Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 Gosh! I just love this - so glad you have shared your story with us please send " updates " as you go along. enjoy your child Terri (NZ) [ ] I'm so happy Hi Moria, Hi everybody, My name is Valentina and I live in Arad, Romania. My son Denis (3 yo) was diagnosed a month ago as being autistic. Well... like many of your kids probably, he was perfectly normal in his first year of life, but after that... UFF!! I kind of lost him And I want him back! I'm not exactly new to this list but I didn't really have something to say so far, so... I didn't want to give you junk to read. (I know how many of you wish for a 35 hours day )LOL me too!) Anyway, the reasons I want to write something now... are two. First, I wanted to thank you all! You are all so great! Absolutely wonderful people! I have no idea what I would have done if I didn't find this group, and if I didn't have all your experiences and advices to learn from. Thank you Moria again, Andy, , everybody! All your advices and all your work to maintain this group are really great! I've learned so much lately... When I first heard about chelation I said to myself that I could never be able to do something like this, from a lot of reasons, and one of them would be because doctors here are not helping much... actually they don't help at all... They don't know ANYTHING about mercury being connected with autism, they never heard about thimerosal being used in vaccines. I talked about this so far with three of them, and none seemed like they had any idea about what I'm talking. One of them even called me crazy And another reason why I thought I couldn't chelate my son by myself (I would have done it without doctors) I knew there is no way I could have some analyses done for him... NO LAB in this whole country would do a hair analyze! or a blood analyze to check mercury levels. The only available test I found, was some analyze for copper in blood. And that was at a price.... UFF!! Listening you talking about all those tests that I never heard of... UFF! The sad part is that the labs here never heard of them. Anyway, I do have the courage now to chelate Denis even without doctors and without the proper analyses because I have all your experience, and because I know there is no other way! Oh! I forgot to say that also, we don't have (in this city) some special schools for these kids. Any kind of special education. I would have been thankful if I could have found some place where I can take him, any kind of kindergarten. But no kindergarten wanted to get him, because they said " he is too weird " .... long story So again, chelation was the only option for us! So I asked a friend of mine from the States to buy and send me some ALA. (I couldn't find this either here. or Chemet) So, the second reason I wanted to write this email for, is because today, me and Denis started chelation. Amazing, but I've seen the changes in the first 2-3 hours! (I gave him 10mg ALA with each dose. he is 37 lbs.) First of all, he is echolalic and apraxic He would never repeat words after me. Only from tv or radio. But this morning I asked him if he is playing and he repeated exactly my words! And I could even understand them! And anyway, all day he repeated words after me... and he talked all day! I am so sorry I cannot understand what he says... But now he calls me " maiiii " Another great thing, he didn't cry, yell, rolled on the floor, all day! Not even once! This is so incredible for me I got so used to his tantrums When we went out for a walk, he looked at the people, buildings... It was so amazing I felt like for the first time in my life I am out with Denis He was always so absent... We went to a friend of mine, because I wanted somebody to tell me that I'm not dreaming Well, this friend of mine never heard Denis speaking before. But this time, we went in there and Denis started to talk and he talked and talked ) And it was not just the talking part. He was so active, so " with us " ! My friend was so amazed... So I wasn't dreaming The changes were really that obvious Oh! something else Denis did today... He always hated those Lego games... But I kept buying them, because I liked them ) Well, today my Denis, for the first time in his life, wanted to play with them. He built some small things... It was still something lined up But there were blocks of three or four pieces put together Right now he is singing in front of the tv ) I can't believe this change! It's like I finally have a kid This is so great! I am so happy!! I hope this miracle will last But I guess even if it will end tomorrow, I am still happy, because at least now I know chelation really works for