Guest guest Posted June 9, 2001 Report Share Posted June 9, 2001 I wonder if your answer might be in more of an Atkins diet than a strict ketodiet. It works for some kids and would give you a little more carb to play with. But heck even on a lower ratio of the ketodiet, well even on this ratio, we are on 3.5:1 you can do so some starch. A small amount of potato (and I do mean small) for potato salad, a little bit of whole wheat bread (on a 3;1 you can get about a quarter of a slice) toasted with bacon for breakfast, pita bread can be used as a base for " pizza " , so even though the veggies and fruits are a much healther choice, life doesn't have to be starch free. The problem with an Atkins diet is the only way to find out whether or not it will work for seizure control is the hard way - trying it and seeing if things get worse or not. But if you get to the point where you really can't keep her on the diet anymore, it might be worth a shot , jessica's mom wrote: > Liz, > I am so happy for you. Really I am. See I feel that > the diet is a great defense againest this awlfull > battle we, as parents, have to fight. I am 100% sure > it works, I just feel that if you don't have the full > cooperation of the child then you are fighting a > losing battle. Keri has had all the wonderful taste > in her system of the breads, cookies, milk, ice cream, > ect, ect, and the list goes on, for 9 years of her > life and then all of a sudden here I am having to tell > her " no " . This is a child that never set down to a > meal with out a biscuit, or mashed potatoes, or rice, > or dinner rolls. She would eat cerel out of the box > in the afternoon for an after school snack or have a > bowl of oatmeal for breakfast. She, like many other > children, was raised on carbs. And now... none... or > a very small amount. I am just tired of being the > monster mom, always saying no. I have to draw the > line some where. But where??? I know in my heart this > is the right thing for her I am just ... I don't know. > I am open to suggestions but I think they are running > scarce. I have tried quite a few deveations. If you > are interested I can give you a run down on ever step > we have made and then you can brainstorm and maybe > come up with something her neuro, dietitian, and > myself have not thought of. Let me know if you do and > I will put together a list. > > --- Liz Rezanson wrote: > > Gillian started the diet at 15mo old. She was about > > eight months > > developmentally and ate most of the things we ate > > accept raw veges cause she > > doesn't have all her teeth yet. She used to have > > 75-100 siezures a day of > > which I'd see and record 25-40 of. Now I see 0-10 > > myoclonic siezures a day > > and we still have lots of room for fine tuning the > > diet so I'm optomistic > > this is her miracle treatment that is going to make > > her siezure free. Hope > > it is for you too. Just wanted to let you know > > there's a few young ones out > > there doing great on the diet. > > Liz4Gillian > > Gillian's 17mo with Myoclonic epi and global > > development delays > > > > > > ===== > -- Happy mom of Keri, a busy EMH kid with epilepsy since age 6. > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2001 Report Share Posted June 9, 2001 I wonder if your answer might be in more of an Atkins diet than a strict ketodiet. It works for some kids and would give you a little more carb to play with. But heck even on a lower ratio of the ketodiet, well even on this ratio, we are on 3.5:1 you can do so some starch. A small amount of potato (and I do mean small) for potato salad, a little bit of whole wheat bread (on a 3;1 you can get about a quarter of a slice) toasted with bacon for breakfast, pita bread can be used as a base for " pizza " , so even though the veggies and fruits are a much healther choice, life doesn't have to be starch free. The problem with an Atkins diet is the only way to find out whether or not it will work for seizure control is the hard way - trying it and seeing if things get worse or not. But if you get to the point where you really can't keep her on the diet anymore, it might be worth a shot , jessica's mom wrote: > Liz, > I am so happy for you. Really I am. See I feel that > the diet is a great defense againest this awlfull > battle we, as parents, have to fight. I am 100% sure > it works, I just feel that if you don't have the full > cooperation of the child then you are fighting a > losing battle. Keri has had all the wonderful taste > in her system of the breads, cookies, milk, ice cream, > ect, ect, and the list goes on, for 9 years of her > life and then all of a sudden here I am having to tell > her " no " . This is a child that never set down to a > meal with out a biscuit, or mashed potatoes, or rice, > or dinner rolls. She would eat cerel out of the box > in the afternoon for an after school snack or have a > bowl of oatmeal for breakfast. She, like many other > children, was raised on carbs. And now... none... or > a very small amount. I am just tired of being the > monster mom, always saying no. I have to draw the > line some where. But where??? I know in my heart this > is the right thing for her I am just ... I don't know. > I am open to suggestions but I think they are running > scarce. I have tried quite a few deveations. If