Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 Congratulations! Sorry about those lesions, though! Love, n Back from Neuro Well back from a positive neuro visit. Even though I now have 134 lesions ( up from 10) My neuro is okay with me not going back on anything until I have to. As long as my quality of life is good and I have few symptoms, he will let be medication free but he wants me to go on Vitamin D because it does help people with MS help decrease the energy level of the white blood cells. 2000 UI a day. I agreed to that. It is easy to do and can only make me healthier. The burning sensation, it will not go away.It seems stronger and stronger, every day.The pain, it is intense.This illness, doesn't make any sense.http://ca.geocities.com/games_identity2001/filmcanisterlights.htmlhttp://www.mswebpals.org/amanda.htmhttp://ca.groups.yahoo.com/group/CanadaMS/ ReillyCo-Camp AdvisorNorth Mississauga, White Oaks AreaMississauga, Ontario Girl Guides of Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 14 lesions since last October when I had 10. I know he wants me to go back on a CRAB medication to keep MS at bay but when I was on copaxone I was constantly having MS attacks. Vit. D sounds good, so I will follow that suggestion. It can't hurt. The burning sensation, it will not go away.It seems stronger and stronger, every day.The pain, it is intense.This illness, doesn't make any sense.http://ca.geocities.com/games_identity2001/filmcanisterlights.htmlhttp://www.mswebpals.org/amanda.htmhttp://ca.groups.yahoo.com/group/CanadaMS/ ReillyCo-Camp AdvisorNorth Mississauga, White Oaks AreaMississauga, Ontario Girl Guides of Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 14 lesions since last October when I had 10. I know he wants me to go back on a CRAB medication to keep MS at bay but when I was on copaxone I was constantly having MS attacks. Vit. D sounds good, so I will follow that suggestion. It can't hurt. The burning sensation, it will not go away.It seems stronger and stronger, every day.The pain, it is intense.This illness, doesn't make any sense.http://ca.geocities.com/games_identity2001/filmcanisterlights.htmlhttp://www.mswebpals.org/amanda.htmhttp://ca.groups.yahoo.com/group/CanadaMS/ ReillyCo-Camp AdvisorNorth Mississauga, White Oaks AreaMississauga, Ontario Girl Guides of Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 Oh my goodness, . Four in less than a year? I hope that's it for you and you'll never again have any added! wrote: 14 lesions since last October when I had 10. I know he wants me to go back on a CRAB medication to keep MS at bay but when I was on copaxone I was constantly having MS attacks. Vit. D sounds good, so I will follow that suggestion. It can't hurt. The burning sensation, it will not go away.It seems stronger and stronger, every day.The pain, it is intense.This illness, doesn't make any sense.http://ca.geocities.com/games_identity2001/filmcanisterlights.htmlhttp://www.mswebpals.org/amanda.htmhttp://ca.groups.yahoo.com/group/CanadaMS/ ReillyCo-Camp AdvisorNorth Mississauga, White Oaks AreaMississauga, Ontario Girl Guides of Canada Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Get your email and more, right on the new Yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 I was surprised to read your post. I also had constant MS attacks while on Copaxone. I stopped taking it last year & I feel much better now. I thought I was crazy thinking all this. E. Colorado "Insanity runs in my family. It practically gallops." Cary Grant RE: Back from Neuro 14 lesions since last October when I had 10. I know he wants me to go back on a CRAB medication to keep MS at bay but when I was on copaxone I was constantly having MS attacks. Vit. D sounds good, so I will follow that suggestion. It can't hurt. The burning sensation, it will not go away. It seems stronger and stronger, every day. The pain, it is intense. This illness, doesn't make any sense. http://ca.geocities.com/games_identity2001/filmcanisterlights.html http://www.mswebpals.org/amanda.htm http://ca.groups.yahoo.com/group/CanadaMS/ Reilly Co-Camp Advisor North Mississauga, White Oaks Area Mississauga, Ontario Girl Guides of Canada Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 Ditto here! Love, n RE: Back from Neuro 14 lesions since last October when I had 10. I know he wants me to go back on a CRAB medication to keep MS at bay but when I was on copaxone I was constantly having MS attacks. Vit. D sounds good, so I will follow that suggestion. It can't hurt. The burning sensation, it will not go away.It seems stronger and stronger, every day.The pain, it is intense.This