Re: Attention to those with thyca reccurence.....

May 19, 2001

-

Hi 'me again',

I'm so sorry that you are going through this. After what we all as

individuals have been through it's easy to see how you could worry.

Of course the most difficult part is the 'not knowing' but to feel

concerned about yourself is totally normal and acceptable. Have you

asked your endo if she will do a FNA? Then you wouldn't have to wait.

In the meanwhile I suggest taking good care of yourself, think very

positive good thoughts, get outside and marvel at the little things

and coming to the group for all of the support you need. Just having

them all here has made these past few weeks more bareable for me. I

thank God and the stars for them every night and I will now add you

to that list. Let us know how you are doing.

AND you won't feel foolish if all of the worrying is for naught. You

can just do a " Snoopy happiness dance " and we'll dance with you.

Carol

PS Thanks Nina for the book idea! What a wonderful thought!

-- In Thyca@y..., mdmt1@e... wrote:

> Hi, Me again,

>

> For thsoe of you that have dealt with thyca reccurence..Did

you " KNOW "

> that you were dealing with it before you had a scan to " PROVE " it???

>

> I for one have myself convinced that I have neck mets. I have been

> having the following symptoms since the beginning of the year:

> " popping " sounds, throat pain, trouble swallowing, ear pain, my neck

> feels swollen to me but never to the docs who check it, etc etc,

etc.

>

> I had an MRI 2 months ago and the report said that there are 2

> borderline slightly enlarged nodes on the right side " where I am

> having my symptoms " next to the hyoid and below the submandibular

> gland. When I had my broken nose checked the other day I asked the

ENT

> to check my neck and he felt an enlarged node where I have been

having

> my symptoms. ABOUT TIME someone finally felt something. So now that

a

> doc has felt a node I have myself " doubly " convinced I am dealing

with

> a reccurrence.

>

> I am going to feel like such a fool about worrying if it is over

> nothing. I can't stand not knowing and I can't stand waiting til

June

> 15th for my scan. My gut just really tells me I still have thyca.

Did

> anyone else go through this? I am really driving myself nuts. Did

any

> of you ever worry for nothing?

>

> Maybe this is just my way of dealing with thyca. I don't know. Any

> thoughs are appreciated.

>

> Michele 28 from CT

>

> In hypoland (I don't do hypo well) Scan on June 15th.

May 19, 2001

Hi Me again Michele,

Me again here--

--- mdmt1@e... wrote:

>For thsoe of you that have dealt with thyca reccurence..Did you

" KNOW " that you were dealing with it before you had a scan to

" PROVE " it???

Not only did I not KNOW that the ThyCa was back, I almost said

'no' to tx in 1982 AFTER the scan showed it in my neck & chest!

I was feeling great, working 50-60 hr weeks and didn't want to

believe it.

>I for one have myself convinced that I have neck mets. I have

been having the following symptoms since the beginning of the

year: " popping " sounds, throat pain, trouble swallowing, ear

pain, my neck feels swollen to me but never to the docs who

check it, etc etc, etc.

Go with your gut. Instinct is usually a good thing. If nothing

shows up, you can breathe a sigh of relief, but nothing to feel

'foolish' about. The old adage, 'better safe than sorry' applies

here, especially since you have confirmation from the ENT re:

the nodule. It must feel awful, wondering whether to wait for

the scan, have surgery while hypo and all. I will be thinking of

you.

>My gut just really tells me I still have thyca. Did anyone else

go through this? I am really driving myself nuts. Did any of you

ever worry for nothing?

YES! AFTER treatment in 1982, until I had about four clean

scans, every pain in the neck or clavicle area made me think it

was back.

>Maybe this is just my way of dealing with thyca. I don't know.

Any thoughs are appreciated.

Michele 28 from CT

In hypoland (I don't do hypo well) Scan on June 15th.

Michele, I don't do hypo well, either. My thoughts are with you.

Your thyCa friend,

=====

...

3/25/65 tt Papillary ThyCa w/lymph node mets

HPTH 3 days post radical tt

3/25/82 Recurrence in neck/ & R chest

Tx w/RAI 131 176 mCi

hx kidney stones

__________________________________________________

May 19, 2001

Michele,

If you are worried you should address it. I always knew when there was

recurrance both in my neck and with the lung mets. My doctors listened

to me and even noted in my records " this patient says she knows when

there is activity and I tend to believe her. " Thank goodness because

my lung mets was caught months before I was due for a checkup just

because I suspected activity and had a chest x-ray.

