Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 HIYA JODI!! NICE TO MEET YA...AND WELCOME!! IT IS ALWAYS HARD TRYING TO GET DOCS TO RECOGINIZE THIS "DIS"EASE!! BELIEVE ME...EVERY SINGLE PERSON ON HERE KNOWS WHAT ITS LIKE! I HAVE GOT DIAGNOSED WITH CFIDS WHEN I WAS 14...BUT THEY FIGURED THAT I HAVE HAD IT ALL MY LIFE...WELL NOT ALL MY LIFE...SINCE I WAS ABOUT 2 WEEKS OLD!!! SO I HAVE LIVED WITH THIS FOR A LONG TIME...22 YEARS TO BE EXACT! JUST IN CASE YOU HAVE FORGOTTEN OR I FORGOT TO INTRODUCE MYSELF BEFORE...I AM NICOLE....THE ONCE BABY OF THIS FAMILY...BUT I HAVE MOVED ON TO BIG SISTER!!! WE GOT OTHERS HERE NOW THAT ARE YOUNGER THAN ME! I AM 22 YEARS OLD...MARRIED AND I HAVE A BEAUTIFUL LITTLE MAN WHO IS 4 GOING ON 17! WELCOME TO OUR FAMILY...CAN'T WAIT TO HEAR FROM YA MORE... LUVS XOXO NICOLE :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 I CAN'T HELP YA THERE...BUT I AM SURE SOMEONE ELSE HERE CAN!! LUVS XOXO NICOLE :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 Hello: My name is Jodi, and I just joined the group. I'm having a good day, so I have enough energy to type a short introduction. I'm 32 years old. I'm married and have a daughter who is nine. I've been diabetic for almost twenty years, and have had hypothyroidism for about nine. I believe that I've had CFIDS for about five years. It's always been easy for the doctors to blame my vague symptoms on the diabetes and hypothyroidism, even when blood tests have proven that these disorders are in good control. I haven't had an official diagnosis yet, other than myofascial pain. My next appointment is on Friday, and I'm trying to gear up to go in there (yet again). I've printed out several sheets on symptoms and diagnosis criteria to take along with me. Hopefully, I'll have some success in getting a diagnosis so that I can (try to) move forward. I look forward to being part of this group. Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 Hi, : Thanks for the nice welcome. I'm looking forward to having contact with others who know what life, or lack thereof, is like. Someone in another group mentioned having my Rnase levels checked ... Can you, or anyone else, tell me what this is? Jodi Re: *ahem* ... Hello HIYA JODI!!NICE TO MEET YA...AND WELCOME!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 COULD THEY HAVE MEANT ANA? IF THAT'S IT IT SHOULD BE STANDARD TO TEST U WITH IT. IT IS TO TEST FOR INFLAMATORY (AUTOIMMUNE) DISEASE, LIKE LUPUS & RA. WHICH HAVE TO BE RULED OUT--ALTHOUGH YOU CAN HAVE LUPUS & FMS AT THE SAME TIME. A FMS DX IS DECIDED ON ONCE EVERYTHING ELSE HAS BEEN RULED OUT & IF YOU HAVE A CERTAIN # OF TENDER POINTS & A COUPLA OTHER THINGS I CAN'T REMEMBER RIGHT NOW...U DO NEED AN ANA TEST FOR SURE. .... OH, NOT SHOUTING--WE USE CAPS SO SOME OF US CAN READ THE TEXT BETTER. GOOD LUCK, CARO __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 WELCOME TO THE FAMILY, JODI !!! NICE TO SEE YA INTRODUCE YOURSELF, HON !! BTW, WE USE 'CAPS', CAUSE A FEW OF THE LADIES HAVE EYE PROBLEMS !!! SO WE'RE NOT SHOUTING !!!! LOL !! I'M KAREN, 51, FROM S.W.PA. !! AND I HAVE A 12YO SON ! YOU CAN GET A LOT OF INFO, HERE, HON !! WE'LL TRY AND GET YA SOME STUFF TO TAKE TO YOUR DOC !!! IF YOU'RE LUCKY, DONI-MARIE WILL CHECK IN !! SHE'S OUR RESIDENT EXPERT AND ALL ROUND GENIUS !! (SHES GONNA KILL ME !! LOL !) I GOT TO GO TO BED, SOON, SO I'LL SEE WHAT I CAN COME UP WITH TOMORROW !! GLAD TO HAVE YA ABOARD HON ! 