Denis. Oh! In all this happiness, I forgot to say that I actually had an unpleasant experience too Denis started to hit me LOL At first I thought he's playing or something, but I realized that he wasn't. I calmed him down with some good hugs though So... what else can I say... I am so happy I wanted to share this with you, because none of these would have been possible without your help. I hope I will not have problems in the future, and I really hope chelation works for everybody! Thank you again so much!! Have a really great evening Valentina _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 Hi Valentina I am so happy to see you posting something here so everyone can " meet you " . All, I have been " talking " to Valentina on another list -- for a very short time-- maybe a week or two? And have found her sooooo inspiring. Not sure which part exactly it is that is so inspiring -- I guess really it is all of it! the whole thing! Moria At 09:01 PM 11/28/2001 +0000, you wrote: > > >Hi Moria, >Hi everybody, > >My name is Valentina and I live in Arad, Romania. My son Denis (3 yo) >was diagnosed a month ago as being autistic. Well... like many of your >kids probably, he was perfectly normal in his first year of life, but >after that... UFF!! I kind of lost him And I want him back! >I'm not exactly new to this list but I didn't really have something to >say so far, so... I didn't want to give you junk to read. (I know how >many of you wish for a 35 hours day )LOL me too!) > >Anyway, the reasons I want to write something now... are two. >First, I wanted to thank you all! You are all so great! Absolutely >wonderful people! I have no idea what I would have done if I didn't >find this group, and if I didn't have all your experiences and advices >to learn from. Thank you Moria again, Andy, , everybody! All your >advices and all your work to maintain this group are really great! I've >learned so much lately... When I first heard about chelation I said to >myself that I could never be able to do something like this, from a lot of >reasons, and one of them would be because doctors here are not helping >much... actually they don't help at all... They don't know ANYTHING about >mercury being connected with autism, they never heard about thimerosal being >used in vaccines. I talked about this so far with three of them, and none >seemed like they had any idea about what I'm talking. One of them even >called me crazy >And another reason why I thought I couldn't chelate my son by myself >(I would have done it without doctors) I knew there is no way I could >have some analyses done for him... NO LAB in this whole country would >do a hair analyze! or a blood analyze to check mercury levels. The only >available test I found, was some analyze for copper in blood. And that was >at a price.... UFF!! Listening you talking about all those tests that I >never heard of... UFF! The sad part is that the labs here never heard of >them. > >Anyway, I do have the courage now to chelate Denis even without >doctors and without the proper analyses because I have all your >experience, and because I know there is no other way! > >Oh! I forgot to say that also, we don't have (in this city) some >special schools for these kids. Any kind of special education. I would >have been thankful if I could have found some place where I can take >him, any kind of kindergarten. But no kindergarten wanted to get him, >because they said " he is too weird " .... long story >So again, chelation was the only option for us! > >So I asked a friend of mine from the States to buy and send me some >ALA. (I couldn't find this either here. or Chemet) > >So, the second reason I wanted to write this email for, is because >today, me and Denis started chelation. Amazing, but I've seen the >changes in the first 2-3 hours! (I gave him 10mg ALA with each dose. >he is 37 lbs.) > >First of all, he is echolalic and apraxic He would never repeat >words after me. Only from tv or radio. But this morning I asked him if >he is playing and he repeated exactly my words! And I could even >understand them! >And anyway, all day he repeated words after me... and he talked all >day! I am so sorry I cannot understand what he says... >But now he calls me " maiiii " > >Another great thing, he didn't cry, yell, rolled on the floor, all >day! Not even once! This is so incredible for me I got so used to >his tantrums > >When we went out for a walk, he looked at the people, buildings... It >was so amazing I felt like for the first time in my life I am out >with Denis He was always so absent... > >We went to a friend of mine, because I wanted somebody to tell me that >I'm not dreaming Well, this friend of mine never heard Denis >speaking