefruitseed extract??

colloidal silver or garlic??

I donno much about that virus, but here are several things I think you should

check into...

http://www.kyolic.com/inf3.htm

http://www.nutriteam.com/index2.html

I cant find my info on colloidal silver...but its known to have anitviral,

anifungal,

antibacterial properties!! do a web search!

I know there are alot of things that can cause seizures including

viruses, parasites and along with yeast and nutritionals stuff...these are

things

the usual md doesnt look for, and cures a neuro would not suggest that are

worth a try.

cya

Barb

[Guest guest]

It's this danged Gingivastomatitis virus again. . .the

one that set everything off in the first place

Hey...

I was thinking about this and have you considered grapefruitseed extract??

colloidal silver or garlic??

I donno much about that virus, but here are several things I think you should

check into...

http://www.kyolic.com/inf3.htm

http://www.nutriteam.com/index2.html

I cant find my info on colloidal silver...but its known to have anitviral,

anifungal,

antibacterial properties!! do a web search!

I know there are alot of things that can cause seizures including

viruses, parasites and along with yeast and nutritionals stuff...these are

things

the usual md doesnt look for, and cures a neuro would not suggest that are

worth a try.

cya

Barb