Guest guest Posted December 29, 2001 Report Share Posted December 29, 2001 Hi! I promised an update, so here it is. My latest scan was on Thursday morning and my father came up from DC on Wednesday (stayed through Thursday afternoon), so I haven't had a chance to do much e-mail in a couple of days. The result was 2 small spots shining very brightly, like stars against a deep-midnight sky (pause for Christmas music), the larger no more than 1 cm. They were close together and were in all likelihood the " two small tufts of thyroid " that Fraker tied to the recurrent laryngeal nerve to protect it. If my state of abject misery over the last couple of months is any guide, he got everything, and I do mean everything, else (thyroid-wise). No other thyroid tissue showed up on any of the three scans. He has quite a fine reputation, and I know why! Seeing scans of myself, especially the pitch-dark-with-a-little-light negatives, was most interesting! My only regret (to paraphrase Hale) is that I missed getting Osama. Well, he's apparently in ESRD (end-stage renal disease), so that'll get him, if nothing (and no one) else does. On Monday morning I started taking the Synthroid/Cytomel combo and began to notice an improvement in the state of my digestive system literally within hours. I also started taking glucosamine chondroitin that day, so with any luck my TMJs will start to get better in the next (I hate to say it but) couple of months; I don't expect quick results with it but most people do find the results gratifying. Due to a combination of lithium and (mild) chronic renal failure I've been advised against NSAIDs...even including aspirin! The TMJs have been improving slowly and in fits and starts anyway; I have an appliance that I wear not just at night but most of the day as well. My memory is starting to come back; it's not quite as Swiss-cheesy as it was...but I don't have a whole heck of a lot of energy yet and wonder if I'll be able to go back to work on Wednesday, which was the original plan. I'm told it can take a couple of weeks to notice any appreciable difference after you start taking Synthroid (etc.). I did realize within a day (two at the most) that I was no longer dizzy; I had that problem beginning some time after the first surgery (9/11!) and considerably worse after the second (10/16), and a low dose of Cytomel (25 mcg., then 50) did no good at all...Levoxyl after the first surgery didn't help a bit, so I switched to Cytomel after the second, stopped it after Dec. 2, spent two lovely weeks on the LID from the 10th to the 24th, celebrated with sushi (shrimp!) and seaweed salad. For anyone who gets constipated, here's a recipe my endo's nurse-practitioner gave me; it's effective and tasty, and can double as breakfast in the morning (midnight snack at night): granulated bran (I found oat bran; you can use it as hot cereal, too), apple sauce and prune juice. I used about a teaspoon of bran, 1 1/2 or 2 teaspoons apple sauce, and 2 teaspoons prune juice. Mix them together, microwave the mixture for 20-25 seconds and the result is not bad at all! (I also used Metamucil, the orange-flavored kind since I got fed up with the other, and Colace. I've stopped all of them, although I like prune juice so I mix it with iced tea or another juice. Not all the time, just when I feel like it.) I had the cats at the vet (boarding and checkups; Charlotte, the youngest, needed her shots) for a couple of days to minimize the risk to them, even with a low dose of RAI (100 mCi)--they were there from last Wed. until last Sat. afternoon, and I got the horse capsule last Thursday at around 11:30 AM. Cosette's been sneezing since a couple of days after I brought her back, but she's not wheezing or acting uncomfortable so I suspect it's from one of the vaccines they sometimes get--it's a nasal spray and it makes them sneeze. She was due for it anyway. I, alas, began to notice something the night I brought them back: congestion. Woke me up in the middle of the night; worse than it's ever been. Last night it wasn't as bad, but I have a feeling I'm allergic to them now. I've never had such a bad problem with it before. Well, I'm not giving them up; I was miserable without them!! (I have horrible reactions to antihistamines; had an " allergy alert " hospital bracelet about it.) That's about it! Happy New Year to all... Barbara Quote Link to comment Share on other sites More sharing options...
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