Re: Thyca and how do I get my life back

[Guest guest]

Boy I know the feeling too. My babys daddy came to get her one day, I opened

the door and the first thing he said was,,,,You look like sh*(!!!! My hairs

coming out in clumps and i have no energy. That really gets me soo depressed

I dont even want to get out of bed. Everyone keeps telling me it will get

better. My boyfriend is very active and I try to keep up but by the end of

the day,, I can hardly move my tired body. I feel 96 years old! Sometimes I

get angry that this has happened to me. I dont know who Im angry at, but I

just feel angry. I just want all this crud to go away :*(

God Bless

Kim

dx cervical cancer 2/98

cone biopsy 2/98

clean so far!!!!

dx pap 1 cm 4/01

tt 4/01

due for RAI 5/01 SCARED TO DEATH

[Guest guest]

I do Jane.

Family, friends comment about how tired I look. My hair is still thin - I'm

15 lbs. thinner than I was before this happened late last summer. I'm not

hypo now, but still struggle with stamina and mental acuity. Deep down, I

know that if I feel the difference I know my friends notice. So, I guess

I've sort of stepped out of the social scene until I feel like myself once

again. Probably not an emotionally healthy thing to do, but that's where I

am right now.

I can totally relate.

Sandy

Thyca and how do I get my life back

> Hi everyone,

>

> I don't know if this is just me may be feeling sorry for herself or just

> still being hypo, which I seem to be blaming a lot of things on, or if my

> whole life has changed and I'll never get it back.

>

> Last November was my TT, January was my RAI and July I have to have

another

> RAI. Anyway, since all this hit me I feel like my life does not belong to

> me anymore and that this damn cancer has taken control.

>

> Example: Yesterday my neighbor invited me to a bachlorette party (hers)

and

> I declined, mostly due to getting too tired to early, not feeling like

> socializing with a bunch of happy silly women, not being able to drink

> because of my low tolerance, and basically not feeling like it. Since

> getting sick, I've become pretty non-socialable, and I'm not sure if it's

> due to being hypo still, or if I've changed in some way.

>

> That's just one example, I'm constantly turning down invitations to many

> things, because I just don't feel like it... I never used to turn stuff

> like that down, I'm one of those people who used to be the life of the

party

> and now I don't feel like a party at all...

>

> Anyone else feel this way?

>

> Jane

>

> 11/21/01 TT, dx Papillary Carcinoma 3.0cm x 2.5cm Right lobe, and under a

> cm left lobe

> 1/18/01 RAI i131 75.2mCi

> 4/16/01 still slightly hypo at 5.6

> Taking Synthroid .150 daily

> New Scan and RAI at the end of July, Radiologists says I'll need a larger

> dosage this time around due to large remnant left behind.

>

>

>

> For more information regarding thyroid cancer visit www.thyca.org. If you

do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank

email to thyca-unsubscribe

>

>

>

[Guest guest]

Kim,

Did your doctors prepare you for this part of thyca? Do you feel you could

handle this better if you had known what to expect, as opposed to learning

as you go? I would have much rather been honestly prepared.

I know what you mean about being angry with your body. I'm also a little

more than peeved when I think back about that quick " little pill " speech

during the surgical consultation. Not knowing any better, I sat my family

down and passed along the same speech to prepare them for what was to come -

quick surgery, then a little pill....might be a little tired and hair may be

dry and brittle...

Maybe we're the exception.

Re: Thyca and how do I get my life back

> Boy I know the feeling too. My babys daddy came to get her one day, I

opened

> the door and the first thing he said was,,,,You look like sh*(!!!! My

hairs

> coming out in clumps and i have no energy. That really gets me soo

depressed

> I dont even want to get out of bed. Everyone keeps telling me it will get

> better. My boyfriend is very active and I try to keep up but by the end of

> the day,, I can hardly move my tired body. I feel 96 years old! Sometimes

I

> get angry that this has happened to me. I dont know who Im angry at, but I

> just feel angry. I just want all this crud to go away :*(

>

> God Bless

> Kim

> dx cervical cancer 2/98

> cone biopsy 2/98

> clean so far!!!!

> dx pap 1 cm 4/01

> tt 4/01

> due for RAI 5/01 SCARED TO DEATH

>

> For more information regarding thyroid cancer visit www.thyca.org. If you

do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank

email to thyca-unsubscribe

>

>

>

[Guest guest]

Hi Jane, I can certainly relate !!! So hard to keep

a positive outlook when we feel so rotten !! Sue

Ramsdell, 51, pt 5/01; tt 6/01, RAI 8/01.

