Your invitation to join a collaborative guide to therapeutic options: medigenesis.com

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Holly Bortfeld wrote: This database has so much potential for helping parents navigate biomedical,and other treatments. It was started years ago but put on hold because it'svery expensive to run. I am thrilled to see it back in action. It shouldhelp us take some of the guesswork out of treatment for our kids. Please gocheck it out!Hollt-----Original Message-----From: ARI Newsletter [mailto:ARINEWSLIST (DOT) FEAT.ORG] On Behalf

Of AutismResearch InstituteSent: Friday, April 27, 2007 8:07 AMTo: ARINEWSLIST (DOT) FEAT.ORGSubject: Your invitation to join a collaborative guide to therapeuticoptions: medigenesis.comDear ARI Subscriber,Imagine visiting a library where instead of books there are the anonymously shared experiences of children like yours. Where the children are similar to yours not only because of a diagnostic label, such as autism, PDD, asthma, or colitis - but with a likeness portrayed in a fully-remembered, detailed description that defines each child as an individual.This description consists of signs, symptoms, environmental exposures, laboratory results and life events, as well as good, bad or neutral responses to various treatments. What if you could easily find those who are *most like* your child, not only in major or severe symptoms but with respect

to minor or odd issues that may have puzzled you and your doctors? Would you not be interested in considering data that talks to you about what worked for children who closely match your own? I invite you to join a free beta-trial of such a "library" and to help build a community of mutual support and information-sharing. I began creating this system for empowering people to make informed decisions about their own health when I was an Assistant Professor of Medical Computer Sciences at Yale Medical School in 1969. It has become a reality with the support of Dr. Bernard Rimland and Dr. M. Edelson whose surveys of parent feedback have been the model for a new way of listening to parents.Medigenesis.com collects your child's data and offers the immediate benefit of well-organized reports that you can share with professionals to efficiently present a full picture of your child. As our

database grows you will also gain near-term feedback from clusters of children who match yours. In addition, you will reap the long term benefits of a system that uses information technology as a "macroscope" to see otherwise invisibly large or hidden patterns. To get access to the free, private beta, please visit http://www.autism.com/medigenesis/ and enter your email address.You will then be sent a special code (ticket) that you can use to get access to the site at medigenesis.com. The number of special codes available is strictly limited and available on a first come, first served basis until the end of May 2007.If you know of other individuals or groups who may be interested in this project, we encourage you to forward this email on to them. The requirements for taking part can be found at the above address. Others can get access to the private

beta in the same manner (first come first served!). The purpose of Medigenesis.com is to let the data talk. Other data bases are being promoted for purposes very different from those of Medigenesis.com. Please note, as these databases come to your attention. that Medigenesis.com is not an effort to find, identify, or recruit you for any other purpose than to let the data talk. Our vision is one of sharing, empowerment, and education within a community of respect for individuality and privacy.Medigenesis.com is very careful about your data privacy, and in any event does not collect data permitting identification of individuals. Our privacy and security policy is available at http://medigenesis.com/privacy.jsp. If you have any concerns or questions, please feel free to email us at infomedigenesis or visit www.medigenesis.com for more information. (Do not hit reply to this email).All the best,Sidney Mac Baker, MD Co-founder and Emeritus Medical Director of Defeat Autism Now!

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