Guest guest Posted May 25, 2001 Report Share Posted May 25, 2001 Hi Sonya, We have some things in common, I'm a single mother and my name is ! I would say you're right about wanting the removal of the tissue. At the very least it's going to affect your thyroid function even if it'snot malignant. Go with your gut feeling, it's ALWAYS good advice. Good luck to you! New Member intro > I just subscribed and thought I'd send a > note out to introduce myself. > > I'm a 31 year old single mom to three who has a strong > family history of papillary carcinoma of the thyroid. > All four of my moms sisters have had the cancer as > well as one of my male cousins at an early age. My > mother is having her second open biopsy in a couple of > weeks and I'm seeing a thoracic oncologist surgeon on > June 1st. > > I've had two ultrasounds and one needle biopsy, which > was done in January 2000. I just had a repeat > ultrasound last Friday and the lesion on my thyroid > has doubled in size since last year. Only my right > lower lobe is affected and it's homogenous in nature > with 2-3 lesions/nodules. The needle biopsy came back > non-malignant, but all of my aunts did also and they > *did* have cancer. I'm just a little concerned that > the lesion has doubled from about 5mm x 3mm to 12mm x > 6mm in about a year. > > When I see the surgeon next Friday, I'm going to ask > him about doing open biopsy or just removing the > thyroid, rather than doing another needle biopsy. I > really don't trust the needle biopsies. Especially if > the lesion is just going to keep growing and I'll be > doing it every year. > > I have three little girls and another concern I have > is there risk of inheriting the cancer disposition. > I've talked with a geneticist who wants to coordinate > getting our family into some research program in Ohio, > but the cost is crazy. They figure if they can see > which gene is mutated they can test other family > members for their pre-disposition if they want. We'll > see. > > Anyway, that's my story in a nutshell. I'm looking > forward to hearing from others. > > Sonya > sbellair@... > > > For more information regarding thyroid cancer visit www.thyca.org. If you do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank email to thyca-unsubscribe > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2001 Report Share Posted May 25, 2001 Hi, my name is , I'm new to the site, too. I'm with C. on this one, about going with your gut on the open biopsy, or thyroidectomy, especially in light of your " strong family history " and your concerns about the needle biopsy. SNIPS: From: <sbellair@y...> >>>I'm a 31 year old single mom to three who has a strong family history of papillary carcinoma of the thyroid. <<< >>>The needle biopsy came back non-malignant, but all of my aunts did also and they *did* have cancer. I'm just a little concerned that the lesion has doubled from about 5mm x 3mm to 12mm x 6mm in about a year.<<< >>>I really don't trust the needle biopsies. Especially if the lesion is just going to keep growing and I'll be doing it every year.<<< >>>I have three little girls and another concern I have is there risk of inheriting the cancer disposition.<<< Sonya sbellair@... END SNIPS: Best wushes, ===== ... 3/25/65 tt Papillary ThyCa w/lymph node mets HPTH 3 days post radical tt 3/25/82 Recurrence in neck/ & R chest Tx w/RAI 131 176 mCi hx kidney stones __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2001 Report Share Posted May 25, 2001 Hi Sonya, My family too has a history of Papillary Carcinoma. Not my mother but three of her sisters and two brothers, and many first cousins. We skipped the fine needle biopsy and went for a PT but ended up being a TT once the Surgeon had the frozen section tested. My nodules measured 3.0cm x 2.5cm Right lobe, and under a cm left lobe. It didn't detect that big in the scans and ultra sound. The nodules were underneath the thyroid, pressing against my larynx, esophagus and spine. In fact my doctor asked me after surgery if I was short of breath or if I had a hard time swallowing. Believe it or not I didn't. I believe Papillary Carcinoma is hereditary, but have no medical proof it is, accept many in my family have had it. I too am a single mother and I worry about my daughter, I also worry about my sister, who has a lumpy thyroid, but she's pregnant right now and I have heard that thyroids can become lumpy during pregnancy. Her OBGYN is keeping and eye on her. Jane 11/21/00 TT, dx Papillary Carcinoma 3.0cm x 2.5cm Right lobe, and under a cm left lobe 1/18/01 RAI i131 75.2mCi 4/16/01 still slightly hypo at 5.6 Taking Synthroid .150 daily New Scan and RAI at the end of July, Radiologists says I'll need a larger dosage this time around due to large remnant left