--- Jane wrote:

> Hi everyone,

>

> I don't know if this is just me may be feeling sorry

> for herself or just

> still being hypo, which I seem to be blaming a lot

> of things on, or if my

> whole life has changed and I'll never get it back.

>

> Last November was my TT, January was my RAI and July

> I have to have another

> RAI. Anyway, since all this hit me I feel like my

> life does not belong to

> me anymore and that this damn cancer has taken

> control.

>

> Example: Yesterday my neighbor invited me to a

> bachlorette party (hers) and

> I declined, mostly due to getting too tired to

> early, not feeling like

> socializing with a bunch of happy silly women, not

> being able to drink

> because of my low tolerance, and basically not

> feeling like it. Since

> getting sick, I've become pretty non-socialable, and

> I'm not sure if it's

> due to being hypo still, or if I've changed in some

> way.

>

> That's just one example, I'm constantly turning down

> invitations to many

> things, because I just don't feel like it... I

> never used to turn stuff

> like that down, I'm one of those people who used to

> be the life of the party

> and now I don't feel like a party at all...

>

> Anyone else feel this way?

>

> Jane

>

> 11/21/01 TT, dx Papillary Carcinoma 3.0cm x 2.5cm

> Right lobe, and under a

> cm left lobe

> 1/18/01 RAI i131 75.2mCi

> 4/16/01 still slightly hypo at 5.6

> Taking Synthroid .150 daily

> New Scan and RAI at the end of July, Radiologists

> says I'll need a larger

> dosage this time around due to large remnant left

> behind.

>

>

>

__________________________________________________

[Guest guest]

Hi Jane:

I'm new at this too and can relate. I think for me anyway it's a

combination of recovering from being hypo and feeling for

myself...not sorry for myself really...just trying to get to know my

new body...lots of changes as we all know (most of them I'm not

thrilled with)...most I wasn't told about...like the one my daughter

and I discovered just today, that my hair is thinning (maybe someone

can tell me exactly why that's happening)...and I didn't realize what

was going on until I read some of the responses to your posting...my

fear or concern is my up coming RAI treatment sometime in

August...between the doctor and the hospital they messed up and

didn't do the right scan in February so this will give us our first

real clue to where I stand with the Thyca...I try to read all the

postings here everyday, read and research about our thyca in books

and online....I've learned things I only wished I'd been prepared for

in advance...I'm not where I want to be yet myself but I have come a

long way from hypo hell and am going to do my best to have the least

amount of hypo symtoms this next go round has I have already talked

to my doctor about using the Cytomel during 4 of my six weeks off my

Levothyroxine (275mcg)...one other thing I must say I pushed my

doctor after starting my meds... if I wasn't feeling good in about

two weeks after taking a new dose I told him and he would have me

come do blood work to check my levels....my last blood work had my

TSH .03 and my thyroid hormone 1.92 (which he says is a little high

for my thyroid hormone)...hang in there & take care of you

Janell o:-)

dx 11-00, tt 12-6-00 papillary carcinoma, RAI 2-1-01

> Hi everyone,

>

> I don't know if this is just me may be feeling sorry for herself or

just

> still being hypo, which I seem to be blaming a lot of things on, or

if my

> whole life has changed and I'll never get it back.

>

> Last November was my TT, January was my RAI and July I have to have

another

> RAI. Anyway, since all this hit me I feel like my life does not

belong to

> me anymore and that this damn cancer has taken control.

>

> Example: Yesterday my neighbor invited me to a bachlorette party

(hers) and

> I declined, mostly due to getting too tired to early, not feeling

like

> socializing with a bunch of happy silly women, not being able to

drink

> because of my low tolerance, and basically not feeling like it.

Since

> getting sick, I've become pretty non-socialable, and I'm not sure

if it's

> due to being hypo still, or if I've changed in some way.

>

> That's just one example, I'm constantly turning down invitations to

many

> things, because I just don't feel like it... I never used to turn

stuff

> like that down, I'm one of those people who used to be the life of

the party

> and now I don't feel like a party at all...

>

> Anyone else feel this way?