before. But this time, we went in there and Denis started to >talk and he talked and talked ) And it was not just the talking >part. He was so active, so " with us " ! My friend was so amazed... >So I wasn't dreaming The changes were really that obvious > >Oh! something else Denis did today... >He always hated those Lego games... But I kept buying them, because I >liked them ) Well, today my Denis, for the first time in his life, >wanted to play with them. He built some small things... It was still >something lined up But there were blocks of three or four pieces >put together > >Right now he is singing in front of the tv ) >I can't believe this change! It's like I finally have a kid This is >so great! I am so happy!! I hope this miracle will last >But I guess even if it will end tomorrow, I am still happy, because at least >now I know chelation really works for Denis. > >Oh! In all this happiness, I forgot to say that I actually had an >unpleasant experience too Denis started to hit me LOL >At first I thought he's playing or something, but I realized that he >wasn't. I calmed him down with some good hugs though > >So... what else can I say... I am so happy I wanted to share this >with you, because none of these would have been possible without your >help. I hope I will not have problems in the future, and I really hope >chelation works for everybody! > >Thank you again so much!! >Have a really great evening > > >Valentina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 If ALA brings such immediate relief you might try feeding him lots of sulfury foods. He may be low in them. Andy --- In @y..., " Valentina Ardelean " <valscharpf@h...> wrote: > > > Hi Moria, > Hi everybody, > > My name is Valentina and I live in Arad, Romania. My son Denis (3 yo) > was diagnosed a month ago as being autistic. Well... like many of your > kids probably, he was perfectly normal in his first year of life, but > after that... UFF!! I kind of lost him And I want him back! > I'm not exactly new to this list but I didn't really have something to > say so far, so... I didn't want to give you junk to read. (I know how > many of you wish for a 35 hours day )LOL me too!) > > Anyway, the reasons I want to write something now... are two. > First, I wanted to thank you all! You are all so great! Absolutely > wonderful people! I have no idea what I would have done if I didn't > find this group, and if I didn't have all your experiences and advices > to learn from. Thank you Moria again, Andy, , everybody! All your > advices and all your work to maintain this group are really great! I've > learned so much lately... When I first heard about chelation I said to > myself that I could never be able to do something like this, from a lot of > reasons, and one of them would be because doctors here are not helping > much... actually they don't help at all... They don't know ANYTHING about > mercury being connected with autism, they never heard about thimerosal being > used in vaccines. I talked about this so far with three of them, and none > seemed like they had any idea about what I'm talking. One of them even > called me crazy > And another reason why I thought I couldn't chelate my son by myself > (I would have done it without doctors) I knew there is no way I could > have some analyses done for him... NO LAB in this whole country would > do a hair analyze! or a blood analyze to check mercury levels. The only > available test I found, was some analyze for copper in blood. And that was > at a price.... UFF!! Listening you talking about all those tests that I > never heard of... UFF! The sad part is that the labs here never heard of > them. > > Anyway, I do have the courage now to chelate Denis even without > doctors and without the proper analyses because I have all your > experience, and because I know there is no other way! > > Oh! I forgot to say that also, we don't have (in this city) some > special schools for these kids. Any kind of special education. I would > have been thankful if I could have found some place where I can take > him, any kind of kindergarten. But no kindergarten wanted to get him, > because they said " he is too weird " .... long story > So again, chelation was the only option for us! > > So I asked a friend of mine from the States to buy and send me some > ALA. (I couldn't find this either here. or Chemet) > > So, the second reason I wanted to write this email for, is because > today, me and Denis started chelation. Amazing, but I've seen the > changes in the first 2-3 hours! (I gave him 10mg ALA with each dose. > he is 37 lbs.) > > First of all, he is echolalic and apraxic He would never repeat > words after me. Only from tv or radio. But this