You would rather be wrong than right and you have nothing to lose by

addressing your fears....except good health.

Best wishes,

Gail

dx1968,TT,pap. & foll. well differentiated, RAI, rad.neck

dissection, lung surgery, hashimoto, iodine resistant,

existing thyca nodules in lungs. Last surgery 1972

> Hi, Me again,

>

> For thsoe of you that have dealt with thyca reccurence..Did you " KNOW "

> that you were dealing with it before you had a scan to " PROVE " it???

>

> I for one have myself convinced that I have neck mets. I have been

> having the following symptoms since the beginning of the year:

> " popping " sounds, throat pain, trouble swallowing, ear pain, my neck

> feels swollen to me but never to the docs who check it, etc etc, etc.

>

> I had an MRI 2 months ago and the report said that there are 2

> borderline slightly enlarged nodes on the right side " where I am

> having my symptoms " next to the hyoid and below the submandibular

> gland. When I had my broken nose checked the other day I asked the ENT

> to check my neck and he felt an enlarged node where I have been having

> my symptoms. ABOUT TIME someone finally felt something. So now that a

> doc has felt a node I have myself " doubly " convinced I am dealing with

> a reccurrence.

>

> I am going to feel like such a fool about worrying if it is over

> nothing. I can't stand not knowing and I can't stand waiting til June

> 15th for my scan. My gut just really tells me I still have thyca. Did

> anyone else go through this? I am really driving myself nuts. Did any

> of you ever worry for nothing?

>

> Maybe this is just my way of dealing with thyca. I don't know. Any

> thoughs are appreciated.

>

> Michele 28 from CT

>

> In hypoland (I don't do hypo well) Scan on June 15th.

May 20, 2001

Michele, Please be sure they do a Tg test on you while hypo.. my

recurrence didn't show up on scan but my Tg elevated while hypo. That

is how I knew I had a recurrence. Bekki,in TX; tt & rai'89; rai 7/00;

mid-neck dissection

2/01; 5/01- EBR

> Hi, Me again,

>

> For thsoe of you that have dealt with thyca reccurence..Did

you " KNOW "

> that you were dealing with it before you had a scan to " PROVE " it???

>

> I for one have myself convinced that I have neck mets. I have been

> having the following symptoms since the beginning of the year:

> " popping " sounds, throat pain, trouble swallowing, ear pain, my neck

> feels swollen to me but never to the docs who check it, etc etc,

etc.

>

> I had an MRI 2 months ago and the report said that there are 2

> borderline slightly enlarged nodes on the right side " where I am

> having my symptoms " next to the hyoid and below the submandibular

> gland. When I had my broken nose checked the other day I asked the

ENT

> to check my neck and he felt an enlarged node where I have been

having

> my symptoms. ABOUT TIME someone finally felt something. So now that

a

> doc has felt a node I have myself " doubly " convinced I am dealing

with

> a reccurrence.

>

> I am going to feel like such a fool about worrying if it is over

> nothing. I can't stand not knowing and I can't stand waiting til

June

> 15th for my scan. My gut just really tells me I still have thyca.

Did

> anyone else go through this? I am really driving myself nuts. Did

any

> of you ever worry for nothing?

>

> Maybe this is just my way of dealing with thyca. I don't know. Any

> thoughs are appreciated.

>

> Michele 28 from CT

>

> In hypoland (I don't do hypo well) Scan on June 15th.

May 20, 2001

Hi Michele,

I am going through the same thing right now, doctors ignoring my neck. I

have let them ignore it for about a year now but this time I am going to try

to insist that I want to know what it is.

I too have enlarged nodes on the side of my neck, I had one doctor tell me " I

just can't go taking out everybodies enlarged lymph nodes. " I had another

doctor tell me " I don't think it's cancer, so leave me alone. " Well needless

to say I have left him alone, I cancelled my three month appointment and

refuse to go back to him, I also told the endo that referred me to him the

story. Anyway, I am sure this is all because this is " the best cancer to

have " . It is sad that they give you more respect if you come in with strepp

throat or pink eye than thyroid cancer. And with a background of cancerous

nodes you would think they would consider that.

Anyway, maybe it is time to take a stand and say " If you can't find out what

the enlarged nodes are maybe you should refer me to someone that can.

Venting in PA,

May 20, 2001