>

> Jane

>

> 11/21/01 TT, dx Papillary Carcinoma 3.0cm x 2.5cm Right lobe, and

under a

> cm left lobe

> 1/18/01 RAI i131 75.2mCi

> 4/16/01 still slightly hypo at 5.6

> Taking Synthroid .150 daily

> New Scan and RAI at the end of July, Radiologists says I'll need a

larger

> dosage this time around due to large remnant left behind.

[Guest guest]

Hi Sandy, Jane, et al.:

I think you have to acknowledge that it can take some

time to fully recover. This varies from person to

person, plus in your case Jane, remember you also had

to recover from having to be hypo for a longer period

than most have to go through. Just try to take things

one day at a time, and like my old boss used to say,

do what you can, (when you can, and the rest don't

sweat it).

Karla

--- Sandy Glenn wrote:

> I do Jane.

>

> Family, friends comment about how tired I look. My

> hair is still thin - I'm

> 15 lbs. thinner than I was before this happened late

> last summer. I'm not

> hypo now, but still struggle with stamina and mental

> acuity. Deep down, I

> know that if I feel the difference I know my friends

> notice. So, I guess

> I've sort of stepped out of the social scene until I

> feel like myself once

> again. Probably not an emotionally healthy thing to

> do, but that's where I

> am right now.

> I can totally relate.

>

> Sandy

> Thyca and how do I get my life back

>

>

> > Hi everyone,

> >

> > I don't know if this is just me may be feeling

> sorry for herself or just

> > still being hypo, which I seem to be blaming a lot

> of things on, or if my

> > whole life has changed and I'll never get it back.

> >

> > Last November was my TT, January was my RAI and

> July I have to have

> another

> > RAI. Anyway, since all this hit me I feel like my

> life does not belong to

> > me anymore and that this damn cancer has taken

> control.

> >

> > Example: Yesterday my neighbor invited me to a

> bachlorette party (hers)

> and

> > I declined, mostly due to getting too tired to

> early, not feeling like

> > socializing with a bunch of happy silly women, not

> being able to drink

> > because of my low tolerance, and basically not

> feeling like it. Since

> > getting sick, I've become pretty non-socialable,

> and I'm not sure if it's

> > due to being hypo still, or if I've changed in

> some way.

> >

> > That's just one example, I'm constantly turning

> down invitations to many

> > things, because I just don't feel like it... I

> never used to turn stuff

> > like that down, I'm one of those people who used

> to be the life of the

> party

> > and now I don't feel like a party at all...

> >

> > Anyone else feel this way?

> >

> > Jane

> >

> > 11/21/01 TT, dx Papillary Carcinoma 3.0cm x 2.5cm

> Right lobe, and under a

> > cm left lobe

> > 1/18/01 RAI i131 75.2mCi

> > 4/16/01 still slightly hypo at 5.6

> > Taking Synthroid .150 daily

> > New Scan and RAI at the end of July, Radiologists

> says I'll need a larger

> > dosage this time around due to large remnant left

> behind.

> >

> >

> >

> > For more information regarding thyroid cancer

> visit www.thyca.org. If you

> do not wish to belong to this group, you may

> UNSUBSCRIBE by sending a blank

> email to thyca-unsubscribe

> >

> >

> >

[Guest guest]

Hello everyone!

I have been going through a " Woah is me " period as well lately.

Although I know that most of this has been out of my control, I still

feel guilty about being sick. Some days I feel that this battle will

never end.

Jane's quote perfectly describes how I feel right now " I don't know

if this is just me may be feeling sorry for herself or just still

being hypo, which I seem to be blaming a lot of things on, or if my

whole life has changed and I'll never get it back. " I feel that my

life has been out of my control for SO LONG that I will not know how

to be in control of my life ever again. Just today I was wished a

Happy Mother's Day by a family friend and I told her " I gave birth to

my babies and that's about it...haven't been much of a mother. " I

then felt guilty about having recurrences, surgeries, being hypo,

weak from treatments, etc etc and that my children have pretty much

been raised by my parents and inlaws (who I thank Our Dear Lord for!)

SOme days I think that I don't know if I could take charge of my life

again because once I seem to have a good grasp of it, something

changes that, like a recurrence of thyca.

I too have become anti-social. I am really self conscious about my

weight. I have lost so much weight that some people look at my rail

thin body and says " you can stand to put some meat on those bones! "

NO KIDDING! You think I want to be this thin?!? NOT! My hubby has

mentioned to me that he liked my " curves " I got from having babies (I

was 128lbs before my EBR, and I've had 2 boys).

