Re: snack ideas/small triumph

[Guest guest]

Dear D,

That is no small triumph !!! It is so nice to hear that your daughter was

happy and smiling after 2 1/2 years. I look forward to the days whenGrant is

on less drugs and smiling through the day. We have dropped in small doses

and he is looking good. However, I have nothing to compare him to as he has

been on meds since he was 5 months old. He is 3 1/2 now and hopefully he

will have drugs reduced sometime in the near future. Your post made me

smile, thank you!

kim

[Guest guest]

Great stuff, DeEtte! It's amazing how thrilled we can be by those little

things!

Patti

snack ideas/small triumph

Okay -- looks like the consensus to our early morning seizure debate is to

try a bedtime snack and possibly to slow down on the Lamictal wean (only

have 3 drops to go anyway). I did, however, give her two macademia nuts

last night at bedtime and it didn't seem to make any difference.

So. . . what I'll probably do is take Faye's peanut butter cookies and give

her 1 with " milk " in the afternoon and 1 with " milk " at bedtime.

Ultimately, though, that's what I wanted to do to put a morning school snack

in for Kindergarten. Any ideas for some small 50 calorie or so keto snacks

I could do? I think I've seen ideas on this before -- need to go back

through back posts.

asked why I was thinking of dropping the ratio -- it's because of

my blood sugar theory and I was wondering if her blood sugar was dropping at

night and that's what we might be seeing. I'm hoping to drop to 3.7 within

the next few weeks, regardless, because she's still very hungry. Am I on

the right track here, or is my logic faulty?

Now. . . for some unrelated news. . . even though we have this setback. .

.I'm actually starting to see my daugther again. I haven't seen her off

drugs for 2 1/2 years. I'm starting to see her real personality come

through again -- the silly, laughing, smiling little girl who today wanted

to dress up to go to the mall, complete with hair bows and pearls (haven't

seen her interested in that in a LONG time). And, I was actually able to

take her picture. I barely have any decent pictures from the past couple

years because she's either been a zombie child or so hyper she couldn't even

sit still that long. Today, I pulled out the camera and she posed for me. .

.that's a picture I'll treasure for a long, long time. Just wanted to share

a small triumph with a group that can appreciate it! Have a good day--D

[Guest guest]

D

Not sure that your logic is faulty, but I was thinking when Jess has very

obvious low blood

sugar episodes last summer, neuro's and dietican's solution was to add calories,

not drop ratio.

Theory being that her body was on a growth spurt, or trying to be, and her liver

didn't have the

glucogen stores from being on the diet. Of course, she had been on the diet for

over two years

at that point so I don't know if the same reasoning would apply to your

daughter.

Wonderful news about the day you had, do treasure that picture! I remember when

we first got

Jess off the drugs, she was a transformed little girl

" Person, DeEtte " wrote:

> Okay -- looks like the consensus to our early morning seizure debate is to

> try a bedtime snack and possibly to slow down on the Lamictal wean (only

> have 3 drops to go anyway). I did, however, give her two macademia nuts

> last night at bedtime and it didn't seem to make any difference.

>

> So. . . what I'll probably do is take Faye's peanut butter cookies and give

> her 1 with " milk " in the afternoon and 1 with " milk " at bedtime.

> Ultimately, though, that's what I wanted to do to put a morning school snack

> in for Kindergarten. Any ideas for some small 50 calorie or so keto snacks

> I could do? I think I've seen ideas on this before -- need to go back

> through back posts.

>

> asked why I was thinking of dropping the ratio -- it's because of

> my blood sugar theory and I was wondering if her blood sugar was dropping at

> night and that's what we might be seeing. I'm hoping to drop to 3.7 within

> the next few weeks, regardless, because she's still very hungry. Am I on

> the right track here, or is my logic faulty?

>

> Now. . . for some unrelated news. . . even though we have this setback. .