morning I asked him if > he is playing and he repeated exactly my words! And I could even > understand them! > And anyway, all day he repeated words after me... and he talked all > day! I am so sorry I cannot understand what he says... > But now he calls me " maiiii " > > Another great thing, he didn't cry, yell, rolled on the floor, all > day! Not even once! This is so incredible for me I got so used to > his tantrums > > When we went out for a walk, he looked at the people, buildings... It > was so amazing I felt like for the first time in my life I am out > with Denis He was always so absent... > > We went to a friend of mine, because I wanted somebody to tell me that > I'm not dreaming Well, this friend of mine never heard Denis > speaking before. But this time, we went in there and Denis started to > talk and he talked and talked ) And it was not just the talking > part. He was so active, so " with us " ! My friend was so amazed... > So I wasn't dreaming The changes were really that obvious > > Oh! something else Denis did today... > He always hated those Lego games... But I kept buying them, because I > liked them ) Well, today my Denis, for the first time in his life, > wanted to play with them. He built some small things... It was still > something lined up But there were blocks of three or four pieces > put together > > Right now he is singing in front of the tv ) > I can't believe this change! It's like I finally have a kid This is > so great! I am so happy!! I hope this miracle will last > But I guess even if it will end tomorrow, I am still happy, because at least > now I know chelation really works for Denis. > > Oh! In all this happiness, I forgot to say that I actually had an > unpleasant experience too Denis started to hit me LOL > At first I thought he's playing or something, but I realized that he > wasn't. I calmed him down with some good hugs though > > So... what else can I say... I am so happy I wanted to share this > with you, because none of these would have been possible without your > help. I hope I will not have problems in the future, and I really hope > chelation works for everybody! > > Thank you again so much!! > Have a really great evening > > > Valentina > > > _________________________________________________________________ > Get your FREE download of MSN Explorer a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 Valentina: You can order Taurine and MSM from Kirkman labs in Lake Oswego, Oregon. Their website is kirkmanlabs.com. Jeri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 >If ALA brings such immediate relief you might try feeding him lots of >sulfury foods. He may be low in them. > >Andy Hi Andy, Hi everybody, Thank you for your advice. I really appreciate it. I will try to give Denis the foods you mentioned and see what's happening. Also, somebody told me about some sulfury water... I guess I will try that too if I will find it. I have to say though that from all the things I've read trying to understand about the chemistry of the body and about what's happening in there during chelation, one thing that it's kind of difficult for me to make up my mind about is if Denis has a sulfur deficiency or not. My impression if that he does, but I just wish I could be sure if it's the lack of sulfur the problem, or the body's inability to process it (and it just gets rid of it). (or in this case it would still be considered low in sulfur and I would have to give him sulfury foods...? I don't know) I am not sure if all my information about this are correct, because I've read too many things from too many places, trying to cover the missing pieces, and compare with the things I know about Denis, but I'm still not sure about it... It would be great to be able to do a plasma cysteine, but... nobody here heard about something like this. Is there any other test I could ask about? If you could tell me please some of the symptoms that are usually associated with lack of sulfur in the body... and also with excess of it.... (Or maybe somebody else could help me... I would really appreciate it.) Or better, maybe you could direct me to some reliable places where I could read about these things... (I got tired searching the internet for this subject and finding stuff about flowers and horses I've read those too though) I guess it would help to make an idea if I will tell you that Denis has the purple circles under the eyes (sometimes they look pretty bad), also he is hyper (especially in the evenings), his urine sometimes smells too strong (maybe it's my imagination here), also (not sure how important this is) his nails are... thin? (I can't find a better word) they are not strong, firm; and they grow pretty