I also am tired of being looked at with pity. A friend is getting

married next weekend and I have no desire to go, mainly because I

know I will be flocked by old friends showing me pity for having been

through what I've been through wanting to know my whole cancer

story . I am proud that i've mainly been strong willed and positive

minded going through this but at times just can't imagine anyone

going through this.

Anyhoo...Jane-your post summed up many of our feelings during our

battle with thyca. Thank gosh we have this list of wonderful people

to lean on.

in Canada

dx met pap thyca 06/95, been through the ringer since then - 7

surgeries, RAI, hypo 6x's for I-131 scans, numerous CT scans, u/s's,

x-rays, MRI, 32 EBR treatments completed March 7/01(dose 6400 - 6

beams per treatment), Barium swallow last Tues (showed a minute

amount of aspiration of fluid into lungs) admitted into hospital and

put on nasal-gastric tube feedings to allow tests to be done - all

tests were positive results meaning that time will heal all!!

> > I do Jane.

> >

> > Family, friends comment about how tired I look. My

> > hair is still thin - I'm

> > 15 lbs. thinner than I was before this happened late

> > last summer. I'm not

> > hypo now, but still struggle with stamina and mental

> > acuity. Deep down, I

> > know that if I feel the difference I know my friends

> > notice. So, I guess

> > I've sort of stepped out of the social scene until I

> > feel like myself once

> > again. Probably not an emotionally healthy thing to

> > do, but that's where I

> > am right now.

> > I can totally relate.

> >

> > Sandy

> > Thyca and how do I get my life back

> >

> >

> > > Hi everyone,

> > >

> > > I don't know if this is just me may be feeling

> > sorry for herself or just

> > > still being hypo, which I seem to be blaming a lot

> > of things on, or if my

> > > whole life has changed and I'll never get it back.

> > >

> > > Last November was my TT, January was my RAI and

> > July I have to have

> > another

> > > RAI. Anyway, since all this hit me I feel like my

> > life does not belong to

> > > me anymore and that this damn cancer has taken

> > control.

> > >

> > > Example: Yesterday my neighbor invited me to a

> > bachlorette party (hers)

> > and

> > > I declined, mostly due to getting too tired to

> > early, not feeling like

> > > socializing with a bunch of happy silly women, not

> > being able to drink

> > > because of my low tolerance, and basically not

> > feeling like it. Since

> > > getting sick, I've become pretty non-socialable,

> > and I'm not sure if it's

> > > due to being hypo still, or if I've changed in

> > some way.

> > >

> > > That's just one example, I'm constantly turning

> > down invitations to many

> > > things, because I just don't feel like it... I

> > never used to turn stuff

> > > like that down, I'm one of those people who used

> > to be the life of the

> > party

> > > and now I don't feel like a party at all...

> > >

> > > Anyone else feel this way?

> > >

> > > Jane

> > >

> > > 11/21/01 TT, dx Papillary Carcinoma 3.0cm x 2.5cm

> > Right lobe, and under a

> > > cm left lobe

> > > 1/18/01 RAI i131 75.2mCi

> > > 4/16/01 still slightly hypo at 5.6

> > > Taking Synthroid .150 daily

> > > New Scan and RAI at the end of July, Radiologists

> > says I'll need a larger

> > > dosage this time around due to large remnant left

> > behind.

> > >

> > >

> > >

> > > For more information regarding thyroid cancer

> > visit www.thyca.org. If you

> > do not wish to belong to this group, you may

> > UNSUBSCRIBE by sending a blank

> > email to thyca-unsubscribe@y...

> > >

> > >

> > >

[Guest guest]

Jane,

Oh, I'm sending you an internet hug! I think that your high TSH is to blame

for much of what you're feeling. I know until I got my Synthroid all worked out

I felt the same way. I preferred to spend my nights alone, on the couch. I just

didn't have the energy or the interest. With time to digest what had happened to

me, and especially with more Synthroid, I was soon back to my old socializing

self.

You've been through a lot and you're still not feeling 100% better, so it's easy

to feel like the cancer has taken control. But don't let it take control!! If

you feel like staying home and taking it easy, do it ---and without guilt! It's

what your mind and body *need* right now, so indulge yourself and go with it.

After your next RAI your docs will finally nail your Synthroid dosage and then

you'll really be able to get back to doing your old favorite things.

