Guest guest Posted June 18, 2000 Report Share Posted June 18, 2000 Debbie, My name is and my husband Jeff and I have a 13 month old daughter who was diagnosed as deaf in March. We are in the last stages of the process to get her an implant. We meet with the surgeon on the 13th of July to choose a device (we're leaning towards Clarion) and schedule a surgery date. We had a terrible experience with hearing aids, and after meeting several parents of kids with implants (and the children themselves) we realized that this is the right thing for our daughter and our family. It has been a long, emotional process, but we are once again hopeful for the future and the wonderful things in store for . We are no strangers to modern technological advances in medicine. was born with cataracts and has artificial lens implants; thanks to them, she can see! With a little luck and a lot of hard work, she'll be able to hear very soon! Best of luck to you. How old is your daughter? What have some of your experiences been? I'd love to hear from you. Mom to , deaf, 13 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2000 Report Share Posted June 18, 2000 Hi , I`m really glad that you wrote, we only have a couple of appts left in Susie`s choclear implant process, she was diagnosed as deaf at 10 months, and is now 2 1/2, we gave hearing aids a really good chance but had no luck, she has still to say one word. I know that she will probably get the implant in September. I am so excited about her being able to hear, it has been a long road with her since she also has charge syndrome, but everything is getting better with time, she is doing very well and her hearing is just one thing we can do for her to make her life a whole lot easier. I hope all goes well with . Are you in Canada or the States? Debbie Cachia, mother of Susie 2 1/2. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2000 Report Share Posted June 19, 2000 Debbie, We are in the US, Long Island NY as a matter of fact. I am so excited about 's upcoming surgery, tentatively set for the end of July. She will be 16 when she is implanted, so her chances of learning language naturally and successfully will be great. It truly is miraculous technology and our girls are lucky be getting in on it at such a young age. Best of luck, Jen Mom to , 13 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2000 Report Share Posted June 20, 2000 Good luck , that is so soon! I wish Susie was getting her implant in July too! but we`ll just be patient and wait it out, but it really is a miracle that they will be able to hear and speak, I get overwhelmed at times when I think of hearing her voice. And the best of luck to you and . Debbie. Mother of Susie. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2000 Report Share Posted June 22, 2000 Felt compelled to share on this one: on my son's first birthday I cried as his family sang Happy B'day to him, knowing he couldn't hear us. Then 5 months post implant, his 3rd b'day, the tears came when I saw the expressions go across his smiling face as we sang to him. Now he's 4.5 and last weekend at my sisters b'day I went for the tissues as He Sang Happy Birthday to her! Heidi > Had to reply to this one, Debbie, when you talked about hearing Susie's voice. I > remember when I heard my son say his first word at two. WOW what a memory. > Thanks for stirring those thoughts up today, makes me smile when I think about > it. How awesome it was to FINALLY hear him say " mom " !! > Much good luck with everything, I'll bet you are excited!! Can't wait to hear > all about Susie's implant. Be patient and keep smiling! > in TX > > ____________________Reply Separator____________________ > Subject: Re: Cochlear implant > Author: Listen-Upegroups > Date: 06/20/2000 1:38 PM > > Good luck , that is so soon! I wish Susie was getting her > implant in July too! but we`ll just be patient and wait it out, but > it really is a miracle that they will be able to hear and speak, I > get overwhelmed at times when I think of hearing her voice. And the > best of luck to you and . Debbie. Mother of Susie. > > > ---------------------------------------------------------------------- -- > Air purifiers, bedding, household cleaning & more! gazoontite.com! > http://click./1/5492/2/_/440511/_/961526680/ > ---------------------------------------------------------------------- -- > > All messages posted to this list are private and confidential. Each post is the > intellectual property of the author and therefore subject to copyright > restrictions. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2000 Report Share Posted June 22, 2000 Hi Heidi, I have to tell you that reading your post about your son singing happy birthday made me cry, it is wonderful to hear about the progress the kids are making with their implants, and to see the happiness in their parents writing! Debbie, mother of Susie. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2000 Report Share Posted June 23, 2000 In a message dated 6/22/00 3:49:02 PM Eastern Daylight Time, heidi_smart@... writes: << Now he's 4.5 and last weekend at my sisters b'day I went for the tissues as He Sang Happy Birthday to her! Heidi >> How wonderful! It's so amazing that we have this technology to turn to. I'm so happy for you! Suzette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2000 Report Share Posted June 23, 2000 Yes, it was a definate Kodak moment that I was unprepared for. But I'll be ready with cam-corder in hand fo the next birthday. As his speech is developing, I've really noticed the changes in his intonation/expression/or suprasegmentals. He goes from " what? " the polite response to my calling for him to " WHAA-UUTT! " the response I get when he's in the middle of serious play and doesn't want to be interrupted. I never thought I would be encouraging my child to whine. (smile) Heidi > Hi Heidi, I have to tell you that reading your post about your son > singing happy birthday made me cry, it is wonderful to hear about the > progress the kids are making with their implants, and to see the > happiness in their parents writing! > Debbie, mother of Susie. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2000 Report Share Posted June 23, 2000 Thanks, this technology certainly is wonderous. At our last check-up the CI center had me complete a questionarre (sp?) or follow-up survey. They asked me to list what I felt the benefits were to the CI. I responded simply with - Duh! Kidding, I didn't even though I wanted to. When it came to listing the negatives I felt in our case they were nothing compared to the benefits. But I will say this, the batteries are a bit costly especially with his new ACE program that needs twice the juice. I'm considering writing Duracell and others to suggest they set up a scholarhip program for CI kids. Don't you think that would be a good pr thing? After all, over the years we will be investing an awful lot into their companies, I should really buy stock. Heidi > In a message dated 6/22/00 3:49:02 PM Eastern Daylight Time, > heidi_smart@m... writes: > > << Now he's 4.5 and last weekend at my sisters b'day I went for the > tissues as He Sang Happy Birthday to her! > Heidi >> > > How wonderful! It's so amazing that we have this technology to turn to. I'm > so happy for you! > > Suzette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2000 Report Share Posted June 23, 2000 > I will say this, the batteries are a bit costly especially with his > new ACE program that needs twice the juice. Why aren't you using the rechargeables? Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2000 Report Share Posted June 23, 2000 I do, I use both. But I must not have a good brand because they don't last the whole day. He needs two AA's in his processor and my recharger, charges four at a time and takes 24 hours to charge. I just send throw-aways to school because I don't want staff throwing away the rechargables. Heidi > > I will say this, the batteries are a bit costly especially with his > > new ACE program that needs twice the juice. > > Why aren't you using the rechargeables? > > Kay Quote Link to comment Share on other sites More sharing options...
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