Re: Maximum Frustration...> target TSH levels

[Guest guest]

Christy:

I met with my NEW endo recently to discuss my TSH level. I am at 2.0

(former doc felt this was fine) and have become educated that this is

too high. I told her that I thought I should be at .1, she agreed

but cautioned that going below .1 can bring on other health issues

(bone mass loss/osteoprosis and more). She is recommending a target

range of .1 to .3 TSH and has adjusted my meds higher to help me get

into this range. I've seen other reply posts to you that recommend

LOWER than .1 and I'm not sure this would be good.

Can anyone else out there in Thycaland verify my above comments as

correct?

Gwynne Bambach - Michigan

Pap w fol var, tumor 1.7cm, lymph node mets

DX 12/21/00 (age 36)

TT 1/5/01

RAI 4/11/01 101.5 mCi

(delayed 3 months due to iodine from previous CT scan)

2nd RAI – upcoming 4/2002

[Guest guest]

Hi Gwynne,

It seems that doctors have their own take on how we should feel! The

bottom line is,if you don't feel well between .1-.3 then you need to be

lower than .1. Most people on this list have more issues above .1 than

below it.

There have been a number of postings by the doctors on osteoporosis.

Most recently I believe the data showed that thyroid medication does

not bring on osteoporosis.

I have been in suppression below .1 for 34 years and do not have

osteoporosis. Good monitoring of the patient throughout their life can

help prevent some of the " other " things the doctor suggested to you.

It is unimaginable that a doctor treating a thyca patient would keep

that person at 2.0. and think it was okay! Tell the truth....did you

feel horrible?

Gail

dx: 1968, TT, pap. & foll. well differentiated, RAI,

rad.neck dissection,lung surgery, hashimoto, high antibody

count, iodine resistant,existing thyca nodules in lungs.

Last surgery 1972

> Christy:

>

> I met with my NEW endo recently to discuss my TSH level. I am at 2.0

> (former doc felt this was fine) and have become educated that this is

> too high. I told her that I thought I should be at .1, she agreed

> but cautioned that going below .1 can bring on other health issues

> (bone mass loss/osteoprosis and more). She is recommending a target

> range of .1 to .3 TSH and has adjusted my meds higher to help me get

> into this range. I've seen other reply posts to you that recommend

> LOWER than .1 and I'm not sure this would be good.

>

> Can anyone else out there in Thycaland verify my above comments as

> correct?

>

> Gwynne Bambach - Michigan

> Pap w fol var, tumor 1.7cm, lymph node mets

> DX 12/21/00 (age 36)

> TT 1/5/01

> RAI 4/11/01 101.5 mCi

> (delayed 3 months due to iodine from previous CT scan)

> 2nd RAI – upcoming 4/2002

[Guest guest]

Dear Gwynne:

Doctors have different opinions as to whether your TSH should be 0.3 or

less than 0.1. Sometimes, their decision is based on the needs of the

individual patient. I have had three endos over the past several years and

they all suggested I stay at 0.3 On the other hand, my internist, who is

quite knowledgeable about thyca, wants me at 0.1 Since I get heart

arrhythmias at 0.1, even with medication, it's a no-brainer for me to be at

0.3. I also have osteoporosis, so this is another reason why for me full

suppression may not be a good idea. What is best for you has to be decided

by you and your physician.

Marilyn Loeb, Rochester, NY

Re: Maximum Frustration...> target TSH levels

Christy:

I met with my NEW endo recently to discuss my TSH level. I am at 2.0

(former doc felt this was fine) and have become educated that this is

too high. I told her that I thought I should be at .1, she agreed

but cautioned that going below .1 can bring on other health issues

(bone mass loss/osteoprosis and more). She is recommending a target

range of .1 to .3 TSH and has adjusted my meds higher to help me get

into this range. I've seen other reply posts to you that recommend

LOWER than .1 and I'm not sure this would be good.

Can anyone else out there in Thycaland verify my above comments as

correct?

Gwynne Bambach - Michigan

Pap w fol var, tumor 1.7cm, lymph node mets

DX 12/21/00 (age 36)

TT 1/5/01

RAI 4/11/01 101.5 mCi

(delayed 3 months due to iodine from previous CT scan)

2nd RAI - upcoming 4/2002

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