Best wishes to you,

--Carmen in nyc

In a message dated Sun, 13 May 2001 10:55:03 AM Eastern Daylight Time, " Jane "

writes:

<< Hi everyone,

I don't know if this is just me may be feeling sorry for herself or just

still being hypo, which I seem to be blaming a lot of things on, or if my

whole life has changed and I'll never get it back.

Last November was my TT, January was my RAI and July I have to have another

RAI. Anyway, since all this hit me I feel like my life does not belong to

me anymore and that this damn cancer has taken control.

Example: Yesterday my neighbor invited me to a bachlorette party (hers) and

I declined, mostly due to getting too tired to early, not feeling like

socializing with a bunch of happy silly women, not being able to drink

because of my low tolerance, and basically not feeling like it. Since

getting sick, I've become pretty non-socialable, and I'm not sure if it's

due to being hypo still, or if I've changed in some way.

That's just one example, I'm constantly turning down invitations to many

things, because I just don't feel like it... I never used to turn stuff

like that down, I'm one of those people who used to be the life of the party

and now I don't feel like a party at all...

Anyone else feel this way?

Jane

11/21/01 TT, dx Papillary Carcinoma 3.0cm x 2.5cm Right lobe, and under a

cm left lobe

1/18/01 RAI i131 75.2mCi

4/16/01 still slightly hypo at 5.6

Taking Synthroid .150 daily

New Scan and RAI at the end of July, Radiologists says I'll need a larger

dosage this time around due to large remnant left behind.

For more information regarding thyroid cancer visit www.thyca.org. If you do

not wish to belong to this group, you may UNSUBSCRIBE by sending a blank email

to thyca-unsubscribe

[Guest guest]

> I do Jane.

> Ditto for me Jane.I have a very hard time relating to people my

age,or anyone else for that matter who doesnt understand(the majority)

what we go through.I get almost sick when I hear others talking about

all the fun they are having .I try to remember those days of laughter

will soon come again.I read once that hypothyroidism is depressions

twin.I do hope things get better for you.

> Family, friends comment about how tired I look. My hair is still

thin - I'm

> 15 lbs. thinner than I was before this happened late last summer.

I'm not

> hypo now, but still struggle with stamina and mental acuity. Deep

down, I

> know that if I feel the difference I know my friends notice. So, I

guess

> I've sort of stepped out of the social scene until I feel like

myself once

> again. Probably not an emotionally healthy thing to do, but that's

where I

> am right now.

> I can totally relate.

>

> Sandy

> Thyca and how do I get my life back

>

>

> > Hi everyone,

> >

> > I don't know if this is just me may be feeling sorry for herself

or just

> > still being hypo, which I seem to be blaming a lot of things on,

or if my

> > whole life has changed and I'll never get it back.

> >

> > Last November was my TT, January was my RAI and July I have to

have

> another

> > RAI. Anyway, since all this hit me I feel like my life does not

belong to

> > me anymore and that this damn cancer has taken control.

> >

> > Example: Yesterday my neighbor invited me to a bachlorette party

(hers)

> and

> > I declined, mostly due to getting too tired to early, not feeling

like

> > socializing with a bunch of happy silly women, not being able to

drink

> > because of my low tolerance, and basically not feeling like it.

Since

> > getting sick, I've become pretty non-socialable, and I'm not sure

if it's

> > due to being hypo still, or if I've changed in some way.

> >

> > That's just one example, I'm constantly turning down invitations

to many

> > things, because I just don't feel like it... I never used to

turn stuff

> > like that down, I'm one of those people who used to be the life

of the

> party

> > and now I don't feel like a party at all...

> >

> > Anyone else feel this way?

> >

> > Jane

> >

> > 11/21/01 TT, dx Papillary Carcinoma 3.0cm x 2.5cm Right lobe,

and under a

> > cm left lobe

> > 1/18/01 RAI i131 75.2mCi

> > 4/16/01 still slightly hypo at 5.6

> > Taking Synthroid .150 daily

> > New Scan and RAI at the end of July, Radiologists says I'll need

a larger

> > dosage this time around due to large remnant left behind.

> >

> >

> >

> > For more information regarding thyroid cancer visit

www.thyca.org. If you

> do not wish to belong to this group, you may UNSUBSCRIBE by sending

a blank

> email to thyca-unsubscribe@y...

> >

> >

> >