behind. New Member intro I just subscribed and thought I'd send a note out to introduce myself. I'm a 31 year old single mom to three who has a strong family history of papillary carcinoma of the thyroid. All four of my moms sisters have had the cancer as well as one of my male cousins at an early age. My mother is having her second open biopsy in a couple of weeks and I'm seeing a thoracic oncologist surgeon on June 1st. I've had two ultrasounds and one needle biopsy, which was done in January 2000. I just had a repeat ultrasound last Friday and the lesion on my thyroid has doubled in size since last year. Only my right lower lobe is affected and it's homogenous in nature with 2-3 lesions/nodules. The needle biopsy came back non-malignant, but all of my aunts did also and they *did* have cancer. I'm just a little concerned that the lesion has doubled from about 5mm x 3mm to 12mm x 6mm in about a year. When I see the surgeon next Friday, I'm going to ask him about doing open biopsy or just removing the thyroid, rather than doing another needle biopsy. I really don't trust the needle biopsies. Especially if the lesion is just going to keep growing and I'll be doing it every year. I have three little girls and another concern I have is there risk of inheriting the cancer disposition. I've talked with a geneticist who wants to coordinate getting our family into some research program in Ohio, but the cost is crazy. They figure if they can see which gene is mutated they can test other family members for their pre-disposition if they want. We'll see. Anyway, that's my story in a nutshell. I'm looking forward to hearing from others. Sonya sbellair@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2001 Report Share Posted July 27, 2001 > Hello! > My name is Kim and I have already made a post to the group without an > introduction. > I am 27 years old and 4.5 years ago I was diagnosed with a bicornuate > uterus. This was discovered after a much stressful and I migh add > painful last trimester that ended in csection. The puzzle peices came > together quickly because I have a high incidence of miscarriage. I > had had two prior to my daughter, at nine and six weeks. I have other > infertility issues, annovulatory and short luteal phases, and after > my daughter was born was unable to take a pregnancy past 18-21 days > past ovulation. > Just FYI my OB is green, she has very little experience with > mullerian anomalies. She seems very eager to work with me and has > been doing some research about bicornuate uterus and pregnancy. Some > that I helped provide her with. The reason I chose her is because she > is pretty much willing to give me everything I want on my c-section > birth plan. > > Kim(2) Kim, Don't want to scare you, but this luteal phase defect is a concern, and you should be getting the extra blood tests by a hi-risk OB. We lost our first baby @ 12 weeks, then was diagnose with bicornal uterus and Luteal phase defect. the specialist who finally diagnosed everything said in all his years, he had only seen maybe 10 cases like mine, but that the baby was lost due to the luteal phase, and not the septate or the BU.. Please be careful GH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2001 Report Share Posted July 27, 2001 In a message dated 7/27/2001 1:34:49 AM Central Daylight Time, gethappy567@... writes: > Don't want to scare you, but this luteal phase defect is a concern, > Already taken care of! I am on 100mg of progesterone a day. I have been practicing Fertility Awareness for years and at my first appointment had my hcg and prog. levels checked. Kim2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2001 Report Share Posted July 27, 2001 Kim, Welcome to the group! Congratulations on your son and the pregnancy! Keep us updated and if you have any questions always feel free to ask. Faith Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 I'd be a little freaked to have BEARS walking through my yard, but it sounds like a pretty place, nevertheless! ) Glad you've joined us, Tabi! Jenn <>< -----Original Message----- I am just on the path of intuitive eating and really have enjoyed reading the messages I have gotten through this board so far. I have also thoroughly enjoyed reading people's blogs - so much so that I have decided to create my own! I am 31, married, with 3 children. I live in the woods - it is absolutely gorgeous! Streams running behind and in front of the house, bears walking through our yard, rabbits, deer, etc. http://mizbooksreads.blogspot.com http://intuitive-eating.blogspot.com http://health.groups.yahoo.com/group/IntuitiveEating_Support * NEVER DIET AGAIN! * Quote Link to comment Share on other sites More sharing options...
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