Re: 4hrs vs 8 hrs avoids mercury rash

[Guest guest]

Hi

We have done both the 8 hour and the 4 hour dosing schedule and my son has

gotten the mercury rash with both ...... so there goes that theory!!

LOL... I think it's just specific to the individual.

maranie

unlockingautism state rep for MS

Date: Sun, 16 Dec 2001 03:48:25 -0000

> From: " jondank " <jondank@...>

> Subject: 4 hrs vs 8 hrs avoids " mercury rash "

>

> Listmates,

>

> After my 5th, 6th and 7th cycles of DMSA I experienced a progressively

> more severe " mercury rash " (hives). I had been taking 500 mg DMSA

> every 8 hrs for 3 days on with 11 days off (per the DAN protocol). My

> doctor advised me to rest and then cut the dose in half and to dose

> more frequently as per Andy's recommendations. The DAN protocol

> (Dr. Laidler) now also recommends such a course if reactions are

> experienced. I rested for 6 weeks and then started again at 100 mg

> every 4 hours for 3 days. I took 50 mg as the last dose in the

> sequence. Having gone through two such complete cycles, I am pleased

> to report that there has been no sign of the mercury rash/hives.

>

> Regards,

>

>

>

>

>

> ________________________________________________________________________

> ________________________________________________________________________

>

> Message: 6

> Date: Sun, 16 Dec 2001 04:18:04 -0000

> From: " lb1704 " <lb1704@...>

> Subject: Progress Report

>

> Group-

> Thought it might be time for a progress report. We've been chelating

> my 5-year old since labor day weekend of this year. He started out

> at 25 mg. of DMSA every 4 hours. We bumped it up to 50 mg. every 4

> hours a few cycles ago. Here's what we've noticed so far:

>

> 1. By far the most dramatic change is he's no longer tired.

> Although he's kinda a hyper guy - not the bouncing off the

> wall type, but fidgety, can't sit still, impulsive, - he

> always was tired. He'd lay on the couch to watch tv or videos,

> after every meal he'd go lay down on the couch, he'd go up in

> his room to lay down. This was every day. And it wasn't as if

> he wasn't getting enough sleep at night. He goes to bed around

> 8:30 and sleeps all the way through to 7:30 or 8:00 in the

> morning.

>

> Since we started chelating, this chronic fatigue thing has

> totally disappeared. I have not seen him lay down on the couch

> once since we began chelation (although I must admit I kinda

> miss it sometimes!)

>

> 2. His motor planning is better. For example, he could dress himself

> prior to chelation, but after he got started, he couldn' quite

> finish the job without alot of reminders and prodding from me.

> Suddenly, once we began chelation, I'll tell him to go get

> dressed and a minute later he's done. Picked out his clothes

> and got them all on in the right order. No fuss, no muss.

>

> 3. He's dropped a couple of annoying habits. One was he was always

> digging his chin into something. Some sorta sensory thing I

> guess and grinding his teeth when he did it. Totally stopped

> since chelation. He also did this stim thing with pushing

> books around. Stopped doing that too.

>

> 4. He's more social. He has a younger brother who, although he

> liked him being around, he didn't really say anything to him.

> He would kinda let me know what he wanted to get across to his

> brother, but now I've noticed he'll say things directly to him

> now and also to his teenage sister. He also used to move if

> his brother came and sat next to him on the couch or someplace

> else and now he has no problem being close to him.

>

> 5. He hand flaps a lot less. I'm a little reluctant to add this

> one because I've seen the flapping vary before, but this is

> a pretty long time where it's been way down.

>

>

> A couple of things I've noticed regarding DMSA. At 25 mgs he had no

> side effects. At 50 mgs. he gets more hyper on the 2nd day and that

> lasts a couple of days and fades. We just got back the results of

> our first urine test and he had high tin. Consequently, our Dr.

> advised not to start ALA until we reduce the tin, so we upped his

> DMSA to 75 mgs. this weekend to move it out faster. At 75 mgs. he

> seems a bit worse than at 50mgs. I actually saw him toewalking

> today which he never ever did in his life.

>

> Another interesting thing is his bloodwork. He's had bloodwork done

> every so often for the past 2 years or so and his MCV, MCH and MCHC

> values were always off. Too high. In addition his BU/CR Ratio was

> always way off - once double the high end of the range.

> Everytime I asked a Dr. about what that ratio was & why it was always

> off I always got a blow-off - Oh, it's nothing. Anyway, on his last

> blood test since chelating, that goofy ratio is finally normal as are

> the MCV, MCH and MCHC values. Don't know what any of them mean or if

> they are significant or not, but I just thought I'd mention it. It

> would be great if someone could enlighten me on what those mean.