slow... his skin is rough, like the skin of a mature person. On the other hand, he is really tall. He was always a lot taller than the other kids at his age. But he is skinny and his muscles are so soft... it's a really strange feeling when you touch him. like a soft sponge maybe... Also, there is something weird about the way he walks or run. He sometimes does it like he just learned how to, like he just started to walk. I'm not sure how relevant these things are for telling if a person could be low in sulfur, but I've read something somewhere about how the lack of sulfur results in degeneration of collagen, cartilage, ligaments, and tendons and I was wondering... I tried to find some kind of salt with sulfate, so I can test it and see how Denis reacts, but unfortunately until now I wasn't able to find anything. Also I tried to find and buy some Taurine or NAC or MSM, but again, no luck I just can't find them in the pharmacies here. Not sure why. Anyway, please let me know if there is a way to tell if Denis really has a sulfur deficiency from the things I told you... Thank you very much for all your help! Valentina _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 >You can order Taurine and MSM from Kirkman labs in Lake Oswego, >Oregon. >Their website is kirkmanlabs.com. > >Jeri Hi Jeri, Thanks for the information, but I know how to find places on the internet who sell lots of things. My problem is that I don't have the necessary tools to pay for them. We don't have credit cards here and also, I would prefer to buy something loco, because it would be much cheaper. I mean I am talking about a HUGE difference. But, if this would be my only option, if I would really need to buy those things from somewhere out of my country, let's say I could do something about it (in case I won't have any other choice), but I was trying first to make sure (if possible) that this is indeed my problem. Thanks a lot for the info anyway Valentina _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 I have to say we chelated my son for 9 months, I stopped when I noticed the corn in DMSA was making him nutty & aggressive. THIS is our first weekend chelating again in 2 months, AND MY SON WAS SO VERBAL & EXPRESSIVE today (ONLY ALA chelating) Can I use ALA everyday??? Or do I still need to give him off time for his liver? If I do use it every day, can I do 8 hours sometimes? (As waking him every 4 on weekend is fine, but on school days, not good) I am AMAZED at how he acts once again on ALA!-Shari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 At 11:22 PM 12/2/2001 -0500, you wrote: >I have to say we chelated my son for 9 months, I stopped when I noticed the corn in DMSA was making him nutty & aggressive. THIS is our first weekend chelating again in 2 months, AND MY SON WAS SO VERBAL & EXPRESSIVE today (ONLY ALA chelating) Can I use ALA everyday??? Or do I still need to give him off time for his liver? If I do use it every day, can I do 8 hours sometimes? (As waking him every 4 on weekend is fine, but on school days, not good) I am AMAZED at how he acts once again on ALA!-Shari Hi Shari, Basics of Andy's recommendations for how to do it are here: /files/Andy_dose_sched Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2001 Report Share Posted December 3, 2001 Thanks Moria, so I guess I can't do ALA every day! Darn Hope the effect lasts-Shari Re: [ ] I'm so happy At 11:22 PM 12/2/2001 -0500, you wrote: >I have to say we chelated my son for 9 months, I stopped when I noticed the corn in DMSA was making him nutty & aggressive. THIS is our first weekend chelating again in 2 months, AND MY SON WAS SO VERBAL & EXPRESSIVE today (ONLY ALA chelating) Can I use ALA everyday??? Or do I still need to give him off time for his liver? If I do use it every day, can I do 8 hours sometimes? (As waking him every 4 on weekend is fine, but on school days, not good) I am AMAZED at how he acts once again on ALA!-Shari Hi Shari, Basics of Andy's recommendations for how to do it are here: /files/Andy_dose_sched Moria ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2001 Report Share Posted December 3, 2001 Epsom salt is generally sold in the first aid section here and marketed as a remedy for sore muscles. They usually sell it in carboard cartons like milk cartons. Elsewhere they may package it and market it differently. S On Sun, 02 December 2001, " Valentina Ardelean " wrote: > > <html><body> > <tt> > <BR> > <BR> > & gt;If ALA brings such immediate relief you might try feeding him lots of <BR> > & gt;sulfury foods. & nbsp; He may be low in them.