8^) Hello: My name is Jodi, and I just joined the group. I'm having a good day, so I have enough energy to type a short introduction. I'm 32 years old. I'm married and have a daughter who is nine. I've been diabetic for almost twenty years, and have had hypothyroidism for about nine. I believe that I've had CFIDS for about five years. It's always been easy for the doctors to blame my vague symptoms on the diabetes and hypothyroidism, even when blood tests have proven that these disorders are in good control. I haven't had an official diagnosis yet, other than myofascial pain. My next appointment is on Friday, and I'm trying to gear up to go in there (yet again). I've printed out several sheets on symptoms and diagnosis criteria to take along with me. Hopefully, I'll have some success in getting a diagnosis so that I can (try to) move forward. I look forward to being part of this group. Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2002 Report Share Posted February 14, 2002 HELLO: THANKS FOR THE NICE WELCOME, IN THIS GROUP AND THE OTHER. I'M LOOKING FORWARD TO HEARING OTHERS' STORIES, AND BEING ABLE TO SHARE WITH ALL OF YOU, AS WELL. THANKS AGAIN: JODI Re: *ahem* ... Hello WELCOME TO THE FAMILY, JODI !!! NICE TO SEE YA INTRODUCE YOURSELF, HON!! BTW, WE USE 'CAPS', CAUSE A FEW OF THE LADIES HAVE EYE PROBLEMS !!!SO WE'RE NOT SHOUTING !!!! LOL !! I'M KAREN, 51, FROM S.W.PA. !! AND IHAVE A 12YO SON !YOU CAN GET A LOT OF INFO, HERE, HON !! WE'LL TRY AND GET YA SOME STUFFTO TAKE TO YOUR DOC !!! IF YOU'RE LUCKY, DONI-MARIE WILL CHECK IN !!SHE'S OUR RESIDENT EXPERT AND ALL ROUND GENIUS !! (SHES GONNA KILL ME !!LOL !) I GOT TO GO TO BED, SOON, SO I'LL SEE WHAT I CAN COME UP WITHTOMORROW !! GLAD TO HAVE YA ABOARD HON ! 8^) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2002 Report Share Posted February 14, 2002 HI, CARO: THANKS FOR THAT INFORMATION. I ASSUME THIS IS THE TEST THAT I WAS REFERRED TO. I'LL TAKE THIS INFORMATION WITH ME TO THE DOCTOR ON FRIDAY. I'M TRYING TO GEAR UP TO GO, BUT A DOCTOR'S VISIT ALWAYS CAUSES SO MUCH ANXIETY. I'M SURE THAT MOST OF YOU UNDERSTAND WHAT I MEAN. JODI Re: *ahem* ... Hello COULD THEY HAVE MEANT ANA? IF THAT'S IT IT SHOULD BESTANDARD TO TEST U WITH IT. IT IS TO TEST FORINFLAMATORY (AUTOIMMUNE) DISEASE, LIKE LUPUS & RA.WHICH HAVE TO BE RULED OUT--ALTHOUGH YOU CAN HAVELUPUS & FMS AT THE SAME TIME. A FMS DX IS DECIDED ONONCE EVERYTHING ELSE HAS BEEN RULED OUT & IF YOU HAVEA CERTAIN # OF TENDER POINTS & A COUPLA OTHER THINGS ICAN'T REMEMBER RIGHT NOW...U DO NEED AN ANA TEST FORSURE. ....OH, NOT SHOUTING--WE USE CAPS SO SOME OF US CAN READTHE TEXT BETTER. GOOD LUCK, CARO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2002 Report Share Posted February 14, 2002 JODIE WHERE DO YOU LIVE AND HOW LONG HAVE YOU HAD THESE DD? BETSY IN FLORIDA HELLO: THANKS FOR THE NICE WELCOME, IN THIS GROUP AND THE OTHER. I'M LOOKING FORWARD TO HEARING OTHERS' STORIES, AND BEING ABLE TO SHARE WITH ALL OF YOU, AS WELL. THANKS AGAIN: JODI Re: *ahem* ... Hello WELCOME TO THE FAMILY, JODI !!! NICE TO SEE YA INTRODUCE YOURSELF, HON!! BTW, WE USE 'CAPS', CAUSE A FEW OF THE LADIES HAVE EYE PROBLEMS !!!SO WE'RE NOT SHOUTING !!!! LOL !! I'M KAREN, 51, FROM S.W.PA. !! AND IHAVE A 12YO SON !YOU CAN GET A LOT OF INFO, HERE, HON !! WE'LL TRY AND GET YA SOME STUFFTO TAKE TO YOUR DOC !!! IF YOU'RE LUCKY, DONI-MARIE WILL CHECK IN !!SHE'S OUR RESIDENT EXPERT AND ALL ROUND GENIUS !! (SHES GONNA KILL ME !!LOL !) I GOT TO GO TO BED, SOON, SO I'LL SEE WHAT I CAN COME UP WITHTOMORROW !! GLAD TO HAVE YA ABOARD HON ! 8^) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2002 Report Share Posted February 14, 2002 HI, BETSY: I LIVE IN WISCONSIN. I'VE BEEN HAVING CFS SYMPTOMS FOR AT LEAST 5 YEARS. A FEW WEEKS AGO, I CAME ACROSS SOME SITES WITH SYMPTOMS AND DIAGNOSIS CRITERIA ... I WAS SO HAPPY THAT I CRIED. IT WAS LIKE LOOKING IN A MIRROR. NOT SURE WHAT DD STANDS FOR (SORRY), BUT I HOPE THAT I ANSWERED YOUR QUESTION. JODI Re: *ahem* ... Hello JODIEWHERE DO YOU LIVE AND HOW LONGHAVE YOU HAD THESE DD?BETSY IN FLORIDA Quote Link to comment Share on other sites More sharing options...
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