> .I'm actually starting to see my daugther again. I haven't seen her off

> drugs for 2 1/2 years. I'm starting to see her real personality come

> through again -- the silly, laughing, smiling little girl who today wanted

> to dress up to go to the mall, complete with hair bows and pearls (haven't

> seen her interested in that in a LONG time). And, I was actually able to

> take her picture. I barely have any decent pictures from the past couple

> years because she's either been a zombie child or so hyper she couldn't even

> sit still that long. Today, I pulled out the camera and she posed for me. .

> .that's a picture I'll treasure for a long, long time. Just wanted to share

> a small triumph with a group that can appreciate it! Have a good day--D

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a professional

keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

>

> " It is not how much we do, but how much love we put into doing

it. It is not

> how much we give, but how much love we put into the giving. " Mother

>

>

[Guest guest]

De....

Thisis such exciting news! I'd love to see that pic...did she have the

pearls and all on? If I opened a folder for pics at the yahoogroups site

would anyone be interested in posting pics of their ketokid there? I'd love

to be able to put faces with all the names. Let me know and I'll open one

up. It's very easy to upload pics. Nan

_________________________________________________________________

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[Guest guest]

It's a deal. . .when I get it, we'll do it. Yes, she had a really cute dress

on, a HUGE red hair bow that she picked out (and actually matched the

dress!) and dress-up pearls. She and her sister received a lot of

compliments at the mall. . .and just kept saying " thank you " to

everyone!

I was thinking last night that it would have been compelling to show her

school picture this year side-by-side with this one. Her eyes were barely

open -- she'd been up with seizures and I'd given her a Clonapan the night

before. That comparison alone should compel people to start the diet and

get as many drugs out of their system as possible. But, I never brought

myself to order that picture. . .it was so awful that I only let myself look

at it once. The girls had their picture taken together that day, too, and

, who was only 3, was essentially holding her big sister up. . .

we've come a long way!

We're heading on vacation tomorrow (say prayers and send good thoughts for

an " uneventful trip " ). . .when we get back, I'll get the film developed.

Gee. . .it would be fantastic to see pictures of all our kids (and their

parents and siblings!)!!!--D

Re: snack ideas/small triumph

De....

Thisis such exciting news! I'd love to see that pic...did she have the

pearls and all on? If I opened a folder for pics at the yahoogroups site

would anyone be interested in posting pics of their ketokid there? I'd love

to be able to put faces with all the names. Let me know and I'll open one

up. It's very easy to upload pics. Nan

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

<http://explorer.msn.com>

[Guest guest]

D,

Hope the snack works. Thanks for sharing

the photo story. It so wonderful to see our

real children emerging from the drug-haze!

Saro.....Rohan's mum

" Person, DeEtte " wrote:

>

> Now. . . for some unrelated news. . . even though we have this

> setback. .

> .I'm actually starting to see my daugther again. I haven't seen her

> off

> drugs for 2 1/2 years. I'm starting to see her real personality come

> through again -- the silly, laughing, smiling little girl who today

> wanted

> to dress up to go to the mall, complete with hair bows and pearls

> (haven't

> seen her interested in that in a LONG time). And, I was actually able

> to

> take her picture. I barely have any decent pictures from the past

> couple

> years because she's either been a zombie child or so hyper she

> couldn't even

> sit still that long. Today, I pulled out the camera and she posed for

> me. .

> .that's a picture I'll treasure for a long, long time. Just wanted to

> share

> a small triumph with a group that can appreciate it!

[Guest guest]

snack ideas/small triumph

> Okay -- looks like the consensus to our early morning seizure debate is to

> try a bedtime snack and possibly to slow down on the Lamictal wean (only

> have 3 drops to go anyway). I did, however, give her two macademia nuts

> last night at bedtime and it didn't seem to make any difference.

I've been battling early morning " only " seizures for over a year. Tried the

mac nuts at midnight...that didn't help us either. Wish I could offer

something that worked!

>

> Ultimately, though, that's what I wanted to do to put a morning school

snack

> in for Kindergarten. Any ideas for some small 50 calorie or so keto

snacks

> I could do?