<BR> > & gt;<BR> > & gt;Andy<BR> > <BR> > <BR> > Hi Andy,<BR> > Hi everybody,<BR> > <BR> > Thank you for your advice. I really appreciate it. I will try to give<BR> > Denis the foods you mentioned and see what's happening. Also,<BR> > somebody told me about some sulfury water... I guess I will try that<BR> > too if I will find it.<BR> > <BR> > I have to say though that from all the things I've read trying to<BR> > understand about the chemistry of the body and about what's happening<BR> > in there during chelation, one thing that it's kind of difficult for<BR> > me to make up my mind about is if Denis has a sulfur deficiency or<BR> > not. My impression if that he does, but I just wish I could be sure if<BR> > it's the lack of sulfur the problem, or the body's inability to<BR> > process it (and it just gets rid of it).<BR> > (or in this case it would still be considered low in sulfur and I<BR> > would have to give him sulfury foods...? I don't know)<BR> > <BR> > I am not sure if all my information about this are correct, because<BR> > I've read too many things from too many places, trying to cover the<BR> > missing pieces, and compare with the things I know about Denis, but<BR> > I'm still not sure about it...<BR> > <BR> > It would be great to be able to do a plasma cysteine, but... nobody<BR> > here heard about something like this. Is there any other test I could<BR> > ask about?<BR> > <BR> > If you could tell me please some of the symptoms that are usually<BR> > associated with lack of sulfur in the body... and also with excess of<BR> > it.... (Or maybe somebody else could help me... I would really<BR> > appreciate it.) Or better, maybe you could direct me to some reliable<BR> > places where I could read about these things... (I got tired searching<BR> > the internet for this subject and finding stuff about flowers and<BR> > horses I've read those too though)<BR> > <BR> > I guess it would help to make an idea if I will tell you that Denis<BR> > has the purple circles under the eyes (sometimes they look pretty<BR> > bad), also he is hyper (especially in the evenings), his urine<BR> > sometimes smells too strong (maybe it's my imagination here), also<BR> > (not sure how important this is) his nails are... thin? (I can't find<BR> > a better word) they are not strong, firm; and they grow pretty slow...<BR> > his skin is rough, like the skin of a mature person.<BR> > On the other hand, he is really tall. He was always a lot taller than<BR> > the other kids at his age. But he is skinny and his muscles are so<BR> > soft... it's a really strange feeling when you touch him. like a soft<BR> > sponge maybe...<BR> > Also, there is something weird about the way he walks or run. He<BR> > sometimes does it like he just learned how to, like he just started to<BR> > walk. I'm not sure how relevant these things are for telling if a<BR> > person could be low in sulfur, but I've read something somewhere about<BR> > how the lack of sulfur results in degeneration of collagen, cartilage,<BR> > ligaments, and tendons and I was wondering...<BR> > <BR> > I tried to find some kind of salt with sulfate, so I can test it and<BR> > see how Denis reacts, but unfortunately until now I wasn't able to<BR> > find anything. Also I tried to find and buy some Taurine or NAC or<BR> > MSM, but again, no luck I just can't find them in the pharmacies<BR> > here. Not sure why.<BR> > <BR> > Anyway, please let me know if there is a way to tell if Denis really<BR> > has a sulfur deficiency from the things I told you...<BR> > <BR> > Thank you very much for all your help!<BR> > <BR> > <BR> > <BR> > Valentina<BR> > <BR> > <BR> > _________________________________________________________________<BR> > Get your FREE download of MSN Explorer at <a href= " http://explorer.msn.com/intl.asp " >http://explorer.msn.com/intl.asp</a><BR> > <BR> > </tt> > > > <br> > <tt> > =======================================================<BR> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2001 Report Share Posted December 3, 2001 At 11:21 AM 12/3/2001 -0500, you wrote: >Thanks Moria, so I guess I can't do ALA every day! Darn Hope the effect lasts-Shari Hi Shari, It may also be worthwhile to wonder if your kiddo is low sulfur. ALA is kinda sulfury, so some of the effect may be from that. Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2001 Report Share Posted December 4, 2001 Where can I read up on sulphur defieciency???-Shari Re: [ ] I'm so happy At 11:21 AM 12/3/2001 -0500, you wrote: >Thanks Moria, so I guess I can't do ALA every day! Darn Hope the effect lasts-Shari Hi Shari, It may also be worthwhile to wonder if your kiddo is low sulfur. ALA is kinda sulfury, so some of the effect may be from that. Moria Quote Link to comment Share on other sites More sharing options...
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