Guest guest Posted June 27, 2000 Report Share Posted June 27, 2000 Hi, I have about 3 minutes before heading out the door, but wanted to reply quickly. Two pretty good flare ups during this time, both during day 11, 12 of my about 22/23 day cycle. Lots of mini-flares No, I don't use too much I don't think. I have syrnges and only use 2ml which is just about pea- size. I have been using estogen on MWFSun, and the testost. on TTHSat. You weren't around for the post but I have found a natural pharmacist with some ideas and compounds I'd like to run by you. I'm not giving up on my program yet, however. I just wonder when to begin to think about another answer. I want to hunt this fall so badly, and the summer is running out. I know, I'll paste the info from another letter here... My natural pharmacist's mname is Ben Briggs. He is from Lionville Natural Pharmacy in PA. His formulas are all prescription-only. He begins with a base cream of beta 1,3 glucan, an anti-fungal anti-invasive(ie cancer..) cream, then adds one or more of the following: cromayln sodium... desensitizes tissue ketamine...a topical narcotic for pain zovirax....an anti-viral econazole...an anti-fungal He has treated about 10 women. Five successfully. Have you heard about any of these treatments? Thanks Dee,Candace --- Dee Troll wrote: > Hi > > well, I sure am sorry to hear that you feel there's > no improvment, hope you > haven't been in a severe flare up too, I haven't > gotten to the archives yet, > but it sounds like it *sigh*, I just feel so bad for > you. I'm glad to hear > the Estrace and T didn't burn, which is unusual > especially the Estrace, but > the only thing I can think of is that 6 weeks isn't > really a long time, (I > know it is when we're in that damn pain), but when I > first started I was so > bad that within 6 weeks I'd probably only used the > Estrace about 10-12 times > at most as it irritated me so badly at first and I > imagine since it didn't > burn you that you used it quite a bit more right? > > So... what I'm asking in a way is that if you're in > a flare up (as you said > you're no better) , could it be that you're using > it too much? Remember > less is more in this case, just a dab 'll do ya. > *chuckle*.. and I only used > a pea size dab at bedtime so it had a chance to work > while I slept. > > Just a thought here, since you said there's no > improvement, I'm a little > confused. Anyway hon, I know it took me 6 months to > total relief, so please > don't give up on it yet, but use it minimally, and > remember it's not for > pain relief, but to regrow that skin and it just > takes time honestly. But > please don't give up HOPE, ever!!! Believe me, If I > got better you can too, > but it does take patience, *sigh*, I even hate > saying that but it's true. > At least this has been my experience. YOU JUST HANG > IN THERE HON...better > days are ahead. > Take care, Warmest regards, Dee~ > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2000 Report Share Posted June 27, 2000 Hi, I have about 3 minutes before heading out the door, but wanted to reply quickly. Two pretty good flare ups during this time, both during day 11, 12 of my about 22/23 day cycle. Lots of mini-flares No, I don't use too much I don't think. I have syrnges and only use 2ml which is just about pea- size. I have been using estogen on MWFSun, and the testost. on TTHSat. You weren't around for the post but I have found a natural pharmacist with some ideas and compounds I'd like to run by you. I'm not giving up on my program yet, however. I just wonder when to begin to think about another answer. I want to hunt this fall so badly, and the summer is running out. I know, I'll paste the info from another letter here... My natural pharmacist's mname is Ben Briggs. He is from Lionville Natural Pharmacy in PA. His formulas are all prescription-only. He begins with a base cream of beta 1,3 glucan, an anti-fungal anti-invasive(ie cancer..) cream, then adds one or more of the following: cromayln sodium... desensitizes tissue ketamine...a topical narcotic for pain zovirax....an anti-viral econazole...an anti-fungal He has treated about 10 women. Five successfully. Have you heard about any of these treatments? Thanks Dee,Candace --- Dee Troll wrote: > Hi > > well, I sure am sorry to hear that you feel there's > no improvment, hope you > haven't been in a severe flare up too, I haven't > gotten to the archives yet, > but it sounds like it *sigh*, I just feel so bad for > you. I'm glad to hear > the Estrace and T didn't burn, which is unusual > especially the Estrace, but > the only thing I can think of is that 6 weeks isn't > really a long time, (I > know it is when we're in that damn pain), but when I > first started I was so > bad that within 6 weeks I'd probably only used the > Estrace about 10-12 times > at most as it irritated me so badly at first and I > imagine since it didn't > burn you that you used it quite a bit more right? > > So... what I'm asking in a way is that if you're in > a flare up (as you said > you're no better) , could it be that you're using > it too much? Remember > less is more in this case, just a dab 'll do ya. > *chuckle*.. and I only used > a pea size dab at bedtime so it had a chance to work > while I slept. > > Just a thought here, since you said there's no > improvement, I'm a little > confused. Anyway hon, I know it took me 6 months to > total relief, so please > don't give up on it yet, but use it minimally, and > remember it's not for > pain relief, but to regrow that skin and it just > takes time honestly. But > please don't give up HOPE, ever!!! Believe me, If I > got better you can too, > but it does take patience, *sigh*, I even hate > saying that but it's true. > At least this has been my experience. YOU JUST HANG > IN THERE HON...better > days are ahead. > Take care, Warmest regards, Dee~ > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2006 Report Share Posted August 28, 2006 > > ccalverlori > > Hi Welcome! Is there anything you would like to know in particular? We are pretty good at pointing the way to good answers. Do you or someone you know have ms/ > > Hugs, > Hello Stacey, My first name is Candace. Thanks for the welcome! Among 65 other emails from MSerslife group (overwhelmed!)yours is the first and onlyone , so far, that I have responded to. I do have RRMS. Right now I just need support from other people with MS. I recently was fired for my disabilty and am currently in the middle of all the legalities - What a trip this is!!-. I am 40 years old, single with two grown children- one attentive and the other indifferent- I live alone. My mother, who lives in another state, worries too much about me and thinks she is responsible for the MS. My Brother and the rest of my family, including some friends, think they understand MS but they really don't, particularly with some of rhe requests they ask of me. And MS tiredness and fatigue ( " don't you know everybody gets tired and fatigued! " " I know what that feels like " ) this is very frustrating and makes me not want to talk to anyone, because they make me feel like I'm lying or exagerating. These are the reasons why I signed up to this group(first timer)to get and give support from/to people who understand. any advice, inparticular to family and friends, that you or anyone else could give would be most helpful. Thanks for being here!! Hugs back to you! Candace Quote Link to comment Share on other sites More sharing options...
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