I usually give a drink and a macadamia nut. You could also do a keto cookie

but it contains aspartame in the sugar free jello - some don't like to do

that. I also used to use jello alot...because it's bulky, and it looks like

alot of food for a snack, and the other kids can have it too. I would

usually do jello, cheese, and oil or something like that. It travels well

too.

>

> asked why I was thinking of dropping the ratio -- it's because of

> my blood sugar theory and I was wondering if her blood sugar was dropping

at

> night and that's what we might be seeing. I'm hoping to drop to 3.7

within

> the next few weeks, regardless, because she's still very hungry. Am I on

> the right track here, or is my logic faulty?

Not sure how dropping the ratio would help blood sugar....but for what it's

worth, I've dropped Jake's ratio from 3.5:1 to 3.1:1 over the past few

months...with no change in morning seizures. I too wonder about the blood

sugar....but there are many mornings that he doesn't seize....so I would

think it would be a more consistent thing. He eats his last meal between

6:15/6:30 and goes to bed at 7pm. I've waited as long as 8:30-9 before

giving him breakfast with no issue. Normally he eats breakfast at 7:45 or

so.

Wish I could help more...but just sharing our experience. We've also tried

homeopathic remedies and they haven't helped. 98% of Jake's seizures are

between 4-6am....he either wakes for the day at that time, or just seizes

and goes back to sleep. It's been about a year now. I'm grateful that they

are all in his sleep and he's safe in bed....but it's frustrating. You

can't help but feel that SOMETHING is causing it, same time, all the time.

Barb Swoyer, Jake's mom, Boston

PS - Nice family photo!

>

>

[Guest guest]

D - thanks for sharing that great info about the mall trip!! Makes your

heart swell!!

Kathy in Tennessee

Mom to - 6 - Keto kid since 02/00, Med free, seizures 95% reduced

Mom to 'lil sis, a - 3

" For I know the plans I have for you, " declares the LORD, " plans to

prosper you and not to harm you, plans to give you hope and a future. "

29:11

On Mon, 28 May 2001 13:32:27 -0700 " Person, DeEtte "

writes:

> Okay -- looks like the consensus to our early morning seizure debate

> is to

> try a bedtime snack and possibly to slow down on the Lamictal wean

> (only

> have 3 drops to go anyway). I did, however, give her two macademia

> nuts

> last night at bedtime and it didn't seem to make any difference.

>

> So. . . what I'll probably do is take Faye's peanut butter cookies

> and give

> her 1 with " milk " in the afternoon and 1 with " milk " at bedtime.

> Ultimately, though, that's what I wanted to do to put a morning

> school snack

> in for Kindergarten. Any ideas for some small 50 calorie or so keto

> snacks

> I could do? I think I've seen ideas on this before -- need to go

> back

> through back posts.

>

> asked why I was thinking of dropping the ratio -- it's

> because of

> my blood sugar theory and I was wondering if her blood sugar was

> dropping at

> night and that's what we might be seeing. I'm hoping to drop to 3.7

> within

> the next few weeks, regardless, because she's still very hungry. Am

> I on

> the right track here, or is my logic faulty?

>

> Now. . . for some unrelated news. . . even though we have this

> setback. .

> .I'm actually starting to see my daugther again. I haven't seen her

> off

> drugs for 2 1/2 years. I'm starting to see her real personality

> come

> through again -- the silly, laughing, smiling little girl who today

> wanted

> to dress up to go to the mall, complete with hair bows and pearls

> (haven't

> seen her interested in that in a LONG time). And, I was actually

> able to

> take her picture. I barely have any decent pictures from the past

> couple

> years because she's either been a zombie child or so hyper she

> couldn't even

> sit still that long. Today, I pulled out the camera and she posed

> for me. .

> .that's a picture I'll treasure for a long, long time. Just wanted

> to share

> a small triumph with a group that can appreciate it! Have a good

> day--D

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a

> last resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a

> professional keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

>

> " It is not how much we do, but how much love we put

> into doing it. It is not

> how much we give, but how much love we put into the giving. " Mother

>

>

>