you > are interested I can give you a run down on ever step > we have made and then you can brainstorm and maybe > come up with something her neuro, dietitian, and > myself have not thought of. Let me know if you do and > I will put together a list. > > --- Liz Rezanson wrote: > > Gillian started the diet at 15mo old. She was about > > eight months > > developmentally and ate most of the things we ate > > accept raw veges cause she > > doesn't have all her teeth yet. She used to have > > 75-100 siezures a day of > > which I'd see and record 25-40 of. Now I see 0-10 > > myoclonic siezures a day > > and we still have lots of room for fine tuning the > > diet so I'm optomistic > > this is her miracle treatment that is going to make > > her siezure free. Hope > > it is for you too. Just wanted to let you know > > there's a few young ones out > > there doing great on the diet. > > Liz4Gillian > > Gillian's 17mo with Myoclonic epi and global > > development delays > > > > > > ===== > -- Happy mom of Keri, a busy EMH kid with epilepsy since age 6. > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2001 Report Share Posted June 9, 2001 I'm sorry when I posted the last letter I ment it to be directed at who was talking about how young her child was to start the diet, but I forgot to redo the subjet line. I wanted to let her know that there are other young ones on the diet. I realized after I sent it that I had forgot to redo the subject line. I then resent it directed to but it was too late. I hope I didn't upset you. I can only imagine how hard it would be to have a older child, who knows how good food can be, on the diet. Especially if your not seeing the benefits. I'm not the best one to ask to brain storm for you as I don't have the experience as some do on the list and I have it easy with Gillian eating anything I put in front of her. I'm sure you have more experience than I . Sorry again for any anxiety caused. I wish you all the best in the future. God Bless. Liz4Gillian Liz > Liz, > I am so happy for you. Really I am. See I feel that > the diet is a great defense againest this awlfull > battle we, as parents, have to fight. I am 100% sure > it works, I just feel that if you don't have the full > cooperation of the child then you are fighting a > losing battle. Keri has had all the wonderful taste > in her system of the breads, cookies, milk, ice cream, > ect, ect, and the list goes on, for 9 years of her > life and then all of a sudden here I am having to tell > her " no " . This is a child that never set down to a > meal with out a biscuit, or mashed potatoes, or rice, > or dinner rolls. She would eat cerel out of the box > in the afternoon for an after school snack or have a > bowl of oatmeal for breakfast. She, like many other > children, was raised on carbs. And now... none... or > a very small amount. I am just tired of being the > monster mom, always saying no. I have to draw the > line some where. But where??? I know in my heart this > is the right thing for her I am just ... I don't know. > I am open to suggestions but I think they are running > scarce. I have tried quite a few deveations. If you > are interested I can give you a run down on ever step > we have made and then you can brainstorm and maybe > come up with something her neuro, dietitian, and > myself have not thought of. Let me know if you do and > I will put together a list. > > > > --- Liz Rezanson wrote: > > Gillian started the diet at 15mo old. She was about > > eight months > > developmentally and ate most of the things we ate > > accept raw veges cause she > > doesn't have all her teeth yet. She used to have > > 75-100 siezures a day of > > which I'd see and record 25-40 of. Now I see 0-10 > > myoclonic siezures a day > > and we still have lots of room for fine tuning the > > diet so I'm optomistic > > this is her miracle treatment that is going to make > > her siezure free. Hope > > it is for you too. Just wanted to let you know > > there's a few young ones out > > there doing great on the diet. > > Liz4Gillian > > Gillian's 17mo with Myoclonic epi and global > > development delays > > > > > > > ===== > -- Happy mom of Keri, a busy EMH kid with epilepsy since age 6. > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2001 Report Share Posted June 10, 2001 --- Liz Rezanson wrote: > I'm sorry when I posted the last letter I ment > it to be directed at > who was talking about how young her child > was to start the diet, but > I forgot to redo the subjet line. Hey ... don't give it a second thought. I am just happy to know that there are some kids out there doing great on the diet. ===== -- Happy mom of Keri, a busy EMH kid with epilepsy since age 6. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 , how well I know this feeling. {{{HUGS}}} How is your control, on this ratio, and is there any evidence at all that she might do better on a lower ratio? Nate is one of those kids for whom flax makes large ketones, we are currently not using any, but I know that if I run into real trouble with him, and have to drop the ratio even lower, I can give him flax and still keep the ketones. Normally I don't recommend messing around with the diet if it's working, but a lot of folks don't have any idea how bad it can be with a child who is used to eating carbs, and is able to get into things, and has the intelligence to open any lock..........we are one step ahead of Nate right now, instead of one step behind, like usual. Hang in there, and feel free to cry on my shoulder anytime (but be careful, because I am the best whiner you've ever met!! <G>) LOve, Deb > Liz, > I am so happy for you. Really I am. See I feel that > the diet is a great defense againest this awlfull > battle we, as parents, have to fight. I am 100% sure > it works, I just feel that if you don't have the full > cooperation of the child then you are fighting a > losing battle. Keri has had all the wonderful taste > in her system of the breads, cookies, milk, ice cream, > ect, ect, and the list goes on, for 9 years of her > life and then all of a sudden here I am having to tell > her " no " . This is a child that never set down to a > meal with out a biscuit, or mashed potatoes, or rice, > or dinner rolls. She would eat cerel out of the box > in the afternoon for an after school snack or have a > bowl of oatmeal for breakfast. She, like many other > children, was raised on carbs. And now... none... or > a very small amount. I am just tired of being the > monster mom, always saying no. I have to draw the > line some where. But where??? I know in my heart this > is the right thing for her I am just ... I don't know. > I am open to suggestions but I think they are running > scarce. I have tried quite a few deveations. If you > are interested I can give you a run down on ever step > we have made and then you can brainstorm and maybe > come up with something her neuro, dietitian, and > myself have not thought of. Let me know if you do and > I will put together a list. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 --- Debbie Reynolds wrote: > , how well I know this feeling. {{{HUGS}}} > How is your control, on > this ratio, and is there any evidence at all that > she might do better on a > lower ratio? Nate is one of those kids for whom > flax makes large ketones, > we are currently not using any, but I know that if I > run into real trouble > with him, and have to drop the ratio even lower, I > can give him flax and > still keep the ketones. What is flax? I am not sure of this ... I have seen it mentioned before but I am pretty sure that Keri does not get this. Is it some sort of oil or what? Let me know and then I can check into it. Maybe it is something she should be getting. She right now only takes the Bugs Bunny Childrens Vitimins and a Calcium capsul. So I am going to check into that also. I see where some the these moms have their children on B6 and other things. > Normally I don't recommend messing around with the > diet if it's working, but > a lot of folks don't have any idea how bad it can be > with a child who is > used to eating carbs, and is able to get into > things, and has the > intelligence to open any lock..........we are one > step ahead of Nate right > now, instead of one step behind, like usual. > Hang in there, and feel free to cry on my shoulder > anytime (but be careful, > because I am the best whiner you've ever met!! <G>) > LOve, Deb > > > Liz, > > I am so happy for you. Really I am. See I feel > that > > the diet is a great defense againest this awlfull > > battle we, as parents, have to fight. I am 100% > sure > > it works, I just feel that if you don't have the > full > > cooperation of the child then you are fighting a > > losing battle. Keri has had all the wonderful > taste > > in her system of the breads, cookies, milk, ice > cream, > > ect, ect, and the list goes on, for 9 years of her > > life and then all of a sudden here I am having to > tell > > her " no " . This is a child that never set down to > a > > meal with out a biscuit, or mashed potatoes, or > rice, > > or dinner rolls. She would eat cerel out of the > box > > in the afternoon for an after school snack or have > a > > bowl of oatmeal for breakfast. She, like many > other > > children, was raised on carbs. And now... none... > or > > a very small amount. I am just tired of being the > > monster mom, always saying no. I have to draw the > > line some where. But where??? I know in my heart > this > > is the right thing for her I am just ... I don't > know. > > I am open to suggestions but I think they are > running > > scarce. I have tried quite a few deveations. If > you > > are interested I can give you a run down on ever > step > > we have made and then you can brainstorm and maybe > > come up with something her neuro, dietitian, and > > myself have not thought of. Let me know if you do > and > > I will put together a list. > > > > > > ===== -- Happy mom of Keri, a busy EMH kid with epilepsy since age 6. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2002 Report Share Posted May 20, 2002 Gee,lol,I wondered what happened to all the emil I had been getting. No problem! I miss chat so much,but groups chat stinks,kwim? Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2002 Report Share Posted May 20, 2002 Doris C would like you to rejoin the stage 4 group. She was deleting an offensive member and accidently deleted you. She also doesnt have your e-mail, so she could let you know what happened. Jeana Quote Link to comment Share on other sites More sharing options...
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