>

> Finally, what I haven't seen any improvement in is the

> hpyer/impulsivity/distractibility component. He is verbal and I

> haven't noticed too much in the way in language improvement, but I

> wouldn't expect that until we added the ALA.

>

> Lori

>

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>

> ________________________________________________________________________

> ________________________________________________________________________

>

> Message: 7

> Date: Sat, 15 Dec 2001 23:02:51 -0600

> From: " Tana Cothran " <tana@...>

> Subject: RE: Fish-Natural sources and Mercury poioning..........

>

>

>

> -----Original Message-----

> From: findcure4autism [mailto:a_margaretcummings@...]

>

> i -and my family-have recently started fishing-purely as a way of

> introducing natural e.f,a's (essential fatty acids)to my childrens-

> diet (which i do believe are an important part of the human bodys

> detoxification process)- however, i have noted that the Flat-Fish we

> have caught, are /often/commonly deformed-ie:- two sides the same,

>

> Do you mean that they are built almost like " normal " fish?

>

>

> tumours ,deformed, in the river Tyne, N. E. England, these flat Fish

> (and /or Flounders)are bottom feeding fish-and i have noted that in

> their guts, there exists " sludge " -due, perhaps, to the fact that they

> are " bottom feeders " i do wonder if factory waste/ toxins such as

> Mercury/heavy metals from factory wastes etc; play a great part in

> this and would be interested to hear any other comments/ideas as

> to " safe fishing in the N.E. of England.

>

> Industrial waste and general pollution have everything to do with this.

>

>

> >From research i understand it only takes the small amount of Mercury

> ie:from a thermometor, to heavily contaminate a small lake!

>

> When I lived in Colorado, and I have heard of it in other locations, there

> were places that one was allowed to fish, but advised against eating the

> catch, or were advised not to eat more than X amount a week and that

> pregnant women and children shouldn't eat the fish from that area, etc. At

> the same time one hears advisories against eating tuna because of heavy

> metals, the low income WIC program puts it on the checks for breast

feeding

> women. Fish is a needed part of the human diet, unfortunately, we have

made

> them toxic. I would say that if you have seen more than 1 deformed fish in

> less than 5 years the river is too polluted to eat fish from.

>

> Anyway, those are my thoughts.

> Tana

>

>

> Why on earth, i wonder, is Mercury (Thiomersal) Aluminium in vaccines-

> when it is known to " knock out " Enzyme functions?

> Best wishes,

> Margaret.

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> Enzyme

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> =======================================================

>

[Guest guest]

Maranie,

I have not proposed a theory, just stated the facts, in my case.

However, I would agree with your theory that one element influencing

the presence or absence of the reaction is determined by an

individual's genetically predetermined immune response (e.g. HLA/MHC

type). My point is that it may be worth trying lower and more frequent

dosing if you are experiencing the " mercury rash " , despite the fact

that there is no guarantee that the rash would be eliminated in all

cases.

For comparison, I would be interested to learn whether or not you also

reduced the dosing and by what amount or factor. In my case I reduced

the total daily dosing by 60%, i.e., 600 mg vs 1500 mg.

Regards,

>

> Hi

>

> We have done both the 8 hour and the 4 hour dosing schedule and my

son has

> gotten the mercury rash with both ...... so there goes that

theory!!

> LOL... I think it's just specific to the individual.

>

>

> maranie

> unlockingautism state rep for MS

>

>

> Date: Sun, 16 Dec 2001 03:48:25 -0000

> > From: " jondank " <jondank@s...>

> > Subject: 4 hrs vs 8 hrs avoids " mercury rash "

> >

> > Listmates,

> >

> > After my 5th, 6th and 7th cycles of DMSA I experienced a

progressively

> > more severe " mercury rash " (hives). I had been taking 500 mg DMSA

> > every 8 hrs for 3 days on with 11 days off (per the DAN protocol).

My

> > doctor advised me to rest and then cut the dose in half and to

dose

> > more frequently as per Andy's recommendations. The DAN protocol

> > (Dr. Laidler) now also recommends such a course if reactions are

> > experienced. I rested for 6 weeks and then started again at 100 mg

> > every 4 hours for 3 days. I took 50 mg as the last dose in the

> > sequence. Having gone through two such complete cycles, I am

pleased

> > to report that there has been no sign of the mercury rash/hives.

> >

> > Regards,

> >

> >