illness, doesn't make any sense.http://ca.geocities.com/games_identity2001/filmcanisterlights.htmlhttp://www.mswebpals.org/amanda.htmhttp://ca.groups.yahoo.com/group/CanadaMS/ ReillyCo-Camp AdvisorNorth Mississauga, White Oaks AreaMississauga, Ontario Girl Guides of Canada Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free. No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.405 / Virus Database: 268.11.7/435 - Release Date: 8/31/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 As with a lot of medications I have used over the past 10 years, a lot don't really work for me. With the electric shock pain we tried 5 different medications and combination of medications and they did not help. Now I am off all the MS drugs I was on. I still have a few off again on again shocks, but nothing like I used to. I can live with the experience I have right now. May be should take a poll. Those on the CRAB drugs ...are you have less, the same or more attacks on them? Those who stopped the CRAB drugs all together, are you better or worse? The burning sensation, it will not go away.It seems stronger and stronger, every day.The pain, it is intense.This illness, doesn't make any sense.http://ca.geocities.com/games_identity2001/filmcanisterlights.htmlhttp://www.mswebpals.org/amanda.htmhttp://ca.groups.yahoo.com/group/CanadaMS/ ReillyCo-Camp AdvisorNorth Mississauga, White Oaks AreaMississauga, Ontario Girl Guides of Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 , I am on Rebif. I have not had any progression or new lesions in the 22 months since I have started the shots. I went to the neuro last week and she was thrilled with how well I am doing. I am able to exercise and have a full life. I can live with doing injections 3x a week J Connie From: MSersLife [mailto:MSersLife ] On Behalf Of Sent: Saturday, September 02, 2006 9:48 AM To: MSersLife Subject: RE: Back from Neuro As with a lot of medications I have used over the past 10 years, a lot don't really work for me. With the electric shock pain we tried 5 different medications and combination of medications and they did not help. Now I am off all the MS drugs I was on. I still have a few off again on again shocks, but nothing like I used to. I can live with the experience I have right now. May be should take a poll. Those on the CRAB drugs ...are you have less, the same or more attacks on them? Those who stopped the CRAB drugs all together, are you better or worse? The burning sensation, it will not go away. It seems stronger and stronger, every day. The pain, it is intense. This illness, doesn't make any sense. http://ca.geocities.com/games_identity2001/filmcanisterlights.html http://www.mswebpals.org/amanda.htm http://ca.groups.yahoo.com/group/CanadaMS/ Reilly Co-Camp Advisor North Mississauga, White Oaks Area Mississauga, Ontario Girl Guides of Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 This is really good news, Connie; thank you for this post, love, n RE: Back from Neuro , I am on Rebif. I have not had any progression or new lesions in the 22 months since I have started the shots. I went to the neuro last week and she was thrilled with how well I am doing. I am able to exercise and have a full life. I can live with doing injections 3x a week J Connie From: MSersLife [mailto:MSersLife ] On Behalf Of Sent: Saturday, September 02, 2006 9:48 AMTo: MSersLife Subject: RE: Back from Neuro As with a lot of medications I have used over the past 10 years, a lot don't really work for me. With the electric shock pain we tried 5 different medications and combination of medications and they did not help. Now I am off all the MS drugs I was on. I still have a few off again on again shocks, but nothing like I used to. I can live with the experience I have right now. May be should take a poll. Those on the CRAB drugs ...are you have less, the same or more attacks on them? Those who stopped the CRAB drugs all together, are you better or worse? The burning sensation, it will not go away.It seems stronger and stronger, every day.The pain, it is intense.This illness, doesn't make any sense.http://ca.geocities.com/games_identity2001/filmcanisterlights.htmlhttp://www.mswebpals.org/amanda.htmhttp://ca.groups.yahoo.com/group/CanadaMS/ ReillyCo-Camp AdvisorNorth Mississauga, White Oaks AreaMississauga, Ontario Girl Guides of Canada No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.405 / Virus Database: 268.11.7/436 - Release Date: 9/1/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 good to know Quote Link to comment Share on other sites More sharing options...
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